Cleft Lift Aug. 25

Discussion in 'Pilonidal Discussions' started by Brandonw, Aug 22, 2014.

  1. Brandonw

    Brandonw Very Helpful

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    Just got back from the appointment. Things seem to have went well. I got all the stitches taken out. I just have to keep an eye on the hole thats there. She thought things looked good and now i go back in 2 weeks! As long as all it stays ok.
     
  2. Girlbooty

    Girlbooty Very Helpful

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    Hurray good for you!! That's awesome news!!
     
  3. Brandonw

    Brandonw Very Helpful

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    Thank you! Just nervous to sit with that hole but i guess its ok for now
     
  4. Brandonw

    Brandonw Very Helpful

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    Today would be day 17:
    Had a nice day. A little bit of draining from where some stitches were removed. Then some where the hole is. The upper part of the incision looks to be scabbed. So im just watching it and going to bed now!
     
  5. Momof4

    Momof4 Helpful

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    It sounds like things are going really well for you. Are you keeping your spirits up? The one thing I find about this disease is that it keeps you in a somewhat anxious state of mind over the what ifs. It would be nice to see more people posting about finally being able to live life with less worry. I know people heal & move on but let's all make a deal to come back & post the positives for future sufferers. With my daughter being so young I will have many years ahead to need this site.
     
  6. LILLY

    LILLY Very Helpful

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    Sounds good Brandon. My son did seem to leak through several spots in his incision also. Are you sitting some yet?

    Momof4 I couldn't agree more. I really do care how all of these people do in the future, and good news will help others. There is a great group here right now and it's nice to see them lifting each other up. It takes strength to help others when you are going through it yourself. Brandon you have done such a great job at that. :)
     
  7. Brandonw

    Brandonw Very Helpful

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    Thank you both for the responses.

    Momof4 I really am in high spirits. Its been a really long journey through this whole thing. Especially before this last operation. I felt a bit lost at one point, not getting answers and just feeling like i was on my own. This thing definitely plays with your mind. I have noticed that with the anxiety of others and i have been guilty of that as well. I still think well what if at times. Im trying to break away because i need to. Ive been doing alot better since having the cleft lift done. Ive just been staying extremely positive. This site has helped so much also. So many awesome people on here.

    Lilly i thought there would be a couple spots that were leaking. That is my biggest fear, is sitting. Thats my biggest what if guilt. I keep telling myself well if you sit your going to make something worse. Or that hole is going to get larger. I need to get past that. Other than that i feel really good. Did your son start sitting right away?
    There definitely is a great group on here now! Its really good to help others in that aspect of it also and get their spirits up. And for your son to be 2 years post op and you are still posting on here is wonderful! Its really encouraging and to see that you are still helping others :) I plan to do the same.
     
  8. Momof4

    Momof4 Helpful

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    Brandon that's really great to hear.
     
  9. NYinMN

    NYinMN New Member

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    Hoping to find someone who can get me dr rosengart's email - I believe that my significant other has Pilonidal tunnels and would love to reach out to Dr Matthew rosengart. Any help with this would be greatly appreciated!
     
  10. LILLY

    LILLY Very Helpful

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    NYinMN call the office on Monday and they will take your info and tell you what to do from there.
     
  11. NYinMN

    NYinMN New Member

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    Thank you so much Lilly!
     
  12. Brandonw

    Brandonw Very Helpful

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    Yes what lilly and momof4 said lol.
     
  13. Monica P

    Monica P New Member

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    Just read through this thread due to brandonw posting on mine. I have an appointment this week to see if I will be undergoing my 2nd surgery as I feel it has returned. Just wanted to say that This post is very positive & makes me feel soooo much better about it all. Was very upset that this could be happening all again, but things could be worse! Continue to keep us updated brandonw, & so glad to read that your recovery has been this way.
     
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  14. Brandonw

    Brandonw Very Helpful

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    I completely understand. Its difficult if it has returned. Just keep positive about it. I know it can be hard at times. Try to seek out the cleft lift as it being a really good option!

    Day 18:
    Doing well. Woke up with less drainage on the pad so im hoping it just keeps decreasing. Took my daily walk out to the mailbox. Walked up and down the driveway a few times. Probably looked like a lost soul lol. But i am feeling good and just keeping up with my protein. Have added the zinc into my routine about a week ago also. Drinking plenty of fluids and orange juice to.
     
  15. Momof4

    Momof4 Helpful

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    Sounds great. Have you tried sitting yet?
     
  16. Brandonw

    Brandonw Very Helpful

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    I havent lol other than being in the car.
     
  17. Momof4

    Momof4 Helpful

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    Are you still in pain or just nervous? Has the doctor said its ok to sit? The stitches are all out now, right? I can only imagine how nerve wrecking it would be to finally do it.
     
  18. Brandonw

    Brandonw Very Helpful

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    Just nervous honestly. The doctor said it would be fine as long as im comfortable when doing so. And yes now that all the stitches are out its even more nerve wrecking because i dont want to push it to far and do something.
     
  19. Momof4

    Momof4 Helpful

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    I can totally understand that. No need to rush if you have the opportunity to wait.
     
  20. LILLY

    LILLY Very Helpful

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    I have been meaning to come back and talk about sitting. When I came to the forum there was a great deal of talk surrounding how soon to sit after a cleft lift. The general consensus was that you NEEDED to begin trying to sit almost immediately after surgery with some members being almost insistent that this should happen. When my son went for his surgery I thought for sure these would be the instructions we were given but that's not what happened. I asked our surgeon very specifically

    1. Can he sit right away?
    answer-YES- leaning forward at first-sort of perched
    2. Does he NEED TO begin sitting right away?
    answer -NO-it can be done at his own pace

    What did end up happening was some sitting starting at day 2 perched and leaning forward and then an increase day by day. School started back up at about 3 weeks and by then he was able to sit through the day. He was sore but he made it.

    I think if it's your brain and not your body holding you back you should give it a try.:)
     
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