A thank you, a story, and a "remedy" to try

#21
First off, let me just say thank you to all of the people out there sharing their stories, both the the good and the bad. I remember the first time I came across this site it was a tremendous amount of help and information that's not available to most people, so thank you. Because I've taken so much from this site, the forums, and the stories, I feel I should share my story and what I have done, if for nothing else, to attempt to give back.

For those looking for the "remedy" I'll post that below so you can skip the story if you wish. I feel I should say here that I've been inflammation free for well over a year. I don't believe it's a cure, but it's cheap, there's no recovery time, and no embarrassment (jeez, I sound like I'm trying to sell snake oil
). I would encourage you to read through my story, I think you will see why a year and a half is such a big success. I'm not trying to sell anything I swear.

My Story: I've been dealing with this cyst for about 10 years now. My first occurrence with my cyst happened in back in 2001 when I was 20. I thought I had fallen down and bruised my tailbone, that is until it got worse and worse until it was the most excruciating pain I'd ever felt in my life. There was a point I think I almost passed out from the pain. I have an extremely high pain tolerance, I broke my arm as a kid, and had a severe ingrown toenail that required surgery and this was way worse than either. So those of you with kids/friends/spouses with this problem, they aren't being a wimp about it, it hurts.

Anyway enough side tracking. I ended up going to a doctor when I couldn't take the pain anymore and I starting to think I was about to die. I don't think he knew exactly what it was, or if he did he didn't share the information with me. He ended up opening up the cyst and draining it on the spot. This, by the way, was hands down the single most embarrassing moment of my life, I'm still trying to fix the emotional damage
. I walked out of the office with a second butt packed with gauze and a memory that I really wish I could repress. But I figured all was well and when it healed I should be good to go, right? (I think some of you see where this is headed).

Wrong. After several weeks, maybe even a couple of months the wound created by our glorious all knowing medical establishment was pretty much healed and I was back to normal, for a few months. About six months after my first drainage my cyst came back, with a vengeance. Given my last experience with the doctor and the fact that it apparently didn't do any good, I decided to ride this one out. Probably not the best decision of my life but it was less painful and definitely less emotionally damaging. Eventually the cyst burst (with a little assistance), drained over the next few days and I was off and running again.

To sum up the next several years, my cyst would flare up every 4 to 6 months burst, drain, heal, repeat, like clockwork. It got to the point where I would pick at he scab that would form over the hole so that it would be draining constantly and I would have to deal with the bursting aspect (gross, I know).

Eventually I got a job where I had insurance coverage and I decided to inquire about surgery to rid me of this nightmare cycle of nasty. After 2 months of trying to get an appointment, my doc informed me that it was considered a cosmetic surgery (aka not covered) but if I had the money the surgery itself wasn't that big of a deal. If it's not readily apparent in my above statements I don't have a lot of love, nor trust for the medical establishment here in the states. I decided to do my own research, and that's when I came across this site. I read countless stories the various surgeries and the results. It was increasingly obvious to me that the surgery options were definitely not to be taken lightly. While I had a good boss, I was working a job that required a good amount of driving, climbing ladders and such, a 1 to 6, possibly 12 month recovery was just simply not an option. So, I resigned myself to just dealing with it for the rest of my life, it was a sad realization.

Fast forward a year and half and 2 eruptions later. I was in the middle of yet another painful inflammation (6 months, like clockwork I'm telling you), and I started considering the surgery again. I wound up here reading more horror stories about year long recoveries only to have a relapse a few months after healing. After a lot of reading and looking for some sort of miracle non-surgical cure discovered in the past 6 months, all I could find was "either get the surgery or deal with it." Well somewhere in the 20th something page of a google search buried deep in a 200 page pdf (what else are you going to do while you sit around for 3 days waiting for that scene from aliens to occur from your back side?) I found something that worked for me (please read the remedy below, I'll detail what I found). Here I am about 18 months later without a single eruption or major flare up. My self confidence is coming back and for the first time in 10 years I'm not living with the fear of my cyst rearing it's ugly head. So, without further adieu...

The Remedy: I'm under no false illusions that this is some sort of cure, my cyst is still there, and every once and while it makes itself known. I'm not a chemist or a doctor (but lets face it, your doctor can't reliably fix this problem either) and I can't tell you why this works for me, just that it does. What I can say is this; not only have I not had my cyst burst for a year and half, I have never gotten to that inflammation stage where I can't sit down without cowering in pain and I have had no drainage of my cyst, nothing, zero, zilch, nada. What does it take? 3 things, 1. Castor oil, and 2. Baking Soda, and 3. vinegar. Yes, that's it, $4 from your local shop and I've only used the Castor oil once in the very beginning.

I wish I could give credit where credit is due but I don't remember where I read this. But, somewhere I read that people use castor oil on regular cysts to bring the crap to the surface and speed up the bursting process, which is why I originally used it. I was waiting on my cyst to burst and I wanted to get it over with. It actually didn't work as intended (it never burst, it just went into remission and was gone 3 days later!) but it's worth mentioning since it only cost a dollar and I can't discount that it had no effect plus it relieved the pain. The baking soda and vinegar came from some place where they said it decreased inflammation in boils. So here's what I did/do:

1. Grab the castor oil and get it on a piece of gauze (warning: apparently the castor oil will stain cloth and such). Use a heating pad or what I did if you don't have one, put a washcloth soaked in water in the oven till it's hot. Lay down somewhere where you will be comfortable for about 15 minutes with your butt exposed. Place the castor oil gauze on the cyst then put the heating pad or the heated washcloth on the gauze and take a nap. 15-20 minutes later wash off the castor oil.

2. Grab the vinegar (I use white wine vinegar) and baking soda. Mix a small amount of each together until it forms a sort of paste. The consistency doesn't really seem to matter. Spread the paste all over the cyst, be generous the mix is cheap. Leave it on for 15-20 minutes and then wash it off and be on your way.

That's it, like I said before I only used the castor oil a few times the first time I did this. I have had that "oh no" moment (those dealing with this know the oh no moment) a couple of times when I sat down since I did this the first time. All I do now is the baking soda and vinegar thing twice a day, once in the morning and once and night, till the "oh no" goes away. It really does just reverse and go away in a couple days, I'm not pulling your leg here. I wanted to post this a long time ago but I wanted to make sure it wasn't some one time fluke before I did.

In the interest of full disclosure I did make some lifestyle changes during this time frame. I've been vegetarian for about 2 and a half years now (though I did have a couple of flare ups after switching), I quit drinking, and I've lost 60ish pounds over the last 2 years. The weight loss mostly comes from the fact that I don't have to worry about aggravating my cyst by working out, which was a definitely cause of flare ups. I mention this because I can't be certain that they don't have something to do with my current situation (or lack there of!)

But, I firmly believe in the baking soda/vinegar combo and I would encourage everyone suffering with this to give it a shot. I can't guarantee it will work for you, but the only thing you have to lose is about $4; oh and maybe a $15,000 bill from the hospital. And when it works you get to call your doctor an overpaid hack and tell him/her to get their pound of flesh from some other sucker, which is always a plus (unless you live in Canada, in which case just shake their hand and tell them to keep up the good work).

Thanks for reading this, I hope it helps and good luck.
 
#22
3:15am laying in bed searching the web and came across this. I'm 31 years old and had my first cyst 5 years ago. I had no clue what it was and me being the stubborn person I am I just kept waiting it out. It got to the point where it was literally larger than half a baseball and just as hard. By far the worst pain I have EVER experienced. I ended up removing it with surgery and was given anesthesia so I didn't feel a thing. Left a scar though but was still happy the pain was gone. Doctors told me there still is a good chance of it coming back. Here I am 5 years later and it's starting to come back. This week it started irritating and now it's starting to be a bit painful,
 
#23
Continued above.,.......
While it is no where near the size it used to be, it is showing same symptoms that lead to it. So I will try this jons remedy and give some more feedback on it in a few days. 3:30 am and still can't sleep. Got work in the morning. Lucky me
 
#24
Hello, I am new to this forum and am currently going through my second pilonidal flare up. The first occurred about 18 months ago when I worked as a vet tech. I thought it was just an abscess, so (I know this probably wasn't the greatest idea, but) I got my boss to hook me up with some amoxi and a sterile syringe. I drained a bit myself at home and took the abx to prevent infection, and all was seemingly well. This current flare up has progressed much more quickly, and now I am in so much pain I can barely sit. I really do not want to go through surgery (I'm also currently pregnant so I'm not sure of the risks associated with it), so I have applied the vinegar and baking soda paste, and am picking up some castor oil tomorrow. I am glad I am not alone in my suffering! And thank you for the home remedy suggestions.
 
#25
So upon further research, I found out I can't use castor oil because I'm pregnant. Does anyone have any suggestions for a baby safe alternative? I'm in tears from the pain at this point.
 
#26
I had my first pilonidal cyst back in June. I remember noticing it at first when I would lie down; i would feel it as some kind of pressure in my tailbone, but it didn't actually hurt. I checked in the mirror to find a small bump, and thought I somehow did something to my tailbone. I figured it would go away, so I thought little of it. Cut to three days later, it's grown three times its original size, leaking fluid, and I'm in so much pain that I can't walk, sit, stand or lie on my back. I looked it up and realized it was a pilonidal cyst, and that I really had to get treatment for it, so I went to the hospital to ask a doctor (since we had to book an appointment with our family doctor a month in advance), and it took him ten seconds to look at it and give me a prescription for some antibiotics called Cephalex, and told me to take them four times a day for seven days. With that and at least one hot bath a day, it went away in a few days. I knew from research that antibiotics would only treat the cyst and that it would probably flare up again at some point, but I was in so much pain that I was perfectly okay with treating it then and coming back to it later.

Cut to now, which is late September, and I noticed a very small bump where my pilonidal cyst had flared up. I knew what it was, but it was really small, and it only hurt if I put pressure on it in a very specific way. Nonetheless, I obviously didn't want to go through that again, but it wasn't serious enough to go to the doctor. So I found this post, and I tried the remedy suggested last night. Long story short, it works. The swelling has already gone down, and the cyst isn't red at all. I'm going to do the baking soda and vinegar again later today, and hopefully it goes away soon.
 

Joyce

New Member
#27
First off, let me just say thank you to all of the people out there sharing their stories, both the the good and the bad. I remember the first time I came across this site it was a tremendous amount of help and information that's not available to most people, so thank you. Because I've taken so much from this site, the forums, and the stories, I feel I should share my story and what I have done, if for nothing else, to attempt to give back.

For those looking for the "remedy" I'll post that below so you can skip the story if you wish. I feel I should say here that I've been inflammation free for well over a year. I don't believe it's a cure, but it's cheap, there's no recovery time, and no embarrassment (jeez, I sound like I'm trying to sell snake oil
). I would encourage you to read through my story, I think you will see why a year and a half is such a big success. I'm not trying to sell anything I swear.

My Story: I've been dealing with this cyst for about 10 years now. My first occurrence with my cyst happened in back in 2001 when I was 20. I thought I had fallen down and bruised my tailbone, that is until it got worse and worse until it was the most excruciating pain I'd ever felt in my life. There was a point I think I almost passed out from the pain. I have an extremely high pain tolerance, I broke my arm as a kid, and had a severe ingrown toenail that required surgery and this was way worse than either. So those of you with kids/friends/spouses with this problem, they aren't being a wimp about it, it hurts.

Anyway enough side tracking. I ended up going to a doctor when I couldn't take the pain anymore and I starting to think I was about to die. I don't think he knew exactly what it was, or if he did he didn't share the information with me. He ended up opening up the cyst and draining it on the spot. This, by the way, was hands down the single most embarrassing moment of my life, I'm still trying to fix the emotional damage
. I walked out of the office with a second butt packed with gauze and a memory that I really wish I could repress. But I figured all was well and when it healed I should be good to go, right? (I think some of you see where this is headed).

Wrong. After several weeks, maybe even a couple of months the wound created by our glorious all knowing medical establishment was pretty much healed and I was back to normal, for a few months. About six months after my first drainage my cyst came back, with a vengeance. Given my last experience with the doctor and the fact that it apparently didn't do any good, I decided to ride this one out. Probably not the best decision of my life but it was less painful and definitely less emotionally damaging. Eventually the cyst burst (with a little assistance), drained over the next few days and I was off and running again.

To sum up the next several years, my cyst would flare up every 4 to 6 months burst, drain, heal, repeat, like clockwork. It got to the point where I would pick at he scab that would form over the hole so that it would be draining constantly and I would have to deal with the bursting aspect (gross, I know).

Eventually I got a job where I had insurance coverage and I decided to inquire about surgery to rid me of this nightmare cycle of nasty. After 2 months of trying to get an appointment, my doc informed me that it was considered a cosmetic surgery (aka not covered) but if I had the money the surgery itself wasn't that big of a deal. If it's not readily apparent in my above statements I don't have a lot of love, nor trust for the medical establishment here in the states. I decided to do my own research, and that's when I came across this site. I read countless stories the various surgeries and the results. It was increasingly obvious to me that the surgery options were definitely not to be taken lightly. While I had a good boss, I was working a job that required a good amount of driving, climbing ladders and such, a 1 to 6, possibly 12 month recovery was just simply not an option. So, I resigned myself to just dealing with it for the rest of my life, it was a sad realization.

Fast forward a year and half and 2 eruptions later. I was in the middle of yet another painful inflammation (6 months, like clockwork I'm telling you), and I started considering the surgery again. I wound up here reading more horror stories about year long recoveries only to have a relapse a few months after healing. After a lot of reading and looking for some sort of miracle non-surgical cure discovered in the past 6 months, all I could find was "either get the surgery or deal with it." Well somewhere in the 20th something page of a google search buried deep in a 200 page pdf (what else are you going to do while you sit around for 3 days waiting for that scene from aliens to occur from your back side?) I found something that worked for me (please read the remedy below, I'll detail what I found). Here I am about 18 months later without a single eruption or major flare up. My self confidence is coming back and for the first time in 10 years I'm not living with the fear of my cyst rearing it's ugly head. So, without further adieu...

The Remedy: I'm under no false illusions that this is some sort of cure, my cyst is still there, and every once and while it makes itself known. I'm not a chemist or a doctor (but lets face it, your doctor can't reliably fix this problem either) and I can't tell you why this works for me, just that it does. What I can say is this; not only have I not had my cyst burst for a year and half, I have never gotten to that inflammation stage where I can't sit down without cowering in pain and I have had no drainage of my cyst, nothing, zero, zilch, nada. What does it take? 3 things, 1. Castor oil, and 2. Baking Soda, and 3. vinegar. Yes, that's it, $4 from your local shop and I've only used the Castor oil once in the very beginning.

I wish I could give credit where credit is due but I don't remember where I read this. But, somewhere I read that people use castor oil on regular cysts to bring the crap to the surface and speed up the bursting process, which is why I originally used it. I was waiting on my cyst to burst and I wanted to get it over with. It actually didn't work as intended (it never burst, it just went into remission and was gone 3 days later!) but it's worth mentioning since it only cost a dollar and I can't discount that it had no effect plus it relieved the pain. The baking soda and vinegar came from some place where they said it decreased inflammation in boils. So here's what I did/do:

1. Grab the castor oil and get it on a piece of gauze (warning: apparently the castor oil will stain cloth and such). Use a heating pad or what I did if you don't have one, put a washcloth soaked in water in the oven till it's hot. Lay down somewhere where you will be comfortable for about 15 minutes with your butt exposed. Place the castor oil gauze on the cyst then put the heating pad or the heated washcloth on the gauze and take a nap. 15-20 minutes later wash off the castor oil.

2. Grab the vinegar (I use white wine vinegar) and baking soda. Mix a small amount of each together until it forms a sort of paste. The consistency doesn't really seem to matter. Spread the paste all over the cyst, be generous the mix is cheap. Leave it on for 15-20 minutes and then wash it off and be on your way.

That's it, like I said before I only used the castor oil a few times the first time I did this. I have had that "oh no" moment (those dealing with this know the oh no moment) a couple of times when I sat down since I did this the first time. All I do now is the baking soda and vinegar thing twice a day, once in the morning and once and night, till the "oh no" goes away. It really does just reverse and go away in a couple days, I'm not pulling your leg here. I wanted to post this a long time ago but I wanted to make sure it wasn't some one time fluke before I did.

In the interest of full disclosure I did make some lifestyle changes during this time frame. I've been vegetarian for about 2 and a half years now (though I did have a couple of flare ups after switching), I quit drinking, and I've lost 60ish pounds over the last 2 years. The weight loss mostly comes from the fact that I don't have to worry about aggravating my cyst by working out, which was a definitely cause of flare ups. I mention this because I can't be certain that they don't have something to do with my current situation (or lack there of!)

But, I firmly believe in the baking soda/vinegar combo and I would encourage everyone suffering with this to give it a shot. I can't guarantee it will work for you, but the only thing you have to lose is about $4; oh and maybe a $15,000 bill from the hospital. And when it works you get to call your doctor an overpaid hack and tell him/her to get their pound of flesh from some other sucker, which is always a plus (unless you live in Canada, in which case just shake their hand and tell them to keep up the good work).

Thanks for reading this, I hope it helps and good luck.
HELLO, HOW MANY TIMES DID YOU HAVE TO REPEAT THIS BEFORE IT WENT AWAY??? TRIED THIS LAST NIGHT FOR 15 MIN IT HELPED A LITTLE BIT
 

Joyce

New Member
#28
So upon further research, I found out I can't use castor oil because I'm pregnant. Does anyone have any suggestions for a baby safe alternative? I'm in tears from the pain at this point.
HI, IM 12 WEEKS, WHY IS IT THAT YOU CAN'T USE CASTOR OIL?
 

Joyce

New Member
#29
I had my first pilonidal cyst back in June. I remember noticing it at first when I would lie down; i would feel it as some kind of pressure in my tailbone, but it didn't actually hurt. I checked in the mirror to find a small bump, and thought I somehow did something to my tailbone. I figured it would go away, so I thought little of it. Cut to three days later, it's grown three times its original size, leaking fluid, and I'm in so much pain that I can't walk, sit, stand or lie on my back. I looked it up and realized it was a pilonidal cyst, and that I really had to get treatment for it, so I went to the hospital to ask a doctor (since we had to book an appointment with our family doctor a month in advance), and it took him ten seconds to look at it and give me a prescription for some antibiotics called Cephalex, and told me to take them four times a day for seven days. With that and at least one hot bath a day, it went away in a few days. I knew from research that antibiotics would only treat the cyst and that it would probably flare up again at some point, but I was in so much pain that I was perfectly okay with treating it then and coming back to it later.

Cut to now, which is late September, and I noticed a very small bump where my pilonidal cyst had flared up. I knew what it was, but it was really small, and it only hurt if I put pressure on it in a very specific way. Nonetheless, I obviously didn't want to go through that again, but it wasn't serious enough to go to the doctor. So I found this post, and I tried the remedy suggested last night. Long story short, it works. The swelling has already gone down, and the cyst isn't red at all. I'm going to do the baking soda and vinegar again later today, and hopefully it goes away soon.
HI, ANY UPDATE ???
 
#31
Joyce, I'm not positive but isn't castor oil used to induce labor? That might be why but again I'm not positive about that.
after a quick google search, yep....

moving on back to the rest of the thread, using this remedy will not cure you...it may knock back the infection but every time you have a flare-up, the infection could be digging tunnels into you, you can look just fine from the outside but you're an octopus of tunnels underneath the skin....
"Homeopathic Remedies - No one has yet "cured" Pilonidal Disease with homeopathy, Herb Compotes, Colloidal Silver Concoctions, Tea Tree Oil or any other potion. Note that there are plenty of scammers out there who will be more than happy to take your money and sell you a "cure." The best you can likely achieve with homeopathy is enhancement of your immune system, which may help keep a Pilonidal under control."

quoted from here....
http://www.pilonidal.org/education/livingwithit.php
 
#32
Well I'm 38 weeks pregnant. And my cyst is getting big. I've just been trying castor oil and using a hot rice sock to heat it. Hopefully it gets better. So tired of laying in bed all day from pain :( .
 
#33
So upon further research, I found out I can't use castor oil because I'm pregnant. Does anyone have any suggestions for a baby safe alternative? I'm in tears from the pain at this point.
Castor oil is labor inducing when internally digested. I'm 38 weeks I've been applying to my cyst
 

Joyce

New Member
#34
Castor oil is labor inducing when internally digested. I'm 38 weeks I've been applying to my cyst
the castor oil is ok to use on your bum. I'm using as well im 13 weeks now. I hear castor oil is only induce labor if swalloed or if put on your abdomen to soak.
 

Joyce

New Member
#36
How's it working for you??? Any success
Slowly but surely, it's been a week it has reduced swelling and less pain. Hope that is can pop on it's on, i will give update.

This is such a pain, I had it with my 1st pregnancy (5years ago) and got it lanced (worse EVERR) because I was pregnant i couldn't get any meds, they numbed the area (which didn't help) I held on for dear life. Needless to say I don't want to go through another lancing while pregnant.

Good Luck! Keep me updated with yours!!
 
#37
Slowly but surely, it's been a week it has reduced swelling and less pain. Hope that is can pop on it's on, i will give update.

This is such a pain, I had it with my 1st pregnancy (5years ago) and got it lanced (worse EVERR) because I was pregnant i couldn't get any meds, they numbed the area (which didn't help) I held on for dear life. Needless to say I don't want to go through another lancing while pregnant.

Good Luck! Keep me updated with yours!!

Well, I went to the er here in italy practically on my hands and knees desperate for them to take it out. But theysaid it wasn't ready and prescribed antibiotics ! Which I thought was odd? Not normal to prescribe a pregnant women antibiotics right? Any who today it's been leaking a yellow pus all day barely barely. Tiny bit. I've been having 3 showers a day just letting the hot water as hot as I can handle touch it. It's gotten softer and bulgier. Praying it will come before baby comes out, due date is a week. Laying in bed all day is no fun!
 

LILLY

Very Helpful
#38
Certain antibiotics are safe during pregnancy and the risk of not taking them when needed is greater. Hope you both have a quick resolution.
 

Joyce

New Member
#39
Well, I went to the er here in italy practically on my hands and knees desperate for them to take it out. But theysaid it wasn't ready and prescribed antibiotics ! Which I thought was odd? Not normal to prescribe a pregnant women antibiotics right? Any who today it's been leaking a yellow pus all day barely barely. Tiny bit. I've been having 3 showers a day just letting the hot water as hot as I can handle touch it. It's gotten softer and bulgier. Praying it will come before baby comes out, due date is a week. Laying in bed all day is no fun!
Yes, my 1st one I had to come back they wouldnt cut it because it had not come to a head. Antibiotics is ok (depending on which one) and Good luck I wish you a safe delivery and speedy recovery.
 

Joyce

New Member
#40
Well, I went to the er here in italy practically on my hands and knees desperate for them to take it out. But theysaid it wasn't ready and prescribed antibiotics ! Which I thought was odd? Not normal to prescribe a pregnant women antibiotics right? Any who today it's been leaking a yellow pus all day barely barely. Tiny bit. I've been having 3 showers a day just letting the hot water as hot as I can handle touch it. It's gotten softer and bulgier. Praying it will come before baby comes out, due date is a week. Laying in bed all day is no fun!
How long have you had the cyst for?
 
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