advice

  1. K

    This is my 6th recurrence in 4 years....idk what to do.

    I was 20 when I got my first pilonidal cyst. I remember one day starting to feel pain at the very top of my butt crack. I literally typed in, pain at top of butt crack and starting reading through all the articles. I found one that talked about a pilonidal cyst. All the symptoms lined up with...
  2. P

    Tear in scar.

    Hi all, to give a little back story; I've had reccurent pilonidal sinus for the past 4 years and so far have had 5 ops to remove the sinus/cysts. 4 of these were left open to heal and the other was closed with stitches. I've been backwards and forwards to the doctors and hospital for the past 4...
  3. H

    Two surgeries later, but a pit still there. Any advice please?

    Hi everyone. I am based in the UK, first of all, but I would appreciate any advice! To give you a bit of background, I have been suffering from pilonidal disease since I was seventeen (so ten years ago). In 2016, I had a flare up, two weeks before I was due to get married, but it went away...
  4. Emmaaa

    leaflets?

    hellooo, so I've had a this for 4 and a half years now, I'm actually currently in hospital now ( been here for 2 weeks) and I'm 19 and also a illustration student. I wanted to ask and discuss an idea` I had. for all the long term people who have suffered with this for years, basically stepping...
  5. E

    Help appreciated

    Hi guys so I have been reading through all these stories and to be honest I didn't realise what an issue this was. I'm a UK based female, 26 and I also suffer with PCOS which is potentially the cause of this whole issue. I got my first flare up in 2016 at first I thought it was a spot and to be...
  6. R

    Advice needed about aftercare and exudate?

    Hi, I've had a pilonidal sinus since April 2017, healed over in May 2017 then split later in the month. From May to early December the wound would heal, then split like a cheap zip on a fleece that was too small to wear (best analogy I could think of). Had Karydakis procedure surgery Dec 6th...
  7. E

    Doctors won't do anything?

    My poli cyst has flared up three times now, they just keep giving me antibiotics. The second time it happened my doctor told me to go to the emergency room if the pain is still the same tomorrow, I went but there was a six hour minimum wait time and it's excruciating to sit up in a chair for ten...
  8. N

    Recurrent pilo - 5 years after open excision - need advice

    I had a flare up last Saturday(18Nov17) and there is inflammation right under the scar tissue of my previous open wound excision which is to the left of my cleft and also inflammation right on the coccyx region. The pain and inflammation increased till Tuesday when I met a surgeon who suggested...
  9. I

    Worried it’s coming back... would love advice

    I’m 20 years old and as of April 2017 I experienced my first pilonidal cyst. I originally thought I had just bruised my tail bone but as I got sicker and eventually unable to move and in constant pain I realized I had a pilonidal cyst. I had it cut and drained with the wound left open. I only...
  10. C

    Advice to beginners

    I'm writing this for the hope that maybe someone will benefit from this advice. This is my personal opinion formed from years of hell. As most of you know this is a literal pain in the ass. I've gone through this for five years. For anyone who has gone through it longer may God help you. To get...
  11. R

    I need advice

    Hello, so I've had a pilonidal cyst for about 2 years and in about the last 5 months it seems like I have to drain my cysts two to three times a week. Sometimes it just randomly pops during my day-to-day activities. I recently had some pain on my other side of my butt check and I felt another...
  12. I

    Scar With No Surgery?

    Hello all. I'm currently on round... five(?) I think, of flair ups since being diagnosed. The other week I started to feel the usual pain/pressure of a flair up and I booked myself in to see my GP (after an incredibly uncomfortable - to say the least - weekend). Unfortunately the GP was off...
  13. C

    HELP! Is this a pilonidal sinus? If so, how do I get rid of it?

    These appeared randomly the other day, I had quite a large bump before but I had read to put a certain solution on it, which I did and it drained on its own. Now the bump/cyst is gone, and I'm left with these?? How do I get rid of these? I feel so weird and self-conscious about them. I just want...
  14. T

    Pilonidal cyst, 1 mo. into healing, bleeding?

    I got surgery a little over a month ago, started out as a closed wound, but it opened so now I've been packing the wound for about 2 weeks now. The first week, we weren't packing it deep enough at home, but this week, we've been packing it much deeper and it seems to be healing better. My...
  15. T

    Post surgery.. healing question

    I noticed I had a pilondial cyst in the very end of May and got it drained at a dermatologist a few days later. Then, everything was fine, I had no pain, but then I noticed that it was still coming back. So I went to a surgeon and he surgically removed the rest of it in the end of June. It has...
  16. H

    Hi I'm new and scared.Advice is welcome

    Hey, I'm 21 years old and a female.Yesterday i felt a bump on the top of my left cheek,it hurts slightly only when i put pressure on it.I have been sleeping on my side and avoiding to sit in a certain position. I can walk,bend and jump without trouble. I think is not infected because is not...
  17. S

    Need a little advice with waiting for cyst to drain on its own

    I had a case 3 years ago and the pain was so bad, I had no idea what this was I couldn't bare it and went straight to the ER believe it or not. Doctor there cut it open and drained it out, which was ridiculously painful as I'm sure you're all aware. I was prescribed antibiotics and sent home...
  18. M

    Open excision healing advice please

    Hi, I had open excision surgery on 5th april this year, coming up to the three week mark and still having daily visits from the District Nurses. The first nurse who came out the day after my surgery measured my wound and said it was 6cm long, 5cm wide, and 3cm deep. No nurse has actually...
  19. Dan Jobson

    Im Healed! - Advice to Fellow Sufferers

    Hey guys, my nurse gave me the news this morning that I am now officially healed, so after just over 8 months since my surgery, I thought I'd share some advice with you. I had an open excision in July 2016, which was then stitched up, however after a week I got an infection and the stitches...
  20. A

    I need your help

    hi all, I've spent the last two weeks reading this forum and its time to ask for an advice. I was diagnosed with pilonidal cyst not three months ago at first it was 1 lump with a sinus tract that was so painful until it started leaking puss i was relieved of all pain then. Fast forward 3 weeks 1...
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