My son's cleft lift 7/31/12

Discussion in 'Pilonidal Discussions' started by LILLY, Jul 28, 2012.

  1. LILLY

    LILLY Very Helpful

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    People are always worried about what it will look like and that is understandable. The cosmetic result will vary a bit based on the skill of your surgeon. There is a bit of an art to it. I think my son's butt looks normal. His crack might look slightly shifted at the top. It's hard to explain and I don't have pictures. You will want to make sure you find a surgeon who people on this site have vouched for. That is your safest bet.

    The recovery time is different based on the severity of the disease and the location of the cysts and sinuses. All problem areas will be corrected in the surgery. It sounds like your son may be on the easier side in terms of recovery. I would think after two weeks he should be feeling pretty good.
     
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  2. Jojo55

    Jojo55 Helpful

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    I hope so ! Since nothing has been done except a antibiotic just not sure he only has 3 sinus tracts because u did not go deep in the A he was embarrassed
    We go to a surgeon here tommorrow but I don't have much hope in him doing anything .
    Is every doctor in the list a good doctor or that us not a fir sure thing ?
     
  3. LILLY

    LILLY Very Helpful

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    It's important to know that the list is just a starting point. This gives you some direction but you need to follow up with more research. Over the years we have heard many stories of people blindly trusting the list and ending up with surgeries that were not cleft lifts at all. For me I gathered names from the list and did searches on the forum for any and all info on each. It helps to not only search the hall of fame forum but the general forum also. There are many more conversations involving surgeon experiences in the general forum.
     
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  4. Jojo55

    Jojo55 Helpful

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    Thanks Lilly ! I am doing that now , I just found bad news for some of the docs already ! Seems like pit picking doesn't always have good results either
     
  5. kittygirl

    kittygirl Very Helpful

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    as far as my scar, you can only see like an inch outside of the crack and there's a little bit that's pulled over a bit at the top that looks slightly funny but other than that, looks like a normal butt....
     
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  6. LILLY

    LILLY Very Helpful

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    Pit picking is harder to find. It is a small percentage of surgeons who perform cleft lift. Even fewer do pit picking. Now when you get down to the few who ARE listed for pit picking there are great differences in their interpretations of the procedure. In the way I believe it was intended- pit picking is a very minimal procedure done in office, while awake, with no packing of the wound, and very little pain. We have seen a number of people say they were told they were having pit picking that ended up the opposite of all of the above mentioned.

    When we were deciding on a surgeon we wanted one who performed both cleft lift and pit picking the way they were intended even though I didn't think my son was a candidate for pit picking (and he wasn't). I do think pit picking has value in the right case, with the right surgeon. As a very minimal, in office procedure it's worth a shot for those who are a good fit. I'm not sure I'd pursue it in any form that was more invasive.
     
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  7. Jojo55

    Jojo55 Helpful

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    Thanks Lilly , I am also scared of modified Limberg flap procedure , should I be this s what I have heard the surgeon we are seeing today does ?
     
  8. LILLY

    LILLY Very Helpful

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    I would not entertain any form of Limberg flap or Z plasty in any situation.
     
  9. Jojo55

    Jojo55 Helpful

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    Thank you , that's what I thought ! With my son having nothing done at all I would want to go straight to the best one !
     
  10. Momof4

    Momof4 Helpful

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    Jojo55, you have a rare opportunity right now with not having had anything done yet. Please do whatever you can to find a surgeon that has top reviews on here. My daughter is in the same position. First timer. We drove to see Dr. Rosengart.
     
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  11. LILLY

    LILLY Very Helpful

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    3 years.

    I'm happy to report there is nothing to report three years after cleft lift surgery. My son has gone on with his life with no restrictions. Of course there are times I still worry but I don't think that can be helped. I hope to report in each year if for no other reason than a yearly THANK YOU to Sasha and this forum. I came to this forum scared and looking for answers as so many do. Finding out about cleft lift surgery changed the course of my son's treatment. As a result pilonidal turned out to be a short detour in his life and not a complete derailment. For that I will always be grateful to this forum and all of the people who contribute to it.

    I hope all of my ladies are doing well, and your children are pilo free!
     
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  12. Frustrated!

    Frustrated! Helpful

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    That's great Lilly! My son is 16 months post-op and well. We did have one scare when I thought I saw a pit forming, but tweezing and a couple of weeks with his using the aeration cigar did the trick. Hope everyone else is doing well!
     
  13. LILLY

    LILLY Very Helpful

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    4 years.

    Almost forgot to post. It's been 4 years since the surgery and all is well.

    To everyone I've spoken to here I hope you all are doing well and that pilonidal is a distant memory!

    To everyone new to my son's story I hope it is somehow helpful. The information I learned from this forum gave us an option other than open excision. What my son was facing was an excision to the bone with a very long and involved recovery. When I learned about cleft lift I thought it was too good to be true but it really was the answer we were looking for. If you are facing pilonidal surgery know your options. Look into cleft lift-it's worth the effort.

    And as always-thank you Sasha for the forum!
     
  14. Linda2

    Linda2 Very Helpful

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    Lilly that is great. We also remain huge fans of the cleft lift and all is well with my son too (3.5 years now). I do sometimes dip into the forums and I am really disappointed to see that the cleft lift does not seem to have made a lot of progress in terms of availability. In fact, I think in the UK it might be more challenging now to find this on the NHS, though it is fairly easy to find a private surgeon. It seems the most common is still the dig it out process!!
    Very best
    Linda
     
  15. LILLY

    LILLY Very Helpful

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    Great to hear from you Linda. Glad your son is well!

    Availability of cleft lift is still a big issue. It's hard to hear that for some people it is just not possible. When you say it's more challenging now do you mean that something has changed with the NHS coverage in Portsmouth?
     
  16. Linda2

    Linda2 Very Helpful

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    I THINK, but I am not certain, that Asha Senapati might have retired from the NHS, though she is definitely still doing cleft lifts privately. And the other thing is that the NHS has even less money than it used to have.........
     
  17. LILLY

    LILLY Very Helpful

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    I have heard some about the struggles of the NHS. I think the cost of healthcare is a hot topic everywhere, and there are no good answers. If Asha Senapati is not performing cleft lift surgery through the NHS it is truly unfortunate. If you hear anything more please check in.
     
  18. sarah_berna

    sarah_berna Helpful

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    Was it painful for him to take a shower? I've had basically no pain after my cleft lift a couple days ago but I'm worried that it'll be painful to get the scar wet.
     
  19. LILLY

    LILLY Very Helpful

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    No, actually the shower went better than I thought it would. He had a drain in and that was awkward, but he didn't have any pain.
     
  20. LILLY

    LILLY Very Helpful

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    5 YEARS!!!!!

    It's been 5 years since cleft lift surgery. My son is 21 and has long since forgotten about pilonidal disease. He goes about his life and all activities without a second thought.

    I wish this could be the case for everyone. Please explore all your options, and don't rush into ANY surgery. Not all cleft lift surgeons are created equal. You need to look for experience backed up by testimonials. I can't stress this enough. My son's butt looks very normal. When you hear about problems this comes from inexperience. Make your decisions based on experience not proximity.

    Hope all my ladies are well!

    I've said many times how grateful I am for this forum and this surgery. Again THANK YOU SASHA!!!!!!!:)
     

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