Trying an Alternative to Surgery

Discussion in 'Pilonidal Discussions' started by JT, Jun 8, 2004.

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  1. Sasha

    Sasha Administrator Staff Member

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    I know that article by the WHRU is tough going, I will be translating soon, based on Wizer's excellent suggestion. But to recap briefly, in order for the follicle/pore to turn into a Pilonidal, it first gets stretched and enlarged. The resulting "pit" becomes a magnet for hair and debris, which all of us know loves to collect in places like the buttock cleft, belly button, and between the toes, etc... As gunk gets sucked into this expanded pit, a foreign body reaction occurs, followed by infection.

    So, not every hair follicle can become a Pilonidal. Special considerations also need to be present, such as location, friction, pressure and possibly a limited ability of an individual to fight off minor infections. Some of us also manufacture more oils in our skin and are therefore prone to things like acne as well.
     
  2. UKCityGent

    UKCityGent New Member

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    To try and put everyone back on track - JT how is your alternative to surgury going ?
     
  3. JT

    JT New Member

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    UkCityGent....I'm doing great with my altenative method. I did emial a few doctors though asking them what might happen IF my opening does close. As of right now, my cyst in describe under a characteristic that I found on here which is:

    Messy but painless: for those who have sinus holes, their experience with the disease may never reach the acute stage since the holes allow the cyst to drain rather than swell. Some people have minimal drainage with no odor, other people have rivers of drainage with an unmistakable stench. Frequently the drainage will cause itching, which is your skin responding to the fluid being excreted from the cyst.

    Every since I have been taking this alternative method, mine has been draining on and off, but when it does its like a river with a bad stinch. The reason I emailed a few doctors is because if the opening closes, I dont want it turning into ACUTE. I also am asking in my email about the amount of dead tissue that has been coming out of the opening. Its actually strands of tissue measuring anywhere from 1/2 inch. to 3 inches. I know that when a cyst is formed, its actually a sac or pocket of tissue, so I'm wanting to know if maybe the tissue from the cyst is whats being expelled from my opening.
     
  4. JT

    JT New Member

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    On this now for about 4 weeks. I still have the slightest opening, I dont know if its still open because of the tissue coming out of it or what. The last two days though, there has been a considerable amount of LESS drainage. There is barely any fluid on my dressing at all, the fluid that is on there though is mixed with blood. I think the reason for that though is the tissue, every time I have tissue making its way out of the opening, I seem to always have more of a bloody fluid. I have been having tissue coming out of the opening now for about 6 days straight. I am hoping and crossing my fingers that the tissue coming out is actually from the cyst, but there isnt any way I can tell right now. I have never been able to find or feel my cyst, so I cant tell if its getting smaller. All I can go by is the opening.
     
  5. JT

    JT New Member

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    Things have pretty much been the same as last reported. My drainage has slowed down alot. I'm guessing this is a good thing, I still have some tissue coming out of the opening. I did talk to someone about the amount of tissue coming out and was told that the Silica and Hepar Sulphuris will help the body expel things that done belong.
     
  6. stefrasser

    stefrasser New Member

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    I am having my surgery on the 27th of this month. the alternative isn't working for me. i am going to talk to my surgeon tomorrow and find out if this is considered pre-existing so I can maybe put it off until the winter when I prefer to be indoors.
     
  7. JT

    JT New Member

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    Stefrasser...I'm sorry you havent experienced the positive results that I have. Good luck with your surgery
     
  8. amethyst72

    amethyst72 New Member

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    Well it's been nearly two weeks since I started the alternative. It's really difficult to see things on your own so.. I'm not sure how well it is working. There were a couple of days that I definitely drained a bit more.. the area where the opening is looks a bit more.. I guess tender would be the closest word. On the upside I've had absolutely no pain so..
     
  9. JT

    JT New Member

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    Well, the tenderness could be from the extra drainage. For a while there, I was changing my dressing 2 times a day because the drainage was irritating my skin, it was very uncomfortable to sit because of the irritation, but changing it twice a day did the trick.
     
  10. stefrasser

    stefrasser New Member

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    Here is the good news. I went in to see the surgeon today and he looked at my cyst. As he was looking he told me that the size if half the size it was. He made the comment that he thinks it is going away. I told him about the alternative and he seemed pretty impressed with it. He told me that I really don't have to have the surgery if I want since it seems to be getting smaller. I am going through with it anyways since now it shouldn't be so bad. The surgeon told me that he is pretty sure I will be sticthed up since it doesn't see like that much wil be cut out (it all depends on where the blue dye goes to. So now I am in a really good mood. Appearantly this stuff is working!!!!! :D:D:D
     
  11. JT

    JT New Member

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    Stefrasser......that is GREAT news!!!! I'm glad that someone was able to see a change in your cyst since you had been taking the Alternative method. Glad to hear that he doesnt think you need to have surgery right now, but its ur Butt, you do what you need to do to make things better for you. Good luck on your surgery

    I had a bit of a scare tonight though, but it turned out be just fine.I was taking off my dressing and I saw this long think slimey looking thing wear my dressing was. I took some Q-tips and messed with it. I was able to get alot of it off, it was bloody tissue. I showed this to my wife, and she said there hasnt been that amount of tissue to come out of it before. After taking my shower, I looked in the mirror to see if anythng else was there. I was a bit scared when all I could see was a dark area about the size of a dime. I was thinking that this has opened back up again.

    I had my wife look at it before she put on a dressing....turns out the opening was still very small, the dark area that I thought was the opening was actually bloody tisse around the opening. My wife tried to get it off with a Q-tip, but it is attached from the inside. So what I was able to get off before my shower was actually a long , thick piece of tissue. I am even more convinced now that my body is expelling the tissue of the cyst, or the tissue around the cyst, not really sure. This tissue is coming from somewhere, so who knows.
     
  12. amethyst72

    amethyst72 New Member

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    JT.. I've noticed the same as far as the darker tissue around the opening. It worried me at first cuz I thought it was getting worse.. but it's pretty much what you described.. the opening is still the same but there's the somewhat bloody tissue around it.
     
  13. JT

    JT New Member

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    Amethyst...is the tissue that you have coming out of the opening? And if it is, does it seem like it might be attached to the inside?
     
  14. amethyst72

    amethyst72 New Member

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    I haven't had any tissue actually come out other than a very small bit now and then when I wash the area.. I'm actually kind of dreading that part.. this stupid thing scares me enough as it is I'll be panicking when/if I get to the point of having the tissue come out as well.
     
  15. Bonzo

    Bonzo New Member

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    any more information on progress with this?
     
  16. JT

    JT New Member

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    I was out of town this weekend, so im just now posting for lastnight. I located the cyst lastnight. I had my wife look at something that I felt might be the cyst, its at the top of the cleft. Its kinda firm, its about 1/4 of an inch long, and 1/8 of inch wide, so its very small. Something has made it come closer to the surface of the skin, I hadnt noticed it before and neither had my wife. And my wife says where the cyst is, its now kind of a purple, yellow color to the skin. Kinda looks like a bruise when it starts to heal. Now that we have located the cyst, we will watch it every night to see if it changes in anyway.

    Amethyst...I wouldnt be too frightened if the tissue starts to come out of the opening, there is no pain from it at all. I know its hard for you to tell, but if there is anyway for you to determine if the tissue is attached or not, if it is attached, it might actually becoming out of the opening. Good luck with your continuous efforts with this.
     
  17. stefrasser

    stefrasser New Member

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    I noticed the same thing after taking this for a few weeks. I thought that the cyst was just getting bigger, but I was told it was being brought up to the surface, that is why it is draining more. I ran out of my pills two days ago and will be getting more tomorrow. I hope if I can continue this, in two weeks when I go in for surgery, it will be a very simple procedure with not much healing time (one can only hope):D
     
  18. JT

    JT New Member

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    Thats great Stefrasser....I hope it does too.

    I had to go out today and get more of the pills, they didnt have the 6C in the Hepar Sulphuris, so I got the 30 C....Wow, there is a big difference in the pills as far as taste and how long it takes to dissolove. The 30 C dissoloves much faster, but tastes very chalky, I dont like it too much. I am just taking this though until the 6C come in.

    Stefrasser, since yours is draining, have you noticed any tissue coming out like Amethyst and myself have? Thats what I'm really paying attention to now that I can see the cyst, is when tissue does come out, if the shape or size of the cyst change
     
  19. JT

    JT New Member

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    Here is my post for tonight, Just got out of the shower and I was feeling the cyst and I have noticed that the cyst seemed to be kinda firm the other night when I first found it and it was at the very top of the cleft. Now its alot softer and it looks like it has slightly shifted downward towards the opening. My wife also agreed that she thought it has dropped down a little bit.
     
  20. Bonzo

    Bonzo New Member

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    what are the specifics of this alternative treatment again? i am curious as to where to buy these products and how much to take...i guess also how to take them. im pretty much in the same position i have been since i first found this a few months ago. i have 2 really tiny sinuses, one maybe a millimeter or two wide and one a little smaller that sometimes almost closes up. i have very little drainage, but every now and then the area seems to get "tender." not really pain, but enough of a feeling to make me remember i have something back there. i am in the process of applying for new health insurance and finding a job for when i move, so surgery isn't really the best option for me RIGHT now...and i'll be honest, i'd love to avoid surgery as much as anyone else. i'm still skeptical that it could go away without surgery and i'm planning on getting it done as soon as i can, and im also wondering if this treatment has the ability to hurt more than it helps. if it is something that wont hurt and only has the possibility of helping, id like to give it a try.
     
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