I hate my life right now because of my pilonidal cyst and butt discoloration

Discussion in 'Pilonidal Discussions' started by Westell01, May 10, 2009.

  1. Westell01

    Westell01 New Member

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    well i found out i also have another problem but this time is with my penis. I have varicocele. I had a horrible accident 4.5 years ago when i injured my penis masturbating. Now the urologist i saw tells me he can't do surgery on me. I have problems like hard to maintain an erection, split stream b/c i broke some part the veins in my penis somewhere. My testicles also shrunk and someone told me to get surgery done b/c they did it and it will make it grow back. Having varicocele is associated with low testerone and infertiilty.

    Life is so damn horrible right now. Pilonidal cyst, anal fissure and penis problems... and i can name about 9 of them that will freak everyone out. And the urologist saying he can't do surgery on me because it is too late. I went to so many urologists back in 2005 and all of them said i had no problems besides urinary tract infection.

    And the surgeon for my pilondal cyst telling me he can't do the surgery? How the heck can i get my butt discoloration and inflammation gone?

    Life is horrible for me right now.
     
  2. ndgt100

    ndgt100 New Member

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    You injured your penis masturbating? Seriously? What did you do?
     
  3. Westell01

    Westell01 New Member

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    yes ndgt100. I masturbated and pulled my penis too hard. I was masturbating in my room at the time. I was 18-19 at the time. I am almost 23 very soon. After that accident for the next 6 months, i could not get hard at all. I could not masturbate nor ejaculate. My penis and testicles literally shrunk.I can only get hard and stay hard when sitting down and only if i squeeze my legs and squeeze it towards my testicles... that is the only way for me to get erect and ejaculate.

    since that accident i no longer get morning wood. My urine is weak and when i can ejaculate, it is very little. It sort of drips a lot. The bottom left of my penis HURTS when i touch it ever since 2005. I have varicelole. Yet the urologists i seen say i am fine.:mad: I am positive i have low testerone now. Also, they say the varicole is related to testicle shrinkage and operation would fix it though it takes time. Of course urologist tells me its too late for me... which is a blatant lie.

    If this happened to them, they would be freaking out like crazy already. I didn't went to any doctor between 2006-2008 because i sort of gaved up on my life since no doctor believes me. I care more about this than my pilonidal cyst and butt inflammation/discoloration. I am suppose to scheule an appointment with the surgeon for my pc again but right now i sort of give up. No doctors want to do any surgery at all.
     
  4. MaVeRiCk7

    MaVeRiCk7 Very Helpful

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    Anyways, I could not advise you there but I wanted to know how is you wound. How is the discoloration has it gone is it still the same. Finally have you found a way to see past it and concentrate on the pilo?
     
  5. Westell01

    Westell01 New Member

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    My wound is still the same. Discoloration still the same. I will probably see him again within the next 2 weeks because i am more worried about my penis and testicles more.

    I just don't know why these things happen to me:(
     
  6. cricket1

    cricket1 Helpful

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    sometimes in life bad things just happen to people. theres no reason behind it but we all have our struggles and problems to cope with and we just need to keep going on not just for ourselves but for the many people around us that love us and care about us. good luck with everything and i hope u can find some peace with all of this at some point.
     
  7. Jenny7777

    Jenny7777 New Member

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    So if you get the penis problem fixed can you then get the PC fixed? That would be good. :) And the fissure thing, my mom has had one for years, and she is fine, just a little painful BMs every now and again. from what I understand yours is not too serious so it should be okay. I know life hands us some rotten eggs sometimes, but at least we don't have something incurable and deadly forever, even though it may seem that way at times.
     
  8. cricket1

    cricket1 Helpful

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    your absolutely right about things could be much worse but some of us do have the problem of incurable as of the present. i've been living with this for a long time and i'm 5 surgerys in and i sometimes see the light and other days it feels like theres no hope to be cured. but i am thankful for all i do have and very thankful i don't have something much worse.
     
  9. Westell01

    Westell01 New Member

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    The thing is my butt is infected because it is discolored. It is black and red. I went to my surgeon who did the drainage on my PC like 3 months ago and he tells me he doesn't feel the cyst anymore today. I was telling him the skin doctor told me in order for the discoloration to go away, i need to have surgery done and the color would get back to normal. If it does not, he would give me some cream.

    I went back to my skin doctor and told him the surgeon would not do surgery on me. He told me he could do surgery on it. I ask him is it for the PC and he said yes. He tells me the area there is injured and he said he would do the surgery. I also have a bunch of other problems. I have erectile dysfunction, a level 3 varicocele and found out today my testeterone level is 412 and that is the average for someone 85 years old. I am 23 and it should be around 750 and I am depressed every day because of all these problems.

    Should i just go and schedule the surgery? I DON'T HAVE ANY PAIN though for my pc. I have ANAL FISSURE THOUGH. My surgeon told me the skin doctor doesn't know anything because surgery won't do anything according to him since he said he does not feel the pc yesterday. What should i do now? I cannot just do nothing because no way my butt discoloration will go away.

    I probably will have surgery on my varicocele as well but that might not be for a while because I am talking to my urologist about it and hope he does it. I have so many horrible things in my life right now i don't know where to go. I am suppose to see my urologist again in 2 weeks.
     
  10. cricket1

    cricket1 Helpful

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    thats a hard question to answer. So if u have surgery on a pilo that they feel doesn't exist than your discoloration goes away. I'm not sure how the two are even related? I guess if it were me and i possibly no cyst, i would not get the surgery just because theres a slim chance that your coloring would improve. I'm sorry but i'd rather live with the coloring than go through this horrible surgery that quite possibly can ruin your life worse. I guess i still don't understand why u care so much of the color of your butt especially when u have bigger problems to worry about. I mean besides u, who sees your naked butt. I've been married 14 years and i guess i don't look at my husbands butt. So i guess i'm not sure how to advice u on this one.
     
  11. Westell01

    Westell01 New Member

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    my butt looks infected. I am Asian and my skin is well you know how it is. My skin just in my buttcheek area is black and reddish. It looks like a big bruise around the whole area especially when i spread my buttcheeks.
     
  12. cricket1

    cricket1 Helpful

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    your butt to u may look infected but clearly is not infected or u'd be dead by now from ceptic shock. you've had this coloring problem for a long time and sometimes even the doc can't explain all things. and i'll say it again, that your problem doesn't look so bad at all. i've seen the pics and i don't even think it looks slightly infected. it just looks like a common issue of hyper pigmentation. thats just me.
     
  13. surgeryx4_4sarah

    surgeryx4_4sarah New Member

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    Westello,
    If you are worried, please have the DR look at it. They can put your mind at ease. No pain is a good thing and maybe there is nothing at all.
    Sharon
     
  14. MaVeRiCk7

    MaVeRiCk7 Very Helpful

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    I thought the discolouration would have gone by now. It has been a long time and if your doctor cannot do anything about it I suggest you seek a sceond opinion. Worse case scenario if that does not work I suggest either a 3rd opinion or get a referral for a skin doctor you will have to remind me if you already or are seeing a skin specialist as it has been a long time since I posted on this thread.

    I think you should try to concentrate on one thing that is important to you. As I think you mentioned you have a lot of problems and that way you should be able to sort it all out.

    Personally the colour of my bottom does not matter as I have been extremely scarred from the pilo surgeries. It looks like a shark have bitten me thats how bad it is. But I understand that for you it must mean a big deal as things like this differ from person to person and thats what makes us different.

    If you could remind me of all your problems like colour, pilo, anal fistula etc etc.

    I really do hope you get this sorted and heal from your pilo.
     
  15. Westell01

    Westell01 New Member

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    I had the pilonida, anal fissure and the whole discoloration.

    Also have erection problems because i had a penis injury that was done about 4.5 years ago and still have problems because no urologist though i had any problems. I have a varicocele grade 3 which is the worst one possible and i have very low testerone.

    Yes maverick, i have a whole ton of problems. I want to do the surgery first for the pc for the discoloration but how would i be able to go back to my urologist if this pain lasts a long time. The most important thing for me to take care of is with my penis because of my e.d. Then its my varicocele which concerns my testicles. The Pc/butt discoloration is actually my last priority out of the 3.
     
  16. REALLY???

    REALLY??? New Member

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    WOW!

    I went back and read this whole thread. What a nightmare! I'm so, so sorry.

    Take care of whatever hurts and/or causes you the most discomfort. I don't quite understand how the Pilo could cause skin discoloration, but I have seen that referenced a few times.

    Take good care of yourself!
     
  17. Westell01

    Westell01 New Member

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    Its been a very depressing time for me since my penis accident. Its been 4.5 years already. I stopped looking for help the last 2 years because i gaved up since most urologists saids its all in my head which is not since a test i took show varicocele and low testerone. I will see my urologist again next friday.

    As for my pilonida cyst, does everyone say this surgery is the most painful ever? My goal for this year is to just get surgery and injection or whatever so i can live my life again. I just graduated college 1 month ago and am 23 already and i have not enjoyed life at all because of the accident i had.
     
  18. cricket1

    cricket1 Helpful

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    i wouldn't lie. its pretty uncomftorable but the meds help alot. alot of people say that surgerys not so bad as they didn't have much pain. it just varies from person to person.
     
  19. MaVeRiCk7

    MaVeRiCk7 Very Helpful

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    Refer to your other thread for my post regarding surgery. I don't understand if your pc and discolouration is your last priority why are you sorting it out first?

    I really do think you should not have surgery to get rid of the colour on your bottom as you don't know what could happen you might make things worse. Obviously I wish nothing bad happens but if the colour is not causing you much trouble and its not a lift threatening situation I think you should leave it well alone.

    I would not have surgery to improve or sort out the appearance of my bottom. I think if the pilo is fine you should sort out your other problems before it gets too late. But at the end of the day its your decision.
     
  20. MaVeRiCk7

    MaVeRiCk7 Very Helpful

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    I hope you are not going to have surgery for all the wrong reasons as I suggest you first of all find out if you do need your pilo operated on. Are you in pain for more than 2wks? Do you have a recurrence, infection or pits. If you dont have the following I don't think you need surgery as if you had something in there that was not right it should have been exposed really soon.

    Also I would not advise you to get your skin doctor to operate on you as you need a pilo or general surgeon with experience. Its up to you whatver you decide. Also what type of surgery are you going to have?
     

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