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Archive August, 2003 to September, 2003


Date:

September 29, 2003

Story

Hello I'm a 25 year old female who has had this awful disease since I was 15. Not knowing what it was and way to embarrased to tell anyone about it, I have just kept it to myself until now that I'm pregnant with my second child and in so much pain. I have had about 5 flare ups so far in the 8 months of my pregnancy. I cannot wait to give birth not only to see my baby but to get rid of this other baby that has made my life a living hell. I will be having surgery 2 weeks after my delivery day. All of your stories have helped me alot, I can see that the recovery is a bit painful but worth it. Wish me luck.....


Date:
September 29, 2003

Story

Hi! I am a 49 year old female, and thought my experience with what i learned was a pilonidal cyst very weird until I found this web site. Up until three years ago, I never had much medical problems. One day I felt a slight itch around my back side . I just assumed it was a pimple and did indeed find a small lump. I squeezed it an felt a pop, end of story or so I thought. A few days later the small bump had turned into a much larger bump, so I had my huband take a look. We both sill figured it was a zit so he took a needle to it and picked and squeezed some more. What a mistake!!! The next day I went to my family doctor and showed her the rapidly growing lump. She stated it was a pilonidal cyst and it being friday, I'd be seeing the in side of an e.r. before the weekend was up! The next day , it was bad enough to send me to a med center where there the doctor just shook his head in amazment and disgust and gave me a hand full of perscriptions for antibotics. While I was getting dressed he came back to yell at me again about how serious this was and I better take the antibotics as soon as possible. By sunday morning, I didnt think I could walk, and was in so much pain, my husband drove me to the e.r. in my pajamas. To make a long story short, the e.r. docs assumed I just let it go to this point without a care in the world! What point you may ask? The cyst had grown so large in such a short time my whole left rear was purple and hot from the pressure. They said the cyst was the size of a soda can. They used a local anesthetic which just burned and caused more pressure. It wound up taking two doctors, one to cut and do the local, and the other to squeeze the pus out. Half way threw, a smell of which I never hope to whiff again seeped out and gagged me ,my husband, the two docs, and the nurse!! I would have been beyond humiliated if I hadnt been in so much pain. Anyway, after weeks of follow up and taking four to six showers a day to aid in drainage. The thing as not showed up since. I told my doctor, if that thing had gotten any bigger, it would have come out walkin ,talkin and wearing a party hat. I'm keeping my fingers crossed and away from any area down there that might send me spiraling back to that horrible situation ever again.


Date:
September 28, 2003

Story

Hi, I am a 25 year old male and I had my first surgery June 17, 2003.About 6 months before this, I started having bad pains under my tailbone(ass),extremely bad to the point where I couldnt sleep or sit or work. I thought I had some kind of hemmorroids because I had recently gained about 25 lbs, (got clean off drugs and started finally eating, which was good), when my wife brought me in to the local hospital, there he said I had a pilonoidal syst and took me straight to surgery that same hour where I had a an epidural(sp?)for pain, 2 hours later, i was in a bed all done and on liquid morphine for the night, when i woke up that morning, I was ready to leave...I didnt know the wound had to be packed and it was the most horrid pain ive ever felt.I also had a young female nurse to hold my hand(which was more embarrassing), after that packing, Ihad to come back every day for almost 2 weeks before I finally told the doc that I couldnt take it any more( I was taking 3 pain injections before packing), he agreed and I was done.Its now September,3 months later and still leak out of my pants, very uncomfortable and very embarrassing, my only question is that after I drink( I drink whiskey, usually around a 1/5th a night,(please no preaching, I know its a bad thing, better than drugs though at this point) I know its a bad habit but anyway-----mornings after i drink, I get horrible blood leaks for around 6 hours after i wake up and am concerned that its the alcohol thats doing the harm.


Date:
September 27, 2003

Story

I am female was about 19 when I sat down and abruptly flew into the air from an excrutiating pain in the butt as some of you have experienced so vividly.

That was over 30 years ago and was told I had the heriditary pilonidol cyst. O joy. The entire sinus removed by a reputable surgeon. The incision was deep and was left open to heal from the inside out.

I took several hot sitz (soaks) baths a day and the wound was packed with medication and gauze after each bath to ensure it remained open. I returned to the doctor's office for weekly cauterization for some time.

It took some months for the wound to heal completely but here it is 30 years later and I have never had any reoccurence of the cyst. Yes, it was a very painful experience and I can't say it was the most dignified time of my life.. but at least it was a performance I never had to repeat!

It is important that you consult with the right physician. This same surgery is still performed and there are some new techniques - YOU CAN be helped.

sue ----


Date:
September 26, 2003

Story

I am a 26 year old male. I discovered I had the disease back in March of 2003. I had been living with it for about three years. I did not have much pain with mine, but just alot of leakage. One doctor had told me it was Hemroids so I continued to live with it. I finally developed a lump on my tailbone that eventually got worse and started leaking thru my pants. My doctor told me the only way to get rid of it was thru surgery. I had the surgery done on March 27 2003. They left the wound open to heal. this is the better way to have it done. Less risk of infection. I did not have a whole lot of pain. My wound was pretty large. One of my home health care nurses said she could actually see my tailbone. I was able to sit down in about a week. I work in Real Estate and also am a full time Firefighter. I was able to get back in the real estate pretty quickly. I was back at the fire department at 7 weeks. My wound had completely healed by the end of june but I reopened it. It then took another couple of weeks to heal again. I would do it again in a heartbeat. I never have to worry about it again. My doctor has only had one reoccurance out of all the surgeries he has done. I recommend anyone to have it done sooner than later, it is well worth it. I used this site alot when I first learned of my disease. There are a lot of horror stories, but don't let them scare you. If you find the right doctor everything will go smoothly.

BILL


Date:
September 25, 2003

Story

Hi everyone..i was having a pilonidal sinus problem for 1 week and first I noticed that I was starting to get a lump on the end of my tailbone. It didn't really hurt the first week, so I ignored it. By the end of the first week, it was very painful and on the second week i just felt it that I could no longer sit, or lie on my back, and walking...So, I called my doctor and he had me come and said that it was an pilonidal cyst..After that, i just began to search about the surgery types..Also my doc was already made an appointment for a flap procedure surgeon for the next week..At this time i searched the alternative types and discovered a new type of surgery for this sinus.. İt was a type using AgNO3 (not phenol)..

You can read some articles or visit the web sites below about this..

All i want to say that all the surgery operation takes only 30 minutes and they the prof. says that i will be able to sit,walk and doing everything one day after surgery without pain..only on the 4 th day after this operation i will have to go my doctor for a check-up that's all...

İf you don't want to lay on the bed at home or in the hospital for weeks i'll advise you this type... I'll try this surgery next wednesday and i'll write back to you..wish me luck...

the articles : 1- Maurice B.A. and Grenwood R.K.: A conservative treatment of pilonidal sinus. Br J Surg: 51: 510, 1964

2- Shorey, B.A.: Pilonidal sinus treated by phenol injection. Br J Surg. 62: 407 - 408, 1975

3- Karidakis GE: Easy and successfull treatment of pilonidal sinus after explanation of its causative process. Aust NZJ Surg62: 385 - 389, 1992

4- Vara - Thorbeck R., Mekinassi K., Bercnid S: Phenol treatment of pilonidal sinuses. Zentrabl Chir. 115: 777 - 780, 1990

5- Schneider İH, Thaler K, Kökckerliğn F.: Treatment of pilonidal sinuses by phenol injections. İn J Colorectal Dis 9: 200 - 202, 1994

6- Stansby G. Greatorex R: Phenol treatment of pilonidal sinuses of natal cleft Br. J Sung 76: 729 - 730, 1989

8- Wechselber ger G. Shoeller T.: Treatment of complicated pilonidal sinus. Eur J Surg (Norway) Oct 1999, 165 (10)p 1004

9- Hegge HG. Vas GA Patka P. Hoitsma HF.: Treatment of complicated or infected pilonidal sinus disease by local application of phenol. Surgery 1987, Jul 102, 52 - 4

10- Golligher j: Pilonidal sinus. in: Surgery of the Anus Rectum and Colon, 1989, pp 221 - 236

11- Yabe T, Furukawa M.: The origin of pilonidal, sinus, J Dermatol 1995 Sep: 22 (9)696 - 9

12- Stephens FO Stephens RB: Pilonidal sinus: management objectives, Aust NZJ Surg 1995 Aug: 65 (8): 558 - 60

13- Sondenea K. Andersen E. Nesvik I. Soreide JA: Patient characteristics and symptoms in chronic plonidal sinus disease, Int J Colorectal Dis 1995; 10 (1): 39 - 42

14- Palesty JA, Zahir KS., Dudrick SJ, Ferri S, Tripodi G.: N: YAG Laser surgery for the excision of pilonidal cyst: a comparison with traditional techniques. Laser Surg Med 2000,; 26(4): 380 - 5

15- Khamis HAG, İsam MAS, Khalil Ras., Yousif IEA, Vidya PC, Micheal S, Andrew JW: Treatment of Pilonidal Sinus by Primary Closure with a Transposed Rhomboid Flap Compare with Deep Suturing: A Prospective Randomized Clinical Trial. Eur J Surg 1999; 165: 468 - 472

16- Kitchen PRB.: Pilonidal sinus: Experience with the Karyadakis flap. Br J Surg 1996, 83, 1452 - 1455

17- Senepati A, Cripps J and Thomopson Mr.: Bascom's operation in the day surgical management of symptomatic pilonidal sinus. Br J surg 2000, 87; 1067 - 1070

18- Bascom J: Pilanidal disease: Long term results of follicle removal, Dis Colon Rectum 1983, 26: 800 - 7

the web sites

1-www.library.nuigalway.ie/webpath/SKINHTML/SKIN122.HTM

2- www.jcn.co.uk/article.asp.ArticleID=204(Dr.Dibyesh

3- www.gihealth.com/TREC2/articdes/plonidal.html 4- www.fascrs.org/brochures/pilonidal.html 5- www.geocities.com/Hotsprings/Villa/6315/lessons/surgery/pilonidal sinus.html 6 - www.suite101.com/article.cfm/9022/58138

Onur,from TURKEY


Date:
September 24, 2003

Story

I am a 21 year old female who has been dealing with these cyst for about a year and a half. First time I went to the doctors he stated that having the surgey would be more painful then getting the 3 cyst lanced. Second time around was about 4-5 months later went up to the er and the doctor lanced them once again and reffered me to a surgon who then on May 28th 2003 did the surgey. All was well woke up with stiches which i was not aware I would have. About 5 days after surgey I had cushes of fluid coming from the would which still had stiches went back to the er sure enough there was an infection. So about 5 days later I had the stiches removed and the incision broke open and was covered with fluid all down the back of my pants. So then I had a nurse coming in 7 days a week for about 3 months to pack the would and change the dressing I also had 2 more infections in that time along with chest infections as while. So come after 3 months of packing I was finally healed. Went to the follow up appointment and was told by the surgon that another surgey will need to be done because the sinus has not fully closed she thinks that she will stich it up again but I am thinking that leaving it open would be a better thing to do so at the end of october 2003 I will begin another journey of healing process. What Fun!!!!!!!

Letisha


Date:
September 20, 2003

Story

Hi, I am a 17 year old girl who just found out yesterday that I have Pilonidal disease. It all started when I was at a friend's house and I fell down her flight of stairs. Well this was 2 weeks ago and about a week ago my tailbone started hurting and I just though it was broken from falling. Then I started getting a lump and it just got worse. So my boyfriend brought me to the doctors yesterday and they told me that I had the disease. So they lanced it and said that I had to come back everyday for up to 2 weeks. When I went back today another doctor told me that he was going to call the sugeon and make an appoitment so that I could have surgeory. Well that scares me because I have never had surgeory and I have a two and a half year old to take care of. I am happy that I am not the only person with this. And that I also have my family and friends to help me. Megan


Date:
September 19, 2003

Story

MY PROBLEM IS THAT I HAD MY CYST 5 MONTHS AGO WHICH WAS DRAINED AND THEN I HAD A WICK PUT IN IT FOR A WEEK, AND SUPPOSEDLY, IT WAS GOING TO DISAPEAR. IT DID, BUT ONLY FOR 5 MONTHS, BECAUSE ITS BACK!! I WORK IN A DR'S OFFICE AND I HAD SOMEBODY LOOK AT IT AND THEY SAID, YES, YOUR CYST HAS RETURNED. GREAT. SO NOW MY DOCTOR IS GOING TO BE LIVID AT ME BECAUSE HE RECOMENDED SURGERY TO HAVE THE PITS REMOVED, WHICH WOULD MEAN NO MORE CYST -EVER AGAIN. OF COURSE I DIDNT WANT SURGERY SO I DRAINED AND WANTED TO TAKE THE CHANCE. WELL, NOW I WISHED I DIDNT PUT THAT OFF BECAUSE THE NUMBING PAIN WE ALL KNOW IS BACK. :( I STARTED MYSELF BACK ON KEFLEX, THE ANTIBOTIC AND SOAKS AGAIN, BUT IM SCARED TO CALL MY DOCTOR FOR FEAR OF HAVING A SURGERY WITH A LONG RECOVERY TIME. IM GOING TO WAIT AND SEE WHAT HAPPENS. I THINK THIS IS SUCH BAD LUCK AND IM ONLY 22 YEARS OLD. EVEN WORSE, MY BIRTHDAY IS THIS SATURDAY! SO ILL BE IN PAIN FOR MY B-DAY. HAS ANYBODY EVER HAD THE PITS REMOVED BEFORE OR DO THEY ONLY DO THIS IN BOSTON? PLEASE LET ME KNOW. IM SCARED AND I HAVE ANXIETY. ALECIA IN BOSTON.


Date:
September 19, 2003

Story

I am almost twenty six years old now, and about twelve years ago I fell out of a tree and landed on my tailbone. Shortly after, I developed a small mass under the skin, and had just thought that I had chipped my tailbone during the fall. The mass never went away and never really gave me problems untill about a year and a half ago, when I joined the army and had to do sit-ups daily. After going to the doctor, I was referes to the surgeon and discovered that my condition was a pilonidal cyst. Surgery took about 45 minutes, but left a two inch incision over a ping-pong ball shaped crevace over my tailbone. It is now September and the surgery was a little over two months ago. Daily, I need to go to the clinic to have packing removed from the wound and have it re-dressed. The incision is now about a half inch in length and about as deep as the head of a cotton swab. It seems to be healing nicely and leaving little scarring. My only concern comes from the gauze taped between my butt cheeks. Everyday it becomes soaked with drainage and has created red itchy patches in my skin around the incision. I've tried to leave the gauze off at night, but the drainage just gets onto my bed sheets. Fortunately, my wife has some miracle skin cream by Marin Kulin from Germany. It has done wonders for the redness and itchiness. If anyone else is suffering from this inflamtion due to moisture collection, I encourage you to seek this stuff out. Good luck. Chris


Date:
September 17, 2003

Story

Yet another story that only another who has or is going through this will understand. Four weeks ago I was sitting at work and said to friend my eye feels like someone has punched me and my ass is killing me. That was around two o'clock by the time I got home from work I could barely walk and my eyes was throbbing. Friday morning - How I did thisI will never know, but I made it to work. The eyes was better but something was happening on my butt. Saturday I was convinced that I was bit by a spider. I recently moved to Texas and have heard horrible stories of the Brown Recluce bites. Sunday morning I called my sister crying. I was limiting my walking to the very little and refused to go to the er. Thinking this is a huge boil and no way was I going to have my ass in the air for an er doc to have fun lancing. Monday morning called the doctor's office and begged to be seen. He gave me antibotics and said soak in the tub -if not better by tomorrow I would neeed IV antibotics-Tuesday morning called the doctor and was admitted.. Met a surgeon who agreed it looked like some kind of bite - By this time this thing was HUGE red and I was not walking. Wednesday 5 minutes before surgery it bursted. Started draining-- surgery canceled. Came home on Thursday - back to work the following week 1/2 days only. After draining this disgusting pus for 7 days it healed over and I had this egg under the skin and was painful. Oh nothing like it was a few weeks prior but painful. Back to the doctor's I went - who in return sent me to the surgeon. Saw him on Monday and Tuesday morning was having surgery. We are still thinking this was a bite. I woke up to extreme pain and the nurse asking if I wanted another shot of morphine. Confused because this was just going to be cut and sewn. The doctor came to me later and explained that what is happening is Pilonidal Cyst. That I have an open wound that was packed and that I will need another surgery in a few weeks to remove the sac. I was released and spent most of the day and night in the bathroom throwing up and thinking oh how am I going to do this again in few weeks. In the mean time my wonderful sister found this site and I am feeling a little less embarrassed and know most there is to know about this. Today I had the packing taken out - My advice to anyone that will have to go through this - have support lots of it- When you first notice dont wait because your mortified to have your butt in a face with this angry red egg- Dont live 1900 miles away from your family and chew gum when they pull that packing out! I am thankful that it was not my lip I bit down on today. Today is a little better but I really wish I could just sit for more than a few minutes at a time. I would like to thank everyone for their stories - for this site and of course my wonderful sister who has found this for me!! Wish me luck on the next step!


Date:
September 17, 2003

Story

Hello everybody, In the past two days my scar area has been bothering me again. I guess I am going to go to the doctor today to have him check out my backside since I can barely sit. I dont't know what the doctor will be able to see since there is so much scar tissue there from previous surgery. If I need to have surgery this will be my third time. I have been free of this litteral pain in the butt for almost 13 years now. It is crazy how this just came on again...no warning...I wish I knew what caused it.(I guess that would be the answer to the one million dollar question for all of us). I am kind of bummed a bit since I thought that I was done with this part of my life, my first two surgeries were when I was 17, I am now 30. I have been hoping that this flare up will just go away for now but it doesn't seem like it is going to. I will keep everyone posted on my progress...hopefully I will have some good news to share. Mark.


Date:
September 16, 2003

Story

Today is the day...I've decided to sit down and research my "problem". I didn't know that what I was experiencing was so common, I didn't know that it had doctors and researchers baffled...I thought it was just me. I didn't realize that I have a disease. I usually refer to my surgeries (6 in all)as my 'assectemies'. I laugh about them, but they're not funny at all. I experienced my first Pilonidal Cyst when I was pregnant with my first child, over nine years ago. Since then I have been plagued with pain and surgery, endless boughts of aftercare, antibotics and the horror of medications like Accutane. My husband is a saint, he's played doctor many times, cleaning and helping me to feel better, but the embarassment is so real. (I'm also plagued with sabasceus cysts in my bikini area, underarms and under my breasts). I thought I was done with them. I'm getting on to my thirties and had hoped that I would outgrow them (a doctor told me that I may). We were heading out for our summer vacation when I felt the start of it. It wasn't too bad, just a bit of seeping and mild discomfort. Well, that's gone on for six weeks now and I'm off to visit the doctor again tomorrow. This time I wanted to go armed. I wanted to know what I was talking about. It turns out that I know the same things I knew before - I have a 'problem' that is without a cure. People have suggested food allergies so I think I may try that this time. I'm determined to get tested for every allergy known to man...I want to be cured because no person should have to deal with this physical and emotional pain. I'll let you know how the allergy angle works. Jennifer Age 29


Date:
September 16, 2003

Story

I wanted to add somewhat of a positive story to this list. I'm a 22 year old female. I have been dealing with Pilonidal Disease for a little over a year. When I first noticed it I only had the small holes which drained every now and then. When I finally realized that this was a real thing I was almost relieved. At first I thought I had some random thing that nobody else had. This page really helped me understand that I'm not the only one, and some ways to deal with my condition. I've been sure to keep that area clean by using anti-bacterial soap and a washcloth every morning in the shower. I also bought a cushion for my car and have been very careful about sitting for long periods of time. A couple months ago is when I first found the cyst. It was somewhat painful and I wasn't sure what to do. I went to the doctor and he said my case was mild and I had the luxury of waiting to have surgery. This is a good thing because over the past summer I graduated from college, got married, and was looking for a job. Not a great time to be immobilized. In just the last week I have made the best discovery. My cyst is gone. I still have holes, but no more cyst! It might come back later, but at least for the moment I feel like I've won a battle with this thing. I wanted to let everyone know that there is a way to keep yourself in good health when there's no real way you could go into surgery. I hope this helps!!


Date:
September 15, 2003

Story

Hi, I am a 26 year old female, and last month I had surgery to drain the pilonidal cyst that I have. I had never heard of this until last month. I suddenly had trouble sitting one day and was in horrible pain. I went to the emergency room and the doctor immediately diagnosed it as a pilonidal cyst. That was on a Saturday. On Monday I went to my family doctor. By then the pain had worsened and I was taking 1000 mg of hydrocodone every 4 hours. My doctor tried to drain it using a syringe. It didn't work. He prescribed more hydrocodone and an antibiotic to fight the infection. The next day I was laying in the surgeons office. (For yet another person to look at my backside)He schedule me for surgery the next morning. Since I could not eat or drink anything from midnight on, I obviously could not take my pain pills. When I woke up at 6 am I was in horrible pain. It took all the strength I had just to walk to the car. Once I got to the hospital the pain was even worse. After about 3 hours laying in my room they gave me a shot of Demoral. It did nothing for the pain. An hour later I was in surgery. It only took 15 minutes and they were done. I went home 2 hours later. The wound had been packed and I was told the packing could come out the next day. I must say that was not an enjoyable thing. After it was out I felt so much better though. The wound is only about an inch long and I keep it covered with gauze. It has been 3 weeks and 4 days since my surgery. After the first week I no longer had to take pain medication and the wound is healing very well. I go back to see the doctor in October. Hopefully everything will still be going good and this doesn't come back.

Renea


Date:
September 15, 2003

Story

I am a 20 year old male from the UK. I first had some pain about 18 months ago, but it quickly went leaving these three small draining sinuses. The size of the sinuses varied, but mostly all three are small, the largest no bigger than the end of a cotton-bud. About 1 month ago it became really painful and I could not move. It was the saturday of a bank-holiday weekend so I had no choice but to go to the Casualty department at the local hospital. They gave me erythromycin stearate as I am allergic to Penecillin, but we now know I am allergic to that too. I was then prescribed cefuroxime axitel, plus ibuprofen as a painkiller. This began to take effect and I was feeling alright for a couple of days and then a tender lemp appeared on my left buttock, near the sinuses. I went to bed that night in very little pain, yet awoke at 4am in excruciating pain. That lump was getting bigger and now covered part of the right buttock too. I went to the doctor who ordered me to the hospital and booked me in for immediate surgery. It took until 1:30pm the next day to actually get operated on, spending the rest of my time languishing in a hospital bed. Only mishap was getting up at night to take a pee, and passing out from lack of food (not eaten since previous evening). An "Incision and Drain" was performed. The wound was about 2.5 inches long, 1.5 1-1.5 deep and 0.5 wide. It mostly healed in about three-four days, after which I returned to work, It now being about 1 inch long and a quarter inch wide and deep. It still has not totally healed (2 weeks later) but I can do most things without hassles, so I will let itself clear up on Its own. Now the challenge is to get a full excision, but the hair will all be removed (Just in case) and I may aim for a "Post Christmas" Op, just to reduce hassle.


Date:
September 15, 2003

Story

Hi, well what can I say , Pilonidal Abs is one of the most unlucky thing that can happen to anyone. Anyways, mine all started one day when i got off my nice comfortable leather chair at the office only to notice I couldnt move a step forward as my lower back ( upper crack ) was caught in this excrutiating pain , it hurt as it rubbed against my tailbone....since I was getting off at 2300 hours , i though I would visit the doc the next morning ...my fiance saw the pain I was in and rushed me to the Emergency ....reaching there the doc injected me with a painkiller stating that I would need to come in for tests tomorrow morning.....came the next morning (dreading the tests) on lookin at the size of the swellin the doc rushed me to the O.T and started his work.....well all was done and then I woke up a happy person NO PAIN yeepeee.....then came the dressing/aftercare stuff .....on the bed @ 6.00am suddenly the door opened and there was my doc with a pretty nurse all smiles ...the next thingi I knew I was screaming in pain the worst pain I have ever gone thru ....and wished that even my enemy would not go thru the same.....they we removing out the gauze from a Hole in my lower back ...and kept pullin n pullin n pullin ....me screaming they pulling (so was the scene)...once the gauze was out .....I assumed that was the end I mean there could not be anything more dreadful than that however I was wrong again and then came some burning lotion that cleans the areas avoiding any pus formation ....god help me so were my words....anyways this went on everyday at 6.00am as I sreamed they pulled ...then it was every alternate day then every three days then once a week until it was all fine....My life came back to normal however the PAIN was something I would never wanna think off....4 months later...there is comes again Coocoo....and yes I had to go in for surgery once again ...however this time I was mentally prepared for the pain and the not so very much GAINS .....Well all I can say is that should you notice a slight pain in your back ..go straight out to the Doctor ..take the antibiotics ...cure yourself before it gets to you.....

Well all take care and dont let the P Disease get the better of you...

Cheers Genny


Date:
September 15, 2003

Story

hey all. im a 17yr old male, and about 2 weeks ago i started to notice my coccyx was getting very sore. after a while i went to my local GP, by this time the sinus was the size of a golf ball. and it was so painfull. from the day i saw my GP was the day i was being prepped for surgery. they cut me open and fixed it all up. its been 2 days since i got out of hospital *was in hospital for a week* and its starting to heal. the pain when they first took the packing out of the wound!!!! i nearly passed out from the pain. the surgeon said the sinus tracked up further then expected. my wound is about 5cm deep, and about 11cm long. which is a fair wound.

i hope this heals soon, cos its not comfortable


Date:
September 11, 2003

Story

Hello. My name is Christina and I am 17. I started having pain on my tailbone a couple years ago when I did sit-ups and the cyst's size has been consistent for a year now. I finally went to my doctor and he diagnosed me. I'm having surgery next month- so wish me luck! I know about the draining, pain, stinging, burning, itching, smell, embarassment, and the putting of pantiliners on your underwear. Can you believe I've been going through most of this for two years? I'm so happy it's finally getting taken care of. I can't wait to have my life(and my backside) back to normal. This thing has caused me so much anxiety and I can't even stare it in the face! I'm soo happy i've found this site because i've read stories from others who share my same problem, a problem I thought I had that noone else could relate to. Thanks again!


Date:
September 11, 2003

Story

Hi everyone! After suffering for 3 years I decided that enough was enough! I was referred to a surgeon and was told that I'd be "sown up", much to my relief! Well, It's been 2 months and everything is still in tact! Hopefully that was the end of that dreaded monster that makes its home too close to my butt! Wishing everyone, that is about to undergo surgery, my best wishes and for those still suffering, don't give up hope. Surely there must be light at the end of the tunnel!


Date:
September 09, 2003

Story

hi everyone

my story starts 3 years ago when i was diagnosed with pilonidal sinus. usual story, excruciating pain overnight followed by lancing in the er of an abcess the size of a tennis ball. in oct 2000 i went in for my first excision of the area which left me with a large wound. a year later and it still hadnt healed so by feb 2002 i got a recurrence and in june 2002 i went in for my second op. this was a major excision 7 inches ling by 2inches wide by three inches deep. that took a year to heal and i was discharged aug 2003. however it looks as though it might b comin back as i have noticed blood again

dont loose hope anyone, i cud b worse!!!


Date:
September 09, 2003

Story

Hi Ladies,

I just want to tell you that this is NOT a guy's disease. About 3 weeks ago on a Saturday morning I noticed a tiny little bump on my vulva caused by an ingrown hair. It was a little sore, but really just a nuisance at that point. By Sunday it was starting to really hurt and was growing in size. By Monday it was huge, and I was in excrutiating pain, couldn't sit and could barely walk. I went to see my doctor who said she had never seen an abcess that large in that area before. She put me on antibiotics, advised me to soak in a warm tub 3 times a day and frequently apply a warm compress. I followed her advice. By Wednesday morning it was larger still and had come to a head. I went back to the doctor and had the abcess drained. That brought immediate relief -- not total relief, but I did feel much better. I continued to soak 3 times a day, apply warm compresses and remove as much of the pus as I could. By the following Saturday I was fine and able to walk and sit.

I was amazed at how quickly the bump progressed in to a massive, disgusting, painful heap of pus. I missed a week of work (my job requires sitting all day), and also couldn't wear pants or underwear because of the location.

If this happens to you, SEE YOUR DOCTOR. Don't be embarassed. I understand it's very common, though the abcess is usually on the butt.


Date:
September 09, 2003

Story

Hey Everyone!

After having read all your storys, I feel like giving you all some advices.

I have been dealing with pilonidale disease for 5 years now undergoing 5 surgeries and about 10 different doctors in 2 hospitals. I have also tried every possible recovery method available. I have now found one of the best doctors in Denmark (where I live) who's really interested in the problem. My last surgery was in august 2002, where i was cut 12 cm long and 5 cm deep, and it has healed from the bottom and up. This is far the best way, because then you are sure to have removed all of the cyst.

The best bandages I have tried is something called PolyMem wich is very easy to use and friendly to wear. Then use Mefix tabe to fix it and change it every day or two. Never use the product called Aquacell, it will only make the problem worse.

On top of the polymem bandage I use a loose pillowlike 20x10cm compress bandage called "saugkompresse" from NOBA. This have work ok, and I have been able to live with the problem. I have also got some ok tights (underwear) wich help to keep the loose bandage in place at minimizes the movement in the area. Those were from Smith&Nephew.

Today my wound has almost healed but there is stille a very tiny bit left. The problem now is that I have trouble getting this last bit to heal. Right now I'm testing a new bandage covered with pure silver!? Hmm... Don't know if that is going to work.

To give you all some good hope I have in the past 4 five years in spite of my condition been able to get a bachelor degree in biotechnology, and also found the love of my life.

So my advice to you is keep up the hope and try to continue with your normal life.

My best to all of you....

Niels, 24 male from Denmark

One last thing:

If enyone know any new methods on how to treat this disease or any places on the internet descriping new bandages for this, I would very much like to know.


Date:
September 08, 2003

Story

I had surgery to remove my cysts May 16th, 2003. Its September 8th, 2003 and I still have a slightly open wound from surgery. I struggled with the nasty things for years, and finally found time to have the surgery and contacted a wonderful general surgeon. Before I had the surgery, I contacted this site for info and wanted everything I could get my hands on, so I'll be detailed for those that want it:

Surgery itself was fine, I was okay with little pain the first couple of days afterwards. The surgery was on Friday morning and my surgeon had me leave the packing in until Monday morning when I could come into the office and have her and the nurse show my husband and dad what to do. I'm glad they did, becuase it was bloody and painful and they were able to do it quickly. I was in pain from then on =)

For the first 3 weeks, I wasnt able to lie on my back at all, so I was forced to sleep on my sides and my hips constantly burned in pain. I found that I slept best on a bunch of blankets in the living room floor. I groaned each time i moved and kept my husband awake in bed, plus this allowed me to roll better and have more room. I only slept about 30 min at a time, so that's all I did for about a week. My doc told us to just pack it once a day, unless we wanted to do more. We took 4x4 gauze pads, stretched them out, and got them wet with saline. Thats what we stuffed inside. Then we put a dry pad on the outside and taped it shut (NOTE:Buy waterproof tape!). To save money, we just used maxi pads to cover over that (just left sticky strip covered still). I had to have my husband pack it for me at first, and there were nights when I was crying and crying scared about pulling that old packing out because it is painful. I found it was easiest to get in the shower and let it get real wet and then pull it out - seemed to hurt less. Once the wound got more shallow, I was able to pack it myself each morning when I got out of the shower. I make sure to stand and let hte water clean out that wound each morning and wash out that gunk.

I was never in a lot of pain, just in my hips. I visited my doc every week for the first while to make sure it was going okay. It seemed to close very quickly at first and now it's stayed at the same spot for a LOOOONG time.

Another note. Dispose of those old packing quickly. I wont give more details, just make sure they're thrown out in a day or two. They smell anyways so you'll want to.

Some days are great, some days I can barely walk. I seem to always be worse after I visit my doc, since she usually messes with it and cleans it out, and they pack deeper than I ever did. Sitting for long periods of time cause more bleeding and pain than normal.

I have mine barely open, and I hope that it closes soon. It is still tender but the end is near.. I hope! Good luck to anyone contemplating surgery, I think it will be the best thing for me. I can't imagine fighting those things the rest of my life.


Date:
September 07, 2003

Story

Jeep wrangler owner for several years, and also a PC sufferer for 3 years before finally realizing what exactly was happening to me. Suffered through most of college, too embarassed and at times in too much pain to date, truly horrific. Periodic, intense flare ups accompanied by pain, drainage (pus and blood) and smell. Extremely embarassing for a college student. Misdiagnosed by incompetent Univeristy doctors and went awhile until the condition progressed to the point of no return. Remember sitting in class and leaving at the end, with the cyst which almost "exploded" (for lack of a better description) right through my clothes. Embarassing and quite painful! I spent some absolutely tortured days and nights thereafter in bed, with shooting pain I can best describe as overwhelming. Felt like my backside was being hacked at by knifes, horrendous. At that point I had no idea what this hell I was going through was. I promptly made an appointment with the University health center with a different doctor than my usual, who at this point I felt was clueless ( as I was too!) I had suffered long enough, the new doc knew immediately what was wrong-- a pilonoidal cyst. I was referred to an excellent gastrointestinal surgeon who examined me and gave me some options. Hating surgery, I opted to take the meds and hope for the best, literally trying to tough it out. Well, no dice! The doc was on vacation for awhile as I recall, and I started feeling worse. Opted for the surgery. I decided to stay awake, but got nervous right before being carted into the room, and the anesthesiologist gave me something in my IV that really spaced me out and calmed my nerves. Stayed awake for the full procedure and even joked around with the surgery team during the short ordeal. The surgery was the easy part, I bled and drained for a full 9 months afterward until finally healing up. The doc that I went to performs quite a few of these procedures a year and told me that mine was one of the worst he had seen (tennis ball size). Managed to stay in class with great determination and graduated on time. Not exactly the perfect senior year in college that I was expecting. It is now close to two years since the surgery and I am doing amazing, no recurrence and feel like so many others that I have my life back again. The best advice that I can give is to find an experienced surgeon, explore your options, get the procedure done, stay POSITIVE and forget about being embarassed. This is not too uncommon, it is great to have the support of others' experiences to help you feel that you are not some freak and above all you are not alone in your suffering. This experience made me a much stronger and truly grateful person! Afterall, the TRUE key to happiness lies in good health! Cheers!!!!


Date:
September 07, 2003

Story

Hello.. My name is Lynne and I am 27 years old. My story started on Labor Day. My tailbone was hurting so i thought i had maybe sat down too hard and bruised it. Within the next 4 days it had become very painful and had looked like i grew an extra tail. I had never experienced anything like this before and was unsure of what to do so i called and made an appointment with my family doctor. I went in and seen him and he told me I had a Pilonidal Cyst. I cant sleep at night, can not sit, the only thing i can do is lay on my side and now my hips are aching so bad. Today as I was laying on the couch it started oozing. Nasty. It's still oozing. I hope this is the end of it. To those of you who are going through this you are in my thoughts. Thanks


Date:
September 07, 2003

Story

Hello I am a 17 year old male and have delt with this problem for the past 3 years. My first occurance was about three years ago. It couldn't have happend at worst time. It happend about two weeks before my baseball tryout for my school team. The pain was awful. The first time it happend I just got it lanced and started taking medications. After that it went away for exactlty a year. It came back roughly the same time as the first. This time he told me I needed to have surgery. He agreed to let me lance it because he knew that baaseball was important to me. I did not want to miss any of the season because we had a really good team. I still have not had the surgery but am now looking into it. I am reluctant to have the surgery done because i am a little overwieght and I have been running everyday over the summer trying to lose wieght. I am afraid that if I have the surgery that all I will do is sit at home and not move around. I dont know what to do. I know i need to have the surgery but i do not want to put on any wieght. I wiegh about 205 and my Coach wants me down to 190 by the season. I haven't had any problems since last year but I am afraid if I wait that it will come back right before the season putting me out for half of it. I thought about doing all the stuff such as cleaning it very well and keeping the hair shaved around it. But I am not sure if that is going to be enough. I really dont know what to do.


Date:
September 07, 2003

Story

I have had a cyst since freshmen year. At first i didnt know what it was until i went to an OBGYN, he tolled me it was a Pilonidal cyst and that i needed surgery. So during my Sophemore spring break i had surgery, and it was the best thing that has happened to me also. I am in the marching band and have been since freshmen year, and i am having a little bit of trouble keeping it from bleeding and draining, my doctor tolled me to not march for 10 days and being me i did not obey his orders, i just want to tell you guys that are going to have sugery, do it. And do exactly what the doc says. i am so glad i dont have to worry about the cyst anymore.

Ben~


Date:
September 06, 2003

Story

Hey everyone! My name is Ashley. I am a 21 year old female. I had my first pilonidal cyst lanced in April of 2002. The ER doc was very vague as to what it was on my butt ;) and the weirdo wouldn't even give me anything for pain during the lancing...no lidocaine...nothing. Well he had me come back the next day to take the packing out and then sent me on my way. I got no medicine but most of all no answers either. Well since then my would has not healed, the incision in still open and still drains. I figured I would just put up with it for a while because it wasn't always in horrifying pain. Besides that, I am diabetic and heal slower than most people.

Well about 10 days ago, I got another one a few inches above the old one. It has been lanced as well, but this time the doc knows what she is doing, it's been packed everyday since the lancing and I am on meds now. She says that it is healing VERY nicely but that I have to have excision to remove them both. I guess since the old one never healed and I got a second one that I am prone to getting them more often now.

Well whatever I say...just make them go away!!! I am looking forward to the surgery since it will hopefully result in a lump free ass till the end of time, but I am not looking forward to the packing all the time right after surgery. When the packing is being done I start to sweat, my heart races, I get nauseous, and I actually cry. THAT IS PATHETIC!!! I am 21 years old, I shouldn't cry unless a limb gets cut off or I am in labor or something. So needless to say I am scared to death of all the packing to come, but if they don't come back then I guess it will be worth it.

Ashley in Japan


Date:
September 05, 2003

Story

Hello everyone im just updating all of you. I had my surgery on July 23 2003 and I just had my last recheck appointment with my surgeon and im cured! Knock on wood. He said there is no evidence of any re-occourance and my scar is all healed. There is only a small dark purple line that is fading to remind me of the cyst. I wish a speedy recovery to all! 9-5-03 Kim in WI


Date:
September 04, 2003

Story

Hello everyone.

I'm a 20 year old male, my name is Jake and I have been dealing with my pilonidal cyst and wound care since February, 2002. Since then I have had 3 operations!! I'm hoping I just had my final one in August.

My first operation the doctor had to remove a lot of tissue, and he closed it up with 13 stitches in three layers. It healed in about a month and I had no problems until January 2003.

A small hole reappeared and was draining so I was constantly putting packing in my tailbone area. I went to the same surgeon and he said that the skin had created another tunnel and he would need to cut that open to let the wound heal from the inside out.

The wound never fully healed after that second cutting. I was packing the wound every day for almost 8 months. In August I decided to see a different surgeon and he said he wanted to excise and freshen up the wound so the skin would close better.

He cut open and re-stitched my skin in Mid-August and now I am feeling pretty good. My crack has no holes and I'm taking it easy so I can let the skin heal properly. I really hope I am finished with the draining.


Date:
September 04, 2003

Story

My name is Aaron, I'm a 22 year old male who has had a pilonidal cyst since I was 15. I recently had it excised in January 2003 and the surgery was a success. I had lived with the acursed thing for years and was the cause of alot of my psychological issues. Anxiety, depression, and the rest of the broad spectrum developed because I thought I was some sort of freak with this condition. I lived with the pain and embarassement for almost 7 years and I am relieved to have the cyst gone. But now September 2003 the site of the surgery has yielded another fistula (lil hole) and is drain fluid again. To my dismay it looks like it might be reaccuring. I will soon be seeing my doctor who performed the surgery the first time and will try to get this thing treated once and for all. To all those visiting this site and reading this story, I salute you and giving my best to everyone. Because I know this is difficult, I wish you luck.

Aaron


Date:
September 02, 2003

Story

September 2, 2003

I just wanted to give an update on my butt problem. I am very pleased to say that I had my surgery to remove my pilonidal cyst on September 13, 2002, so I am almost to my 1-year anniversary!! Thankfully, I have not had any further problems with it. Now I rode a couple of roller coasters six months later and it caused it to barely split open and burn a little, but nothing like having the actual cyst. Mine was also the size of a softball though and I had to be cut to my coccyx bone! I am of course always paranoid if I sit too long and my butt goes numb is it coming back or not. I think this reaction is normal though. I just wanted to encourage anyone who is doing research on this "more common disease" than you think it is, to really consider the surgery. If you would like to read my drawn out story, go to the story archives dated September 20, 2003. If you have any questions, I would be more than glad to help you. I frequently come back to this website just to read everyone else's similar stories. Best of luck to you! May God Bless You! RDS


Date:
September 01, 2003

Story

My experience with pilonidal cysts is very very new. Three weeks ago I felt a lump right by my tailbone and began to feel pain. It took me awhile to wrench around and look in the mirror, and what I saw seemed to be a perfect round circle, red and irritated, left of "center" by my tailbone. It felt hard in the middle like a spider bite. I'd been sitting on our porch brushing the dog for a long time a week before, so I was convinced it was a spider bite. Another week went by and I began to feel agonizing pain when sitting. Putting on socks became the worst, as it involved leaning back right on it. I was rubbing on witch hazel, hoping it would go away. Finally I read about boils, so I applied a warm, wet compress. BAD idea! After that the pain was so bad that I was taking 4 advils just to get through work! Boy, was I surprised on Friday when my doctor sent me to a surgeon to have this pilonidal cyst removed! Now I only hope it drains right the first time, as I do not want to go through this agony again! This site has been very helpful, especially about what to expect after surgery.


Date:
September 01, 2003

Story

I am 18 years old and I had a pilonidal cyst for two years without knowing it. I had surgery done during the last week of April this year, and I'm going to be completely healed in two days. I'm really grateful that it will not come back and also that I do not have to go through the recovery of surgery again! As soon as it's healed i will be joining the USMC. Also I recommend to everyone to get the surgery done, its worth it. I suggest to everyone that is having some problems with their recovery to pray about it. I thought it was a dumb idea until I actually did it. It helped so much.


Date:
August 30, 2003

Story

I'm glad I found this site. I had a Pilonidal Sinus surgically removed in March. After the intial healing, I've had discomfort (tingling/pulling) on-and-off. The surgeon warned me about this, and did say it would probably go on to some degree for months and months, but none the less I've had plenty of episodes of what I now have a name for (thanks to this site) - "Pilonidal Paranoia". In June I went so far as to ring the surgeon's office and book an appointment, only to call back the day before the appointment to say "sorry, false alarm". Then last week I had some minor tingling again and had another episode of "Pilonidal Paranoia". I cracked (pardon the pun) and made a booking, which is for next Monday. But having read through the stories & info here, it's reminded me that this is a fickle disease, and has put me at some ease. Still, I'm going to keep the appointment, just in case, but I'm feeler more confident that it's probably just the healing........ OR IS IT!? Well, hey, there's the problem baby! "OR IS IT" That is, WHAT IF IT'S BACK?... 'cause I'm sure most who've gone through it would agree with me that it feels like there could be nothing worse than going through it again. But that's why I'll go back. This guy cost $100+ (Australian) to see, but frankly it's worth every cent just to be sure. My advice: If you think you're got a PS, DON'T SIT ON IT! They don't cure themselves.

Cheers Paul.


Date:
August 28, 2003

Story

Overall ive had a pilonedal sinus for ten years iam now 26. I had my surgery yesterday and it was a breeze. I was awake with local freezing and given some sedation, i did not even realize they had begun the surgery when it was over. I barely felt the neeedle. The most painful part was getting the IV, which really doesnt hurt, like getting blood taken. I have not been in much pain, just slight discomfort when moving around, and a bit of pain when having the paking done. I live in ontario so, iam fortunate to have a free nurse change my paking twice daily. Definatley worth having done, the infections and flare ups are more painful than the surgery or after care. Although i do suggest taking tylenol 2(which the doctor perscribed to me for pain)before having the paking changed, as it is a bit painful when they remove it. I was given a sits bath, but showering before is more helpful. Thank-you sasha for this sight it has great info to help out. I hope that people are as lucky as i have been when having this surgery, dont fear it or prolong it. And being awake was great, the sedative was a fantastic feeling and i was alert and relaxed and not grogy after wards. I think ill be able to return to work in five days, i actually feel fine to know, but thats pushing it as your body needs rest

Rhonda


Date:
August 27, 2003

Story

Oh my God! I just figured out that I think I have this problem. I just typed in "lump and tailbone" into my search engine, and LOOK WHERE I AM! So, I guess I'll tell my story. I am a 24 year old female, and I first had a problem when I was about 17. I just remember telling my Nanny (because she was the only one I could go to with such explicit details)about a bump in my butt crack. Several weeks later, it popped...and Oh my growse...the smell!No problems since then, but my husband noticed a couple of years ago that I have 5 little open holes there, and I guess I've never paid much attention until now, because I have noticed a lump on my tailbone. Then I remembered a college professor telling a story about her son having something similar, and said it had to do with the tailbone and evolution and such. So, I thought "Great, I'm growing a freakin' tale!" I even joked with my husband, saying I could be like a side show for the circus. I'm going to be like the guy from "Shallow Hal!" So, now I think this clears up a few things. The oddest thing is that my 16 mo. old was born with something that could be the same thing. My mom and I noticed when he was born that he had what looked like an extra bunghole. I'm not sure that I even mentioned it to his pediatrician, and he has never brought it to my attention. I also have a 4 mo. old dauhghter, and I'm going to look tomorrow to see if she has the same thing. So,I told my mom tonight, because she had a lump removed from her armpit when she was younger, and feels a lump there again. I wonder if it could be the same thing? She told me that she recalls that I maybe had the same thing that my son had when I was a baby. My dad is a surgeon, and when I asked him about this lump a week or so ago, he was clueless. I'll have to clue him in, and I will see a specialist ASAP. Thankyou for your stories and such useful info.!!! Laura North Carolina


Date:
August 26, 2003

Story

Hello, Well I can relate with most of the stories here. Two years ago, a week before Christmas, I started to get pain in my tail bone, I couldn't sit right and it was painfull to touch, so I ended up going to the ER to have it checked out. When I went in there the DR said that it looked like I had a Pilonidal cyst and he decided to try and drain it right there. That was the most painfull needle I have ever had, with no success, he put me on some antibiotics and sent me home, telling me they should help. A week later on Boxing-day (for us in Canada) I couldn't even walk anymore, I had been taking the meds and the hot baths (which would make my skin red that is how hot they were) but it didn't seem to be helping, my mom made me go back to the ER. The DR there told me that he would have to drain it, so yet another time with painfull needles and crap. And I went back for 2 weeks every day getting the packing changed and dealing with the pain. It seemed to had went away.

Two weeks ago I started to get the same pain back, now I wasn't sure if it was just because I sat the wrong way or bumped my tail bone again which happenes, so I left it a couple of days (wrong move), it was beginning to make it hard to sit and walk again, so I went to the ER dreading what they were going to tell me. The ER DR. put me on expensive meds to take the infection away, she was hoping that it was going to work. I ended up having to take 3 days off of work because the infection was bad, I couldn't even walk. But once the meds kicked in the pain was gone, so as hopefull as I was that it was gone, I went back to my everyday life. When two days later I was sitting there, and I just happened to feel back there, and there was major swelling, but no pain, and I had just finished the meds the night before. When I got home from work that night I got someone to check it and they said that there was swelling the size of a quarter around the scar where I had had the last drainage. So I ended up going back to the Walk in clinic because I didn't know what was going on, the pain wasn't there anymore. SO he looked at me and told me that he didn't think that it was just going to go aaway (because he was able to push on it and get stuff out if it, he told me that there was a connection now and wanted to put me back on the same meds I was on the week before. (Which are like 45$ each time and I didn't have the money). I wasn't about to take more meds if I wasn't in any pain. So I called my family Dr the next morning, and she then sent out a request for a surgion, which now is just a waiting game. I have to go for my first Dr's appoitnment with him on the 8Th of October, I am still not sure what will happen after that, with taking time off work and everything, but I am sure hoping that it will make this thing go away.

Vanessa


Date:
August 25, 2003

Story

This site has been such a wealth of information. I am currently battling my PC. It first reared it's ugly head about a year and a half ago. I thought I had some awful spider bite because there where 2 small raised very painfull bumps on my tail (never have had any surface openings or ruptures). Needless to say as you all know it just got worse and worse till I finially went to the doc. Thankfully my GP knew exactly what it was. Told me he needed to lance it and that surgery would be the only permanent fix to it. That lancing was fine , royal painfull shot for the anistetic but otherwise didn't feel a thing. So I continued on with life forgetting about it.

Low and behold 2 weeks ago I feel that same old pain , only this time it was in my left cheek about 2 inches below the original occurence (again no surface opening or rupture). I suffered threw it for 4 days before I got in to see my doc. This time it was even worse and was one huge bump. Unfortunetly for me this time it was a lot worse then one painfull prick of a needle. The anistetic didn't take completly so the pain was excrusciating , especially since he had to dig even furthur to open up a deeper poket within the same cyst. Without a doubt the most painfull experince in my life. I am finially now a week later feeling human again and able to function more or less normally.

Now I am waiting to hear back from the surgen whom for an appointment to have my evaluation. I am not looking foward to surgery , especially since considering it has spread down my left cheek as well I imagine it won't be as simple as most. Mine are obviously deep. I will come back and continue my story on here as it develops , wish me luck. Oh and I am a guy just to help balance the scales for the ratio of stories on here :)


Date:
August 25, 2003

Story

Well, I´m from Brazil (soory about my english), and this last weekend i knew about my disease.

Anyone in this site, doesn´t made the surgery?

There is any possibility to live with this? Now i´m take medicaments and the pain goes out.

Thanks for the help.

Silva


Date:
August 22, 2003

Story

My story is a little different, for the fact that I had the abscess lanced about 4 years ago when I was 22, but didn't know that other people have had such problems! Mine started to flare up in September of 1999. I think I had fallen earlier, but then again, I fell a lot when I was younger. It began to be unbearable. I first discovered the abscess when I dropped the soap in the shower and it killed to bend over! I thought I ripped in half, that is how horrible the burning pain was. I tried to draw out the pus with warm wash clothes and baths, and though that help me be more comfortable it still didn't allow me to function normally. Once there was leakage that stained my washcloth and was the most rotten thing I have ever smelled. The infection was severe! I couldn't sit, drive, walk. I remember having to babysit, and could only get down and play with the kids on my side, and had to come up with a 13 step maneuvre to get back up again! I was a senior in college at the time, and was too embarrassed to go to the health center. I should add here that I didn't trust the health center, as the two other times I needed to be seen they incompetently diagnosed me incorrectly. I had bronchitis...but they diagnoses a cold! Okay...next thing you know, I couldn't take it anymore, so my friend drove me to the emergency room. The pain was unbearable (and I had my period too so I was extremely cranky) so I told them to help me. I didn't care at this point who was looking at my ass. It was so painful for them to examine me that I screamed like I was giving birth, and they actually gave me an epidural! They drained the rank pus...and then had to do some probing, because the infection was so bad and so far that they thought I had ruptured my rectum, never thinking that it was a pilonidal! Stupid Doctors. When trying to have the insurance cover it...since I didn't go to the health center first...they gave me trouble. The doctor wrote: abscess/Cellulitis Buttock. I understand the sebum production etc with Pilonidals, but seriously! anyway...i had to keep it packed with gauze, and they gave me a subtle painkiller and antibiotic...but it healed without further complications. At least I have that. I'm so glad I'm not the only one....


Date:
August 21, 2003

Story

I am a 28 y.o. female. About 15 months ago after the birth of my son my tailbone started to hurt and I figured I had just bumped it and bruised it or something. About 3 days later I started taking my percocet from my c-section to try to help kill the pain. It just became worse and worse, until I finally made a visit to my PCP. She said it was a raised lump and said that if she didn't lance it that I would end up in the hospital with a fever. After that painful lancing I had no idea that I had a pilonidal cyst, I had no idea that it would reoccur over and over. It would get inflammed off and on over the next year and finally I decided to go to the e.r. and that's when they diagnosed it as a p.c.. The doc there told me that humans used to have tails and although we do not have tails anymore, we do still have a gland there that some people have problems with. He referred me to a general surgeon and 2 weeks later here I am at work. The surgery was not that bad. I had about 7 stitches and the doc did have to insert a drain that just sticks out about 1/2" 1 week after surgery because it started to drain "sterile fluid" is what he called it. It does hurt to drive and to sit but it seems to be improving. The biggest gripe I have is that it hurts to sleep and is very uncomfortable, my hips hurt from having to lay on my sides and I wake up throughout the night because I can't get comfortable. Reminds me of when I was pregnant. Good luck to all....this sucks, but it could be worse. At least it's not terminal.


Date:
August 20, 2003

Story

I am a 21 year old female. I discovered i had the pilonidal cyst in march 2002. I traveled over to england to visit my family, and silly me didn't get up on the 8 hour plane trip! So about 2 days after i arrived i saw this thing on my tailbone, didnt think anything of it! So as a week went on i couldn't take it anymore the pain was unbearable. so i went to a doctor over there he said all he could do was give me antibiotics. So fortunatly enough the antibiotics help the cyst pop the morning we were leaving on the long plane ride back. so i got back home and went to MY doctor he said you are going to have to get it drained. i thought great!!! i deal with a week of pain now i have to go have someone cut me open. so now i had a nurse coming to my house once a day to pack the wound. Everything healed fine i thought this is great i am now done. THINK AGAIN!! October 2002 IT'S BACK!!! couldnt afford to have the surgury done yet!! so i had to get it drained AGAIN!!! another 2 weeks off of work! So in MARCH 2003i finally could afford the time off of work and the surgury. so i went in for the surgury. It was packed the whole time of healing, 2 times a day for a good month. then once a day for the rest. The hole being 6 1/2 cm deep and 4 cm wide and tunnels. And when i say it hurts, it hurts so now im thinking great ill be ok now. i can do things again. It is now august and i have to go for surgury once again. beacuse of a piece of the cyst that was left or it wasnt there before but i believe its been there since my first surgury. well, thats my story. Now, i know there are people out there going through the same things, and i want everone to know its very horrible thing to have!!!! Jenn


Date:
August 18, 2003

Story

hello, I am a 23 year old male and having the surgery on my ass donetomorrow in GERMANy!!!!!!! I let everyone know how this pilonidal thing is taking cared of abroad by, particularly by Euroaerzte.


Date:
August 18, 2003

Story

I am a male – 38, and I have been dealing with this disease for 5 years. I would like to tell about new phenomena that happen to me in the last flare-ups that I had. A few days before I start developing a flare up new zits are appearing around my mouth under the lower lip. They usually disappear after the flare up drain. It took me awhile to find the connection between the two, but now I am sure. The last flare up did not end up with drainage but slowly disappeared into my body and the zits were the worst. I wonder if through holistic treatment there is any way to affect the cyst from the area of the mouth since they are so connected energetically. Me previous flare-ups were so bad that I decided to go to surgery. The problem is my work, I cannot leave it for too long and so I will be postponing it for when I will have the time to deal with healing.


Date:
August 18, 2003

Story

I am a female and I have been dealing with this disease for six months. I had my first surgery in March. Since I had prolonged my surgery for years, my scar was 6 inches long and 4 inches deep. Crazy huh! I was out of school for three weeks before feeling better. I thought that the cyst was behind me and I would start getting back to normal everyday routines. But I was wrong, an infection had occured in June and I went in for another surgery in July. This one was only minor surgery to get rid of an infection that had occured in my incistion (which still was not healed from the March surgery). It took me about a week to get back to feeling better from this surgery. I thought at this point the infection would be gone and I would be back on my way to healing my wound. Although, in early August I started having pain again. I went into the doctor and he said that I am going to have to have another surgery to get rid of the cyst that had reoccured. Well this is where I am now, I can't go back to school (I should be returning for my Jr. year in college) and have to stay at home and go back into treatment for the cyst. To anyone out there with this problem, my best advice is get treated right away. Don't prolong the surgery because (like me) it only gets worse with time.


Date:
August 16, 2003

Story

I initially realized that I had something bothering me in the tailbone area during an auditorium meeting at work in 1993. I was 29 at the time. When I finally got home that day I found that the drainage was bloody, much like that of an erupted zit of great caliber! I went on dealing with drainage for seven more years because I simply thought that I was periodically developing a zit of some sort in the tailbone area. When I was 35, I asked my physician about it and he told me that it was a Pilonidal Cyst. I'd never heard of such a thing and was amazed that something like this was really happening to me. He told me to plan on having it removed and to let him know the next time I experienced drainage or discomfort. It was several months later that this thing decided to reappear - so I called my physician right away. He coordinated my outpatient surgery and I drove to the hospital to register. I still could not believe that I was going to have something "cut" out of my body. After the initial prep, I was on the table, face-first, conversing with the doctor that was preparing for the procedure. He told me that he would localize the area with anesthetic rather than put me under or out. This increased my stress level. Just then my cell phone went off, too! Anyway, I felt pretty embarrassed by the whole ordeal. When the cutting began, I felt nausea because of my active imagination of what it must be like to have someone carve some meat out of my tailbone area! I was livid with pain - the local anesthetic was useless. This was primitive, medieval at best. I felt as though I was a civil war soldier on the cutting board floor having shrapnel removed from my ass! I was in serious pain! After it was done and I got to see this chunk of flesh, I almost fainted. Just knowing I'd been operated on and that a piece of my meat was right there on the table made me really ill. I was prescribed some pain medication and was bandaged up with what felt like a diaper. All I knew is that I had to get home and lay down quick. When I got home, the pain meds definitely worked, but I knew that constipation (a side effect) was not going to be pleasant. So I limited my intake of the pain pills to once a day and dealt with the pain. I had the dry heaves many times due to simply thinking of the removed meat-chunk. Then there was the re-dressing of the wound. What a nightmare. After removing the initial packing and realizing that I had a new hole back there, my knees went limp. It was very hard to reach behind myself and carefully repack this wound - let em tell you - not fun. In an act of desperation, I enlisted the aid of my 4 1/2-year-old daughter. How meticulous and careful a small child can be at that age is amazing. I suppose that the contorted face she saw her daddy make when he walked into the bathroom due to the pain ensured she was very careful. I hope I didn't scar the kid. She's 8 now and still remembers helping her dad recover. We laugh about it now, but it was no joke 4 years ago. Every now and then after sitting for long periods the scar begins to itch a little. I get very nervous, almost feeling like "IT'S BACK!!" But it's not. I hope it stays that way. What an embarrassing experience. If I have to get another operation, I'm definitely going out or into the twilight zone for certain. And, I will make sure the doctor is not into medieval torture or a part time butcher. And to think of the things people put themselves through voluntarily (www.bme.com) is another story! Thanks for this very informative site.


Date:
August 15, 2003

Story

Since Yesterday I started looking for information in Pilonidal (which I didn't know till Wednesday). Now today I didn't know there was so much information about it in online, and for surely now I know what I have. For me it took about 4 yrs to erupt from that mass of ball that I had. At first I thought it was caused by playing soccer, because i slide & kind of hit my coccyx and that's what I thought caused the Bump. Well now its a different story and my parents are taking me on monday to have the surgery, so lets hope I come alright. Ill be posting my Update soon.


Date:
August 13, 2003

Story

I just wanted to post my update so that people who read this site will be able to know what happens after the fact. My name is Misti and I posted my first story a few weeks after my sugery. I am doing wonderful now and have no major concerns or worries regarding my surgery that was performed on June 19, 2003. The only thing that is bothering me is that I had a z-plasty and the area of my incision looks like a bomb exploded. It is very uneven and it just looks bad to me. Thank God my husband is totally in love with me otherwise I would be worried, that's how bad it looks. The incision is totally healed but I just can't get over how uneven and bad it looks. I would love to hear from anyone else who has had a z-plasty after having their cyst removed to see if this is something that might correct itself or if I might need to look for a plastic surgeon. Good luck to all and I hope that you can get the medical help that will allow you to live a "normal" cyst free life again. Keep up the great work Sasha.


Date:
August 12, 2003

Story

Haylo Pilonidal Cyst readers, I thought i was about time i got back to ya'll. Its been 3 weeks today since i had my surgery.Well lets bring it back to July 22nd shall we,? I think we shall. Well actually the night of the 21st,I couldnt sleep what so ever, i could not fall asleep,i was so nervous,i was wide awake at 4 in the morning, so i listened to music then 4 30 i went in the shower,crying!, my surgery was at 7 45am, so we needed to get there at 6 30, me being a neverous and scary cat,we arrived and i just wanted to leave right away... The nurses were nice and all i really remember is being told i have really good veins by the anestetic(cant spell) doctor. then i remember the nurses telling me to roll slowly onto another bed thing on my stomach and being asked if i want a blanket... The i remember when i woke up,another nurse, that i talked to the night before(my sister in law) being there.She wanted to work for 3 hours to see me. Then i left at 10am,i was able to sleep in my moms bed, till dinner,i hated laying around! so at dinner i had pizza and i walked a bit,then more laying around,then at 9 something i was able to walk some more,and my dad called a very close person to me,a guy thats like my older brother,he cheered me up like he always does! we talked for about an hour.i talked to his gf too,shes a sweetie. then i felt dizzy so i went in my parents bed,and daddy slept on the couch,my mom and i watched my favorite movie"my girl". then we went to bed. the next day i tried moving around,and watched movies all day in the living room,then my sister in law stoped by. then thursday i was sitting and my bro came over to play guitar,he stayed till 9 something at night.but i learned my lesson from moving sitting alot becuz friday-money i was in pain. i cried saturday night in front of my brother!!! hes only seen me cry when i was young. but then tuesday i had the stitches out,the surgeron said it healed pretty good and it looks pretty good,i have had little pain last week if i sat to long, but this past friday my sister pushed the grocery cart into my tailbone,and i was spotting.. so i put bacetracin on it and it stoped.then today i accident scatched something down there,like dried skin or something and it started bleeding again.i duno what it is but my mama said to keep washing it and put ointment on it and give it another week to 2 weeks and see what happppens.shes a nurse, and me and her have grown closer. these cysts run in her family as well as my dads.so im thinking i got from the genes but i thought it was cause i was dirty or something but now i know it wasnt.ive been kind of freaking out.but i think i have nothing to worry about.but i do have a question,see i didnt have my period in july, and i still havent and i am a virgin,should i be worried like is this linked to having the surgery? oh i wanna give a great big shout out to a new friend that has a cyst on her tailbone and contacted me from this site, Rachel LoveLand, your the best! if you have the same kind of problems please contact me  thanks. love always, Erin p.s. its best to have the surgery becuz i havent had blood go through my clothes anymore.and its less painful and its only been 3 weeks.oh and daddy said to drink orange juice that will help it from healing and to not get a cyst and pimples.


Date:
August 12, 2003

Story

My husband had problems with a pilonidal cyst several years ago when he was in his mid 20s. As an auto mechanic, he was unable to work when the cyst flared up (it was too painful to bend over an engine, and he also found driving impossible due to the pain). The first flare-up was controlled with anti-biotics since he went to the doctor right away, and the abcess subsided fairly quickly. Then about 6 months later, the pain recurred, and he rushed to the doctor for more antibiotics. Unfortunately, the abcess didn't get better and rapidly got worse. By the 4th day of the pain, he was sent to a surgeon (he was given codeine for the pain so he could get through the night before the appointment). The surgeons took one look and said surgery was the only option -- and the cyst was surgically excised within 30 minutes of the appointment. The local anaesthetic didn't take, as is common for infected tissue, so it was very painful surgery, but it was short. I think my husband was in shock for a few minutes, but then he was so grateful that the pain was gone! He was able to begin wearing regular clothes again and was able to return to work. I remember driving to the surgeon's office with my husband lying in the back seat on his stomach -- the only position that wasn't painful. Anyway, the surgery healed nicely, and that was 15 years ago, and there has been no recurrence. We recommend the surgery by a competent surgeon with experience with this type of cyst, and good aftercare to ensure no post-surgical infection. I've read a few posts on the internet that some people have months of recovery to deal with, but that didn't happen in our case. My husband was back to work the next day after surgery, although he had to take some Tylenol for moderate pain.


Date:
August 12, 2003

Story

About seven years ago, I found a lump at the base of my spine. It was a soft lump and not really painful so foolishly I thought nothing of it.

Fast forward three years later and I had my first real flare-up. I could not lie down, I could not sit down, even standing up was uncomfortable. There really is no room for modesty or embarrassment when things are this bad, I thought, and promptly made an appointment to see my doctor. Doctor diganosed an abscess and prescribed antibiotics.

These helped to clear the infection and I though nothing more until my second flare-up around 10 months later - which was just as bad as the first. Again - abcess, antibiotics etc etc.

Only on my third flare-up - the worst one yet, earlier this year - was surgery even mentioned, and that was not by my doctor but a surgeon he referred me to. Only then was the phrase pilonidal sinus mentioned.

Fast forward to present day - My surgery was a month ago. My wound is healing very well - and I am back to work and everything. Consenting to surgery - even though it seemed daunting and I felt like pulling out more than once - is the best thing I have done.

I can't speak for anyone else, but if my flare-ups had continued in the same pattern and I decided to live with the complaint, I can't even begin to imagine what trouble I'd be in in 20,30 years time. Time really was of the essence for me. It may be for you too - get it checked out now - before you finish reading my story. Go on, go!

I know I have been lucky with a fairly quick-healing wound, no infection since surgery and a relatively small sinus in the first place, and I am grateful for these mercies. My heart goes out to anyone who suffers from P.S. to whatever degree.

For me, there is a lot of quirky things attached to this complaint: Jeep Driver's disease, hairy backs, "I'm telling people it's on my back when in actual fact it's on my ass", the wrong type of underwear, "I don't want to show my doctor that part of my body", sleeping standing up, people asking us what a pilonidal sinus is and then saying "eeeeeugh!" when we tell them, morphine-based painkillers that made me forget both when my birthday was and my pin number for my ATM card and a wound deep and wide enough to lose three fingers in up to the second knuckle.

Best wishes to anyone with P.S. - however you chose to deal with it - and may your God go with you.

Michael, Manchester, UK

 


Date:
August 11, 2003

Story

After reading several of the stories, I had to tell mine.

In April, I was traveling on business and was driving. After a ten hour drive, I had a terrible pain at the base of my spine. I went to the doctor, and he gave me an antibiotic, because he thought it was an infection. Unfortunately, after a week and not being able to sit or walk, I went back to the same doctor and he told me it was a pilonidal cyst. I was supposed to drive ten hours back home hte next day, so he got me into a surgeon to have the cyst lanced. Talk about a painful experience. The doctor cut the cyst open, I think, before the local anesthetic took effect, but as soon as he got all the way in, the pain went away. It was an awesome feeling, but one of the worst smells you will ever encounter. The next day I drove home, against medical advice, which was pretty stupid because it hurt like crazy the next day.

In Mid-June, I started to have pain again. I went straight to the doctor, and it was infected again. He gave me drugs, and told me to go to a surgeon. I was supposed to go on a cruise in a week, so I told the surgeon I could not do anything right away. She put me on very strong antibiotics that actually made it go away for a while.

At the beginning of July, I went back to the surgeon and the fateful day was set for July 29. I dreaded the day because I love to play golf, and my golfing for the season would be shot.

So the dreadful day finally gets here. The doc said that I would be out for about an hour and that I could go home a couple of hours after I wake up. So, I would be home by 10:00AM. So, they take me into the operating room, and that was the last of the pre-pilonidal experiences.

I woke up about 9:30AM in the worst pain of my life. Apparently the nurse had not given me any pain meds yet and the surgeon I had did not use local anesthetics with the regular stuff, so I had no pain medicine in me. After 40 milligrams of morphine and three Vicodin (which should knock out about 5 to 6 normal adults), I was still awake and kicking. By then, the doctor decided that I needed to be admitted to the hospital for "pain management." Really, my blood pressure had dropped because of the amount of drugs I had in my body. So my outpatient surgery turned into an inpatient, where I was in the hospital overnight and until 9:30PM the following night. At this point, let me say that the nurses and doctors in the medical clinic and hospital were great. They were very supportive and helped tremendously.

After getting out of the hospital, I had 6 working days off of work (one weekend in there), and went back to work for part of a day, which was a mistake. Getting around your house is a lot different than in the workplace. Also, I will bring up at this point that your hips will hurt very bad from the amount of time you spend on your side. Get some heating cream. My wife bought me some, and it felt great on my hips and sternum(laying on your stomach for long periods of time stinks also!).

I am now two calendar weeks since the surgery. I went back to work yesterday for the first time, and was in some pain, but if you have agood co-workers who are glad to see you, it is worth the pain. I got a lot of calls and flowers from well-wishers. I even got a ham, which was awesome!

The pain of sitting will last about 4 to 5 days, and then start subsiding. I actually went to a play about 12 days after the surgery, and while I never sat for more than 45 minutes, it was not too bad. I was only on Vicodin for 5 days after getting out of the hospital. My advice is take ibuprofen religiously. The Wal-Mart brand stuff works good, although I have to take 4 pills at a time(I am kind of a big guy).

Overall, it is not bad. It is a lot better than the pain every few months. I still have quite a ways to go as far as healing, but I can see progress every day. Actually, my wife can. I cannot actually see back there very well. However, if you ave a digital camera, take a picture and see what it looks like at different stages, if you can stomach it. Also, bathe it religiously. I stand in the shower for 20 minutes four times a day and let the water run on it, and it is looking good so far.

if you have any questions, please do not hesitate to ask.

Marshall in Arkansas


Date:
August 07, 2003

Story

Hello there!

Well, I've only just found this website and I had my operation 3 months ago. I wish I had found it then!!

I had a pilonidal sinus for about 6-12 months before even realising, I used to have a little pain and itching there but never really thought anything of it. Anyway, the pain started getting a bit worse and it started leaking a little bit so I went to the doctor and he put me on antibiotics for a week to see if that helped. It didn't so I was referred to a surgeon who then decided to operate. That was in May and we're now in August and I am still off work and still being packed every 2/3 days.

Having said that, I must say that I have suffered very little pain. When I went to hospital for the operation I was very very nervous but when I came out, I was on pain relief and that pretty much kept the pain away. I couldn't sit on my bum which meant I had an excuse to lie on my side reading a good book all day long!

The only problems I've had really is the amount of time I have had of work. Apparently this is because I had a sinus and then a channel through to another sinus deeper inside so that is why it is taking so long to get better.

As I'm a girl, I felt exactly the same. I didn't want to tell anyone what it was because I didn't want everyone to think I was a hairy monster!! But after looking on this website and hearing stories from my friends who all seem to know a girl who has had the same problem, it seems to be more women that get it than men!!

Anyway, if there is anyone out there who wants to ask a question or voice some worries then please feel free to email me.

Fingers crossed mine was a one off and I'll never have it again, but if I do atleast I'll know where to come to read up on it!

Sarah Barnes


Date:
August 06, 2003

Story

The first time I discovered this site, it was 2 weeks before my surgery (which I had never had any type of surgery before except for removal of wisdom teeth and I am PETRIFIED of hospitals and needles). Being 26 years old, you would think I would get over that. Anyway, when I first saw this, it scared the living heck out of me. I logged off the internet immediately and made a promise to myself that when my P.C. ordeal was over, I would come back and share my story. I was extremely scared and I want everyone to know that if I can do it, so can you. I first noticed my cyst (although I wasn't told in detail exactly what it was. I was told it was a boil) about a year and a half ago. I'm a receptionist (aka - gatekeeper) and I sit on my behind all day long. I knew there was something wrong and my mom is a nurse's aid, so I called her and asked her to come over after I got off work to look at my rear. (who else can you ask but your mother?) As soon as I walked in the door, I burst into tears. I actually stood and worked at my computer all that day. Mom looked at it and immediately called the doctor. That was the worst thing I have ever experienced. I seriously think getting that stinkin' (literally) thing drained has traumatized me for life). The doctor explained that it was like a house with a bunch of rooms, and every room needed popped. That was worse than the surgery. After the draining, it didn't come back for about 10 months. I decided to go to my family doctor and as soon as he said the word "surgeion" I cried. I was terrified. At the appointment with the general surgeon, he explained to me how he was going to remove the cyst. I asked plenty of questions, and I think he was a little paturbed with me for being so curious. I'm sure if his butt was getting cut open, he'd ask questions, too! Anyway, I told him I wanted the surgery ASAP. I had to wait 2 weeks, which were the longest 2 weeks of my life. He even gave me 2 valium for the night before. I had taken both and still wasn't calm. I had to be at the hospital at 5:30am. I cried in the waiting room, I cried lying in the bed. As soon as I got there & was taken back to the same day surgery unit, I asked for something to calm me down. My fiance was by my side the whole time (that's true love) :0) and before I knew it, it was over. I woke up in recovery and was very thirsty. Right away I told them my rear end hurt and asked to lay on my side. They were so very nice to me. I ended up getting sick from the anesthesia, which was not fun. Once I got home, I fell asleep on the couch and slept most of that day. I don't remember much of that day, except for the morning going in there. After 2 1/2 weeks, I went back to work. It took about 3 months for the hole to close. He had stitched it on the inside and said it had to heal from the inside out. It seemed like an eternity at the time. The worst part for me was not being able to sit for 2 weeks. I took painkillers out of boredom so I could sleep b/c there was absolutely nothing to do. I'd walk around the house (slowly) for an hour or two and then lay back down. Then I'd stand and watch TV. It was horrible. But, that being the worst thing I had to deal, I really can't complain. I went back to my General Surgeon about 5 times after the surgery, just to make sure everything was healing right. My surgery was on February 6, 2003 and today, it's as if the surgery never happened. Well, ok, I'm lying. Sometimes when I sweat, I notice it gets a little tender but nothing like the pain I had experienced before. I just want everyone who is suffering from this to know that it's okay to be scared, you're not weird or abnormal (what is normal?) or a freak. It happens and it's something in life that can make you stonger, if you let it. I must admit I am no longer PETRIFIED of hospitals. My experience there, considering the circumstances, couldn't have been better. I still, however, don't like needles, one bit. There is no guarantee that it won't come back, but I'm not going to worry about that until the time comes. Like everyone else on this site has said, ASK QUESTIONS, DO RESEARCH, AND my own little piece I want to add - it's okay to be scared, but you're worrying for nothing! Holly, PA


Date:
August 05, 2003

Story

love to get a recommendation for a good PC surgeon in Sydney, Australia.  I was supposed to have surgery this morning but was cancelled because there were no beds available. (we have a useless public health system in Australia). After reading all these stories I'm starting to think that my general surgeon may not be much of a doctor as he said that, "This procedure is usually done by trainees". Perhaps my cancellation was a godsend!


Date:
August 05, 2003

Story

I am a woman in my early thirties. In my late teens I continued to have reoccurring episodes of pain and pressure in the tailbone region. It took about a year and a half of discomfort before I felt the dreaded bump on my backside. I come from a family of five girls and at the time it was considerd a "boy thing". My Mother had several brothers diagnosed with it. Well I was away from home when it really flared up. I was staying with friends in Arizona and I was far away from Boston, my home. I was too embarrassed to ask for help from them, so realizing I could not even walk, hell I could barely lie down, they took me to the ER. They pretty much lanced it padded me up and sent me away, not even telling me what it was. (they probably didn't know) Well it was after three of my four sisters developed the same painful symptoms that I spoke openly about it. I continued two more years with the painful flare ups until after a long bus ride I was in such agony I jumped off( probably slowly crawled off) somewhere I think North Carolina,Flew home, Met a great surgeon and removed the cyst as well as the sinus cavities I had. I was twenty one. The freedom that surgury offered me was incredible! Two of my sisters had to have the surguries as well. My oldest sister hasn't yet and still gets flare ups. She feels she can deal with it and says they tend to come when she's stressed or near the start of her menstral cycle. I was actually visiting the site because I believe my husband may have it. (Poor guy!) Any way thats my story.

A pain in my ass that wouldn't pass, But now like my ass its behind me.


Date:
August 02, 2003

Story

Hello all im glad to know im not alone in this. At first I was thinking that I was to young to have this ( im 21 ) but reading all of the other storys helped me. My cyst appeared out of no where. One night my husband and I were goofing around and I hit my tail bone. Well that is what I thought had happened. Anyway I went for 5 days with this lump down there. Wich durring that time it was about 10 times the size it was when it started. So I finally called the Dr. and got an appointment for that same day. He looked at it and " gave me the news" so he called a surgical center and scheduled my surgery for 2 days later. Those were 2 long days. The cyst hurt so bad by the time I went for my appointment that I could not sleep on my back, sit, stand or bend over. I was in pain all day and night. So when I went for my surgery appointment they excised it and I have been feeling great ever since. I have had 2 children without ANY pain medicine and this was alot worse than having babies. The surgery itself didn't hurt that much. The most painfull thing about it was the shots to numb the area. But as soon as they drained the cyst I felt 100% better. Then they cut out the sac, packed it and sent me home with some supplies to change the dressing. It has been 2 weeks now and I can sit at the computer without a pillow under me and lie on my back to watch TV in bed without pain. My wound has been healing great. My advice to anyone who has a Pilonidal cyst is to have it removed. It was the best thing I could have done.

Kim Feeling great in Wisconsin.


Date:
August 01, 2003

Story

Strange...Cyst! I just had an excision of a pilonidal cyst. As a matter of fact im sitting on a pillow right now to ease the discomfort of my stiches. Neways I had my cyst for about 8 months before I finaly had it taken out. After the surgery, ealier tonight actualy, I was lookin on the internet for info and somthing strange occured. First, Im a big Jeep fan I have a Jeep wrangler and love it to death. Many of my closest friends also have Jeeps. Ive had my new jeep for about 8-9 months now and never made any connection to the fact that Ive had the cyst for about the same time! Tonight I was looking on a web site about cysts and saw this. "Another theory is that pilonidal cysts are acquired through trauma to the sacrococcygeal region. During World War II, more than 80,000 soldiers developed pilonidal cysts that required a hospital stay. People thought the cysts were due to irritation from riding in bumpy Jeeps. For a while it was actually called “Jeep disease.”" Coincidence?....Hummm definetly strange! So if you dont want to get a pilonidal cyst then you better not buy a Jeep!!!


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