Personal Stores Archive #3

Stories from Feb 1, 2001 to April 30, 2001

Date:

Friday, April 27, 2001

Story

Hi! This is Tiff, i am just updating from my last post i put on here. I had my second surgery yesterday (the 26th) and it went well. Although i am in excruciating (sp?) pain right now, i feel pretty confident that he did it right this time. I am not going to go all into detail about it because i am really in pain right now and in an uncomfortable position lol. But the doc. said it was deeper and more infected than he though, so he cleaned it out good, and somehow graphed my skin so its not as deep to pack, so it is less painful to pack and unpack now. And the good thing is that i only have to have the nurse come once a day now, and thats good, last surgery it was twice a day and the wound was 4 inches deep.....can we say painful!!  Thanks, bye


Date:
Thursday, April 19, 2001

Story

Hello..I am a 21 year old female. I fell down on my tailbone rollerblading when i didn't know how about 3 years ago and It had been sore but I knew that sort of injury couldn't be rectified. About two weeks ago, I noticed a lump on the crack of my butt and that I couldn't sit like a normal person...in the past week, it became so infected and so big, I felt that I had a new intentity on my body! I was a little scared. The heating pad was my friend and when i went to the doctor, he told me it was a pilonidal cyst. I wanted so bad to just stick a pin in it and drain it out becuase the pressure was so unbearable. Today, i went to the doctor again and he drained it for me. It felt sooooo much better and I wanted to just hug the guy. I am scheduled in a week for a follow up to see if the infection has gotten better and then I can schedule for my surgery. Thank you for your stories. I have learned so much from your experiences and I will definitely heed to the tips you people have shared.


Date:
Monday, April 16, 2001

Story

I am so glad I found this site...a few weeks ago I started having severe pain above my tailbone...my family just figured that it was a bruised tailbone so i took advil and slept on my stomach with a heating pad...finally after a few days i was in such pain that my mom took me to the orthapedist figuring i had a broken tailbone..in literally one second he told me it was a pilonidal cyst and sent me to the rectal surgeon...they drained it immediately and i was in a great deal of pain for about four days...i have to have surgery in august to remove the cyst itself but i dont care how much pain i am in after the surgery because i dont think anything will ever compare to sitting in the car for four hours on a car trip hysterically crying and no one believed that i was in any pain...i am so glad i got rid of this infection and i am not even worried about the surgery..great site!


Date:
Sunday, April 08, 2001

Story

My daughter had the surgery Feb. 7, 2001. The incision was about 4-5 inches long and about 1-2 inches deep. We cleaned and packed 2x/day and everything seemed to be progressing nicely. Finally healed end of March; but in a few days it was opening back up. We are now shaving, cleaning and packing again. She plays fastpitch softball - she pitches. The doctor said it was ok for her to play, but I can't help thinking the strenuous motion she goes through re-opened the wound - especially after reading some of the stories here about athletics, horse-back riding, etc. I'd be interested in hearing from others as to physical activity and re-opening of wounds. It seems the doctors are not limiting activity, but maybe we should be - ??? Thanks to all of you for sharing your stories; it helps to know what other people are experiencing with this condition and my prayers go out to all of you - this is a very frustrating thing to deal with - and I'm just the parent!!


Date:
Saturday, April 07, 2001

Story

i wrote my story here, and i just realized that there is not nearly enough awareness about this disease/condition...i am hearing all these people tell their stories, but im sure there are many more who arent even aware that they have it. lets try to bring this painful and embarrassing topic into the light, and help out other people suffering!!! i


Date:
Saturday, April 07, 2001

Story

about a year ago, i noticed i was getting these painful lumps right above my tailbone. i couldnt sit or stand or walk or anything. i always thought it was just a bruised tailbone, so i thought just relaxing would take care of it. i hadnt gotten the lump for a while until a few days ago, and this time it was soooo painful i couldnt even eat or sleep. because i didnt think it was anything serious, i didnt tell anyone at all, but it finally got so bad that i went to the doctor's. he took one look at it, and told me it was a cyst, to go home and put a hot compress on it. i went home, and it was so bad that i had to wake my mom up and get her to bring me to the hospital. i thought it was more serious than what the doctor thought... so i saw another doctor at the hospital, and he told me it was in fact a pilonidal cyst, and that if i had left it another day, it would have exploded (literally) inside me, it was so bad. he said the abcess was the size of a tennis ball. so he prepped me for the lancing, and i have to admit i was a baby about it. i have never ever had a needle in my *ss, and it wasnt fun, as everyone here knows...so, the lancing went well (the doctor told me he had drained over 3 ounces of abcessed fluid from it), packed the incision, and told me to come back 2 days after to remove the packing. i didnt sleep for 2 days because i was so afraid it would be painful, but i got a new doctor the 3rd time around, and he was amazing. he slid the packing out, and i feel great. he told me if i was lucky the abcess would never come back, but from what ive read it most likely will. yeah, im scared out of my mind that it will, but its nice to know that there are more people (especially females) out there that know how this feels, and people to talk to the next time it happens. its nice to know that theres support for us, because no matter how much anyone tries, no one could possibly understand how this feels...


Date:
Saturday, April 07, 2001

Story

Hey everyone! I have to say im very glad i found this site, i was beginning to worry that i was the only one out there with this LOL! Well, im 15 now and noticed i had some pain at the top of my tailbone when i was about 13/14, i let it go for a whole year, being too embarrassed to tell anyone about it haha. I finally went to the doctor after showing my mom the small pinhole size hole on my tailbone with small amounts of blood coming out of it. See, my story is a little different, as it severely conflicts with my sport....horse back riding! And i dont just ride for pleasure either, i mean i ride every day for atleast a half hour, i show almost every weekend in the summers...its my life!! its the love of my life and its my dream to become a professional, it going to be my career also! Anyways, on w/ my experience lol. So in the spring of 1999 i went to get it checked out, he sent me to a surgeon and the surgeon said it was a pilonidal cyst, he gave me a shot of novicane and lanced it right then, i couldnt go to school afterwards, because i could barely sit! That healed in about a week or two, but it kept opening up and being soar, none the less, i still kept riding all summer, i was scared to tell anyone it was still bothering me because i was having a great riding year! But i ended up not being able to ride one day, it hurt soooo bad! I went to the surgeon again and he decided to schedule a surgery to remove the whole thing. I got the surgery in early August of 1999. It was my first surgery but i wasnt very nervous, they put me out (in twilight zone or whatever they called it lol) and i couldnt remember or feel a thing, before i knew it i was in the recovery room not feeling too bad. My surgeon came to talk to me and said it was HUGE with lots of cavities but he was "pretty confident" he got it all out so he stiched it up. Two days later i was at home feeling pretty well actually, the day after my surgery i had even gone to see my horse! But on the 3rd day after surgery i noticed a big lump by the incision, like it was filling up with pus or something, and it was warm to the touch. I told my mom about it and then i started getting sick to my stomach, and i had a high fever of like 103*! So my mom ran me to the ER and the doctor there said it had gotten infected, so he took the stiches out (W/O any numbing...AHHH that hurt!) and it was bleedign all over...he sent me home and said i would need a home nurse to come twice a day for a while to pack it. That was probably the worst part...it was soo painful, the incision was atleast 4 inches deep! Anyways, it healed up ok and i was able to go to school in the beginning of sept. and was riding again then too. But i think it flared up again from riding too much, so it opened back up, i kept going to my surgeon and asking what was wrong, he finally said (in January of 2001!!!) that he didnt know what to do!! GRRR so i just had an appointment with a "colon and rectal surgeon" last week (April 3rd) and he knew EXACTLY what was wrong just be me telling him everything, so he checked it out (and by the way, we woman really DO have to get over our fear of letting doctors look at our bums hehe, i am only 15 and am totally used to it by now, which is a good thing). So he said my surgeon should have just not stiched it up at all and let it heal from the inside out, so i have to get another surgery april 26th and start all over again, simply because from my last surgery, it hadnt been packed correctly and it left out a pocket, so now it is getting infected again and he has to dig all the crap out, he said it's sort of like a cave now. Well i just thought i'd share my story....it really gets me depressed when i think about it too much because riding is literally my life, i dont know what i am going to do without it! It just figures that i have to have THIS problem! But sometimes i think about it and i am very lucky that i dont have anything more serious like Cancer and such, i just hate not beign able to ride...and when i DO start riding....im scared its going to flare up again! But nothing's going to stop me lol, i cant stop riding for too long!


Date:
Sunday, April 01, 2001

Story

Hi! I am 22 and am having my 3rd operation soon :( I first experiencing discomfort 2 weeks after buying a new mountain bike and riding some bumpy ground. I am quite hairy in that area so I guess a hair was pushed backwards. My sinus formed at the top of the crease. It did not extend further up the back or anything.

So, my first operation was the Bascom Procedure. Basically, they cut a slot along the bum cheek parallel to the crease. Then they go under the skin into the tract and hoover it out and clean it. They then graft some skin and fill up the tract and close it with sutures. Unfortunately one of my small openings in the crease reopened and started sucking hairs in again and reoccurred.

I was in again and this time had the total excision. I had all the stories too. Fist size holes, really painful. All untrue for me. Well, the hole was big. 4 inches or so long and 2/3 inches deep. But no pain. They dressed it by filling it with a foam (Cavicare). Things were going well. It took 1.5 months to get to 1 inch left to heal. I stopped using the foam and dressed with Aquacel topical dressing. But the 1 inch never healed. After another month I stopped using Aquacel and it started healing again (weird..was I pushing it in too far?) but by this time it had reinfected despite efforts to shave.

So, saw the surgeon last week. We are now trying the excision with flap closure. Bit of a nightmare cos I can't plan for anything, can't exercise or do anything like that. I hav learned to loom on the bright side and am being positive. I think that helps a lot. I have also successfully lost the 1 stone (14 pounds) of weight I gained by not excercising and being depressed last year.

Good luck everyone!


Date:
Sunday, April 01, 2001

Story

I am an 18 year old female who has had surgery 3 times for a polinidal sinus/cyst/abcess (it's been referred to as all 3 by doctors). I first noticed the cyst December of 1996 when I was 14. I came home from the hair dresser and noticed blood on the back of my underwear. Upon examining it further, I could see and so could my mother, that there was a tiny hole the size of a pinprick right above my tailbone where the blood was coming out. I waited until the next morning, and since it was still bleeding, I went to the emergency room. The doctor diagnosed me with a polinidal sinus, gave me antibiotics, told me I'd have to have surgery, and sent me home. I took 3 different antibiotics and in April of 1997 I had surgery. The doctor left it to heal from the bottom up. I didn't stay over in the hospital at all, but I had nurses come to my house twice a day to do the dressings. It closed July of that year, but opened again after I rode a bike. The nurses came back to do dressings (they used different kinds, even alcohol swabs at one point which was extremely painful!), and it closed up in November. Then, summer of 1998, I noticed drainage coming from the area again. I went to the doctor and he got me to have surgery the next day. This time, he stitched it up. Once again, I didn't have to stay over at all. However, it only stayed closed for about 2 weeks. It opened and I had the nurses again for about 2 months. After that, it would stay closed for about a month, then open and bleed and/or drain for a week, then close. I went through this opening and closing, not knowing what was going to happen from day to day, until it became infected yet again. This time, it burst which was extremely painful and scary. My doctor was running out of ideas. He told me that the tissue was so scarred, it was just not staying closed. He referred me to a reconstructive surgeon. Together they did what I think is a skin graft (I think it was the Z-plasty, but I'm not sure). It was pretty major surgery (which the nurses repeatedly said). I was in the hospital for 3 weeks. I was on complete bed rest for a week, and for about a month, I wasn't able to sit down at all. So far, it seems to have worked. It's sometimes painful to sit down for long periods of time, but it hasn't opened or drained for just over a year. I'm hoping that last surgery was the answer. I wouldn't want to go through that again!


Date:
Friday, March 30, 2001

Story

I remember at the age of 17 years old and active athlete that I felt a strange discomfort in the inside of the buttocks area. I tried to ignore it but the pain kept getting worse and worse till my mother who is a nurse to took me to the emergency room. I remember the humiliation sitting in the waiting room and the cyst exploding blood all over the back of my pants. The doctor on duty quietly lanced and bandaged it and said it would be allright. After two weeks I was still anything but allright. My mom contacted the best doctor she knew who promptly diagnosed me with a pilonidal cyst. With my high school athletics going on I did not have time to research what it was just that I wanted it out and soon as possible. Two weeks later after the surgery I had the packing, stitches, and drain removed and a week later was competing in track meets. I figured it was over boy was I wrong. Now almost 10 years later on the exact time I had my last time it returned with a vengeance. This time I had little warning and after trying to take care of it at home I ended up going to see the same doctor that performed the last cysterectomy. He diagnosed it as a pilonidal cyst and put me on antibiotics and three weeks later I was back in surgery again. This time with a little research I found out from the doctor the one I had was caused my a ingrown hair that burrows under the skin forms a sac which fills with pus and blood. This surgery never compared to the first one because the doctor told me it was 10 times worse then last one I had. I have spent the last month taking painkillers and changing dressings and look forward to having my stitches out almost 5 weeks after the surgery. The removal of the drain a week prior proved to be a immediate aid to my discomfort but due to the heavy drainage and long drive to work I have been unable to work. Sitting has been a chore and I just found out from the doctor due to how large it was that it would drain for the next three months at least. When the are removed that will leave a sizable hole and will heal from the inside out which will take at least three months to heal. This contrasts from the first one and has me thinking if I will ever have to go through this again. There is no real prevention from the cyst no matter how clean your habits are because by the time you discover you have one it has grown considerably and the pressure of the fluids pressing to get out of its confined space will eventually show in some form of redness and or drainage. Its nothing to be feared because of medical technology and with the inventions of ingrown hair medecine they are able to start preventing them from happening. It does not only happen from ingrown hairs but any type of infection below the skin can cause a cyst. m.


Date:
Thursday, March 29, 2001

Story

Hello. I am 26 years old, and currently in my seventh day following my surgery. To be quite honest, I am not entirely sure whether my cyst was excised or simply incised and drained, but I believe it may be the latter.

In any case, while I do give strong kudos to those who run this site, I do caution anyone who has a pilonidal cyst to give stronger credence to their doctor's advice than to information on the Internet ... or, if you do look for information on the Internet, be sure to judge for yourself the quality and the source of the information you are reading [i.e. information for doctors (good) versus personal ancedotes (bad)]. Remember that people's personal ancedotes may differ from your own cyst's etiology in hundreds of different ways.

For instance, I do not know about you, but I tend to become panicked somewhat easily, so reading stories on this site where someone is still packing their surgical site a year later make me more than a little nervous. That is why I chose to abstain from research on the cyst for the weeks prior to my surgery.

My surgeon advises me that he has been doing three of these a year for the last 15 years, and he has never had an incidence of recurrence, so I am banking my hope on that.

In any case, this is not a fun thing to deal with, although when I see a neighbor with cerebral palsy or hear a friend has skin cancer, I realize it is far more easier to deal with than many other diseases and conditions out there. I nevertheless wish all of you the calmness you need to deal with this situation, a future with no recurrences, and very quick recovery from any surgical operations you have had or may have.


Date:
Thursday, March 29, 2001

Story

Hi folks. First off I never knew that this was a topic that I'd actually find info on on the internet, so I was really surprised when I found this site. Thanks everyone for all your stories and info, so far it's been really helpful. Anyway, I'm a 22 year old college senior and I first was diagnosed with the cyst back in August. I was playing hockey when I fell and landed on my tailbone. The next day it was sore and swollen, I figured it was just a bruise or whatever. Then the next day in class I couldn't even sit down and I had to leave. That night was the worst and most painful night of my life. I couldn't sit or sleep and it seemed like even moving a finger would hurt that area. I had to have someone drive me to the emergency room to get it lanced and drained. Then I saw a surgeon and was put on an antibiotic and after a couple weeks it seemed to get better. Now it's the end of March and it just recently started giving me problems again. I've noticed that there's a hole at the base of my tailbone that hasn't stopped bleeding for a week. Does this normally happen and will I definitely need surgery to stop this from happening? The area has been really sore again and I'm starting to go crazy from the discomfort. I did set up an appointment with the same surgeon for a couple of days from now. Also, and I don't know if this is common, I've been getting bumps or cysts in other places as well, like under my arms and on my chest. I've really active and I thought it might be something like my sweat glands blocking or something but now I'm thinking it may have something to do with this cyst. Anyway, I'm sorry this has gone so long but I have a million questions and it seems like there are a lot of people who have gone through this and are willing to give advice.  Phil G.


Date:
Monday, March 26, 2001

Story

First off THANK YOU for this information. My surgeon was really nice and handled this embarassing situation very nicely, but He really left out what a long process this is. It wasn't until I found this page that I fully understood what I was getting into. I am 30 years old and I have had pain in my tailbone for about 15 years. It wasn't until Jan. of this year that I had my first flare up. Since then I only had one more, but it was enough for me to finally go to the dr. He immediately sent me to a surgeon. My surgery was scheduled shortly after. I am in my third week of recovery and doing well. My encouraging news for anyone planning the surgery... I have had very little PAIN since I came home. I have only taken pain killers to sleep. I did have a hard time taking care of my 11 month old the first week, but my husband and family were great. My advise is make sure you have support around you before you go in for surgery and you will be fine. BEST OF LUCK TO ALL!!!!!!!!!


Date:
Monday, March 26, 2001

Story

I am a 28 year old female and have had two flare ups with my cyst. I have not had surgery or been to a Dr. for it as I knew what it was. This cyst runs in my family and both my father and aunt have them and my aunt actually had hers surgically removed (twice). I always noted that I had some sort of zit at the top of the crack of my butt (pleasant huh?) but it never really did anything. After an 8 hour car ride when I was about 20 I had my first flare up. Oh my god did this hurt and it was HUGE! I could not even sit down. I can remember going to my cousin's house and having to lie on the floor because I could not sit down! At this point I was just thinking it was a boil, so I treated it with hot compresses. When this thing burst it was the most disgusting thing I had ever seen or SMELLED! There was just so much puss and such. I now have 3 or 4 small holes where the cyst is and have had only one other flare up last year which was no where near as bad and I just took a lot of hot baths to get it to drain. I really don't want to have to have surgery if I can keep the number of flare ups down. Two in 8 years really isn't so bad, but I wanted to let you all know that I know exactly how you feel!


Date:
Friday, March 23, 2001

Story

It's great to see this site. Thanks for setting it up.

I had my first pilonidal cyst when I was 16. I had no pain symptoms, just a lot of discharge. My dad had this also when he was in the military, and he said he never had discharge but did have a lot of pain. It seems symptoms can vary.

I had outpatient surgery at that time. The doctor stitched up the incision and I was back at school in a few days. I didn't think about it again.

Then, a couple of years ago when I was 26 I noticed the discharge again (but no pain). I went right to a general surgeon since I had an idea what it was. My cyst was back!

I again had outpatient surgery. This time, however, was more difficult. I was very sore afterwards for at least a week. I had very little energy and missed a week of work. I brought a pillow to work to sit on since it continued to be sore. I think my inicision this time was deeper to get beyond the original surgery.

The treatment this time was to pack the incision so it could heal from the inside out. I took multiple baths a day and my husband changed the bandages. I don't know how someone could do it themselves! My doctor (who was a woman, and was great-I was lucky) said that it had recurred probably because of the stitching of the incision. She said the packing would reduce the chance of recurring by a lot.

It took me a VERY LONG TIME to heal. I was still packing my incision a year later. My doctor was surprised, but if the longer healing means I won't get it again I'm okay with that.

I periodically check to make sure it hasn't opened again. Hopefully I won't have to do it again.

One thing...the gauze used for packing. My doctor gave me some that worked really well and came out easily. I am not sure what kind it was. One time I bought gauze from the store. That particular gauze somehow "stuck" more when packed and was VERY painful coming out. My doctor's gauze hurt very little when coming out.

Good luck to anyone dealing with this.


Date:
Friday, March 23, 2001

Story

I'm a 21 year old female and finishing up my 2nd of 3 years of nursing school. I first discovered what I would later find out was a pilonidal cyst after a six hour drive home from college when I was 20. It was a movable bump about the size of a peanut on my tailbone. I went to the doctor and he diagnosed me with a pilonidal cyst and put me on 10 days of Keflex. The inflammation went away but the bump didn't. 6 months later it abcessed and was the size of a walnut. I could hardly sit. Once again I got put on antibiotics (this time amoxicillin) and after 5 days I couldn't stand the pain. It didn't even touch it, in fact it got worse and bigger! Not to be crude but the top portion of my crack was flat and bulging towards my tail bone. I was then refered to a surgeon. She almost had to drain it but at the last minute decided to try to knock it down with a broad spectrum antibiotic- Cipro. Ode to Cipro (a haiku) Cipro for my cyst Intestinal distress reigns Is all this worth it?

Yea, so cipro tore me up bad. I highly suggest eating lots of yogurt or investing in some acidophilus to replenish some of that good bacteria that cipro is killing. I ended up being on antibiotics for 18 days. (TOO LONG!) Once the abcess healed, my doctor said that I should have it surgically removed. I had that done a month and a half ago. First of all I chose to be awake for the surgery because there's always less risk to your health if you do not use a general anesthetic. I had a wonderful drug called Versed which has an amnesia affect and a spinal. I was really tired and loopy (but never nauseated) during the surgery and I took naps through most of it. Never did I feel nervous or distressed while on Versed. Start to finish the surgery took about an hour. The doctor was able to suture my butt cheeks closed because the cyst was relatively small. I was sent home with a bottle of vicodin, a huge padded pressure dressing, a drain that was inserted about half a cm from the wound, and a 3 in long wound. I took the vicodin every 4 hours for the first night because I was in a lot of pain. From the 3rd dose on I got so nauseated ( I barfed and I HATE barf) that I stopped using it all together. I was able to control my pain pretty well from that point on with ibuprofen. (eat something with it though.) Bottom line, I was in a lot of pain for about a week and a half but I went to school on monday (4 days after surgery with no vicodin). That was probably a bit too much and I bearly made it through the end of my classes. Stitches and drain were taken out after 5 days. I couldn't drive (or sit straight) for 10 days. I wasn't pain free for about 2 and a half weeks. I was pretty impressed with how fast I healed really and the surgery was definately worth it in my case. As you can see, in my case the pain was managable enough for me to resume with my college and nursing duties. I was back in action with minimal pain in a week to a week and a half. My advice, if they can stitch it closed, definately worth it. Your butt crack might be quite a bit shallower but, come on, who really cares about the butt crack's appearance?

Ode to pilonidalcystectomies (a haiku) Hot throbbing butt pain Sweet cystectomy cures me Shallow crack remains


Date:
Thursday, March 22, 2001

Story

I am 25 years old and have had 5 surgerys since april 2000. And i will probably have to have another one soon. My doctor told me that he thought it would not come back.Well it did my last surgery was in jan 2001 here it is march 29 and it is back already.I realy wish that there was something that could be done so it would stop coming back time after time.Iknow one thing my wife must realy love me to change the nasty bandges all the time.This thing is so nasty and painful i would not wish it on anyone.They say it happens with guys with hairy butts but the thing is mine is not hairy. So i don't know what is going on here but i wish it could be corrected.I hope anyone else who has surgury that it is successfull.Good luck to anyone else.


Date:
Tuesday, March 20, 2001

Story

Hi, my name’s Steve & I live in Great Britain. I am a 40 year old male & I first noticed that it was uncomfortable sitting down towards the end of December 2000.

When I pressed the skin in the sore area at the bottom of my spine, I could feel a small hard lump which hurt.

I left it for about 2 weeks over Christmas but it didn’t get any better although the lump didn’t get any bigger.

On the 20th January 2001, I visited my local doctor who told me that I had a Pilonidal Cyst. The doctor said that sometimes, they heal with no treatment needed so I made another appointment for 2 weeks later.

As the lump was still there 2 weeks later, the doctor referred me to a surgeon who I visited on 19th February 2001.

The surgeon confirmed that it was a Pilonidal Cyst but that it didn’t appear to be infected yet.

The surgeon said that he recommended surgery which he said was called an excision.

He explained that there were basically 2 types of surgery. One involved leaving the wound open to heal from the bottom up which may take about 8 weeks. The second which he normally does if the lump is not infected & if you spot it early is to stitch the wound back up. This usually takes less time to heal.

In my case, the surgeon recommended stitching the wound back up. He made an appointment for me to have the surgery done as an outpatient on 5th March 2001.

The surgeon explained that I would need to visit the hospital at about lunch time & the operation would be done in the afternoon. He thought I would be able to leave on the same evening.

The surgeon told me that I would have a general anaesthetic and that the operation would take about half an hour during which the lump would be removed.

The surgeon also told me that there was a 75% chance that the surgery would be successful on the first time but that the problem sometimes recurs.

I asked what would happen if I didn’t have the surgery as I was worried about having an operation. The surgeon said that it might not get any worse for several years but the risk was that the lump would become infected so he advised me to have the operation and I agreed.

On the day of the operation (Monday 5th March 2001), I was only allowed to eat a light breakfast before 8am and could only drink water before 10.30am. My wife took me to the hospital at 11.30am. The operation was scheduled for about 1pm and the nurses were very good about explaining what would happen. They also gave me leaflets about pain relief following the surgery!

The anaesthetist also explained what would happen and said I would be out for a couple of hours. He explained that after the surgery, some sort of drug would be used to bring me round.

At about 1pm, I was wheeled down to the recovery room next to the operating theatre where I was connected up to some monitoring equipment. The anaesthetic was administered using a tube which went into a vein on my left hand.

I think it took only a few minutes to go to sleep and the last thing I remember was the surgeon eating a sandwich as he was getting ready!. The next thing I remember was coming round in the recovery room at about 2.30pm. At first I panicked because I thought that I hadn’t been into surgery yet & that the anaesthetic wasn’t working.

It took about 10 minutes until I realised that the operation had been done & I started to feel some pain if I tried to move. If I kept still, it was more like a dull ache.

Whilst you are coming round, they kept me in the recovery room near the operating theatre on the monitors until they were happy that I have come round properly.

I was then wheeled back to the ward where the nurses kept checking me about every half hour.

I was allowed to eat at about 4.30pm as I didn’t have any sickness after the operation.

I was given pain killing tablets at the hospital & they gave me some to take at home for about 4 days after the operation.

My wife collected me at about 7pm on the same evening. It was quite painful sitting in the car so I lay on the back seat.

For the first 4 days, I took the pain killers & these helped. It was easiest to lie on my side & if I didn’t move too much, the pain wasn’t too bad.

My wife changed the dressing each evening and I visited the nurse at my local doctors each morning for the dressing to be changed. The nurse explained that the most common problem was the wound getting infected so you need to keep it clean.

On the Saturday, I went to the bathroom & noticed quiet a lot of bleeding for the first time. I changed the dressing but waited until the Monday morning before going back to see the nurse as I didn’t think it was too serious.

The nurse explained that some bleeding was normal but I should go back to see her each morning just in case. The nurse spoke to my doctor who advised me to be off work until 23rd March 2001 which meant 3 weeks off work. Originally, the surgeon had guessed at 2 weeks off work.

On the Thursday morning (10 days after the operation), I went back to the nurse who said she thought that the stitches were starting to react with my skin. I told the nurse that my wife had noticed that the wound had started to smell so the nurse took a swab to send off for testing to see if the wound was infected.

On the Thursday evening (15th March 2001), I visited the surgeon who removed the stitches as he confirmed that the stitches were starting to react with the skin.

The wound had not completely sealed up at this time as there was still a small hole at the top of the wound.

After the stitches were removed, the pain became a lot less and I could sit down on a normal chair.

The surgeon explained that he had removed one lump which contained a small ball of hair. This is what can cause the infection. There were no other lumps & he didn’t think that the condition would recur.

I continued to visit the nurse each morning & my wife changed the dressing each evening.

Even though the condition is embarrassing, I would advise anyone to visit the doctor as soon as you notice any soreness around the base of your spine.

If it is diagnosed & treated early enough, it is less painful & takes less time to heal than leaving it until it gets infected.


Date:
Thursday, March 15, 2001

Story

Hi, my name is Martha and I am 15 yrs old. I just had a surgery on March 7th. It wasnt a long procedure, I went into the hospital at 11am and was out by 2. I had started getting pains in Dec of '00. I know it wasnt that long ago, but first I thought it had to do with the medicines that I was taking. That something went wrong and that they didnt mix together well. So, I ignored the pain and stopped taking the medications. So in the beginning of Feb the pain came back, though it didnt go away like last time. The pain was so bad that I couldnt even stand up more of a less walk or go to the bathroom. I didnt eat for like a week, all i did was drink water. Then, since im still in school, my parents wanted to know why i wasnt going. So I told them that my butt was hurting real bad. At first, my family members were making fun of me cause I was walking funny (that was when I was walking). Since im the baby of the family I wouldnt let them see me in pain. So I stayed in my room and just cried. I didnt take any medicine (Advil,Tynol) So like after a week and a half I finally couldnt take the pain anymore. I had my mom take me to the ER. The Dr made me pull down my pants, (I would have been embarressed but I was in to much pain) Though the stupid Dr pulled them down, she pushed the bump thing in all hard. I started yelling at her and then cried. She told me that all I had was a pimple on my butt. So, I left and made an appt with my real Dr. It was then that he told me that I had the Pilonidal Cyst. He gave me some antibiotics and made me another appt for me to see him because he said that it was infected and he couldnt do the surgery on me. So, like 2 days later it busted. And, like those of you who's thing busted, not a pleasant smell or feeling. But I got to admit that the most of the pain went away. It still hurt but, not as much. So he saw me a week later and schedualed my surgery. I had it on the 7th of this month. And I had Outpatient surgery. What kind of surgery is that? (I know I sound dumb, but i'd like to know) And umm... I was wondering if someone can e-mail and talk to me about this stuff, cause my Dr is out and there is no way im talking about my ass with my family since they are just gonna make fun of me. So I might as well talk to someone who has been through a same experience.

I want to say thanks to the person who created this webpage,for putting out useful info on this kind of stuff.

Martha;


Date:
Wednesday, March 14, 2001

Story

I am now 30, and today I have just realized that I am probably dealing with my 3rd cyst. The first was when I was 12. I first thought that I had hurt myself in gym class or something like that. As it got worse I finally told my parents and we went to see a doctor, who performed a very painful incision and drainage. It did not heal after that, but got worse until it burst and I was taken in for emergency surgery. It took weeks for it to heal after that and this doctor treated me like I was a whining child, telling me that truck drivers had it done all the time and returned to work the next day! It was a major struggle to get an excuse for missing school from this guy.

Then when I was 19, I developed my second cyst. I was put on antibiotics for a while so there would be less of an infected area to work on. I had the surgery about a month later. The doctor that time originally tried to close it all up, but it kept getting reinfected. Every follow up visit I had, I was cut again, and finally we packed it to heal from the bottom up. After about 2 months I was able to start driving my car again, but only if I sat on my side. It took about another month until it was healing with no packing material.

Now I believe its back. The area of my scar has hurt from time to time, and today I checked it out with my ultrasound machine at work, since it is hurting a lot more than usual.. It looks very much like an abcess formation and I am terrified of having this surgery again. Not only is the pain unbearable, but I don't know how I'll handle this financially...being out of work for so many weeks. I have good health coverage, but since I do temporary contract work, I don't have any kind of paid medical leave. My best hope is if I can get the infection healed up enough so that I can work overtime to make enough to pay the bills for when I do have the surgery. I am glad to have found this site though. I wish I could have heard other people's stories the first 2 times, so I wouldn't have felt so bad about it all. So many people then made me feel like I was exaggerating the pain and recovery time. And its nice to hear that I am not the only female to go through this, and that I am not the only person to deal with a recurrence.


Date:
Tuesday, March 13, 2001

Story

I am a 22 year old female. I am a senior college student about to graduate in May. I was just diagnosed as having a Pilonidal cyst today. The doctor prescribled Keflex and referred me to a surgeon. I will be meeting with the surgeon in 2 weeks. Like everyone else, I discovered a lump near my tailbone while showering. I ignored it for at least 1 year and a half. As a teen I had trouble with a sore tailbone but I never gave it much thought. About a year after I first discovered the lump I decided to look in the mirror to see if I could see it. I noticed it looked purple (bruised). Eventually the bump became darker and darker. Just yesterday it started bleeding and draining on its own. I must admit that after reading everyone else's stories I am very nervous. It seems hopeless. I wish everyone who has dealt with this the best of luck.


Date:
Tuesday, March 13, 2001

Story

- A HAPPY ENDING -

Now 31, I got Pilonidal Disease when I was in college, 13 years ago. All my life I've been healthy, then all in one semester I broke my face falling off a railing, got mono, Pilonidal Disease and a Peritonsilliar Abcess. It's hard to say what's worse, the Peritonsilliar Abcess or the Pilonidal Disease, but frankly they both suck, and I don't wish either on anyone.

My cyst started from driving my mother's Dodge Omni car for two weeks while mine was in the shop. The steel axle rod for the tilt of the seat sat right on my tailbone, and while it was not uncomfortable at the time, became so soon thereafter. No swelling was obvious, but the pain soon became horrible. First I couldn't sit, then I couldn't lay down in any position but my stomach (with a pillow under my hips to boot!) I took codiene every two hours (day and night!) to help dull the pain somewhat. Bathroom trips meant lying on the donut sideways across the toilet with my feet in the shower.

Finally I went to the hospital in Utica, NY (like a dumb-ass I waited almost a month). Quite a sight, I'm sure, me lying over the seat of the car with my butt almost touching the ceiling, yelling in agony at every bump my roommate couldn't avoid. Well, wouldn't you know it, the cyst burst right there while I was on the gurney. The smell is horrible, like blood, pus and poop thrown in a blender. I bit large chunks of vinyl and foam from the gurney as the doctor tried to work on it. He didn't do a whole lot, but did give me a supply of maxi-pads to go home with.

Two days later and I was in Cooperstown at Bassett Hospital, a renowned regional medical center. There they performed an I&D (Incision and Drainage). Four shots of local anesthesia to the area surrounding, then I hardly felt anything as they scraped out all six pockets of cyst. It was packed with 33 inches of narrow gauze soaked in Betadine. My nurse mother (a very patient woman, no pun intended) repacked it three times a day for a month until the gauze was finally down to the required 1/2 inch. Be warned - soaking in the bath is a must before pulling the gauze out, for the dried gauze will otherwise feel like a razor blade; not that it feels good by any means even when you DO bathe.

Bottom line - it hurt. A LOT. The pain was incredible. If anyone has any questions, they can feel free to email me at: the_face_man@infoconex.com If you are suffering from this, get to a doctor right away. It's definitely NOT something you want to wait on.


Date:
Friday, March 09, 2001

Story

I'm a 30-year-old male who originally got a pilonidal cyst in 1997, with periodic flareups thereafter. While it was an annoyance and uncomfortable, it never really affected my day-to-day-life. I simply packed gauze or a large band-aid over the area every day to prevent drainage and went on with things. Most days, it wasn't a big deal.

But the flareups started to become more frequent after a while, even with antibiotics, so I finally had it removed and stitched-up in April 2000. However, the scar tissue never healed correctly and it recurred less than five months later.

I had a second surgery late December of last year, this time a pilonidal marsipulization - basically they clean it out and create a flap of skin. You stick gauze in the wound every day and it heals from the inside out. It was about an inch or so long and maybe 3/4 inch deep - not a terribly big sinus in comparison to some I've heard about, but enough to be pretty gross.

Post-op wasn't terribly memorable, once you get over the blood and the open wound. Scrubbed it twice a day with a washcloth, had my wife pack it with fresh gauze, the whole deal. Every week, I'd go back to the doctor and he'd shave the hair away from it so it would heal correctly. Other than having to apply silver nitrate once because one part was healing too quickly for his liking, very little was done in the doctor's office.

At six weeks, I was told the wound was healed and that shaving was no longer necessary. Basically, I need to scrub the area with a washcloth at least twice a day.

It's been a few weeks since then, and while the scar seems to be fading slightly and generally looking better I have noticed occasional soreness and pain in the area, especially after sitting from time to time. There also seems to be a clump of scar tissue towards the bottom of the incision. The doctor says this is fairly common in the weeks following surgery, but it is a bit disconcerting.

I'm fairly confident this surgery will take care of it. I've heard lots of horror stories, but I didn't have a large, deep, or particuarly painful cyst, so the doctor thinks my chances of a long-term recovery are very good. I just want to make sure that I'm not ignoring a potential problem.

I think the best advice I can give is this:

-Follow your doctor's instructions. If he or she says to pack it three times a day with gauze, then do it three times a day. If he or she says to keep it clean, do it, even if it hurts and bleeds and is totally uncomfortable. If your doctor says to limit activity for two weeks, then do so. A lot of people whose surgeries fail do so because they don't follow instructions to the letter. The surgery's a pain as it is - the last thing you need is for it to fail because you didn't or couldn't quite follow your doctor's orders.

-Consider what you can handle in terms of pain and blood when choosing a surgery type. Open-wound healing is more labor-intensive and messy but generally brings about better results. Stitching it up bring less positive results but has a shorter recovery time and little home care.

-Make sure you feel comfortable with your doctor. I didn't like the first guy who did my surgery (the closed type) and hated going to see him. I'd personally stay away from that surgery altogether because of the low success rate, but that's just my opinion. And make sure you're seeing your doctor every week, and if he or she isn't removing hair from around your opening, ask him or her to do so if you can't do it yourself.

-Be prepared for it to come back. It just might. You have to be of the mindset that there's no guarantee with this type of surgery, and the best you can do is follow your doctor's orders and hope for a few years of being pain free. My attitude remains the same - if I get through five years without a reoccurence, I'll feel lucky. If it comes back after that, well, I know what to expect and will be prepared to have the surgery again.

-Care more about healing, not looks. It's a nasty scar, true. But it's better than being in pain.

Just my two cents.


Date:
Saturday, March 03, 2001

Story

AM I DREAMING??? last week i had concept of this sort of thing. 3 days ago my tailbone started hurting really badly and seemed to be developing some sort of lump. the next day it was worse and hurt so badly i couldnt sleep well that night, and yesterday i was in the worst pain of my life. i'm a healthy 25yo male who has broken bones and had countless stitches, i played rugby for three years in college and sustained all types of uncomfortable injuries but nothing.... NOTHING... was as painful as the crack of my ass yesterday at 3 o'clock when some doped up local quack stuck a syringle full of novicane into the epicenter of this agony. he "lanced" (cut a gaping 1"x1" hole into me), "probed" (stuck a long wooden q-tip in and stirred it around), and almost got his ass kicked ( if i had been capable of anything other than pillow-biting at the blinding pain at that point) a few hours and painpills later, i was finally feeling well enough to get on the internet and research this "pilonidal cyst" thing as my "doctor" called it. now ive been up for hours going through the various sites (this one is particularly inspirational i might add), all to find out that for the rest of my life i will have some strange, flesh-eating alien attatched to my ass for the rest of my life. strings of surgeries, home nurses, weeks and months of downtime, chronic drainage of blood and puss out the seat of my pants, social anxiety, pluggin a leaky hole in my ass daily with tampons for 9 months at a time, constant fear of recurrance and formation of multiple cysts, sinuses and cavities, surgical removals of large parts of my ass and back with no real solution in sight?!?!?! IS THIS A NIGHTMARE? first of all... whats with all these surgeries? from what ive read, they arent working are they??? when people say "surgery" or "operation", what do they mean? drastic lancing/draining or total attempted excision? what methods have you people tried? flap? where is the scientific research? why arent there any solid answers? there is really no hope, huh? to make matters worse, get this: i majored in computer science... all ive been focusing on doing for the last 6 years is SITTING on my precious ass in front of a computer. i work as a software engineer at one of the big corp's in silicon valley now. ive already chosen this path. what am i supposed to do if i cant sit down now? i just transferred to my dream job 2 weeks ago and now this??? with the stock market were it is right now, my company cant afford to give brand new employees a few weeks off... they'll simply fire me. then i suppose i could go live under a bridge with my fucking ASS EATING DISEASE, RIGHT??? please... there have to be SOME success stories among you readers... surely some people arent crippled by this from the day they wake up with it. please let me just hear that there are some people who get this thing and just get over it. all ive heard here is misery and despair. there have to be some happy endings..... right? and please dont bother telling me about donuts.


Date:
Friday, March 02, 2001

Story

I am a 43 year old male who had my surgery 5 weeks ago. I am healing nicely & have no pain. A helpful tip to the guys. Don't be afraid to use a couple of Kotex in your underwear instead of a bandage. This will allow you to change your bandage without someone else's help. Don't be afraid of the surgery. It's worth it in the long run.


Date:
Thursday, March 01, 2001

Story

March 1,2001 To tell you the truth I was hoping to find more definate success stories on this,than I have. I had my first flare up with a cyst back in Aug.1983. I continually had to have my cyst lanced, I'd say probablly once a month or so until I finally had my first surgery, the spring break of my senior year in high school. The doctor I went to was the same old army doctor my father had gone to when he had his operated on many years before.His phillosophy was to cut it out and stich you up. I did'nt know any better I was a young mortified teenage girl and it was hard enough to tellmy father I had this in the first place My mother had passed away when I was a younng child. So,I had my first surgery and thought I'm glad thats gone. It was'nt until about 6 years later when I was pregnant with my first child that It came back. I had to have it lanced again but it would'nt heal and I spent most of my first pregnancy soaking in the tub twice a day to keep this thing clean. I had another surgery when my son was 1 1/2 years old,1991,to have it removed again. This time with a different surgeon and he chose to open it up and leave it open and do the packing method. Which seemed to help for a while. I went sled riding one year many years,and another child later. I hit my tailbone going over a bump on the hilland though I was going to pass out. I laid on the hill and cried with my 2 kids and husband wathing, I thought I broke my tailbone for sure, but I did'nt. I was'nt until the following summer that I realized the dammage I had done. I could feel the cyst was back. This time I was able to hold off from getting lanced for almost two years. I don't know if this is true medically but it seemed whenn this would flair up if I went to the pool It would calm down the inflamation and the pain. This didn't last forever though because two years after the cyst for the 3rd time I had a sudden attack,is the only way I can put it. Litterally within one week from the time of flair up I was having surgery, my doctor had no clue of what he was going to find . He told my husband and me afterward he did'nt know how I could have stood that thing because it was the size of a baseball. He said he injected me with a die of somekind to try to spot the trailers, and felt confident that he had removed it all. This time,3rd surgery later he chose to sew up the incision but to leave a tube inside of the incision with a vacuum tube on the end to force drainage. I don't think it worked real great but I have'nt have any major recourances just littles twinges of pain, He had to do some reconstuctive work from all the scar tissue I had from the first 2 operations. His exact words were "you look like you were hit in the ass with a shovel", so he fixed me the best he could. I would have to say it was and improvement. I would'nt wish that pain on my worst enemy. It's been 3 years now and I have'nt had any more visits to the doctor for it. I can't say I'm real opptomistic,the doctors won't even say it won't come back with my history. I just try to keep clean back there and pray ALOT!! I hope any one going through this, and I would'nt have ever thought there was so many of us,I hope it's as painless as possible. Take care!


Date:
Sunday, February 25, 2001

Story

I am a twenty one year old female who is recovering from my second surgery to remove my Pilonidal Cysts. I had my first surgery two years ago when I was nineteen. I noticed pain and eventually there was weeping. I put off going to the doctor for a while but eventually I caved. At first they just tried antibiotics but then I was sent to a specialist and had my first surgery. This second although similar in size seems to be taking longer to heal. I had only a local anesthetic, and only took pain medication for a few days. What I am interested in is post-operative wound care. My doctor told me to go home, bath three times a day and let it heal. Every one else that I have talked to tells me that you have to continue to pack the wound. I wasn't even aware that stitches were an option until reading this site. The first time I just let the wound heal on it's own. It took six months and continued to flare up. This time I am having home care nurses repack the wound with moist gauze everyday. I hope this will be the last time that I have to have this done. My story sound mild compared to others, mine is only 3 centemeters deep (a little more than an inch). I can relate to having sore sides from not lying on my back. I have to return to school on Monday after two weeks off. I hope I can sit. This site was encouraging. Good luck to all others. Nicole


Date:
Wednesday, February 21, 2001

Story

Dear all,

I just had my cyst removed last Friday. It has been 5 days and no problems so far. My doctor stitched up the wound rather than let it heal from the inside out. He cut all the way down to the bone, about 3 or 4 inches.

My cyst (like everyone else's) was a real annoyance. I washed it out twice a day and it still leaked pus and sometimes blood. I am so glad to be rid of it, hopefully for good. It was initially diagnosed as a "fissure," which apparently is a tear in your anus. I'm not sure which problem is worse.

One interesting thing was that the doctor used a special device--kind of like a "pressure washer"--to clean out the wound and get rid of any bacteria that might lead to infection. It produces something like 50 or 60 pounds psi. Then he sewed up the wound at several levels from the bottom up. My whole "crack" is covered with stitches from top to bottom. But thankfully it shows no signs of any infections or problems. From what I have heard about that "open healing" method, I would recommend my doctor's method any day.

Good luck to everyone else that is dealing with this. Erick


Date:
Tuesday, February 13, 2001

Story

Hi again the 40y/o male..doctors appointment went well.everything healing fine.still have to do dressing changes twice a day but down to only a pain pill at night before bed...sitting is getting a little easier...back to work tomorrow..to anyone with fears about the surgery get it done..the week after is hell but feels much better after that..anyone with questions ask ur doctor or leave me a note on this site as i check it about twice a week and i will get back to you....Dan


Date:
Monday, February 12, 2001

Story

I am a twenty year-old full-time college student dealing with Pilonidal cysts. I had my first surgery on December 15 of last year. So far, it has not healed. I stayed off of my feet all of Christmas break, and when I returned to classes last month, I felt better. Unfortunately, I neglected the cyst. It reopened last Friday night (2-09-01), and I am packing it twice a day with Kaltostat (a seaweed based pack)and I am soaking twice a day in Epsom salts. Please e-mail me if any of you have experienced any of these problems. I am pretty scared. I enjoyed reading these stories, and I hope that I can get some advice. Thanks again, Laura


Date:
Monday, February 12, 2001

Story

I first noticed a lump at the top of my butt crack in July after a hot day at the beach. I thought I had bruised my tailbone. In September it became so sore that I couldn't sit and I thought it was a boil. Nothing relieved my pain. Finally I went to the emergency room (I had to be half carried) I couldn't walk upright. They fed me anti-biotics and then they drained my cyst. That was the most painful thing I have ever experienced. Then, they filled it with packing and sent me home with antibiotics. I thought it was over until the lump reappeared. I went to the doctors and she told me I would have to have surgery, that in the emergency room when they drained it, the lump was split into two cysts and now their was two with a split in the middle. I put off surgery for awhile, praying it would go away. I kept it covered with band aids and put drawing sauve on it everytime it got big. It would drain and go away for a while but it would always return. I made an appointment for surgery and had it done this past week. It was out patient surgery. They gave me a tranqulizer with a local anastisia. I was awake for the procedure and I didn't feel a thing, just sleepy. I went home that day and from then on I couldn't believe I had surgery and a hole the size of a golf ball in my butt. It had to be cleaned with peroxide and packed with gauze. It's been a week now and I only have needed 3 pain killers since then. I am telling you have the surgery, it is not so bad. I thank god for this website, as there is little info on this subject. If you have questions, you can email me and I will answer them.


Date:
Thursday, February 08, 2001

Story

Hi everybody, I have finally had my cyst removed and it feels great.

My cyst appeared about 1991 and I thought like most people it was either a huge pimple or a boil, so I just ignored it. After about a month it went away until about 1998, although I was left with small acne like hole.

Since 1998 it has been a pain in the butt, constantly flaring-up and weeping. In recent months the cycle of flare-up and subsidence got down to about 2 weeks. Things really got to me when one morning I woke to find blood and pus on my bed sheets.

I decided that there, must be a better life out there than putting up with this mess, apart from the way that it affects your personal life.

I searched the net and found this GREAT site read the stories and went straight to my doctor who referred me a to a specialist. This was on the 12th December 2000, I had it removed on the 17th January 2001.

My doctor removed the cyst and closed the wound. After one week I was driving and back at work again. I only had pain if I sat down or stood up suddenly, because the stiches would pull. My stiches were removed 11 days after surgery and I haven't looked back (not even in the mirror).

My advice to anyone who has Pilonidal Cyst is get it removed and get your life back.

malcolm
 


Date:
Wednesday, February 07, 2001

Story

Hi again..I am the 40 y/0 male who had his surgery done last thursday 2/1/00...things went pretty well.about a 45 minutes procedure..The surgeon had to go down about 5 inches so i have a big hole. He also found another sinus near my anus so he took care of that one too..The recovery is painful but I think that the worse part are the dressing changes twice a day..the water burns like hell and pulling the gauze out is really painful but i take my pain pill about 45 minutes before hand so it helps a little. My hips are sore from not being able to lay on my back..I am able to just now sit for about 20 minutes on a pillow..It is amazing to see what the cyst looks like after it has been removed; sort of reminded me of a jelly fish with the hairs hanging down from it.I see the surgeon again Friday so will keep all posted..Good luck to anyone having their surgery done soon


Date:
Wednesday, February 07, 2001

Story

I am a 57-year-old male and 3 months ago I experienced my first bout with a cyst. The pain grew to what has been described by others as "child birth". After reading articles on the internet I decided to try soaking in Epsom salts (hot water). I started with 4-5 soaks (5-10 minutes) a day. I received nearly immediate relief and after 2 days the pain was just about completely gone. The drainage went on in varying degrees and I still experience a little once in a while. I am down to an average of one soak in two weeks and can certainly live with the present symptoms. Being a pretty active person I found a pretty neat way to do the soaks with little inconvenience. I bought a plastic kitty litter box big enough to sit in and about 4 inches deep (use 1 1/2 inch water). I can set this on the stool with the lid down and it's perfect. It saves on water and the salts, and it's really quick (no need to completely strip). I really think I have this under control now.


Date:
Tuesday, February 06, 2001

Story

I am a 26 year old female who is suffering from a recurrant pilonidal cyst. I had surgery by a general surgeon at the age of 16, 10 years ago. I have had continual flare ups since, getting worse and closer together each year. I am trying to train for a marathon and this damn thing won't quit!! My doctor does not opt to lance the cyst when it acts up, gives me antibiotics(keflex). After reading these stories, I think I will eventually have surgery again. I will have surgery with a colorectal specialist and possibly opt for laser or open wound healing. I also bought the stuff recommended to decrease ingrown hairs and will try and find the IODEX. Thanks for everyone's advice!


Date:
Monday, February 05, 2001

Story

Well here is my story. Like many othersI too was uncomfortable with the thought of talking to people about my sore but. Most people don't really understand nor do they really want to here about it. I mean really pus in your but cleft is there anything worse to try to explaine to your boss when you are sick? I first noticed pain in my tailbone area when I was about 16, I thought I had injured it in dance class or something. It would come and go and I basically just ignored it. Then when I was about 19 I had a really bad flare up. I was taken to emergency because i started fainting and vomiting, plus I couldn't walk. I went in to the hospital and the intern took a look and said "Well this isn't too bad, we will just make a tiny incision and take a look" with no anesthetic I was cut and then the Dr. said "oh my...." 2 hours later and 250 ml of infection drained I was given a shot of morphine and sent home. It was absolutely the worst thing I have ever experienced. I didn't have any problems with it after that until I was about 24. By problems I mean anything other than regular flare ups and pain. Any of you who have this can relate to "regular pain" when I talk about pilonidal. Last year I ended up in hospital again with another draining. This time it went much better and I was up and about in no time. Then about 3 months later I ended up with a serious infection and when I went to the hospital they told me the infection had spread and I had septisemia. (fatal) I was on IV antibiotics for 10 days and then things felt back to normal. 3 months later and 2 cancelled surgeries later It was back. I tell I am sick and tired of it. Last week I had another flare up and it burst on it's own. I am scheduling another surgery and am going through with it. Wish me luck. Karen

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The Pilonidal Support Alliance is a California Non-Profit Corporation and tax exempt under IRS 501(c)(3).