Hi all, I had an op. 13 years ago (I was only 17) for what, I was told at the time, was a sinus. I did not have a lump, or any discharge, just pain. This was in France, I saw a consultant and was operated and sutured the next day. I am now in the UK where it is a huge mission to get to see a specialist. The pain has come back 4 months ago. Still no discharge or lump. I ran to my GP and insisted to see a specialist asap as I was certain this was another sinus. The consultant had a quick look and booked me in for an op two months later. In the meantime, the pain continues (only when I am sitting), but things do not get worse. I went to hsp. this morning for my planned surgery and was told then by 3 different Drs that I should not have surgery as they do not believe this is a sinus. They believe this is scar tissue (13 yrs on!!??). Now, I read the whole website and I have a few questions for the people there, who know a lot about it: 1- Is it possible to have a sinus if there are no lumps, no pits to be seen and no discharge. I understand that sinuses can be very deep, but would there still be pits to be seen? Furthermore, if this was a sinus, would not it have evolved over the last four months? 2- I think that the symptoms correspond to coccydogynia... but would not that be a coincidence that I have had a sinus there before? Unless this was never one... 3 - Has anyone had a MRI scan before to diagnose? I did not want to leave the hospital untreated so insisted to get a diagnosis so they ve booked me for a mri which will supposidely show whether there is an infection. Many many thanks! I have just lost all faith in my Dr's ability to diagnose and am starting to completely panick over what this could be if this is not a sinus and if it IS one, over what it will take to go for surgery... Thanks again!
Hi COCOL- You should certainly be concerned and very skeptical over your doctors conclusions. I had a PS that wasn't created the traditional way - a result of another issue. Because it was so deep, it drained into my spine and out a little (sometimes), but basically it did sit there and fester. As for it being scar tissue, it may also be necrotic tissue that your surgeon missed - your body sometimes handles this by calcifying around it and hence the pain. Necrotic tissue is bad because it can get be infected but won't hurt (my personal experience) until the body tries to get rid of it. I'm two years into dealing with the scar and necrotic tissue left behind and I sincerely doubt your pain is a coincidence. I think your discomfort with the idea of 13 year old scar tissue is quite appropriate. My suggestion to you is to shake the trees and rattle the cages until you get the doctors to come up with a logical diagnosis. To ignore it will only make it worse. If it's working it's way out naturally the dr.s may be reluctant to intervene surgically - at least mine were. Good luck to you.
