The Full Story Start to Finish

Discussion in 'Pilonidal Discussions' started by Anonymous, Aug 10, 2004.

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  1. Anonymous

    Anonymous Guest

    [:?] I find that I have been brought into this wonderful phenomenon we sooo "love" dealing with.
    Quick background. I am 27 this month, female, living overseas (Germany) as my husband is in the military. Never before this Wednesday had I had any problem or pain in my arse. I at first was like bike injury (hubby and I had taken up biking), bruised my tailbone. I wished!!!;)
    Thursday came and went still the same sort of pain, only hurt to stand and sit.. just the action of doing so. Friday and Saturday? I wanted someone to just shoot me and put me out of my misery. I couldn't stand, I couldn't sit, laying down was hard.. no position I put myself into was comfortable. My husband tried to get me to go to the ER but I rufused cause I didn't want to go in and drop my drawers for some military male doctor (grew up an army brat... military Docs are always compasionate). I promised him I would make an appointment on Monday to be seen as my primary care giver was a female military doc. Keep in mind my husband is in the middle of an exercise so he is not around to help me out. I drive myself there (we own a truck and BOY did I feel every bump in the road). I sit for a good half hour before being seen. The Major turns out to be real nice and empathetic since at this point I am in tears from having to sit. She does her exam and as I dreaded she confirmed the worse for me (I had looked up tailbone on the web all weekend getting info on what was "potentially" going on). She says she is going to give me some antibiotics and in 24-48 hours the pain should let up. It is now only going on the first 24 hours and I am in more pain than ever. I chalk it up to all the activity that area endured. She said if by Thursday there is no improvement come back they will do an ultrasound on the area.
    I have never had to deal with anything like this before. I have high anxiety when it comes to hospital and doctors (to the point I have passed out). I figure I will post my experience being fully candid about the matter for I have nothing to loose, but only gain the support from others that I am not the only woman who has encountered this problem. There is no opening, no drainage, just a warm tightness in the cleft of my butt. Last night I managed to get me self in a curled up position to where my ass was sticking up in the air I reached back and couldn't believe the size it had gotten just because of the irratation of the drive and the doc taking a look. My husband last night slept on the couch because I did good just to move. This morning I woke with my right hip and back killing me as there is no position but on my right side or with my back arched that keeps the pressure off. If this is something I have to look forward to on going please take it out now. I am not one for pain. I am a big sissy, and if I can clear this up with one slice then so be it. My only draw back is being in a forgein country where the base docs may not perform such a thing and being sent off base to a civilian hospital.
    Other clencher for me is I just got accepted to a job and got my security clearance check done, but I can't barely move. I get the feeling this is a no brainer and I have to decline the position. There are thousands of spouses here looking for positions and it has taken me 8 months to finally get one. Any suggestions on how to deal with the "boss" or potential "boss"??
    Good Luck all and I'll Let you know how it goes.;)
     
  2. Anonymous

    Anonymous Guest

    Another question though.... how common is it that there is no opening or drainage such as in my case? Anyone else out there when they first went in that the doc was just "guessing" that PC is what the problem was?
     
  3. Anonymous

    Anonymous Guest

    "Another question though.... how common is it that there is no opening or drainage such as in my case."

    For the first 3 months my cyst looked like a big red pimple and did not drain. It actually started out just like a small pimple, and eventually got bigger.

    It didn't even hurt until around month 3, and then the pain came on strong. I imagine the pressure was building up and that is what was causing the pain.

    I never had my cyst lanced, (I just went straight to the surgery), but many people who do say it is almost an instant reflief. Lancing will rarely make the cyst go away, but it can at least provide some temporary relief until you figure out what you want to do.
     
  4. Anonymous

    Anonymous Guest

    Well actually I don't even have anything that resembles a pimple or anything like that (to me--having a veterinary background) looks even like an abcess or cyst. I just have a swelling, it is tight and warm. Nothing more. I think that is why my doc said to return in a few days if it doesn't start getting better with my antibiotics for the ultrasound... to double check herself. If it is so and I do have a cyst though I am going straight for the surgery... mind is made up since I am not one to endure pain. So far now I am into hour 31 of my antibiotics and I feel more pain than before. I have used both warm and cold compresses and numerous hot showers (since sitting in a tub just brings fear of more pain) to help. I try to stay positive for now. That is why I don't understand (to some extent) her diagnoses of me since there is no visual to this "thing" that soooo wants to stake roots where there shouldn't be any. I find it truly bewildering. Any other advice for coping with pain or any others out there that may have started off the same I would greatly appreciate any input. As I said before.. since this is something that I am for the first time experiencing I will continue to check back and post. Thank you though for your help... I will have to keep an eye out (or rather my husband will). Thank you.
     
  5. Anonymous

    Anonymous Guest

    [V] Well I am now 43 hours into my antibiotics (Cephalexin 250mg every 6 hours) and I am still in pain and it seems to be growing in size. I still do not have drainage or any opening.. just pain, pain, and ohhh more pain. I can't sleep more than an hour before my body grows stiff from the awkward position I've fallen asleep in. The reddness is turned purple in color and it feels as though there is a horseshoe-like mass going around the cleft of my buttocks. It is very hard and very painful to even graze. Now though is the added pain of a needle-like sensation in that area that tends to send a tingle feeling down my legs. It has been an ordeal just to move about my house from the stairs and getting the bathroom. I haven't been out of the house since I went to the doctors. If it continues like this I am returning tomorrow as directed by my doc, at which time I have been told they will do an ultrasound. Anyone else experience anything remotely like this?? Any suggestions for pain as I wasn't given pain meds? Help....[V]
     
  6. Anonymous

    Anonymous Guest

    I would soak and soak in as hot of water as you can stand and get it to burst -- which is what it sounds like it wants to do -- and believe me, you'll get instant relief.
     
  7. Sasha

    Sasha Administrator Staff Member

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    When cysts get as inflamed as yours sounds, antibiotics frequently prove useless. Same reason the local anesthesia might fail - not enough blood is getting into the area to bring the drugs in. If you are still in horrendous pain later today, you probably need a lancing. If you have any way of taking a Vicodin or some other top shelf pain reliever, do it. The local may not be be able to do much, but at least that pain will be less than what you are feeling now....
     
  8. Anonymous

    Anonymous Guest

    [V][:^][V] Well just off the phone with the Docs office I have been instructed to wait out today and see what is going on tomorrow. I asked about pain meds of any kind and they don't feel comfortable prescribing anything over the phone for my husband to pick up for me. (not that he could he is in the middle of an exercise) I am to continue to take what I have here at the house (even though I told them it wasn't even "touching" the pain) which is prescription strength Naproxin (same as Aleve) and I have OTC Motrin. I am to continue my antibiotics and they will take a look tomorrow at what is going on. According to my husband it looks crazy. I have a huge mound where there shouldn't be one (DUH!!! I feel it) and it is all purple in color. I have been keeping warm compresses on it and I can't even get myself to sit in a tub so hot showers is the way I've been going. I don't even know if my doc plans on lancing it, I think she is going to send me over to the surgeons after the ultrasound tomorrow (the impression I am getting). I just want my "friend" to go away. He/it is very unwanted and if asked I would have told him NOT to ever visit. (have to find some humor to keep myself sane) A good way of telling my husband just how bad it hurt was to tell him I'd rather get bit by a rottweiler again (first time it almost took my thumb off) than deal with this on a continuous basis. I hope/pray that they do something more for me tomorrow. *pouts*sniffles* Thanks for the feed back. I will try the tub again later. I have to get up though cause my backside isn't agreeing with my sitting (well sorta half kneeling) to just check back on here. Thank you.;)
     
  9. JT

    JT New Member

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    I know this is only a temporary solution, but it might help you through the day. Use a cold pack or if you dont have one go out to walmart or any other store and get one...I mean one of the gel cold packs. And sit on it, if they wont prescribe you something for the pain and what you are taking isnt helping. Try numbing it for a while, might give you 20 minutes or so of relief at a time. Just a thought.

    And when I mean sit on it, I mean sit directly on it where your skin is touching, not through clothes or anything
     
  10. Anonymous

    Anonymous Guest

    [V][:xX][V]:([V]
    Please someone just shoot me now. It just took me a half hour to get myself up enough to go to the bathroom and back. I am on my laptop now so I don't have to keep trying to get to the puter and back to do emails and such. I can't believe the pain I am in. I moved earlier to try and adjust myself and I wanted to pass out with the pain. What sucks is hubby isn't here to take me to ER (or get me an icepack or warm cloth) nor is my neighbor home. There is no one I can even think to call. I don't live on the base so I am surrounded by German people (god love 'em) so you could imagine my trying to even get them to understand me. I don't see how people put off going to the doc about these things I really don't. Please give me courage to get through this tonight. Out for now...[:?][V][:?]
     
  11. Sasha

    Sasha Administrator Staff Member

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    Darlin', your doctor is an asshole. If she was in this much pain, she'd have a morphine drip and be in surgery already. If it were me, I would call and start screaming. You need to get to the ER and get it lanced. And what the hell about the ultrasound? Nobody does that. And running that little roller over your cyst is going to have you screaming in agony. This doctor has never treated a Pilonidal before and doesn't have the first clue. Run.
     
  12. Anonymous

    Anonymous Guest

    [=(][=(][=(] OH MY LORD!!!! It is 6:20 am here (Germany) and I awoke at 5:am because of the pain. I was up and down all night in agony. I only wished I could change docs but since I am a military spouse I have one that is assigned specifically for me. I am sitting here ready to pounce on the phone to get myself seen first thing this morning. I now have a buring tearing sensation going on with short spasms of pain that literally shake me to the core. I told my husband I am NOT leaving that hopsital till I am knocked out and something drastic is done. He took a look at it for me again last night and said it was all purple in color and my skin looked as though it was being stretched beyond capacity, unfortunately for me though the ER that I have available to me isn't available for a four hour span during the night and that was when he got home so I was left "dealing" with the pain. I have gone through a bottle of Motrin and the rest of my presciption strength Aleve (since last Wed.) nothing touches the pain... nothing. I don't wish this on anyone. If I have any advice for others out there do not "sit" on this thing. If you have the facility available to you MAKE them pay attention. This is why I have fear of hospitals and such because I grew up with Military Docs lack of campassion for the average civilian wife/child. At this point though they are going to have to knock me out to do anything with it cause just trying to put undies on and have those over it is killing me right now. Wish me luck. If is disappear from the message boards then I am still at the hospital. Wish me luck......;)[V]:(
     
  13. Anonymous

    Anonymous Guest

    [=(][=(][=(][=(][=(][=(][=(][=(][=(][=(][=(][=(]
    wish me luck am leaving for docs office.....
    will update as soon as I can.
     
  14. Sara

    Sara New Member

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    Oh my goodness, GOOD LUCK!!!! I had a lancing about 5 weeks ago, and although it hurt to take care of the wound, it wasn't NEARLY as bad! I hope you're able to MAKE your doc give you pain meds and a lancing. Just tell her you're not leaving until she actually hears what you are saying and responds accordingly - and then stay there until she does!

    Keep us updated...

    ~ Sara
     
  15. Anonymous

    Anonymous Guest

    [x:(]:)

    I'm BAAAAACCCCCKKKKK..... went to the Docs on Thursday. Had my appoint first thing. Waited in their waiting room for almost an hour. The doc took one look and said she was going to get ahold of the surgeon on call in the ER see if he can do anything for me. She came back in told me to report to the ER. They admitted me, took blood and urine, confirmed I wasn't pregnant gave me some pain meds and knocked my ass out and drained 60cc of fluid (was the size of an apple)from my "friend" the 'cyst'. They lanced it good. I had a hole in my back that was all kinds of deep. I have NEVER had soooo much pain in my life. Now it is Monday afternoon and I am just now home. YEAH!! I have to go in twice a day to be packed though cause my hubby can't handle the pressure of having to do it for me (not to mention I can't promise I won't go off on him since it hurts soo bad). Today was the first time they could pull the "plug" on me and I didn't cry. Still takes quite a bit of guaze to pack it. The cellulitus is completely gone and the surrounding tissue is all healthy. Once this clears up though I am going to have it taken out completely so I won't have any unexpected company. The staff was great at the hospital they did all they could to make me feel comfortable. They were shocked at how cooperative I was and admit to having had some NOT so pleasant patients in the past with the same problem. So for now all is good in the land of pain meds and stool softeners. I will still keep in touch as this is an on-going situation for me since I will be having a full removal of my "friend." Any questions about what they used med wise just shoot. I will be off and on. Good luck to everyone and just remember it does get better ---spoken by someone on her last dose of morphine [:8)]
     
  16. Anonymous

    Anonymous Guest

    AnditStarts:
    [o+o]:DI am soooo glad that you wrote back to let us know how you were doing!! I started on this board on Friday and could not get over your story. You are indeed a trooper.
    My 13 y/o went through what you had done in June, but we did not have to wait as long, so I don't think his I/D was as big as yours. I could not do the dressing change for the first two days b/c of how "fresh and raw" it looked. But I was able to do it from then on. So your hubby may be able to do it in a few days or so. (It is tough for a loved one to think they can do this without hurting you, we can't begin to imagine the pain that you have already endured!)
    My son would take a shower before the change so the packing would either come out on it's own or it would be easier for me to do it. The first 72 hours, he took vicodin for the pain for each dressing change, but got better. We used the sterile bandage that came in a bottle that was a strip that we would cut off to pack, like a tape.
    We are waiting until November for the cyst surgery so he can play football, let the area heal, and take advantage of Thanksgiving vacation for healing time.
    Keep us posted on your recovery and hang in there.
    Jan
     
  17. Anonymous

    Anonymous Guest

    [:?][V][:?]
    First full day out of the hospital and I must say I wished I had stayed in.It is required of me to go twice daily to have my dressings changed since the wound is soo deep. (requires sterile dressing) I am in pain but not like before. It is enough though that I wish I had the added benefit of morphine. I am getting through it. The staff at the hospital changing my dressing are great. I have been keeping count and I am now up to 23 people having seen my backside. Was somewhat of a commadity today when I went in. I am unable to shower or bathe right now, and that is all I want to do. Get into a nice hot shower. It isn't fun having to give your own "sponge bath". I want that hot male nurse to do it :D I have another doctors appointment on the 24th with my surgeon. He wants to see how I am healing. We are going to discuss my options though for surgery because I REAALLLYYY do NOT want to go through this again. One infection and one lancing and once hospital stay is enough for me. I am off for now. Wish me luck... and best wishes to everyone else out there couping. [:I]
     
  18. Anonymous

    Anonymous Guest

    Word to the Wise
    Today I woke and had to take myself to the hospital for my morning dressing change. Because of this I wasn't able to take any pain meds as they really knock me out. BIG MISTAKE. It hurt sooo bad for them to take out the old packing and cleaning it... I felt like I was going to come up off the table. I never thought the pain meds covered allll that much pain during the changing cause it still hurt quite a bit when they did them... but NONE at all. Never again. They told me not to come again without meds on board because I was squirmed more without them and they didn't want me crying on them again. I immediately came home and took my meds and went to sleep. They said everything looks good. I have good granulation. There is still minor bleeding and oozing (but good ooze). Good Luck to everyone still and keep your fingers crossed for me.[8D]
     
  19. chris thomas

    chris thomas New Member

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    Fingers, arms, legs, eyes, teeth and toes crossed! :)
     
  20. Enegue1

    Enegue1 New Member

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    Can you drive while taking the meds?
     
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