Trying an Alternative to Surgery

Discussion in 'Pilonidal Discussions' started by JT, Jun 8, 2004.

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  1. JT

    JT New Member

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    Well, I havent posted in a while, so I thought I would. The best way to describe the way my cyst looks now is look at the tip of a ball point pen before you hit the back of it for the pen to come up. It looks just like that, I have kinda firm tissue, with a hole in the center. It looks like someone has operated on me and taken the center of it out. I have been draining blood on a everyday basis. Somedays more than others. My sinus is still closed though, I guess with the cyst being opened up, the sinus isnt needed anymore for draining.
     
  2. Anonymous

    Anonymous Guest

    This post is great thanks! I have a little question though..where are you finding your info? I am a big fan of alternative therapies as they seem to work better(for me) and are less invasive. I have been searching all over to find info on natural remedies for this thing and all I come up with is stuff on boils and abscess type of problems..I guess they may related?
    Any info would be great and as one posted a bit ago can you take the silica and all while the cyst is NOT draining when it may just be hanging around waiting to come back? Or if it is slightly inflammed but nothing too horrible?
     
  3. Anonymous

    Anonymous Guest

    Hi JT.
    I am interested in your comment about having a fistula also. My boyfriend had closed surgery for a PC about 8 weeks ago. It wasn't healing and they then found that his PC wound was communicating with his rectum, they then diagnosed him with a fistula-in-ano. We haven't been able to find any info on other people who have both and have been wondering whether maybe the surgeon stuffed up the first surgery and accidentally cut into his rectum. How did you find out you had a fistula and was it communicating with your PC? Thanks! [:?]
     
  4. bwalls

    bwalls New Member

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    Just another tidbit--
    I had asked how JT knew all this stuff so I decided to go to my own Natural Doc and he gave me Belladonna (from the same Boiron company) see my cyst had a little pus it was tender and inflammed and I do not have a sinus. I take 6c for two weeks after my first week it drained and now its healing up nicely..I did not do anything else for my cyst I just took the Belladonna. Will it come back? maybe..am I gonna have surgery..nope its not for me...but now I know that if it acts up again I have this other therapy. I did ask about the sulfur combo JT was doing and thats still a great thing to try but he said only if the cyst is different than what I had... each drug is for a different ailment and each person is different as well...
    just thought I would put that out there in case anyone is not having good results with the combo JT is working on...
     
  5. JT

    JT New Member

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    I was taking my dressing off in front of the mirror like I do everynight before taking a shower. As I have posted before, my cyst is on the surface and has a hole in the center of it, and thats where it has been draining from. Well, when taking the dressing off, I see what appear to be lose hairs right next to the cyst on my skin. I am wondering what the heck this is since I keep that area groomed free of hair. I tried to grab the hairs with toilet paper, but it didnt come off, kinda stayed against my skin. I then took a q-tip and pinned it against my skin and moved it across to where it would stay on the q-tip. I then put it on a piece of toilet paper so I could look and see what it was.

    I guess you can say I was amazed at what I saw. It was 6 hairs about 2 inches long nested together in a ball at one end. I am hair free in that area, so I'm thinking this came out of my cyst and this is probably the cause of my cyst. I also noticed" this could be totally just a mental thing" but my butt felt totally different when I was in the shower. It was like something wasnt there anymore. Its hard for me to explain, because it really wasnt discomfort I had in that area, but I could just feel something there. And now that feeling is gone.

    My wife thinks I'm gross, but I decided to take that nest of hairs and put it in a zip-lock bag. For some strange reason I want to keep it.
     
  6. jakemrjr

    jakemrjr New Member

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    Quote: "I guess you can say I was amazed at what I saw. It was 6 hairs about 2 inches long nested together in a ball at one end. I am hair free in that area, so I'm thinking this came out of my cyst and this is probably the cause of my cyst."

    Definitely sounds like it came out of your cyst. Pilonidal technically means "nest of hairs". Pilus meaning hair and nidal meaning nest. I have read a few stories from people who talked about hair coming out of their opening, mostly when the cyst ruptures. One person even described "cups full".

    Quote: "My wife thinks I'm gross, but I decided to take that nest of hairs and put it in a zip-lock bag. For some strange reason I want to keep it."

    I agree with your wife! If you decide to keep it, I would put in the freezer or something so it doesn't grow bacteria.
     
  7. Linda

    Linda New Member

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    JT,
    When you posted on the 23rd, I was wondering why the cyst just doesn't finish healing. It had become very small and it sounded like it was trying the heal. I was wondering if maybe there were hairs inside that were continuing to cause a foreign body reaction. Maybe the area will heal now and close up.
     
  8. JT

    JT New Member

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    I have already put it in the freezer. I guess I want to keep it as a reminder to me that I need to make sure my area back there is kept well groomed.

    Linda, I'm hoping that the cyst will be able to heal now, who knows though. Its just really weird the feeling I have there now. When I woke up this morning, it felt like I had nothing wrong back there. I took my dressing off this morning just to see what had drained or leaked out since lastnight. There was a small amount of drainage, not enough to really need a change in dressing, but I did it anyway.
     
  9. JT

    JT New Member

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    By the way, all my cyst is doing is leaking blood, nothing else. No foul smell or anything. I am having to change my dressing though now 3 times a day. The gauze will only soak up so much and I dont want it to get on my clothes
     
  10. JT

    JT New Member

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    Arggggg!!!! Frustration.

    I have no clue whats going on now. After the nest of hairs worked its way out of the cyst I have been doing nothing but bleeding from the cyst. I'm thinking no big deal, nothing to really worry me, there hasnt been a foul smell since the hairs came out. But tonight I feel like I have been knocked back a few steps. I am not only bleeding from the cyst, but I'm also bleeding from the sinus that was closed for a good bit of time.

    Unless something miraculous happens, I will be keeping to me word and seeing a doctor at the end of this month. [:^]

    Linda or anyone else, have any clue why my sinus opened up and is now spewing blood? Its not shooting it out or anything, but when I spread my checks, blood kinda flows out
     
  11. JT

    JT New Member

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    Yeah, I just ordered two more bottle of the 500ml, so i'm going to finish it off this month. Its very frustrating to see good results and then I feel like I am knocked back

    I am going to go on and fill out my insurance application it might take a couple of weeks or so to go through, and then I will make an appointment to see a doctor for the end of the month or begining of the new one. The doctor I will see is one my wife went to last month, I dont know if he has much experience with pilonidal cysts, so i'm going to call first and ask, and see if they can maybe refer me to a colorectal surgeon without a visit to them. I'm hoping because his office is actually in the city hospital here, he will have some pretty good resources for me.

    I'm trying to stay optimistic but at the same time, I feel like I have been trying this alternative approach for a while now. When I think about the results I've had and I feel like these are all good products and have been very helpful to my cyst. But maybe these things will only help to a certain point, depending on how bad your cyst is.

    I have discussed this with my wife and if I do see a doctor, I think I am going to opt for the closed procedure. Unless of course after an examination the doctor feels that I need a different technique.

    With starting a new company and also working for my fathers company, I just cant take the time off that I would need. Not only would our new company suffer, but my fathers as well.

    I guess I have a question for those who have had the closed procedure. Are you given antibiotics after surgery? I would think so, but just asking. And is there a particular type of antibiotic that is stronger than any other. I am allergic to penicilin.
     
  12. JT

    JT New Member

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    Well, after taking a shower tonight I had my wife look at the sinus. AFter looking at it, she sees long hairs that appear to be coming out of it. She said they look like the ones that came out of my cyst. I asked her if she could grab them with tweezers, she doesnt think her hand is steady enough to do that. She said she is worried about hurting me.

    I cant see them, all I see when I open it up is a dark area, so I guess if it is hair coming out of the sinus, I have no choice but to let it pass through like it did with the cyst.

    Linda the reason I was asking, when my wife had back surgery, she was given antibiotics to take for a week


    Like I stated above, I'm trying to stay optimistic and if it is hair coming out of the sinus now that is causing the bleeding, then it does make me feel a little better. I guess I will know for sure in the next couple of days
     
  13. Linda

    Linda New Member

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    I'm really glad your wife is seeing more hairs coming out. I think this is really starting to indicate why you have not been able to finish healing. It sounds like your body is trying to heal but just has to get rid of the hairs first. Since you will still be giving this another month, maybe your body will be able to expel the remaining hairs.
     
  14. Linda

    Linda New Member

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    JT,
    One more thing that will really help, in addition to what you are already doing, is to use your mind to help reach your goal. Throughout each day, every day, picture in your mind that your cyst is healed. Don't picture how this happens, just picture that it is healed. Picture that it is healed "now", not in the future. Also, just don't think it, BELIEVE it. If you picture it as though it has already happened and believe it, this will set things in motion. Don't give up. Sometimes it takes patience. You will either achieve your goal, or the way to achieve it (whatever that may be) will come to you. Believe me, this makes a difference.
     
  15. CM

    CM New Member

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    JT,

    While this has been going on, the bledding and stuff, have you experienced any pain in the area of the cyst or the sinus?

    On another note, i had my cyst lanced two weeks ago this tuesday, i went for a follow up visit a week later and when my doctor was checking me my wife pointed out to him a larger sinus that he had never seen and he pulled about six hairs out of it about 2" long, and he said that's how the problem begins, so maybe that's why you have those hairs coming out of your sinus now. just thought i'd throw that in there. good luck and thanks for the up dates.
     
  16. JT

    JT New Member

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    Thanks Linda and CM


    I will tell ya, which you probably have already found this out from your lancing. When taking a shower, when the water first hits that area, there is a stinging sensation, but then it goes away in a couple of seconds.

    I am very curious to see how you do with it CM, since you've had the hairs cleaned out. I think that might be my problem and why I cant heal. I know I mentioned above about going to the doctor and maybe having the closed procedure. I might even consider a lancing to clean it out. Please keep us updated on how you do with it CM, this might determine with I get mine lanced or excised

    Good luck to you
     
  17. Linda

    Linda New Member

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    JT,
    In my paragraph above, I forgot to mention that when you do the picturing, also think to yourself "My cyst is healed, my cyst is healed...."

    This can be used for any problem. Picturing, repeating the goal as though it has already happened, and believing in it, sends out an energy force that helps make it happen. A person has to have a goal to achieve it. Sometimes if things don't go the way we expect, it is easy to become discouraged which makes us lose sight of what we originally wanted.

    After my son's surgery, we began to encounter one healing problem after another. I began to get discouraged and worried. Then I remembered that I had to stick with the original goal and changed my thinking. Once I believed he would be healed, I no longer had to worry. There were several times when my son would say that he didn't think he would ever be healed. I would say "What? Don't EVER say that. You have to picture yourself being healed." I had to do enough picturing for the both of us. I was determined to get him healed. I had to try various things which finally got him healed after 9 months.
     
  18. JT

    JT New Member

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    I just had my wife do some trimming. I told her the only thing she needs to worry about as far as hurting me is the cyst. I told her not to worry about the sinus, that I cant even feel it. So, I layed on the bed and spread wide for her. And she went to work, she cut out alot of hair from that sinus. She thinks it was growing from the sinus, but it was all matted together by some tissue or something. I'd say these hairs were a good 2 inches long. She said there is more, but she has a hard time cutting through all the matted hairs and she is afraid to try it with scissors.

    If the hair is actually growning from the sinus opening, how in the heck can it heal properly? I mean, if I had it lanced or excised then it could because the hair follicles wouldnt grown from scar tissue.
     
  19. Linda

    Linda New Member

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    JT,
    It sounds like you are already making progress in finding out the cause of the problem. So, are you saying that the hair is growing inside the sinus and coming out? Your wife is cutting hair that is still attached somewhere inside? It's interesting that you said these hairs are 2 inches long, and CM said that hairs coming out of his sinus are the same length. Can you explain more about the hair that was all matted together by some tissue?

    CM,
    When you had your cyst lanced two weeks, did the doctor say that he cleaned hairs out of the cyst? If so, were they loose or attached?
     
  20. CM

    CM New Member

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    JT,

    My doc had to pull the hairs from my sinus, i am not sure whether they grew from in the sinus or if they grew outside and eventually got turned into the sinus and continued to grow. the latter is my theory but i could be wrong. either way, he pulled them out, it didn't hurt too bad, felt just like pulling out an ingrown hair. how big is your sinus? mine is pretty big and i have two smaller ones above that are relatively new. mine main one is a little less than a 1/4" in diameter, so it's pretty big.
     
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