My sons surgery story 1/27/2011

Discussion in 'Pilonidal Discussions' started by Texasmom, Jan 27, 2011.

  1. Neversaydie

    Neversaydie New Member

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    Texasmom...I know exactly how you feel...my 18yo has had 2 open procedures and the wound vac 2x...he completely healed for 1 week then the new skin started breaking down and we are back to drsg changes 2x a day with dakins.....I am extremely anxious about this whole thing!! what a nightmare for my child....we have been dealing with this since 12/2011. He is due to go to college 5hrs away from us in D.C on Aug 29th....... our local surgeon is at a loss as to why it won't heal and wants us to see a plastic surgeon who I have already spoke to and he told me "guys deal with this all the time they just put dry gauze back there"...which is not an acceptable answer!! We have an appt. with a cleft lift surgeon Monday to get info and weigh our options. How is your child?? Hope they are healed...could use some hope!!
     
  2. Texasmom

    Texasmom Helpful

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    sorry I went MIA for awhile, I just couldnt keep talking about it everyday. my son had a second surgery in Sept 2011, his first wound never healed. His second wound has still not healed, I am at a loss as to what to do. Its not a big wound but 5 months later we are still dealing with this....
     
  3. Texasmom

    Texasmom Helpful

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    wow my little story has had 4000 views , I hope we helped someone ...its not easy but it helps to have this little family to talk to :)
     
  4. ZombiePanda

    ZombiePanda New Member

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    Hello Texasmom! I'm very sorry to hear that you are still dealing with this. I'm sure you've heard this a lot, but I know what your son is going through. I just celebrated my 21st birthday and I've been dealing with my cyst since August of 2007. I've had 3 surgeries, and I've seen 3 different doctors who have cauterized it, drained it, stitched it, poked it, and cleaned it, and after 5 years all I can say is that my wound is manageable. It's still open, and I have to be very careful with any activities that I do otherwise it starts bleeding. I am happy to say that I haven't seen pus from it in over a year though. Just the opening with some blood.
    If you're packing the wound I recommend asking his doctor about a certain type of packing gauze with silver in it. I'm sorry I can't remember the technical name for it, but I remember it helping me! The doctor I saw currently has been the most helpful out of all the others I've seen, I can give you his information and maybe you can talk to him if you want.

    http://www.healthgrades.com/physician/dr-edward-bieniek-3kx8f/office-locations

    I'm sorry your son is still going through this, and I hope it gets better soon! Goodluck!
     
  5. Texasmom

    Texasmom Helpful

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    wow 5 years ?? thats nuts..we are just goin day by day at the moment. My son had no idea I even had this until tonight..he couldnt believe over 4 k people would read his story. His comment was "well Im sure it didnt help anyone" I told him you are so wrong..it helps others to know they are not alone, also something that maybe didnt work for you will help for them!
     
  6. ZombiePanda

    ZombiePanda New Member

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    Day by day, that's what I do! His story does help. I was just relieved to see that I'm not the only one haha!
     

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