incision site keeps opening after year and a half

Discussion in 'Pilonidal Discussions' started by shonks5, Apr 23, 2008.

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  1. shonks5

    shonks5 New Member

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    My son had his cyst removed a year and a half ago by a surgeon who had done this kind of surgery before. She took the tissue clear down to the bone. I packed and repacked and did all of the thing she instructed me to do. He healed up after about 8 weeks or so, but the problem is the wound never stays shut. The area opens up to about the size and depth of about a pea! It does heal again, but opens again later. I think the longest it has ever stayed shut, is about 5 months. I don't want to go back to her as I have gone back quite a few times. She shaves the area and says she may have to redo it. I don't think I want to do that. I feel so badly for my son! Does anyone have any suggestions? Has anyone else had to deal with this kind of problem? Any suggestions would be appreciated!

    Thanks,
    Shonks 5
     
  2. J's Mother

    J's Mother New Member

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    So sorry to hear that your son is having troubles. :(

    Like you, I dont think I would go back to this doctor again. Seems like a LONG time for this not to heal.

    2 options -

    I would look for either a certified colon/rectal surgeon in your area (Maybe even one trainied in Cleft Lift - just in case.) to get an opinion.

    OR a Wound Care Center / Specialist. Not all, but some doctors are just good at the cut and surgery and not so advanced in the healing aspect of the wound.

    My son was diagnoised last September and had Cleft Lift surgery in November. I met with 4 surgeons prior to his Cleft Lift and we visited 1 wound care center and stuck with 1 specialist there. This has certianly been a learning process for us.

    Good luck!
     
  3. Jaredsmom

    Jaredsmom Very Helpful

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    My suggestion is to forego any "corrections" or "redos" to the previous surgery. I would highly reccomend you seek out a surgeon that does cleft lift. It should be fairly obvious by now that this wound you speak of has no intention of staying closed. It has tried to do so for a year, with no success. What your son needs is a cleft lift.

    So many people on this forum are now coming to the realization that the only hope they have of success and freedom from the pilonidal nightmare is with this easy, quick, outpatient and fairly painless surgery.

    Those who have had cleft lift on this forum have worked hard to convince others to get it, and some members have done so. And without fail, all have remarked on how great this surgery is, so much better than the alternative, which is excision. No one who has had cleft lift, even those with minor isssues post surgery, regret having it done.

    PLEASE consider this surgery for your son. Like Tequilla, who had it done for her son, you will thank GOD that you did. As I thank God that I did. And I'm sure J's mother does also. Pilonguy recently had one done and is superbly happy with the results, as have numerous members who've moved on with their lives and no longer visit the forum.
     
  4. robertakeene

    robertakeene New Member

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    Wound care clinic has helped me more than anything. I had a flareup last spring, a closed excision in Sept 2007, an open revision of the incision in January 2008, and started wound care in February. I have had an opening of one sort or another for almost a year! I can sympathize with your son. I am now healed 75% and go to wound care bi-weekly. They will give you things to put on/in the wound to promote the healing process.
    Just stay away from the silver nitrate treatments!
     
  5. traxie2001

    traxie2001 New Member

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    I had an excision that kept reopening for 6 months afterwards. My problem was that I felt well enough to do stuff but every time I went to work or sat up for longer than an hour or even walked too vigorously the wounded opened up again. Is your son able to be on bed rest for a few weeks? That might be an option. Also, how old is he?
     
  6. AnxiousMom

    AnxiousMom New Member

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    My daughter has had this exact same problem, although her opening sounds larger than your sons. It's been over a year and a half since her excision, and a portion of the incision still remains open. It is highly frustrating and concerning! We have tried all kinds of wound care advice for ointments and dressings, but none have helped long term. I have avoided additional surgery for her as I was not convinced that it would fix the problem. Until I have read so much about the cleft lift lately. I have scheduled her for a cleft lift with Dr. Bascom - we have to wait till end of July due other situations.
     
  7. shonks5

    shonks5 New Member

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    My son is 19 in college and works, he is able to do everyday things OK. It just seems that everytime he starts a new semester, his wound opens up again. I think that sitting on the hard classroom chairs stretchs the skin apart. His scar looks a little tight where the wound keeps opening, kind of like a stair step, if that makes sense. It seems like there should be more skin there, then it wouldn't keep opening. I worry that it will become infected! I am thinking about the cleft lift mentioned here. I wish I had known about it before, I wouldn't have gone the route I did. I did find the name of a doctor on this site, and will try to schedule an appt. with him over summer break. Thanks for all the info!

    Shonks 5
     
  8. Jaredsmom

    Jaredsmom Very Helpful

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    Shonks,
    You are making the right decision. J's mother and I have been avid cleft lift fans and haven't missed a chance to try to get others to look into this superbly easy surgery....

    Tequilla was one of our victims:p... Her son had his a week ago and his case was VERY bad, she says. A pilonidal nightmare. One week later he is SO happy, sitting and walking and pain free.... What a beautiful story.

    My son had an incision before he had his cleft lift. The open wound incision refused to heal completely. About half of it healed, and like you mentioned, the part that DID heal didn't look right. The skin, I mean. It didn't look healthy or strong. In Jared's case, the skin that did close up half the wound look very very thin and rather grayish. I KNEW that it wouldn't hold. You can take one look at skin like that and just KNOW. Any stress and it'll tear....

    So, we got the cleft lift and a VERY happy with it. He had a minor area of non healing due to a devilish stitch that didn't completely dissolve, but that was the only glitch. The offending stitch has been removed, the area is all but healed and we go for a check up in a few weeks. IF the area is not sufficently healed, then the doc suspects a "pit", he plans to pick it and that'll be the end of that. By the way, the disturbed area is really small, we're not talking HUGE open wound here, it's was an area the size of an uncooked grain of rice, now it is the size of a period.

    WE STAND BY CLEFT LIFT AS THE BEST SURGERY FOR PILONIDALS. Jared is pain free, his wound is 99% healed, and the skin is strong and pink..... he can do any sports he chooses in the meantime of waiting to see about the disturbed area.

    You mentioned sitting as the possible reason your son's wound keeps opening... Less than a week after cleft lift, Jared was sitting for 8 to 10 hours a day playing video games. It didn't disrupt the healing or the fresh skin. Only thing was, after 8 hours of sitting, his butt would get achy a bit...but then, so does mine, and I DON'T have pilonidals.:rolleyes:
     
  9. shonks5

    shonks5 New Member

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    Thanks Jaredsmom!

    I read your post as well as the others to my son, and his reply was,"I want that." Didn't call that doc I found on this site who uses the cleft lift, but after my sons positive interest, I will call first thing Monday morning!

    Thanks to everyone who replied,
    Shonks 5
     
  10. J's Mother

    J's Mother New Member

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    Excellent decision! You and your son will not regret it.

    We are over 5 months post Cleft Lift and no issues at all. Not saying there cant be blips even with Cleft Lift, but your odds seem to be much slimmer with this procedure than any other and those were good enough odds for my son and I.

    I am so thrilled that out of the gate we went for Cleft Lift and so thankful to this site for allowing me to even know about the procedure.

    My son delt with the issue (3 draining holes) from August to Septmber when he was diagnoised to November when he had surgery. His journey was fairly brief compared to many other folks.

    No regrets!

    Be well.
     
  11. Jaredsmom

    Jaredsmom Very Helpful

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    Shonks,

    J's mother is right, you will NOT regret it. We can absolutely PROMISE you that you will not.

    Here's a thread I posted before you arrived here on what my son's wound looked like at an AMAZING 3 and 7
    DAYS, YES DAYS, post op. Try this link to the thread that contains a link to the photos....
    http://pilonidal.org/forums/showthread.php?t=9568

    Click on the link in this thread.

    Most people are amazed at how the cleft lift wound looks at less than a week after surgery.


    If your son doesn't mind lookin ...show him the photos. And the tape over the wound on the four day photo is all that holds the surface skin together...no stitches on the surface, they are all under the skin. At seven days post op, the tape is pulled off by you and you will GASP at what you will see..... you won't believe your eyes...... the skin WILL have knitted together and the skin will look pink, healthy...and most of all ...STRONG. No more thin, weird looking skin that just yells out to you that it's gonna tear at the first bit of pressure. That was what amazed me the most...the LOOK of the skin at day seven.... I had gotten so used to looking at the grayish, thin skin that covered half of my son's previous surgery, I'd given up hope that it would ever heal correctly. And truth be told, I didn't think cleft lift COULD or WOULD heal it either......but it did.

    As J's mother said, there can be glitches, like the one my son had.... but these glitches are so minor. Despite his glitch, Jared can walk, sit, run....play sports....and is pain free. Indeed, oftentimes, both he and I forget about the "glitch" in his cleft lift experience.

    I check and clean it daily to make sure nothing like a nasty hair or lint is trying to get in that pinhole while we wait to see if it'll heal, but today I forgot to check it and he forgot to remind me....oftentimes three days will pass before I remember that there was ever anything wrong with him and that I should check his butt.:p
     
  12. shonks5

    shonks5 New Member

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    Thanks Jared's Mom for showing me those photo's! It is amazing! His incision site looks very straight and even. My son's incision scar has dips and valley's in it. I have an appt on the 19th for my son with a doctor I got from this site. He is looking forward to getting this resolved! When my son gets home I will surely show him these pictures. He will be impressed! Thank you, and thank your son for sharing with us. When you have a closed procedure like this, is it necessary to be on antibiotics afterward?

    Thanks again,
    Shonks 5
     
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