A Pilonidal Cyst story with a happy ending.

Discussion in 'Pilonidal Discussions' started by GraceFlores, Oct 25, 2015.

  1. GraceFlores

    GraceFlores New Member

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    Hey there! I just wanted to share my experience with you all. I know it may be completely different from others'- but it helped me a lot when I found a story on PC that I could relate to!

    So around 3 weeks ago I moved. Spent all day packing, loading things into a Uhaul, unloading them, unpacking. Afterwards, my tailbone started to hurt. I would mention it now and then, but would shrug it off. Well it wasnt my tailbone, it was a bump. I thought, oh just a pimple or something? YEA, or 'something'. When I couldn't sit anymore (about two weeks later) that's when I went to the ER and got it checked out.

    The doctors gave my upper butt pilonidal cyst an ultrasound (Lol.) to make sure it didn't have any fluid in it. Which it didn't- THANK GOD. (At the time, I didn't really know what it meant if it did have fluid in it.. the nurse just said they'd have to 'drain' it and such. Later on I found horrifying videos of PC's being "drained".) They gave me a shot of antibiotic in my left butt cheek, a prescription of Cephalexin and Vicodin, and sent me on my way.

    I came home and started instantly ripping through the Internet on my phone looking up Pilonidal Cysts. What would happen next I wondered? WTH is on my ass? All I could find were HORRIFYING videos, pictures, stories of people getting their PC's lanced, drained, surgically removed. Pictures of whole chunks of skin being surgically removed. And this is seriously ALL I could find. Not one story of how it went smoothly. Or how they didn't need their PC drained or operated on. I was mortified. Crying.

    I texted my mom, embarrassed. She told me she used to get them all the time. How she has scars from them. How her sisters would get them as well. She told me it is painful but would go away in a week or two. To keep taking the antibiotics, use a hot compress with some epsom salt on it as much as I could, and to put bacitracin on the affected area. I couldn't even believe she was telling me that's all I had to do to get rid of it. Why wasn't anyone saying this on the internet?

    I followed her instructions and now- less than a week after going to the ER and taking my antibiotics religiously (special shout out to the vicodin, you made me sweat like a pig and I hate you but you really kept me together for those really painful days) rubbing bacitracin on it & using my hot compress EVERYDAY - my PC has drained, the area is scabbed over, my pain is virtually gone. I can sit again!!

    It should be all healed up in a few days and I'm so thankful that it didn't turn into anything more.

    I want anyone who cares or is going through it for the first time to know that it sucks, and is a pain the ass...but it may not be as bad as you think. Don't image search it online. It's so not worth the anxiety.
     
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  2. Dumbledore

    Dumbledore New Member

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    The cyst is still there, it's just a matter of time before it flares up again. Surgery is the only way to get rid of a pilonidal cyst.
     
  3. Baxter4321

    Baxter4321 Very Helpful

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    You may have taken care of this flare up, but that doesn't mean it's gone forever. Could it be? Maybe. Some people are lucky. But most likely, this is just the first flare up. After my first flare up it took 6 years to happen again, and then it came back with a force. I would heal up, it would immediately come back. I had no choice but surgery, and it was the best decision I ever made.

    Just because it drained doesn't mean it's all over. Trust me, I thought just like you did, that it was a one time thing, but 6 years later I learned it wasn't. Maybe you'll also get lucky and it'll be awhile before it flares up again, but if it does happen again, you need to start considering your options of just having it fixed completely.
     
  4. GraceFlores

    GraceFlores New Member

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    Thanks for your enlightening comments.
     
  5. Traceypo

    Traceypo Helpful

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    Hi grace,
    It's nice to read your story, my cyst flared about 8 times, using the methods you describe I was able to manage it.
    It flared again in September, and this time I knew it was different, it didn't respond to antibiotics, I couldn't sleep, stand, sit without excruciating pain. All my muscles ached through using them to manoeuvre my body (you should never take your bum for granted, it's amazing what you use it for to move around).
    I went to hospital and needed an incision and drainage, they did this under a general anaesthetic so didn't feel anything, I had packing in the wound for three weeks, daily changes of dressing, now I have dressing changes every two days and it is nearly healed.
    I appreciate the comments are negative hun, that's because this condition can be literally a pain in the bum for sufferers for years.
    I'm praying I'm in the 4 out of 10 that don't have a reoccurrence after my procedure, however, I've researched lots to know what would be the right step for me next if it does come back, I honestly suggest you do the same hun, this is a specialism, know your stuff and what treatment would suit you best. Never believe a surgeon when he says you'll be healed in two weeks, I'm living proof.
    I really hope yours doesn't return, however it will do you no harm to prepare yourself if it does.
    Xxx
     
  6. Terp2wos

    Terp2wos New Member

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    GraceFlores,
    THANK YOU! Even though it might come back (sounds like your relatives did), its nice to hear that surgery isn't the ONLY option. I'm 26, have never heard of this before yesterday, and am usually in very good health. I've recently began working where i sit down long periods, not eating as healthy, heavily stressed, and not working out like i used to. I am dreading the pain and expense (in time and money,plus no health insurance currently) of surgery, and have been treating it with antibiotics and sitz baths while deciding if I need/should get surgery. I understand the underlying "sinus" may still be there, but I think if this thing drains on its own and i start living healthier again, i have a chance of foregoing surgery and it not coming back for a long while (if at all, dare i say).

    Curious how your story works out, thanks again for giving me a little optimism!



     
  7. krisrenee

    krisrenee Very Helpful

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    Surgery is the only option to get rid of it. And sometimes they come back even after that. 50/50 depending on how you got it. I had a closed excision after my flare up.. I assure you, if you ever have to get surgery, it's not that bad. Don't be afraid and don't put it off if it comes to that.
     
  8. Tonster

    Tonster Very Helpful

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    I agree it's good to hear your story Grace about the flare up and drainage. I managed my own for 15 years with 50-100 flare ups until it got into a size/condition I couldn't drain.

    People probably don't mean to be that rude when they say ... it's only one flare up. it will come back... it pretty much will. Although it's good you managed it yourself as I did... and you can avoid going into the hospital and getting the full Incision and Drainage with dressings. (ie no cutting and therefore no packing when you let it drain at home).
     
  9. krisrenee

    krisrenee Very Helpful

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    @Tonster
    Mine erupted at home and I thought I was able to avoid the I&D.. I was sitting on the tub and it was dropping in the tub. My mom advised I call my doctor just in case. Just to see if now don't have to go to ER since it's opened on its own. So I called and he said "yes you need to go to ER" with an calm urgency in his voice. He told me they'll open it up more and get all of it out. Had I not gone to get it open more and drained, it probably would've gotten worse. In my case however, I had a large abscess. Almost two cups worth of fluid. All of that fluid was not going to come out of the small opening that my body created. It needed to be opened more. So depending on how chronic the abscess is, I wouldn't solely depend on letting it drain alone at home. The fluid that came out at home was very sudden, blood and pus then it dripped less and less. And by the time he opened it up, my mom said it was so much fluid that looked like crystal clear mucus.. That never would've come out on its own. Weird though, you think with an abscess that big I would've had an extensive surgery. Only 5 stitches after excision... Very small. Praise God. Lol
     
  10. Tonster

    Tonster Very Helpful

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    Hi Krisrenee, good point, it's not good advice to deal with it yourself. Mine caught up with me after 15 years when I had the 'two cups' thing happen ;>

    The OP thinks it's dealt with... so the thing is... they can be dealt with at home... but they don't go away.... you might be lucky it goes into remission.
     
    Last edited: Jan 18, 2016
  11. krisrenee

    krisrenee Very Helpful

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    @Tonster
    Yeah. I had really small flare ups when I would do ab work on the floor like crunches but it would go away a couple days later. I never knew what the heck it was. The first """banger""" abscess was when I found out and I had surgery 1.5 months after the lancing. I think my surgeon let it calm down via go into sleeping state before he operated. And I think that had a lot to do with how smooth everything was for me. I'm now 1 month post op. I know it is still very new but I feel wonderful and haven't had any problems. I'm a caregiver and I've talked with a nurse than comes to see my client. I wasn't at work for a couple weeks due to surgery and she asked what happened. Then she told me there are plenty of people out there that get the excision and never have a problem again. Those people just aren't in this site. I plan to stick around to build hope. It all depends on the person I guess. But I think these things should always have medical attention.
     
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  12. krisrenee

    krisrenee Very Helpful

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    I remember the night I had to go in and get it lanced. I had a rash all over from the antibiotic (amoxicillin).. Didn't know I was allergic. Couldn't sit down nor stand up straight to walk. Horrible smell trailing me. I had to wait an HOUR in the waiting room. Knees in the seat of the chair bent over. I grew very tired. It was late at night. I got in the ER room. Dropped my sweats, and the fluid was everywhere. Laid on the bed face down. Doctor came in and the rest is history. I screamed bloody murder. The room I was in was right by the front desk. I begged him to stop. He didn't. But he was very nice. My mom was worried and he told my mom "it's ok mom that she's yelling. She's in a lot of pain but this is helping her." Ugh. When I think about it I get anxiety.
     
  13. Tonster

    Tonster Very Helpful

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    @krisrenee I'm also feeling much better than I expected after the (recent) removal... just overall health in general - highly recommended to get it dealt with fully. The only reason mine went on for so long is because of my Hidradenitis Suppurativa. I went to many dermatologists and had a few cysts removed around armpits, and neck... HS is untreatable.... so I had assumed the one on my bum was all part of the same thing until a GP sent me off for an ultrasound and diagnosed it 6 months ago. I think the hope in Grace's post for people is that the sinus can be minor and they can resolve by themselves - they will likely come back... not definitely. Anyone googling, self-diagnosing and landing on this site might think they are all in for 2 years of surgical trauma ;> not the case
     
  14. krisrenee

    krisrenee Very Helpful

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    Yeah. My surgeon never even mentioned sinus tracts in mine. I read that these things can be very simple to very chronic. I know that abscess came from that 13 mile bike ride I went on a week prior. Very hot. Very sweaty. Very bumpy. It is definitely a traumatic experience. I prayed for a good surgeon. I think it's important that we go to the right kind of surgeon too. A lot of doctors do the surgery right away. I was worried about every little thing and everything I feared that would go wrong never went wrong. My heart goes out to all of the people who's in the middle of their Pilonidal crisis.
     
  15. krisrenee

    krisrenee Very Helpful

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    Yes if anyone reading this is trying to avoid surgery, PLEASE DO NOT AVOID. Lancing is worse than surgery. If you got lanced and now afraid of anymore work being done, the surgery is nothing compared. Do not fear. Go through with the surgery if your doctor recommends. And follow your gut.
     
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  16. plague sufferer

    plague sufferer New Member

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    @krisrenee @Tonster Hi. I'm new to this whole thing if you've seen any of my posts lately. I've been on here because just had my second flare and i've been laying on my stomach and side for 75% of the last 130 hours if not more. Today, I'm fine, but my wound is really weeping and I've been having to clean everything every other hour. First time was hard to swallow but definitely bearable and I never really looked into the cause. This time I feared I might have picked MRSA at the hospital a few days and cause across Pilonidal cysts while looking at MRSA infections. I'm still confused about some things though. I don't have that enlarged dimple? that I've seen some people just release their pus build up from. But I do have these two almost like pin prick holes near the end of my tailbone. I can see them if I bend over and spread my cheeks. Do you also have these? Are these the enlarged pores that are more or less responsible for the infections? I am part Mediterranean so I do have a fair amount of hair. I feel like I could trim my derriere hair and perhaps use some medical grade tape over these pores to protect them. I would just need a small strip that I could change during my daily shower. Wouldn't this be a preventative measure? I am supposed to move/switch jobs in March and I am traveling about 3300 miles. I can't imagine how it would look if I got there and needed and extra week because I wouldn't be able to walk and I'd a ticking nuclear grade stink bomb on (_x_). Trying not to stress to much about it, but if I am going to need this surgery, I'm going to have to wait until probably late fall.
     
  17. krisrenee

    krisrenee Very Helpful

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    Those little holes are called sinus tracts or "pits". In a lot of Pilonidal cases, these are the cause of continual recurrence. As hair and debris gets sucked into them. I did not have these in my case. I didn't have a dimple either. I truly believe my flare ups were caused by pressure. I would ask your doctor what to do about the pits. I know that area, the natal cleft, gets little oxygen so I would think letting it get air would be better. But with the MRSA, I'm not so sure. Have you seen your doctor? Are you on antibiotics?
     
  18. krisrenee

    krisrenee Very Helpful

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    A lot of people who have a sinus tracts issue end up getting the cleft lift procedure. Where there's slight reconstruction of the natal cleft making is shallower.
     
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  19. Tonster

    Tonster Very Helpful

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    You can also end up with enlarged pores or small slits in your skin which do weep. I have one they're keeping an eye on while the major wound heals. Nurses tell me they have other patients with 4 or 5 of these (closer to anus) and they never cause problems. I'm yet to see if the surgeon will remove mine before we call it a day on this saga. or if he leaves it there as it's probably been there 10 years.
    Definitely sounds like you want to be removing all hair (somehow!!!) and maybe antibacterial wash like Hibiclense. That's my plan.
     
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  20. plague sufferer

    plague sufferer New Member

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    Thanks. And I didn't have MRSA. But I think it was pretty badly infected. I had a slight fever and the pain was excruciating. I just couldn't fall asleep at all friday night, so I caved and took Tylenol extra strength and a quick hot dip for instant relief before the pills kicked in. Got me to bed though. The boil started weeping a bit on saturday afternoon and in the evening I could see it coming to a head. It ended up exploding on me Sunday afternoon. Ruined my favorite sweats :(. After it stopped running, I gave it a little assist and got out as much I could before it sealed itself. There was no pus at the end, just blood and a clear fluid. Instant relief though. I did see some hairs in the toilet paper I kept using to wipe away the gross before it made much of a mess. After a nice hot shower, I passed out from 5:30 to about midnight. It's really not even sore today but I'm keeping it clean and it's ever so slowly just leaking a little bit of blood where it burst. If it stops running tomorrow, i'll start putting some vitamin e on it something because all the dead and fresh skin is starting to itch a bit. I'm estimated that the skin moved stretched maybe 2 inches when it was fully swollen judging by where the hole is now.

    I wrote a post or started a new thread that kinda details my saga in short. I'm sure you can relate. I think it's titled 'Newly Acquired PC club member'
     

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