About Pilolnidal Support Alliance 
History
The first version of this site went online in June of 2000. Back in the day, it only had about 10 pages and a message board. Now, it has over 60 pages of information and is the place most patients and doctors research Pilonidals.
This site began as a personal effort and has grown into its own legal entity. In September of 2004, we became the Pilonidal Support Alliance, a California Non-Profit Corporation. As of January 2005 we are tax exempt under IRS section 501(c)(3) and donations are fully tax deductible.
Today
We are the worldwide #1 destination for information about Pilonidal Disease and treatment. Visitors to the site have come from 88 Countries including Albania, Andorra, Argentina, Aruba, Australia, Austria, Bahamas, Belgium, Belize, Bermuda, Bosnia, Botswana, Brazil, Brunei, Bulgaria, Canada, Cayman Islands, Chile, China, Columbia, Costa Rico, Croatia, Cyprus, Denmark, Dominican Republic, Egypt, Estonia, Finland, France, Germany, Ghana, Gibraltar, Greece, Honduras, Hong Kong, Hungary, Iceland, India, Indonesia, Ireland, Israel, Italy, Japan, Latvia, Lebanon, Lithuania, Luxembourg, Macedonia, Mauritius, Malta, Malaysia, Mexico, Morocco, Nepal, Netherlands, New Zealand, Norway, Oman, Pakistan, Peru, Philippines, Poland, Portugal, Romania, Russia, Samoa, Saudi Arabia, Serbia, Slovakia, Singapore, Spain, South Africa, Sri Lanka, Sweden, Switzerland, Syria, Taiwan, Thailand, Trinidad, Turkey, United Arab Emirates, United Kingdom, USA, Vietnam, Yemen, Yugoslavia, Zambia, Zimbabwe.
The Pilonidal Support Alliance Governance
- Sandy Fischler, Founder and Executive Director
- Dr. John Bascom, Board of Directors
- Jayson Perry, Board of Directors
Medical Advisory Board for the Pilonidal Support Alliance
- Dr. John Bascom (US)
- Dr. Tom Bascom (US)
- Dr. James Pingree (US)
- Dr. Asha Senapati (UK)
- Dr. Paul Kitchen (Australia)
Mailing Address
The Pilonidal Support Alliance
5911 Cerritos Ave.
Long Beach, CA 90805
562-254-6839 voice
562-428-1246 fax
Disclaimers
The Pilonidal Support Alliance is not a medical organization. We maintain this web site as a support mechanism and education resource, not as a substitute for care from a licensed medical professional.
The Pilonidal Support Alliance maintains this web site for information and support purposes only. Visitors are strongly advised not to perform a self-diagnosis of your personal condition based on the information found on the web site without consulting a competent licensed physician.
Medical opinions expressed or medical advice given on this web site are from non-professionals, unless explicitly stated otherwise and qualified by a source. We are not responsible for the content we hyperlink to.
The Pilonidal Support Alliance will not make referrals to specific medical professionals. All recommendations listed in the forums of this site have been submitted by patients.
The Pilonidal Support Alliance does not accept advertising or endorse the use of any product or service that may be mentioned.
Always consult with your own medical professional(s).
The Pilonidal Support Alliance will not assume any responsibility or liability for any action of any person who disregards this disclaimer.
Privacy
The Pilonidal Support Alliance is committed to respecting visitors' and patients' privacy and confidentiality and will not disclose their identities in connection with their medical records or history.
No information pertaining to a user's identity is required to obtain a user account for the discussion board. Disclosure of information on the discussion board is voluntary. Information obtained through the discussion board's signup process and email communications with Pilonidal.org will not, under any circumstance, be forwarded to third-parties or disclosed publicly on the site.
**MAY 2001 - A good story**
I'm celebrating today! It was one year ago that I had my cyst removed and it is the best thing I have ever done for myself. My wound closed perfectly the first time and I've had no real problems since (I do still check it every day, just to be sure). Removing the cyst gave me back my life: I've lost 30 pounds, started eating right and exercising again, and started dating again. I no longer spend 2 weeks out of every month with a wad of gauze taped to my backside with a draining cyst. I no longer have to pack medical supplies when I travel. I no longer worry about what I will tell a potential mate about the oozing lump on my tailbone. 8 weeks of packing was more than worth it to have the freedom to live a normal life, even a recurrence doesn't scare me anymore. For those of you who get through your surgery and go on to live a normal life, please come back here and post your success story -- remember how scary it was the first time you came here and saw nothing but bad stories, for every horror story there are at least 10 good stories so please help me out by posting your successes as well as the traumas! I'm also sending a thank you note to my surgeon, he did a damn fine job!
-Sandy www.4thwallevents.com