First Post/First Surgery

Discussion in 'Pilonidal Discussions' started by yogibbear, Aug 27, 2009.

  1. pineapple

    pineapple New Member

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    argh I so feel your pain! Mine is on the brink of healing, just a few mm now but it's been creeping so slowly recently. I feel my boyfriend says there are small changes just to make me feel better!

    My nurse used Inadine a few times before and it really seemed to help. We used it right before it closed the first time when I had a small ulcer. The iodine is mostly to kill infection but it seemed to help me heal. If it doesnt heal soon I may ask to try it again...

    Hope you heal soon!
     
  2. yogibbear

    yogibbear New Member

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    Ooooo interesting stuff this inodine is. The nurse today called my wound "superficial" and when she measured it she could hardly stick the thing in and guessed it was about 2mm deep. :D Though she did then decide to prod me with some more silver nitrate.... it doesn't look that different to me (as it's REALLY hard to tell depth from my angle.) but the shape of the wound has changed a lot. It's gone from a crater to more like a half crescent moon shaped thing, and the skin on one side is coming right across. Going to make for an interesting photo board.... (if i make one...) of the progress of my wound. I have about 100 pics on my phone of the thing... like every 2 weeks i've been getting the nurses to take a photo. Hm... going to ask for another photo tomorrow.
     
  3. pineapple

    pineapple New Member

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    I've got some inodine from my surgeon to try from tomorrow. Yogi are you dressing it daily ? my nurse originally said to change every 2 days with the iodine so I may try that again... will see how much drains.
     
  4. yogibbear

    yogibbear New Member

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    Okay my one big wound has now turned back into two separate oval shaped things connected by this white freshly healing flesh. [:8)]

    The only problem is neither the nurses nor me are sure if that's a good thing. So like if either of the holes starts tunnelling then that's a bad thing... but i guess it wants to heal back to how the original two sinuses were over 10 months ago then that's okay? [I original had two holes before any surgery]

    Anyway... back onto curasorb as it started bleeding a little again. Might suggest to skip the entire range of products again once the bleeding holds up a little and go right back to curasalt and then inodine after that.

    And yes pineapple for the last 4 weeks i've been getting up really early so i can drive 15 mins each way to the nurses to get them to dress it for me. Only thing that i changed. I also stopped doing salt baths as they said that might've been just too much over salting of the wound (when i was on the curasalt) and now i've been told to stop the salt baths still. Though i asked due to current slight bleeding again if i should start salt baths again and they said no. But the wound is probs still ~4mm deep. (Ever nurses measures it differently, so'll i'll just go the biggest no. any of them have said in the past week)
     
  5. yogibbear

    yogibbear New Member

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    Jumped on some Keflex (antibiotics) for a week... seems to have tamed down any chance of the surgerical wound being infected/tunnelling. Still slow as anything... more silver nitrate etc. etc..... not enjoying this at all really. Though i guess it doesn't hurt and i can go to work... but it's not exactly what i'd call the greatest lifestyle. I want to swim and run and do stuff... but instead my muscles are wasting away and i am losing my appetite.
     
  6. yogibbear

    yogibbear New Member

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    Switched to Aquacel Ag. Still no progress. Though it's not getting any worse.
     
  7. Artisticinfluence

    Artisticinfluence New Member

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    Yogi, i just read this fron to back and mate your an inspiration!
    I dont know how you manage to keep your head up through all this, its really taken a toll on me.

    Im a bit worried that your all talking about daily dressings. Ive been tolld every other day (in fact i had mine packed on friday and was told not to have it done again till monday). is that right?

    Not to mention the fluids leaking out from underneath the aquacel packing
    and waterproof over dressing..

    [:^]
     
  8. yogibbear

    yogibbear New Member

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    Guess i'm not updating this as regularly as before. Still doing daily dressing changes. 7 days a week. Aquacel Ag was going great... then for no reason nurses decided to switch me back to Inodine (after much protesting from me) but they claimed that the wound had gotten so small that the aquacel ag would just fall out... (right...)

    Anyway... after 3 days of the inodine... the wound started to get worse... i specifically asked to be put back on the Aquacel ag before it collapse again... and got denied... despite my notes describing this happening last time they put me on inodine.

    Anyway... wound has broken down and back to ~0.9 cm deep again.... finally back on aquacel ag. [:^]

    I assume i am somewhere in the 1-2 months from healing still... up for a job promotion/move in november so i would hope that it heals before then so i can accept a job out of the city... :cool:
     
  9. yogibbear

    yogibbear New Member

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    Still here, still doing the daily nurse thing.... yeah... no point posting anything else as nothing has changed. Yippee.... :(
     
  10. d32300

    d32300 New Member

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    This has been going on for some time now. I do help you will improve much more rapid now.
     
  11. sixx123

    sixx123 New Member

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    Just had the surgery on monday. Not an excision but rather an incision with drainage/cleaning/removal of sinus tracts/. Wound will be left open for open healing. No daily packing.

    I visited the doc today so he could remove the surgical packing. Hurt quite a bit. The wound is about 5 inches long and it's a more like narrow slit- not like a gaping excision wound. It resembles a cleft lift wound. He also said that he had to make the cut a little farther north than he had originally expected because he found more of the infection and had to follow it. Therefore the healing process will be longer and it will probably take several months for a full recovery.:( Hooray for spending the summer as a vegetable. I will have to dress it a few times every day until it stops oozing.

    The hope is that it will heal form the inside rather than outside. And if I'm lucky, that is the last I will see of it.

    I am going into my senior year of high school and will be applying to a service academy which requires a PT test for admission. Unfortunately this might kill my future goals if I can't comfortably do situps by the end of the summer.[:^]

    I don't think the term "pain in the ass" could ever be used more literally.

    The doc has recomended me to sit on a donut pillow. To my understanding, these aren't the best things? Could anyone recomend me a different item to sit on?
     
  12. yogibbear

    yogibbear New Member

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    Google "tush cush" or cocyx cushion.

    So anyway... an update... as been some time...

    Probably too depressed really to bother posting much. So my wound is still open... still go to the nurse everyday... still go to work. Got a good talking to about being "not focussed" enough at work and "not delivering" were their exact words.... grrrr... going in on the weekend cause i feel bad for not getting to work at exactly the time they want me there when they know i go to the nurse before work and have to wait if people get there before me... oh well.... anyway... i only do three things in life: sleep, work and see my nurses. Yah.

    Progress since the last date is well... interesting... the wound did finally, for the first time since like OVER a year ago, CLOSE but only for maybe 3 days... at which point it decided to totally piss me off and reopen... and then it's been slowly opening a little bit each day and it's supposably more like a "split" than an "open wound" so-to-speak now... but because it's right up high on my cleft just walking to the bus stop and then to the office and sitting around all day seems to be enough to keep it re-splitting open enough that it never "heals" during the week.,.. then come the weekend when i just hang out with a few mates it heals REALLY good and then come monday the nurses are all excited and by wednesday they're annoyed again... but i have no leave left and no sick leave and no annual leave and i love my job.... [:^]
     
  13. MaVeRiCk7

    MaVeRiCk7 Very Helpful

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    Have they measured it with a probe? if the probe will fit in that is. This is the most annoying time as it just needs that final push to heal. Maybe it is healing in a funny way for it to break down easily. Just think of going to see the nurses as going on a date that is what I used to do. It will help to turn a negative situation to a positive one as I was at this position you are one time in my pilonidal journey.

    Hang in there, there is a light at the end of the tunnel. :)
     
  14. yogibbear

    yogibbear New Member

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    It's less than 1mm deep but maybe 7-8 mm long. So it's tiny. More like a paper cut, but if the thing gets infected or something it'd reopen up to a 5 x 5 cm hole..... :eek: Bleeds a crapload still when i remove the silver every day before having a shower before going to the nurse.

    Currently got my GP to prescirbe Kenacome, which is an antibiotic cream (used sparingly for a very brief period, say a week max) to get rid of the rash from all the taping... so far it seems to be a miracle cure after at least 3 months of terribl terrible rashes and endless creams that did nothing.
     
  15. yogibbear

    yogibbear New Member

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    6000+ views. ABAHahahahaa. The entire world has looked in on my progress. Can count you guys next to the 100+ nurses, 5 different surgeons, 2 anaesthetists, 1 mother, 6 trainee nurses etc. etc.

    Cheers for all the support so far. ;)
     
  16. yogibbear

    yogibbear New Member

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    LOLOLOL was channel flicking while doing the ironing and a guy was on getting a pilonidal sinus removed on one of those dumb medical tv shows, i normally don't watch this crap tv, only caught the last 30 secs of his bit (bit dissapointed) but they made it out as though he was practically all healed from an open excision after 3 weeks..... [:^]

    Show was called "Embarassing bodies" or something.
     
  17. yogibbear

    yogibbear New Member

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    Guys and gals. Don't want to go jumping to any conclusions yet...

    But.....

    ....

    ....


    ....


    ....

    MY HOLES ARE NOW CLOSED!!!!!!!!!!!!!!!

    [:8)][:8)][:8)][:8)]

    Been closed since friday. So 3 days so far so good. Just applying this antibiotic cream stuff to it. Have quite a bit of skin missing from all the tape and tape associated rashes but the actual wound is CLOSED.

    My god. 2 surgeries... and like... 14 months or some rubbish. Finally i am just sticking a tiny bit of gauze and some cream on it. Let's hope it stays that way for the next 4 weeks and i might be able to start the long road back to a normal life. *Crosses fingers it NEVER comes back EVER AGAIN!*
     
  18. MaVeRiCk7

    MaVeRiCk7 Very Helpful

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    Congratulations, finally they have closed up, yeah lets do hope they stay this way for good. Did you have the cleft lift? sorry I seemed to have forgotten your story.

    Keep us posted. :)
     
  19. Boo...

    Boo... New Member

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    Hello yogibbear :)

    Just though I'd pop in to say congratulations on becoming healed. Like Maverick I'm a bit fuzzy on your story but I hope everything continues to go well for you.

    :D
     
  20. yogibbear

    yogibbear New Member

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    Nah had a closed karydakis that failed and then an open excision. 2 sinuses vertically located down the midline.

    Yeah it's closed but the skin is badly beaten up from 14-15 months of taping. So... still not out by any means.... only been 5 days. Need to hit 4 weeks to start not looking at it every time i drop my pants. :D Bit red and weird looking at the moment all around the wound, though the actual bit where it has healed is perfectly normal looking. Weird. Actually.

    Oh btw, no gauze or cream monday or tuesday. So absolutely nada going on or in or around the wound. :D

    Got to sleep in this morning till 6am!!!!! WOOOHOOOOO! Finally a normal morning.
     

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