History -
The first version of this site went online in June of 2000. Back in
the day, it only had about 10 pages and a message board. Now, it has
over 60 pages of information and is the place most patients and
doctors research Pilonidals.
This site began as a personal effort and has grown into its own
legal entity. In September of 2004, we became the Pilonidal
Support Alliance, a California Non-Profit Corporation. As of
January 2005 we are
tax exempt under IRS section 501(c)(3) and
donations are fully tax deductible.
Today-
We are the worldwide #1 destination for information about
Pilonidal Disease and treatment. Visitors to the site have
come from: Albania, Andorra, Argentina, Aruba, Australia, Austria,
Bahamas, Belgium, Belize, Bermuda, Bosnia, Botswana, Brazil, Brunei,
Bulgaria, Canada, Cayman Islands, Chile, China, Columbia, Costa
Rico, Croatia, Cyprus, Denmark, Dominican Republic, Egypt, Estonia, Finland,
France, Germany, Ghana, Gibraltar, Greece, Honduras, Hong Kong,
Hungary, Iceland, India, Indonesia, Ireland, Israel, Italy, Japan,
Latvia, Lebanon, Lithuania, Luxembourg, Macedonia, Mauritius, Malta,
Malaysia, Mexico, Morocco, Nepal, Netherlands, New Zealand, Norway,
Oman, Pakistan, Peru, Philippines, Poland, Portugal, Romania,
Russia, Samoa, Saudi Arabia,
Serbia, Slovakia, Singapore, Spain, South Africa, Sri Lanka, Sweden, Switzerland,
Syria, Taiwan, Thailand, Trinidad, Turkey, United Arab Emirates, United Kingdom, USA,
Vietnam, Yemen, Yugoslavia, Zambia and Zimbabwe.
The Pilonidal Support Alliance:
Sandy Fischler, Founder and Executive Director
Dr. John Bascom, Board of Directors
Jayson Perry, Board of Directors
Mailing Address:
The Pilonidal Support Alliance
5911 Cerritos Ave.
Long Beach, CA 90805
562-254-6839 voice
562-428-1246 fax
Medical Advisory Board for the Pilonidal Support Alliance:
Dr. John Bascom (US)
Dr. Tom Bascom (US)
Dr. James Pingree (US)
Dr. Asha Senapati (UK)
Dr. Paul Kitchen (Australia)
Disclaimer:
The Pilonidal Support Alliance is not a medical
organization. We maintain this website as a support mechanism and
education resource, not as a substitute for care from a licensed
medical professional.
The Pilonidal Support Alliance maintains this website for
information and support purposes only. Visitors are strongly advised
not to perform a self-diagnosis of your personal condition based on
the information found on the website without consulting a competent
licensed physician.
Medical opinions expressed or medical advice given on this website
are from non-professionals, unless explicitly stated otherwise and
qualified by a source. We are not responsible for the content we
hyperlink to.
The Pilonidal Support Alliance will not make referrals to specific
medical professionals. All recommendations listed in the forums of
this site have been submitted by patients.
The Pilonidal Support Alliance does not accept advertising or
endorse the use of any product or service that may be mentioned.
Always consult with your own medical professional(s).
The Pilonidal Support Alliance will not assume any responsibility or
liability for any action of any person who disregards this
disclaimer. Privacy
The Pilonidal Support Alliance is committed to respecting
visitors' and patients' privacy and confidentiality and will not
disclose their identities in connection with their medical records
or history.
No information pertaining to a user's identity is required to
obtain a user account for the discussion board. Disclosure of
information on the discussion board is voluntary. Information
obtained through the discussion board's signup process and email
communications with Pilonidal.org will not, under any circumstance,
be forwarded to third-parties or disclosed publicly on the site.
**MAY 2001 - A good story**
I'm celebrating today! It was one year ago that I had my cyst removed and it is the best thing I have ever done for myself. My wound closed perfectly the first time and I've had no real problems since (I do still check it every day, just to be sure). Removing the cyst gave me back my life: I've lost 30 pounds, started eating right and exercising again, and started dating again. I no longer spend 2 weeks out of every month with a wad of gauze taped to my backside with a draining cyst. I no longer have to pack medical supplies when I travel. I no longer worry about what I will tell a potential mate about the oozing lump on my tailbone. 8 weeks of packing was more than worth it to have the freedom to live a normal life, even a recurrence doesn't scare me anymore. For those of you who get through your surgery and go on to live a normal life, please come back here and post your success story -- remember how scary it was the first time you came here and saw nothing but bad stories, for every horror story there are at least 10 good stories so please help me out by posting your successes as well as the traumas! I'm also sending a thank you note to my surgeon, he did a damn fine job!
-Sandy
www.4thwallevents.com |
