GREETINGS ALL, Today is my 1st day of posting on this site, as I just registered 2day. This is the 2nd time my cyst has ruptured in 1 year. It was about the size of a small egg & there was almost a 1/2 cup of bloody-puss that drained from it... After the 1st time it ruptured, I went 2 a Colon/Rectal surgeon 4 a consultation, I was looking @ my options & researching when she sent me a certified letter discarding me as her pt! She wanted me 2 see a Neurologist in her practice & about 3 other drs, & because I wouldn't go 2 the Neurologist (I had my own, but that wasn't good enough 4 her?!), she said she wouldn't treat me! It seems no matter how much research or who refers me, I have little or no success with drs. sigh... My experience with her & many other drs. like her, has made me dislike drs. altogether After being discarded as her pt., I decided against surgery! I'm currently (temporarily) disabled. I inherited a type of cyst that is destroying my reproductive system along with damaging many other pelvic organs, & the last specialist I went 2 for this condition also discarded me because he failed 2 cure me in 1 year as he boasted he could!.... I'm on this site 2 learn & find alternatives 2 surgery because I see no reason 2 go 2 a surgeon who won't operate on me b4 I see a Neurologist, OB/GYN, etc...?! From this site, I learned that she didn't seem up 2 date on the latest techniques anyway. Any suggestions, 4 alternatives 2 surgery, would be appreciated. To all those suffering, I can empathize & hope u find relief... After the pain of this cyst draining & the sickness & fever, I'm completely exhausted & miserable! It's hard 2 believe these things are sooo painful & can make people so sick?! Thanx 2 any1 that takes the time 2 write me back & offer advice... God Bless
Hi Elle, I'm so sorry to hear about your suffering. I only just logged back onto this site after about a month and saw you'd replied to my enquiry on another thread. I know exactly what you mean about doctors, I don't think people realise how debilitating and exhausting these things can be! I got mine PS when I was 19 and it's only after two surgeries and years of problems that I've been able to experience a quality of life again. I'm sorry to say I'm unaware of any non-surgical options. I'm not sure if you're in the UK, all I can say is that a lot of people on here appear to have had success with the cleft-lift with Dr Senapati at Portsmouth hospital. Perhaps it would be worth not giving up on surgery completely yet? I really hope you start feeling better soon, and you'll always have a sympathetic community to listen to you on this site . Best wishes Rytocks
