Excruciating I voted excruciating I got my first flare up over two years ago. My tailbone was swollen to the size of a baseball. I took pain meds and felt like they did nothing, had it lanced the next day. Here I am two years later and 6 days out of open-wound surgery. I had several flair ups between no and then. I've had a broken finger, spiral-fractured a bone in my hand, had kidney stones twice, and I must say: This is the worst. Kidney stones are about equal in pain, but PC has more discomfirt with it due to it being inside and outside the body in a way. To you women who have said its worse than childbirth - I believe you!
I really don't have any other pains to compare this with. My flare ups were pretty bad, just constant pain, but it was tolerable I suppose.
Pain I just had my first surgery (hope it will be my last) but the pain is bearable with drugs. I am just tired of sleeping on my side[:^]
The pain involved with packing and rinsing my wound twice daily was by far the worst pain I have ever felt!!! It was painful beyond compare. [:^] Thankfully, right after the ten-day bump, the pain subsided considerably, and I could eventually go through a packing without crying, lol. [^^]
I'm fairly new to the disease, but with my flair ups, pain is about 2-3/10: more uncomfortable than painful. When I had the infection, it was a 12/10: I was ready to have someone take me out, I was SO done with it. I had 4 kidney stones I was trying to pass at one time, and I thought THAT was painful. The darvocet was on the verge of not touching this thing! It's funny that a good lot of people say that kidney stones and pd are worse pain than giving birth, or at least right up there. I dont have any kids, but it definately give me hope that if I can go through these things, I can do that ok!
I voted severe. My major flare up that required being opened/drained was very painful and at the time the most painful thing I had endured. Last july I had my tonsils removed at the age of 25 and I would rather have multiple flare ups than to go through the pain I experienced from my tonsils. The pain really doesn't compare to my tonsils. But that doesn't mean it doesn't hurt, thats for sure.
I have a question for anyone in this thread! Mine is just starting (unfortunately, but I'm definitely grateful I discovered it early on!) and I was wondering if anyone went to the doctor before the ever had a flareup? I just noticed a lump inside my buttcrack, near the tailbone, but there's nothing coming out (it's not infected). I was wondering if anybody knew if my pain would be less (for surgery, draining, flare ups, etc.) since I detected it early on. I am going to see a doctor tomorrow and am praying that I won't have any flare ups or need for painful surgeries/drainings. I hope no one ever gets this terrible disease again.
Mine is the worse pain I ever felt in my life, and I have on two times had Blood clots in my lungs (which was very bad pain) but this cyst is worse, I can barely walk, and can't sit and blood just gushes out.
The days leading to me having emergency surgery were painful, the 2 days beforehand were EXCRUCIATING. Ive broken bones etc and that didnt even come close to the pain my cyst caused me. I have no idea how people can manage to live with them for a year before seeing the doctor. I couldnt walk,stand, sit, i could only lie on my side which still hurt and everytime i rolled over (by lifting myself up as i couldnt put pressure on it obviously) i could feel two massive hard lumps under my skin. Not that im glad anyone else has gone through this, it is nice to not feel alone and have someone to relate to
I have had children and this last flare up was by far the worst pain of my life im realy glad i found this site i couldnt understand why it hert so bad and was starting to thing it was in my head but evey time id sit or stand id want to throw up i, glad to have found others who understand this
