My pilonidal pits

Discussion in 'Pictures Forum' started by missclassy3, Jan 5, 2014.

  1. missclassy3

    missclassy3 New Member

    Joined:
    Jan 4, 2014
    Messages:
    6
    Helpfuls Received:
    0
    Location (Country):
    South Carolina
    I am unable to find a lot of pictures of pilonidal pits so I am hoping this may be helpful to a few.
    I believe these are 5 pits. The lancing is the incision you see (my first lancing was about 5 weeks before this picture) In this picture I am bending over and pulling my cheeks. These are about 2cm in length.

    [​IMG]

    This is just the beginning of my journey. My surgeon and primary care doctor has seen these pits (the cyst area) and dismissed me saying to not worry unless it became inflamed again. They didn't believe it would come back. A month after lancing it came back ;-( However, I started my antibiotics right away and it is back to it's pea sized shape. I am looking into surgery options. Ideally I would like to wait until summer due to being scared to taking off too long of school.
     
  2. nickmono

    nickmono Very Helpful

    Joined:
    Jun 19, 2013
    Messages:
    186
    Helpfuls Received:
    16
    Location (Country):
    Australia
    Hi. You should look into 'Pit picking', read up on it here:

    http://www.pilonidal.org/_assets/pdf/Pit_Picking_Quick_Tutorial.pdf

    You will more than likely need surgery for this. You can try and keep the area super clean ( I use alcohol wipes) and remove all hair (even those thin blonde coloured ones - I use wax strips and hair removal cream) and hope it doesn't come back but it most likely will.. this is because the pits already have hair and other debris inside.

    I had it done 6 months ago and I have had no issues since. My version of the pit picking was slightly different to she bascom one as my doctor didn't do the lateral drainage incision.. for whatever reason, but i am very happy with the results.

    Nick.
     
  3. UnluckyOne

    UnluckyOne Very Helpful

    Joined:
    Jan 28, 2012
    Messages:
    247
    Helpfuls Received:
    43
    Location (Country):
    Atlanta, Georgia, United States
    Classy, I agree with Nick. Definitely look into the pit picking. It's another Bascom procedure but even less invasive than the cleft lift, and I believe that you would be the perfect candidate. If you go back to my post you responded to and read the E-mail exchanges I had with that guy, there will be a link to a pdf/pwpt and you should definitely look at that. It explains in detail the pit picking, cleft lift, difference between the two, and when it is best for either of the procedures to be performed.

    Good luck. You don't have much at all to worry about.
     
  4. postiore

    postiore New Member

    Joined:
    Jan 16, 2014
    Messages:
    15
    Helpfuls Received:
    0
    UnluckyOne,

    Can you direct me to the post you refer to above so I can learn more about pit picking? I'm meeting with a surgeon tomorrow and will be discussing surgical options. I'd like to give pit picking a shot if possible since it seems to be less invasive, quicker recovery time, minimal scaring (next to simple lancing), and apparently can be successful in treating the problem without needing further intervention. I'm nervous about talking to my Dr. tomorrow. I'm afraid she won't know about or have any experience with the surgical options I'd be interesting in (pit pick and cleft lift). I'm nervous about scaring/disfiguring with either of those options as well (though I've read on here that it's not horribly bad, even with the lift). Really I'm hoping to give lancing followed by Nair and exceptional hygiene a shot before taking more extreme measures (though hygiene is kind of tough what with working out, sweating, sex, etc. How dry and clean can one be reasonably expected to keep that area on a constant basis?). I had a terrible, painful flare up 2.5 months ago and just another that started about a month ago, but on the positive side (perhaps), the latest flare up is the most mild ever. It's been marked by almost no pain whatsoever, barely if any draining, and it hasn't grown large....yet it hasn't disappeared altogether even with a lancing 10 days ago.

    Thanks,

    Postiore
     
  5. UnluckyOne

    UnluckyOne Very Helpful

    Joined:
    Jan 28, 2012
    Messages:
    247
    Helpfuls Received:
    43
    Location (Country):
    Atlanta, Georgia, United States
    I'm sorry this is late. Hopefully you can let me know about how your meeting with the surgeon went.
    This is the PDF and this is the quick tutorial .
    Did you find this surgeon on the surgeons list from the forum? If you did, she should know about the procedures. If you didn't, it's unlikely that she will but there is a chance. And if she doesn't, I urge you not to stick with her. Doctors and surgeons will throw all sorts of options your way and they will often sound confident about what they want to do; my original surgeon did, but I was stuck with an open wound 5.5 months later.
    The fear of scarring or disfigurement is irrational, honestly. That's not to insult, especially since I had that fear originally as well, but if you look at the powerpoint and any other correctly explained tutorial on the Bascom procedures, you will realize they aren't as invasive as everyone tends to believe. Even the cleft lift (yes, the procedure that healed me) is less invasive than the original procedure I had done (the open wound procedure). My scarring is minimal, and if you don't believe me, I have an entire photo thread on here that you can go look at. My butt was always one of my favorite features so when I heard words like "scarring" and "disfiguration," I wanted nothing more than to run the other direction. It's a good thing I dug through all the junk and fears that people were talking about and went with the cleft lift anyway. When I got my procedure done, there were zero pictures on here (or anywhere) of the cleft lift and its healing process.. so I committed myself to document my entire journey. There are more pictures posts now than there were then, but I haven't looked at many of them, so I don't know what they tell you about scarring and disfiguration.
    So, please realize that these procedures aren't "extreme." They're not invasive, they're nearly *guaranteed* to heal you fully, and they are actually very quickly over-and-done-with. Lancing with Nair and exceptional hygiene will only help you for so long and by the time you have a recurrence, you could have already had the Bascom procedure and healed 100% (and you'll wish you had). None of these preventative measures actually prevent the main thing that festers Pilonidal disease: a deep cleft and the body's tendency to open pits in that deep cleft. Look at the PDF I've posted for you and you'll understand why I stress that no matter what you do right, you'll never be cyst-free and worry-free until you have one of the Bascom procedures done.
    If I could have gone back and taken away some of those 5.5 months of healing and waiting that I thought I could eat healthier/more protein, keep better hygiene, stop straining the area, getting the bandage changed multiple times a day every day, etc.. I would have. I could have had the Bascom procedure done much earlier and have it healed and over with much earlier than I did. But I waited and hoped and toughed it out....... for no reason.....

    Just look at the links I've provided and make your own decision. You already know what I think the right decision is.

    LuckyOne


    Resources
    My Journey
    My Photo Journey
    Photos & Descriptions of Healing
     
    Frustrated! found this helpful.
  6. postiore

    postiore New Member

    Joined:
    Jan 16, 2014
    Messages:
    15
    Helpfuls Received:
    0
    Thank you so much for responding and sharing your experience. I'm on my phone so will have to check out your links and respond more thoroughly later when I am on a computer. Again, thanx.
     
  7. postiore

    postiore New Member

    Joined:
    Jan 16, 2014
    Messages:
    15
    Helpfuls Received:
    0
    Hi LuckyOne:

    When I saw my Dr. on 1/17/14, it was a pretty quick visit. She checked me out and noted that there was a bit of firmness that she didn't recall before, and also said the area was a little moist. This was true - I could sort of feel a firmness that had never really gone away and at times very slight moisture (or drainage, I assume). She prescribed antibiotics to see if that would help clear up anything remaining. I have a follow up tomorrow. At the time of my 1/17 visit, I didn't ask any questions about surgery or anything like I had wanted to. I just kind of ran the hell out of there. The antibiotics seemed to have helped some, but I think there is still something there, though there's no pain or barely if any moisture occasionally.

    You asked if I found her on the forums or on this site. I did not. And since she never mentioned pit picking before, I am doubting it's something she's familiar with, but I will ask. I looked at the surgeons pdf on this site, and oddly there are only 2 in Oregon. Obviously, there's Bascom himself (edit: it's Thomas Bascom, not John Bascom). A disadvantage is that his city is 4 hours from me. There was another Dr. listed in my city. I have no idea if insurance would cover either Dr. (I'll try to read more on this site about info. dealing with insurance). I could tell the current Dr. I'm seeing that she needs to learn the procedures of pit picking and/or cleft lift if she doesn't already know them, but if she doesn't I think I'd feel better about going to the son of the inventor himself or at least the Dr. in my city who is actually listed on this site.

    I am feeling like surgical intervention is more and more inevitable and something I'll have to accept in spite of my fears/apprehension. I seem to have something living inside of me that is looking more and more chronic. Even it is subsiding and I could live with it...still, I have crater holes on my crack which is weird, and it seems they'll always pose a risk. Right now, I'm unsure if it's wise to start with pit picking or just go straight to a cleft lift. Pit picking, if I'm in fact a candidate for that procedure, it the easier option in many ways, but if my cleft is such that I am prone to having new pits form in the future, should I just go straight into the lift procedure? Or, should I start with pit picking, thereby getting rid of my abscess(s) and the source (pits) of my PD and then, in the future, do my best to safe-guard pits from ever forming again? I don't think it's a question you can answer; I'm just kind of posing my thought process.
     
    Last edited: Jan 30, 2014
  8. postiore

    postiore New Member

    Joined:
    Jan 16, 2014
    Messages:
    15
    Helpfuls Received:
    0
    Also want to say I did look at the links, many of your posts, and your pictures, LuckyOne. Your personal experience has definitely shed so much light on the lift procedure and has made me more comfortable about accepting that possible solution to my problem. I'm sure you know, but let me just state what an invaluable resource you are to me and so many other people I'm sure.
     
  9. UnluckyOne

    UnluckyOne Very Helpful

    Joined:
    Jan 28, 2012
    Messages:
    247
    Helpfuls Received:
    43
    Location (Country):
    Atlanta, Georgia, United States
    Postiore,
    Just keep me updated! Because you do live in Oregeon, I would suggest Bascom (and 4 hours seems long but A. It very well may be worth it/ B. He's very contact friendly through E-mail and phone, so you can keep in touch, ask him questions, and figure everything out) but either way, definitely go to someone listed that knows and performs the Bascom procedures. As for insurance, you will only know by calling them and figuring out what coverage they accept, if yours will work, etc.
    If you don't have an already open wound and your cleft isn't too seemingly deep, I usually suggest trying the pit picking first and then moving on to the cleft lift if need be, because most people are scared of jumping right to the cleft lift..... but, looking back, if I hadn't started with an excision and then had to get a cleft lift because I still had a huge open wound, then I still think I would have chosen a cleft lift immediately. It's kind of just covering all the bases and assuring you're taking care of it fully. I'm so thankful to be 100% healed and not scared of recurrences any longer.. I think if I had the pit picking, I may still be scared of the chance of recurrence (not as badly as an excision, but just in the back of the mind wondering or paranoid, ya know?). Now, I have a super shallow cleft at the top and no reason to really worry about Pilonidal having any way to sneak back in.

    Keep us updated on the surgeon search and your decision.
    (And thank you. I truly care about everyone that's been/going through this terrible experience that changed and put a hold on my life, so I want nothing more than to help as many people in this situation as possible. If there's someone out there with knowledge and experience that can help others, why wouldn't they use it to do so?)
    Good luck!
     
  10. postiore

    postiore New Member

    Joined:
    Jan 16, 2014
    Messages:
    15
    Helpfuls Received:
    0
    So, it's been a while since I posted and much has changed. I had surgery about two weeks ago, the cleft lift procedure. I didn't go with Mr. Bascom because of distance/insurance issues. The surgeon I was meeting with knew about the bascom cleft lift as one of many possible procedures. So, the surgery was performed without complications. My friend picked me up afterwards and brought me home. I was prescribed pain killers but honestly didn't need them at all really. I stayed home for 5 days. I worked 1/2 days after that.

    I had the drain removed last Friday. The doctor said she thought things would be a little flatter, so I'm a little concerned that things are future-proofed enough to prevent recurrence. There are stitches still in the area where she excised the pits. I'm scheduled to go back in next week to have stitching cut, which I'm told should just take a few minutes.

    I am concerned that the drain was removed prematurely. I feel a lump back there, and it feels kind of numb. I'm worried now that the drain is out, fluid is building up.
     
  11. UnluckyOne

    UnluckyOne Very Helpful

    Joined:
    Jan 28, 2012
    Messages:
    247
    Helpfuls Received:
    43
    Location (Country):
    Atlanta, Georgia, United States
    Make sure to tell them when you go in next week! If there is buildup, they can do a few tiny pricks that will release it, if it's just some harmless fluid. I'm pretty sure they did that for me? My drain wasn't taken out prematurely, it's just that over time there was still a little fluid with nowhere to go. It never went deep or really caused a lump or knot or anything, it just rested underneath the surface. If it starts feeling too hard or irritated, call them and see if you can come in earlier.
    I'm glad everything else has gone well, with pain/work/etc. I'm always happy to hear that people don't always have trouble, especially because everyone's different.

    Congrats on your cleft lift :)
     
  12. postiore

    postiore New Member

    Joined:
    Jan 16, 2014
    Messages:
    15
    Helpfuls Received:
    0
    Thanks, UnluckyOne! I'm so glad that thing was removed from my body!!! I went in today to get the stitches out. And it was just harmless fluid building up. The Dr. squeezed the fluid out and showed me how I can tape bandages on the area for the next few days to keep pressure on the area so that fluid doesn't get trapped, and if I need to get pricks I can just call the Dr. It's a little unusual, I think, but there's no pain or any sign of infection, and the Dr. expects things will be fine.
     
  13. Lauren8

    Lauren8 New Member

    Joined:
    Jun 2, 2014
    Messages:
    7
    Helpfuls Received:
    0
    Hi postiore. I was just wondering how things are going? I am planning to get a cleft lift and I am very nervous. Are you happy with your decision?
     
  14. postiore

    postiore New Member

    Joined:
    Jan 16, 2014
    Messages:
    15
    Helpfuls Received:
    0
    Hi Lauren8, I still have fluid build up. My doctor is talking about the possibility of doing another surgery. I need to contact my doctor to clarify some things and will report back later.
     
  15. Farid

    Farid Helpful

    Joined:
    Nov 20, 2015
    Messages:
    79
    Helpfuls Received:
    8
    Location (Country):
    Texas
    Any update ??
     

Share This Page