Pilonidal Sinus & Fistula - Dr. says RARE

Discussion in 'Pilonidal Discussions' started by AsianButtock, Feb 26, 2014.

  1. AsianButtock

    AsianButtock New Member

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    Hi,

    I'm a 22 year old (otherwise) healthy south Asian male, and according to THIS thread, apparently the only registered person from my country on this forum .

    I've had a pilonidal cyst for over a year now. Because of negligence and somewhat ignorance, I've been avoiding confrontation with this medical issue - I made do by considering the sinus fluid draining as some sort weird male-period that I just have to deal with.

    During this period of almost 15 months, I saw dermatologist only 3 times. The first two time he refused to call it a pilonidal sinus. The next time, he changed his mind and prescribed hip bath and ointment treatment. And finally, a couple of days ago, he worryingly uttered that I should consult a surgeon. So I did - today. After a prolong period of uncomfortable proctoscopy, my surgeon doctor broke the news - not with as much confidence as you would expect from your doctor.

    "You have a rare case of having pilonidal sinus with fistula in ano low variety transsphincteric" - his words. Aside from the three openings, starting from the tailbone region to the last one adjacent to the anus, I also have a mildly soar cyst sitting above all, like a crown.

    His next words made me even more nervous - apparently the surgical procedures for these two diseases are completely different and there's a 25% chance of it not working out. I currently have been prescribed antibiotics, hip bath (with Povidone-Iodine Topical Solution USP) and ointment (10gm Mupirocin 2%). I plan to go under the knife on Saturday (March 1st). Wish me well.

    What I worry more is about post-surgery. Being a college student and graphics designer by profession, I am under constant stress sitting in front of the computer; I cannot afford to be on a long medical leave. Have you had any similar experiences? I would be very comforting to know I'm not the only one out here.
     
  2. ellysparkles

    ellysparkles Very Helpful

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    What type of surgery did the surgeon say you will have March 1st?
     
  3. AsianButtock

    AsianButtock New Member

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    He didn't mention/ I didn't ask. I surely will the next time I see him. Do you have anything particular in mind?
     
  4. ellysparkles

    ellysparkles Very Helpful

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    I'm looking into the cleft lift for myself. I'm a stay at home mom and need to be able to take care of the kiddos (2 & 4.5). I'll have help for about a month post op but then I'm pretty much on my own. I'm also 29 and female so another reason was the cleft lift didn't really change the appearance of my behind. haha I don't think I could handle an open wound and the other option that has a high chance to "cure" is a rhomboid flap but that takes out a lot of deep tissue in the midline and has a lot of stitches (about 20 something) and leaves a big zig zag scar.
     
  5. AsianButtock

    AsianButtock New Member

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    So? When are you having the procedure? Have you got med insurance? How much is it costing you?

    I paid my surgeon a visit last night. He said he usually goes for "flap" procedures but in my case he has to go for open wound / open healing excision. Spinal block would be used as anesthesia and I'd have to rigorously take care of the wound post-surgery. The procedure is going to cost me around $600 equivalent local currency. For a young adult living in a country with no active existence of med insurance, it's a worrying amount of money.

    Wish me luck. The surgery is going to take place roughly 24 hours from now.
     
  6. ellysparkles

    ellysparkles Very Helpful

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    Sending you some good thoughts! And hoping you have a fast and easy recovery!

    I'm still consulting with a few Drs so I'm not sure when I'm having the cleft lift done. I will have to be within 4 or so months b/c that's when my insurance ends. $600 is pretty good! I have insurance but I'm going to be up to $6k out of pocket ($3k is my yearly deductible and $3k is my yearly coinsurance).
     
  7. AsianButtock

    AsianButtock New Member

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    The surgery went fine. It was a Karyadakis procedure, with eliptical incision. Spinal block / SAB was used as anesthesia and I highly recommend it over any other type. You won't feel a thing below your waist yet you will be wide awake. Also it is less strenuous to the body compared to general anesthesia.

    There wasn't much pain. There was hardly any pain. The day after the surgery, there were some discomfort in the stitched region but that's it.

    Doc suggested I stay for 2 additional day at the hospital, so I did. I now am at home, semi-mobile, full of enthusiasm. Let's see where it goes.

    I have been advised to strictly maintain a liquid only diet for a week. I am in no hurry myself- I scared of taking a dump.
     
  8. ellysparkles

    ellysparkles Very Helpful

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    AsianButtock, praying for a fast recovery and sending you some good thoughts! Get someone to get you some protein powder for shakes. It helps with faster healing. =) Keep us posted on how your doing.
     
  9. AsianButtock

    AsianButtock New Member

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    ellysparkles, keeping you (and the forum, I guess) updated on how I am doing-

    It has been 20 wonderful months after surgery without any major problems, as oppose to always worrying my ass off (pun intended) before I underwent surgery. But, as they say, all good things must come to an end.

    For the last couple of days, the region where the Karyadakis operation was done, has got inflated. The extent of the inflation varies throughout the day too - the (wound?) region gets most tender and most bloated during nighttime. Since the nerves surrounding the region died after the surgery, I don't feel much pain- but there's this phantom sensation that it must be very painful- as if it is as painful as the thing was before surgery. I'm worried. Can the whole thing reoccur? Is it a fluid buildup in my hairy Asian buttock? What do you think?

    How did your surgery go?
     
  10. PiloForYears

    PiloForYears Helpful

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    AsianButtock, How are you doing?? Was your wound healed? From the symptoms you told, it looks like it got infected.
     

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