My sons surgery story 1/27/2011

Discussion in 'Pilonidal Discussions' started by Texasmom, Jan 27, 2011.

  1. RozyC

    RozyC New Member

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    I know there was talk about wheat grass on here and I just wanted to post a special they are having at Bio Alternativeshttp://www.bio-alternatives.net/greens.htm for a greens supplement. The discount code is
    GREEN25

    I ordered some for my son so im hoping it helps. I give him protein shakes every day and make him take a omega 3 and multivitamin every day.
     
  2. Texasmom

    Texasmom Helpful

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    I bought him the whey protein shakes today and he really likes those. He said the other ones are nasty, I guess because we mix these with real milk and those were pre made. I am going to look for wheat grass supplements this weekend..anything to speed this up!!

    He goes for another 2 week check up tommorow so we'll see what the ol doc says!
     
  3. Texasmom

    Texasmom Helpful

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    Ok so now Im totally confused. The doc has told us from the begining that this whole would fill up. Today he told us that it is probably done filling up and it will just skin over?? There is still a big wound there..so he is going to have a hole there or what?? He is never clear with anything and it totally confuses us. :(
     
  4. mumto2

    mumto2 New Member

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    I just wanted to say Texasmom that I've been reading through your thread and am very sorry for your and your son's experience. I wish I could offer some words of advise. Don't be shy about asking your doctor anything... get agressive if you have to!

    Mum [​IMG]
     
  5. Hound

    Hound Very Helpful

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    What a thing to be told! A lot of people report slowing down of the tissue filling in, I hope somebody that has had open excision can drop in and give you thoughts. Switching to a different dressing seems to kick start more tissue growth I think. I would certainly want the hole filled as best it can rather than a big pocket down there. Shallow is best for the lower chance of recurrence. I guess it is only going to skin over if you let it? You wouldn't want skin growing over a hole leaving a space below I wouldn't think.

    Some surgeons really tick me off when they leave patients confused like this, a pilo is not something to be trifled with and recovery from excision is not an easy ride. Boo to the doctor, shame on you.When a patient is getting clearer advice from other patients something is wrong for sure! The only explanation I can think of is that he is trying to keep your spirits up by telling you that you are almost there.

    I agree with mumto2, getting pushy with a doctor who isn't leaving you well informed and calm is a good plan. Once they know you are not leaving until you are satisfied they will spend time with you. When my other half had surgery we got so annoyed with their attitude that they called in another surgeon to explain, and he did a terrific job of giving us real answers. Unfortunately soft skills are not well developed with some doctors.
     
  6. mom of 3

    mom of 3 Helpful

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    Without seeing your son's wound, it's hard to give advice, but I would like to try and help if I can. Just a little reminder, I'm the mom of a 15 yr. old daughter (16 now) who had two open excisions last year.

    So, I'm assuming by the way you talk, there is still depth to the wound. If this is the case, approx. how deep is the wound? What the doctor said totally does not sound right at all. I don't want to frustrate you more by me saying that, but I would like you to be made aware. My husband and I felt this way at times with our daughter's doctor and the people at the wound care center, which btw, we refused to take her back to the wound care center the 2nd time around. Her doctor pressed us to take her there, but we just refused. Just a bad experience all the way around.

    I'll try to explain as best I can about what we noticed and learned about the healing process of our daughter's wound (the 2nd open excision which healed correctly). What I began to notice about 2-3 wks. of the wound healing process was at the top of the wound around the whole edge of it, it did start to skin over. I need to explain that when it skinned over, it was skinning over from the top edge of the wound and going down the inside edge of the wound. Nevertheless, the bottom of the wound still continued to form new granulation which is obviously what you want. The wound bed just continued to fill in and rise to the top, therefore, the wound becomes not quite as deep and more shallow as the weeks pass. This continues until the wound has completely filled in and closes shut. Eventually, it gets so small that you can hardly put any packing in. I will go ahead and tell you now that when you reach this point, I would highly recommend you checking into using "Prisma". This is what her doctor prescribed when her wound was about 1/4" deep. You don't want to use this too soon. The wound must be fairly small. When this happens, the healing slows way down. You feel like it's never going to close, but the Prisma was almost magical at how quickly it sealed the wound shut. Like I said though, you can't use this too soon. It sounds to me like your son's wound is definitely not to this point just yet.

    Back to your question though. The wound must and will fill in. Just keep it packed, so it won't bridge over or tunnel at the bottom of the wound. That's why my daughter's first wound didn't heal correctly. I will say at this point, that is why we strictly used gauze after the 2nd surgery, because the wound center we took her to used the aquacel which is a type of packing that is supposed to help the wound heal faster. Honestly, the 2nd time around, we weren't going for fast; we just wanted it to heal correctly. My motto was "slow and steady is the pace". In fact, her doctor wanted us to use aquacel after her 2nd surgery, and we told her we would rather not. She was fine with us using gauze, which we were aware meant a slower process, but we were fine with that.

    I'm trying to understand why the doctor would tell you this. Has the wound gotten to the point it's not granultating and forming new tissue, or is it still filling in? If your still packing it, there is no way in my mind as to how it would skin over. There was a point when our daughter's wound came to a standstill, and the doctor took one of those long Q-tip type things and roughed up the bottom of the wound, and this rejuvinated it to where it start granulating again.

    I have no idea if all this will even help you, but if there is something you need me to try and explain a little better, feel free to ask. I would like to help you.

    mom of 3
     
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  7. Texasmom

    Texasmom Helpful

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    Momof3,

    I would say its still about 1 1/2" deep and maybe 2" long. I think its still granulating and forming new tissue. I have noticed its starting to skin down a little down the sides but not much. I just thought at 6 weeks post op we would be a little farther along than this although we havent had any problems and the wound is about 1/2 as small so really I shouldnt complain. I was just confused because I thought all along it was going to fill in and now he says there is going to be a "scooped out" spot there?? ugh

    Texasmom
     
  8. mom of 3

    mom of 3 Helpful

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    I'm completely at a loss as to why the doctor would tell you this. To have a pilo heal and leave a "scooped out" spot is not normal. The wound should continue to form new tissue until the wound is filled in; it will come to the top. I'm assuming you're still packing his wound; this should be done until it completely closes.

    Like I said in my previous post, about 6-7 wks. in to the healing process, my daughter's wound seemed to come to a standstill. I told the doctor about this, and she said that the wound sometimes needs to be stimulated to get it going again. As I said, she took what looked like a very long Q-tip and roughed up the inside of her wound. Of course it bled, but that's not a bad thing. It seemed to work, and new tissue started forming again. I know you said it looks like the wound is still forming new tissue, but if you ever notice that it does come to stop in healing, it could mean he has an infection. This may never happen but just want to give you a heads up just in case. When this happened with my daughter, I suspicioned an infection, and the doctor swabbed it to send of to the lab. They did find a small amount of strep bacteria in it. She did put her on some antibiotics just to play it safe, since her wound was so close to closing.

    It is so completely irritating when doctors throw people into confusion like this.

    Tell your son to hang in there; everything is going to be just fine. I know it feels like you're never going to get there, but it will. TRUST ME!!!!!!!!!!!!!!!!!!

    I'll be praying for your family.[​IMG]
     
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  9. Texasmom

    Texasmom Helpful

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    Yes we are still packing the wound 2 times a day.I will watch for an infection..it doesnt seem infected though. Its just so frustrating. one more day of home school and then next week is Spring Break..then back to school. I hope he does okay ..Im going to worry :( I know its going to end one day and I stay positive all the time around him but I still worry that we will be one of those cases that never heals. I guess I shouldnt think that way. Thank you for the prayers, I so appreciate everyones great advice and support here!
     
  10. Texasmom

    Texasmom Helpful

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    Well we went for our 7th dr appt since his surgery on Friday. The doc was happy with how everything was healing. In the last week or so it seems to have filled up alot! The gauze we put in the wound is really small compared to the long strip we were putting in just a couple weeks ago. It doesnt seem to be bothering him at all now and today is his first day back to school. Im not really even worried,he has come a long way and I think he will be fine with no problems. :)
     
  11. mom of 3

    mom of 3 Helpful

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    That's awesome! I'm really happy everything is going well. Glad you let us know.[​IMG]
     
  12. Hound

    Hound Very Helpful

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    This is fantastic news, not long to go now! [​IMG]
     
  13. worriedmum

    worriedmum Very Helpful

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    Thankyou for sharing all your experiences about the process of wound healing. My daughter is having a nitemare time as she is on her third op performed nov 2010. Her open wound healed quicker than the last twice and the whole area looked healthier. However feb she had a flare up with severe pain needing morphine to relieve and the wound burst open after almost having been healed. Dr at A and E reckoned a small unhealed pocket had become infected and that after antibis it would carry on healing. It did and after a few more weeks the area looked as if it had healed beautifully. So much so that three weeks ago at review she was discharged from the consultant. BUT this week she has been complaining of hardness and pain around the scar. On Tuesday she asked me to look a the scar and it looked like sheared elastic the skin was all distorted. A day later the top layer of skin was broken. By Friday the scar had burst open in the middle and thick brownish fluid was exuding. This was followed by pus. The wound has rapidly continued to break down. She is on two lots of antibiotics but the pain is severe. Visit to hospital today brought no support just statement that it was good she was draining!! We are back to daily dressings again.
    This is all so frustrating we just don't know what to expect next. Is it likely to heal again what is the reason for the breakdown when it looked so good this time? She can't plan anything her part- time job is affected I don't know how much longer they will keep it open. She can't cope at college. Her life is on hold and we have no answers.
    The main thing about this site is that it is comforting to realise others are experiencing the same dilemmas and can share experiences and give advice and comforting assurances. Thankyou.
     
  14. Pita82

    Pita82 Very Helpful

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    She needs a cleft lift asap.
     
  15. Texasmom

    Texasmom Helpful

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    Oh wow..so sorry to hear about this. Is she taking vitamins? It seemed to make a big difference when we started him on the Whey shakes. The ones we are taking have 25 grams of protien. He still has a good size hole there but compared to what we were dealing with it seems like a dream. Hang in there, thats all we can do. My prayers are with you!
     
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  16. mike2011

    mike2011 Helpful

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    How many 25gram whey shakes is he taking each day? Also what vitamins and dosage?
     
  17. Texasmom

    Texasmom Helpful

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    He is only doing the one shake a day, then taking a multi vitamin,50 mg of zinc and 1000 mg of calcium.
     
  18. mike2011

    mike2011 Helpful

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    Ok I'm 5 days post surgery and I'm doing 36grams protien shake, 50mg zinc, 500mg vitamin c, 800iu vitamin a, and I need to start vitamin e.

    Glad to hear your son is having good progress
     
  19. Texasmom

    Texasmom Helpful

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    1000 mg of vit c not calcium
     
  20. worriedmum

    worriedmum Very Helpful

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    thanks no she is not on vitamins and as she is a performing art student and part-time waitress in a busy resteraunt and a typical teenager trying to burn the candle at both ends when she is well her immunity is not good. Saying that the antibiotics do seem to be taking effect at long last and the wound is looking cleaner and has shrunk slightly in depth. For review at hospital on Tuesday. Will ask about referral to specialist for cleft lift I think. One factor I think is important in all this though is she smokes and I am convinced this is impacting on healing as if I understand correctly nicotine inhibits O2 in tissues. Will get her some vitamins and protein drinks.
     

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