A thank you, a story, and a "remedy" to try

Joyce

New Member
#42
Hello, I am new to this forum and am currently going through my second pilonidal flare up. The first occurred about 18 months ago when I worked as a vet tech. I thought it was just an abscess, so (I know this probably wasn't the greatest idea, but) I got my boss to hook me up with some amoxi and a sterile syringe. I drained a bit myself at home and took the abx to prevent infection, and all was seemingly well. This current flare up has progressed much more quickly, and now I am in so much pain I can barely sit. I really do not want to go through surgery (I'm also currently pregnant so I'm not sure of the risks associated with it), so I have applied the vinegar and baking soda paste, and am picking up some castor oil tomorrow. I am glad I am not alone in my suffering! And thank you for the home remedy suggestions.
has this worked for you? how long has your cyst last?
 
#43
I think the main thing to keep in mind here was explained by someone previously in this post, but these methods are not a cure. They are just a way to keep it subdued until a more permanent solution can be pursued. Even if the cyst seems better to you, it could be tunneling deeper and growing larger, making it a more painful and difficult procedure later on. This has been discussed here before, and unfortunately a surgical procedure is the only "cure", and some people have them come back even after surgery! This is why the cleft lift procedure is very important to research.
 

Joyce

New Member
#44
H
Mmmm one week exactly from when I first started to feel pain. But the bubble I've had for about 5 days
Hi how are you? Well just an update I got my cyst lanced today. I used castor oil and coconut oil past few days and it came to a head it was so painful I had to go in and get it lanced. No pain meds since I'm pregnant
 
#45
Hello everyone. I experienced my first pilonidal cyst in early August, where I had gotten it lanced because I was about to go away on vacation, so I had to get immediate relief... otherwise I probably would have tried using home remedies first. Two months have gone by, and now I can feel it coming back. I have began using Jon's remedy of castor oil and the vinegar+baking soda, accompanied by epsom salt baths twice a day. So, my question for everyone who has tried Jon's remedy and had positive results -

1) When making your vinegar + baking soda mix, was the consistency of it more on the liquid side or more of a paste? I am having trouble finding the correct consistency.

2) When applying the vinegar + baking soda mix, should it be burning my pilonidal cyst? is that normal? or should it not be stinging it ?

3) Lastly, The only white wine vinegar I could come across in my local market was "Champagne wine Vinegar by Colavita.. acidity is 7%. Do you think this is ok? or should i be trying to get exactly "white wine vinegar"

Thank y0u in advance!

P.s. - I was told by my family friend who is an outstanding doctor that Antibiotics work really well to counter the flare ups. As many have stated, obviously the only true way to get rid of the cyst is through surgical procedure, but if you are just looking to calm down your cyst / counter the flare up - I would highly suggest going to your doctor and getting some strong antibiotics. However, as many sure know, antibiotics kill both the bad AND the good bacteria within your body. So, it is highly suggested that if you do go on a strong antibiotic (say 875-125 mg Amoxicillin and Clavulanate Potassium tablets) that you purchase refrigerated probiotics, ideally 25 Billion live cultures per capsule. Hope this helps!
 
#47
I have had a cyst for 10 years easy. no pain. no pus. Bump comes and goes still have a small dry patch
I Use 3 things to keep it in line Wet Ones, Vinger and Witch Hazel dries it up really well.
Wet Ones work really well can bring a big bump down to a much smaller size in a few days.
I keep a small travel size bottle with Vinager near the toilet And splash a little on there and rub it in, after using the toilet
and from time to time before bedtime I splash on a little Witch Hazel.
ALL this helps keep it very small. I can go 6 months to a year not needing to do anything.
But then it starts getting bigger and I start the routine again for a few weeks
never tried the Caster Oil Baking soda and Vinger together
 
#48
First off, let me just say thank you to all of the people out there sharing their stories, both the the good and the bad. I remember the first time I came across this site it was a tremendous amount of help and information that's not available to most people, so thank you. Because I've taken so much from this site, the forums, and the stories, I feel I should share my story and what I have done, if for nothing else, to attempt to give back.

For those looking for the "remedy" I'll post that below so you can skip the story if you wish. I feel I should say here that I've been inflammation free for well over a year. I don't believe it's a cure, but it's cheap, there's no recovery time, and no embarrassment (jeez, I sound like I'm trying to sell snake oil
). I would encourage you to read through my story, I think you will see why a year and a half is such a big success. I'm not trying to sell anything I swear.

My Story: I've been dealing with this cyst for about 10 years now. My first occurrence with my cyst happened in back in 2001 when I was 20. I thought I had fallen down and bruised my tailbone, that is until it got worse and worse until it was the most excruciating pain I'd ever felt in my life. There was a point I think I almost passed out from the pain. I have an extremely high pain tolerance, I broke my arm as a kid, and had a severe ingrown toenail that required surgery and this was way worse than either. So those of you with kids/friends/spouses with this problem, they aren't being a wimp about it, it hurts.

Anyway enough side tracking. I ended up going to a doctor when I couldn't take the pain anymore and I starting to think I was about to die. I don't think he knew exactly what it was, or if he did he didn't share the information with me. He ended up opening up the cyst and draining it on the spot. This, by the way, was hands down the single most embarrassing moment of my life, I'm still trying to fix the emotional damage
. I walked out of the office with a second butt packed with gauze and a memory that I really wish I could repress. But I figured all was well and when it healed I should be good to go, right? (I think some of you see where this is headed).

Wrong. After several weeks, maybe even a couple of months the wound created by our glorious all knowing medical establishment was pretty much healed and I was back to normal, for a few months. About six months after my first drainage my cyst came back, with a vengeance. Given my last experience with the doctor and the fact that it apparently didn't do any good, I decided to ride this one out. Probably not the best decision of my life but it was less painful and definitely less emotionally damaging. Eventually the cyst burst (with a little assistance), drained over the next few days and I was off and running again.

To sum up the next several years, my cyst would flare up every 4 to 6 months burst, drain, heal, repeat, like clockwork. It got to the point where I would pick at he scab that would form over the hole so that it would be draining constantly and I would have to deal with the bursting aspect (gross, I know).

Eventually I got a job where I had insurance coverage and I decided to inquire about surgery to rid me of this nightmare cycle of nasty. After 2 months of trying to get an appointment, my doc informed me that it was considered a cosmetic surgery (aka not covered) but if I had the money the surgery itself wasn't that big of a deal. If it's not readily apparent in my above statements I don't have a lot of love, nor trust for the medical establishment here in the states. I decided to do my own research, and that's when I came across this site. I read countless stories the various surgeries and the results. It was increasingly obvious to me that the surgery options were definitely not to be taken lightly. While I had a good boss, I was working a job that required a good amount of driving, climbing ladders and such, a 1 to 6, possibly 12 month recovery was just simply not an option. So, I resigned myself to just dealing with it for the rest of my life, it was a sad realization.

Fast forward a year and half and 2 eruptions later. I was in the middle of yet another painful inflammation (6 months, like clockwork I'm telling you), and I started considering the surgery again. I wound up here reading more horror stories about year long recoveries only to have a relapse a few months after healing. After a lot of reading and looking for some sort of miracle non-surgical cure discovered in the past 6 months, all I could find was "either get the surgery or deal with it." Well somewhere in the 20th something page of a google search buried deep in a 200 page pdf (what else are you going to do while you sit around for 3 days waiting for that scene from aliens to occur from your back side?) I found something that worked for me (please read the remedy below, I'll detail what I found). Here I am about 18 months later without a single eruption or major flare up. My self confidence is coming back and for the first time in 10 years I'm not living with the fear of my cyst rearing it's ugly head. So, without further adieu...

The Remedy: I'm under no false illusions that this is some sort of cure, my cyst is still there, and every once and while it makes itself known. I'm not a chemist or a doctor (but lets face it, your doctor can't reliably fix this problem either) and I can't tell you why this works for me, just that it does. What I can say is this; not only have I not had my cyst burst for a year and half, I have never gotten to that inflammation stage where I can't sit down without cowering in pain and I have had no drainage of my cyst, nothing, zero, zilch, nada. What does it take? 3 things, 1. Castor oil, and 2. Baking Soda, and 3. vinegar. Yes, that's it, $4 from your local shop and I've only used the Castor oil once in the very beginning.

I wish I could give credit where credit is due but I don't remember where I read this. But, somewhere I read that people use castor oil on regular cysts to bring the crap to the surface and speed up the bursting process, which is why I originally used it. I was waiting on my cyst to burst and I wanted to get it over with. It actually didn't work as intended (it never burst, it just went into remission and was gone 3 days later!) but it's worth mentioning since it only cost a dollar and I can't discount that it had no effect plus it relieved the pain. The baking soda and vinegar came from some place where they said it decreased inflammation in boils. So here's what I did/do:

1. Grab the castor oil and get it on a piece of gauze (warning: apparently the castor oil will stain cloth and such). Use a heating pad or what I did if you don't have one, put a washcloth soaked in water in the oven till it's hot. Lay down somewhere where you will be comfortable for about 15 minutes with your butt exposed. Place the castor oil gauze on the cyst then put the heating pad or the heated washcloth on the gauze and take a nap. 15-20 minutes later wash off the castor oil.

2. Grab the vinegar (I use white wine vinegar) and baking soda. Mix a small amount of each together until it forms a sort of paste. The consistency doesn't really seem to matter. Spread the paste all over the cyst, be generous the mix is cheap. Leave it on for 15-20 minutes and then wash it off and be on your way.

That's it, like I said before I only used the castor oil a few times the first time I did this. I have had that "oh no" moment (those dealing with this know the oh no moment) a couple of times when I sat down since I did this the first time. All I do now is the baking soda and vinegar thing twice a day, once in the morning and once and night, till the "oh no" goes away. It really does just reverse and go away in a couple days, I'm not pulling your leg here. I wanted to post this a long time ago but I wanted to make sure it wasn't some one time fluke before I did.

In the interest of full disclosure I did make some lifestyle changes during this time frame. I've been vegetarian for about 2 and a half years now (though I did have a couple of flare ups after switching), I quit drinking, and I've lost 60ish pounds over the last 2 years. The weight loss mostly comes from the fact that I don't have to worry about aggravating my cyst by working out, which was a definitely cause of flare ups. I mention this because I can't be certain that they don't have something to do with my current situation (or lack there of!)

But, I firmly believe in the baking soda/vinegar combo and I would encourage everyone suffering with this to give it a shot. I can't guarantee it will work for you, but the only thing you have to lose is about $4; oh and maybe a $15,000 bill from the hospital. And when it works you get to call your doctor an overpaid hack and tell him/her to get their pound of flesh from some other sucker, which is always a plus (unless you live in Canada, in which case just shake their hand and tell them to keep up the good work).

Thanks for reading this, I hope it helps and good luck.
What if you don't have heat on the gauze?
 
#49
hi i really don't know from where to start
i found it yesterday right now i'm feeling no pain
sometimes when i'm in the bathroom it just bleeds a little
and right now it's little itchy
so can someone tell me what to do or share any information small details if possible
 
#50
I had to create an account just so I could respond this thread because it has helped me immensely! Here's a little background on me and my PS... (sorry if it's long!)

I am a 26 year old female, and I had my first baby 5 months ago. I have always been active, worked out before falling pregnant, worked out during pregnancy, and worked out after. Hubby, baby and I just recently bought our first home and moved house in March. We both work from home running our own business as well, so things were quite hectic for a few weeks and I hadn't done any of my regular exercises for about a month.

One day, everything was unpacked, I had caught up on work and the baby was asleep - workout time! I did a workout at home and the next day ... OH MY GOD PAIN. I noticed a lump on my tailbone and it was SO painful to touch. It was quite small, but it felt like it shouldn't be there. I thought at first that I had just bruised my tailbone doing sit-ups and some of the tissue was a bit bruised, so I didn't think too much of it. Five days later and the lump was bigger and was so painful I couldn't sit properly, and had to lay down to breastfeed. I decided to make an appointment with the doctor and get it checked out because it's better to be safe than sorry!

I explained what happened to my doctor, and at first she said it sounded muscular but she would have a closer look. She got me to turn around and she had a quick look and gave the bump a light squeeze and said a small amount of pus came out, so she then got me to lay on the bed. She gave the lump another almighty squeeze (which didn't hurt too badly, surprisingly) and she said the pus came out like a fountain! She said so much came out. It was just pus though, no hair or blood or gross stuff. I instantly felt relief but the lump was still there, and she said it was quite large pilonidal cyst.

She said it wasn't ready to be lanced (and to be honest, I wasn't ready for it to be lanced either!) because it wasn't visible and still a fair way below the skin, so she prescribed me a 5 day course of antibiotics. She said to go back and see her on Saturday (being yesterday) if it didn't seem to be getting any better, but if it did seem to be improving, to go back and see her on Tuesday (in two days time) for a follow up. She said she hoped the anti bios would clear it up, but it may not.

On Friday, I gave the cyst a little squeeze because it felt like there was a lot of pressure, and about 1/2 a teaspoon of ikky smelling pus came out. It felt so much better after that! Saturday, things were feeling not too bad, but no more pus was coming out.

This morning (being Sunday morning) I decided to have a bath and soak my poor bottom. The pain immediately went away whilst I was soaking in nice hot water. Once I got out of the bath, I decided to look up some home remedies for taking care of PS. And that's when I came across this thread! I went out and bought Castor Oil straight away, and I already had the rest at home. We went out for the day with family, and when I got home, I checked out the cyst and it had risen to the surface of my skin, and a layer of skin was peeling and it looks red and bruised! And before my bath, you couldn't even see it! So the hot water obviously did it's job and helped it on it's way to the surface!

Hubby helped me apply to castor oil remedy, and then the bi-carb and vinegar paste and let me tell you, 4 hours after doing it and it has improved greatly! It has definitely gone down in size, it's hardly sore and I can sit somewhat normally now! This remedy was an absolute lifesaver for me, so THANK YOU! I am really hoping that if I continue this little remedy, that it will clear up properly and I won't have to get it lanced. Since Friday, only 2 tiny drops of pus have come out, so whether or not that means it's nearly all out, or something is blocking the rest from coming out - I'm not sure. But it is most definitely smaller than it's been the last few days! I hope that it doesn't cause me any problems in the future, because they really are a pain in the butt! (pun intended :)

Castor Oil = best thing ever invented to soothe a sore bum.
 
#51
hi i really don't know from where to start
i found it yesterday right now i'm feeling no pain
sometimes when i'm in the bathroom it just bleeds a little
and right now it's little itchy
so can someone tell me what to do or share any information small details if possible
Hi Massinissa!
I know you posted this a month ago - but how are things going? Is your cyst still there? Did you go to the doctors?
 
#52
I need help. I thought it would go away on its own. It isn't feeling like it is going to pop. Feels kinda hard and it hurts to sit stand walk. It's a little bit bigger than a quarter will the Castro oil and stuff still help?!? My dad had one removed about 30 years ago.
 
#53
Hello everybody.. I'm wanted to say thankyou here for the remedy. I have survived this cyst without haing a surgery and trying this remedy.I wanted to post this a long time ago but I wanna make sure this thing doesn't come back anymore.

Here is my story..
I'm a man 25 years old, Living in Indonesia.. in this country development of the medical world is not as good as the other cuntry..
start from 2009 I migrated from a small village to a big city having a Lecture in the big University in Jakarta. little by little I start change my habit living here. yes you know a young adult from a small town come to the big city and living far away from family and feel free, I feel I can do anything what I want.. I started having a really really bad habit.. I love play game online and I that hobby can makes me sitting in front of PC up to 6-8 hours a day.. and in 2011 I start buying a big bike, I really love my bike, so I used it to everywhere i want to go.. when I travelling with my bike I can sitting in my bike 2-4 hours. I'm sitting in a class hearing my lectures, I sitting in my bike traveling and enjoy the traffic jam, I sitting in my pc at night untill morning.. I feel I was too much sitting and the pilonidal start to came in 2013 ( I don't remember what month it is). first time I think it's just a boil and it will gone by itself.. But wrong, it's getting really really so much bigger day by day and in february 2015 it's getting hurt and I go to the doctor..

My doctor say its pilonidal cyst and he recomend me to the the surgery and he can't guarantee how long it will healed.. the medical development here is not as good as the other country so I think I decided to go the Malaysia to get a surgery. But it will need a high cost of money.. so while I saving the money I found this forum and read the remedy here.. and I tried to do this I buying a vinegar, baking soda, and castor oil.. I think nothing to lose if I failed with this treatment.. the vinegar and baking soda paste makes the cyst smaller.. but the castor oil and the hot water makes the skin thin and that makes my cyst broke and the pus comes out to the surface.. it feel so much hurt in the first day when the cyst burst and I covered it with cotton and gauze. after 3 days the cyst its getting hurt and I can't sleep and can't sit, even walk it's makes me hurt.. I feel its getting worse even he cyst getting smaller.. so I decided to go to the nearest doctor, and the doctor say I need to push out all the cyst everyday to makes it all comes out, he say I must push the cyst with the cotton and gauze and give the gauze an antiseptic.. and the doctor give me 2 antibiotics ( I forgot what names of those 2 antibiotics it is). When I tried to push out the cyst theres's something likes rubber with white colour comes out, and that very elastic.. everyday morning and and afternoon after have a bath I push out the cyst twice a day and cover it again with cotton and gauze.. and after a week I go back to the doctor and he say, its getting good now and he give me the antibiotics that last week he give me.. and finnaly its takes time almost 3 weeks of pain until the pus and that white things comes out.. now the wound living a small closed holes, but I feel relieved that the cyst was gone.. My doctor say if its comes back in a couple of month, That's means I need a surgery..

Now it's been September 2016, It's been more than 7 month since the cyst gone and I grateful I don't sense the cyst is coming back.. Now I change my habits I start excersicing like sport and running.. when I'm working on my chair I change my sitting position not to bent and sometimes I stand and having some moves.. But sometimes when I driving a car for a couple of hours I feel sore in my tail bone, when It feel sore I start change my sitting position.Maybe the sore is a reminder for me to change my sitting habits. I hope It will never come back anymore.

Anyway, the cyst is coming if we have a bad habit in our life.. So now let's start change our bad sitting habit and star to move our body.. I'm just very glad that the cyst is gone and doesn't come back anymore.. this is my story and I just wanted to share my experience, sorry for the bad english, I'm using google translate. And Thankyou so much pilonidal.org, I'm sorry for being a silent reader for a long time..

Have a nice day everybody :)
 
#54
I am very new to this. My husband suffers from this and has for the last 10 or so years. When the first cyst was discovered/diagnosed, he had a drain put in and basically a shoe lace packed in (that's what it looked like). The procedure seemed to help and he felt he was in the clear....fast forward 4years and he ended up with another located on his cheek and not the cleft. He let it go far to long and ended up having surgery to remove the cyst and damaged tissue. We did the wet to dry dressing for about six weeks and some stitches were removed while dissolvable ones were left in. It healed very nicely.
About 2 years later he discovered a spot that felt like something was sticking out...turns out it was a stitch and soon after a new cyst started at that location. He is a very stubborn man and has stated he will not have another surgery until he gets a guarantee it will not come back. So now begins the real fun... lol. It's spreading to encompass both cheeks working out from the "crack"
How many of you have delt with this for longer then 2 to 3 years? Was there anything you did that helped over the long term? Do any of you suffer from these over your whOle bottom? I have so many questions.lol I just want to help relieve some of his discomfort until he finds the right medical corse of action....
 
#55
I am very new to this. My husband suffers from this and has for the last 10 or so years. When the first cyst was discovered/diagnosed, he had a drain put in and basically a shoe lace packed in (that's what it looked like). The procedure seemed to help and he felt he was in the clear....fast forward 4years and he ended up with another located on his cheek and not the cleft. He let it go far to long and ended up having surgery to remove the cyst and damaged tissue. We did the wet to dry dressing for about six weeks and some stitches were removed while dissolvable ones were left in. It healed very nicely.
About 2 years later he discovered a spot that felt like something was sticking out...turns out it was a stitch and soon after a new cyst started at that location. He is a very stubborn man and has stated he will not have another surgery until he gets a guarantee it will not come back. So now begins the real fun... lol. It's spreading to encompass both cheeks working out from the "crack"
How many of you have delt with this for longer then 2 to 3 years? Was there anything you did that helped over the long term? Do any of you suffer from these over your whOle bottom? I have so many questions.lol I just want to help relieve some of his discomfort until he finds the right medical corse of action....
I think you should watch his habit, like his sitting position or maybe the hygiene of his cleft.. i think the cyst will comeback if we have a bad habit like sitting with a wrong position or sitting too long, and the hygiene of his body also have an effect too..
 
#56
Hello I'm from Poland ! Hello !! I will try this remady for sure ! Sorry for my English but I hope you will understand me I'm scared of surgery i can't even imagine this sorry for my earlier registration but translater made me surprise
 
#58
MY STORY
I was up late and was doing research on other things and eventually wandered through my own concerns, and here I am. I'm a 20yr old male with hair from my toes to my head without a gap... I learned a few things browsing this forum witch I appreciate. That's why I'm posting to share my story just a quick one and what has helped me.
About 4-5 years ago (15-16yrs old at the time) I noticed a terrible pain on my tailbone from what i believe was caused from leaning back doing wheelies on my dirtbike while my belt puts abnormal pressure on that hairy area. (I cant think of anything else to cause my PS) After ignoring it for about a day or 2 I was getting aches and was cold, felt like i had the flu. (mind you this was mid summer in Michigan 80* and 90% humidity) I then told my mom and i was running a fever which lead to the impression that it was infected pretty bad. My mom freaked and off we went to the ER, dang near stayed the night at that point I'm sure most of you know how that goes... Doc came in, took a peek and informed us it was a PS and off we went with some antibiotics. Upon taking them i was in pain to sit or walk (ya know, typical symptoms) About 4-5 days later it burst! it leaked pretty much all day and a little residual here and there. What made it worse was i was on a camping trip with a friend and HIS family so i was limited and bound in secrecy Haha. I accommodated with a few pre-made ManPons (rolled up Toilet paper) A few days later it healed and i was left with a pit where it was and that was that.

MY TREATMENT

About 2 months ago it came back from still doing wheelies and such. It didn't hurt from regular activities, but in the right position it would hurt. I thought to my self, if Neosporin (any reputable triple antibiotic cream i guess) helps inflammation, fights infection, and helps many other things? Why cant it help fight away my PS?? I found that applying a solid half inch line to the finger and just smear it on the PS right after a shower (obviously keep the area clean when bathing too) and leave it alone. Don't go too far outside the affected try to keep it in the crevice as NEOSPORIN DOES STAIN CLOTHES AND POURUS FABRICS. I noticed pain relief within a few hours it gradually gotten smaller day by day and after about a week or 2 of treatment 1 application every morning it has significantly reduced in size and pain free. I can't say its completely gone, but only time will tell as i cant even notice it anymore. Hope this helps anyone out there! Love, peace and chicken grease!
 
#59
Bless you!!! I'm only 21 and I've had the cyst twice already (lanced, drained, packed and sent home with antibiotics). This past end of the year, my tailbone started hurting again. My body knew what was going to happen, it was just a matter of time. After the start of this year I felt the discomfort and the pain that I remembered from years previous. The humiliation and the sharp pains and panic of getting a doctor to help. (The 2nd cyst was lanced by an idiot and had to be re-lanced and drained by a professional). I have been searching all over the Web for help and found this particular article attached to this website. I'm trying this remedy right now and can already feel the pain subsiding. Thano you so much, friend. I have been in need of something to help!
 
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