My sons surgery story 1/27/2011

Thought I would update since I haven't in awhile. He still has an open wound 4 months later..sigh..it does get better and smaller it is just very slow. we started.using the medihoney a couple days ago and it does seem to be helping,I pray the end of this is near! Hope everyone is doing good.and healing quickly!
 

Hound

Very Helpful
Hang on in there, the worst is over. You will be so used to it now you will have to take up a hobby when it is healed to fill in all the free time!
 
Well guys after 4 months its my turn to give advice. I starter using the medihoney on his wound about a week and a half ago and the change in healing is miraculous! I couldn't believe the healing in just 24 hours. We had come to a total stop in healing for weeks and I started using this and he is almost all healed. There is still a tiny opening at the very end of the wound but I think it it will be closed in the next couple days. Fingers crossed!
 

Hound

Very Helpful
Excellent news! I have a tube of medihoney I bought just in case but never opened it, great to hear it's working!
 
Well I wish I had great news but not the case. The little hole at the bottom turned into half the wound opening again..this is so frustrating. I made an appt with Dr.Butthead for Monday so we will see what great ideas he has..I can't believe we are still dealing with this 5 months later???????
 
That's not good, maybe it's time to consider a cleft lift? Hate to sound like a parrot in all of my posts but it has successfully treated people in the same predicament with wounds that won't heal.
 
well back to the dr we went today and now he wnts to do the flap surgery, well theres a novel idea, wish I would have thought that?? UGH this is so frustrating,,another surgery...really??
 
well back to the dr we went today and now he wnts to do the flap surgery, well theres a novel idea, wish I would have thought that?? UGH this is so frustrating,,another surgery...really??
Ughh, :/
Sounds weird :(
As pita said why not do the cleft lift if you gonna do another surgery?
 
I wouldn't suggest getting a flap surgery because if those fail it leaves very little options! I would take some time to calm down and not make any rash decisions. Try to find out about cleft lifts being done in your area. Even if you have to travel it would be worth it.
 

Hound

Very Helpful
I feel for you it has been such a long road for you all. Some doctors seem to call the modified karydakis and cleft lift a flap procedure. Here in Europe the Limberg flap off midline is getting zero recurrence. Steer clear of z-plasty! Can you call up and find out exactly what procedure they are talking about? But you have been unimpressed with the docs for much of this ordeal, so a fresh start with a great doc sounds just what you need.
 
Well guys , as we all know so well these dang things have a mind of thier own. The next day after I posted my frustrating post I noticed his wound start to change, actually rather quickly. As of today he has a very small part still open but its only n the surface and I cant pack it or anything. Its about a 1/4 of an inch and thats it, I havent even really told many people because Im scared to say he is almost healed. It is the strangest thing. Could this be the end of this awful thing 6 months later..God I hope so :) I hope everyone is healing good and getting the answers they are looking for...stay strong!
Texas Mom
 
Sounds great! Its very normal to get panicked and fustrated in these sutuations! And ur docter really is a butthead, he should have atleast recommended a wound care clinic before recommening another surgery! A lot of people stick with the 'docter knows best' thing but in reality they don't! Its always best to do ur own research so you know when he's wrong! Hope it completely heals! And if it doesn't atleast try wound care clinic brfore going for another surgery and if all fails the cleft lift is the best option! Good luck xxx
 
Its still a little open but not much and I cancelled his surgery. I cant believe Im still talking about this 6 months later but such as life. It doesnt bother him at all but its still at the forefront of my mind everyday. maybe I will have better news next time :(
 
Texasmom--I just wanted to say that I'm very sorry for you and your son having his post-op experience being so dreadful. As a 19 old year who just finished his freshman year in college dealing with this horrible disease, I know how your son feels. If it doesn't heal up soon, surely you should perhaps look into the cleft lift.

Good luck to you and your son!
 
thank you just my luck...I have als0 been keepin up with you, I hope everything works out for you I know this sucks :( I realize that everyones answer on here is the cleft lift but thats not always an option for all of us. I just have to have faith that we are at the end and if we are not I will do everything I can to get him the best treatment possible, whatever that is but appreciate everyones feedback over the past 6 mnths and know that I take everything to heart. <3
Texas Mom