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Pilonidal Support Alliance

Information, treatments, and support for Pilonidal Disease patients and medical professionals

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You are here: Home / Our Pilonidal Community

You’re Not Alone: Join the Community

Real support from real people.

No one ever expects to have to join a club, especially a Pilonidal community. But here you are! The forums of this organization have been active for 25 years now and attract a global audience. Patients, parents, doctors and medical professionals all end up here sooner or later.

Discussion Forums

The gang is all here, ready to help and provide the support you need as you make your journey from discovery to fully healed. We have forums for both patients and doctors.

Go to the Forums

Personal Stories

Stories are our shared legacy and bring us together. Add your Pilonidal story to the community to help the next patient who needs support.

Read Some Stories

Pilonidal Humor

Having an abscess on your butt shouldn’t be funny, but it can be. Entertain yourself for a little bit with the wit from our forums.

Have a Laugh

Add Yourself to the Map!

Join the Global Pilonidal Community and add your name and pin to our world map. Show others they’re not alone. Remember how alone you felt at first and that no one could possibly understand how awful it was having this painful, festering lump on your tailbone.

How to add a marker for yourself
1. Click the + icon. you’ll need to be signed in to a Google account in order to “Edit” the map and add a “marker” [icon name=”map-marker” class=”” unprefixed_class=””]
2. Type in your name, city/state, and a short note.
3. Click Save. Once you have placed your marker, refresh this page to see your pin on this map.

Add yourself to the map!

Your name (real or fictional)
Marker Address or GPS Location

Or right-click on the map and drag to add a marker

Add some words of encouragement for other patients!
Phone
Facility
Patient Ages
GDPR Agreement Consent for Data Processing By agreeing, you allow Pilonidal Support Alliance to process your personal data for map display, address lookup, and directions. Your data (such as IP address) may also be processed by third-party map providers (e.g., Google Maps, OpenStreetMap) for geocoding, reverse geocoding, and directions. Please review their Privacy Policies for details on data use and your GDPR rights. Some map features use third-party libraries (Google Maps, OpenStreetMap, jQuery DataTables, FontAwesome). When these load, your IP address and browser details may be shared with those providers. See their privacy policies for more information. WP Google Maps uses jQuery DataTables, which may store table settings (like search terms and sorting) in your browser’s local storage. This data is not shared externally and remains until you clear your browser storage. No personally identifying information is sent to map API providers. If you agree, a cookie will be stored to remember your choice and prevent this notice from appearing again. For more information, see our Privacy Policy and the Google Terms of Service.
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