2nd op- still not healing- depressed

ralipotso

New Member
Hello,

I'd first discovered I had this about 4.5 years ago. I'm 29 now

I had my first surgery, cleft lift, about 6 months ago.

2 weeks ago I had a 2nd op as there was a section that never healed from the first surgery

My stitches were meant to come out a couple of days ago but they didn't because if they did, they said the wound would collapse. I'm still in pain, I bleed a lot whenever I sit on the toilet, and I'm just feeling devastated that it seems it's just never going to heal.

I just don't know what more I can do. All I want to do is sit on my bottom without fear of pain and without blood. I'm exhausted with the whole process and feel so depressed that I can't see how this will ever be fixed due to it being in such an awkward position where it's impossible not to put pressure on
 

FlyingScotsman

New Member
I've had the same experience, but with 2 open excisions. Got an area that does not close up, and occasionally bleeds when I go to the toilet. It heals and then a few weeks later just re-opens. Not sure if there is a solution, or whether in time it will stay healed.
 

Luke Wade

Very Helpful
I've had the same experience, but with 2 open excisions. Got an area that does not close up, and occasionally bleeds when I go to the toilet. It heals and then a few weeks later just re-opens. Not sure if there is a solution, or whether in time it will stay healed.

Look at getting a cleft lift. I've been healed for 2 years now. No issues
 

ralipotso

New Member
2 months on from surgery. Still getting packed and changed daily. Still 2.5cm depth. It's now bleeding incessantly. I don't think I can live with this
 

FlyingScotsman

New Member
2 months on from surgery. Still getting packed and changed daily. Still 2.5cm depth. It's now bleeding incessantly. I don't think I can live with this
Mine was bleeding for months after surgery. In fact I had surgery in June of this year, and now six months on I had another minor bleed (which is what brings me back to this forum).

It took several months to get through the constant bleeding phase, where it was bleeding a lot once or twice a week on average.

I managed to close the wound by doing the following:

1) 2 showers a day, hosing down the area completely;
2) walking - i found the weeks where it healed the quickest were weeks I did a lot of walking. Probably increased blood flow to the area;
3) Balanced diet with lots of protein, and fruit and veg obviously to try to promote faster skin healing;
4) Aquacel - once the wound had healed up, I used a piece of aquacel and changed this twice a day.
5) regular consultant appointments where I had the wound shaved and also sometimes silver nitrate put on it.

All this healed the wound within a few months of effort. However, when I try to revert back to normal life, the wound breaks down after a week or two and I end up repeating the above. This has happened about 3 times where the wound has healed up completely, and then split open on the midline again.

Possibly looking at a cleft lift if it keeps on getting worse as Luke mentioned above. However, I am willing wait a while to see if the area eventually heals, as I have got it to heal over 3 times before. Fingers crossed.

PS had an MRI and the pilonidal sinus has completely gone. It is just a skin deep wound that doesn't heal now.
 

ralipotso

New Member
Mine was bleeding for months after surgery. In fact I had surgery in June of this year, and now six months on I had another minor bleed (which is what brings me back to this forum).
Thanks for sharing. That sounds like such a hassle to go through. At least the sinus has completely gone but it's crazy that the wound keeps opening.

Thank you for your tips. The shower one is interesting because I'd been told to shower just before my packing appointments when I take everything out but then to keep it dry. Surely if you're showering twice a day, you'd also need to be packing it twice a day?

Mine was probed again today and it's still 2.5cm depth. Nothing I do seems to be helping.
 

ButtProbs

New Member
Mine was bleeding for months after surgery. In fact I had surgery in June of this year, and now six months on I had another minor bleed (which is what brings me back to this forum).

It took several months to get through the constant bleeding phase, where it was bleeding a lot once or twice a week on average.

I managed to close the wound by doing the following:

1) 2 showers a day, hosing down the area completely;
2) walking - i found the weeks where it healed the quickest were weeks I did a lot of walking. Probably increased blood flow to the area;
3) Balanced diet with lots of protein, and fruit and veg obviously to try to promote faster skin healing;
4) Aquacel - once the wound had healed up, I used a piece of aquacel and changed this twice a day.
5) regular consultant appointments where I had the wound shaved and also sometimes silver nitrate put on it.

All this healed the wound within a few months of effort. However, when I try to revert back to normal life, the wound breaks down after a week or two and I end up repeating the above. This has happened about 3 times where the wound has healed up completely, and then split open on the midline again.

Possibly looking at a cleft lift if it keeps on getting worse as Luke mentioned above. However, I am willing wait a while to see if the area eventually heals, as I have got it to heal over 3 times before. Fingers crossed.

PS had an MRI and the pilonidal sinus has completely gone. It is just a skin deep wound that doesn't heal now.
Did you have an open wound surgery? I ask, because it sounds like the same issue I'm having. I had an open wound cystectomy in April and it took months to close and actually required an additional acid treatment to help it scar. I now have one small spot that will close and remain closed for about 3 weeks before it breaks open again. I make sure to not over lift or move incorrectly, but it never fails to rip back open. I can't remember the last time I sat comfortably or didn't worry about it ripping when moving around and it's driving me insane.
 

FlyingScotsman

New Member
Thanks for sharing. That sounds like such a hassle to go through. At least the sinus has completely gone but it's crazy that the wound keeps opening.

Thank you for your tips. The shower one is interesting because I'd been told to shower just before my packing appointments when I take everything out but then to keep it dry. Surely if you're showering twice a day, you'd also need to be packing it twice a day?

Mine was probed again today and it's still 2.5cm depth. Nothing I do seems to be helping.
I think if it is still in the packing stage, then you only shower when they tell you to, so as not to remove the packing. Once the packing is finished, you switch to multiple showers just to keep it cleaner.
 

FlyingScotsman

New Member
Did you have an open wound surgery? I ask, because it sounds like the same issue I'm having. I had an open wound cystectomy in April and it took months to close and actually required an additional acid treatment to help it scar. I now have one small spot that will close and remain closed for about 3 weeks before it breaks open again. I make sure to not over lift or move incorrectly, but it never fails to rip back open. I can't remember the last time I sat comfortably or didn't worry about it ripping when moving around and it's driving me insane.
Hi, yes I had two open wound surgeries. I've also had the acid treatment multiple times, as I was visiting my consultant weekly for a month or two. It sounds like we are in exactly the same position. Mine has been open again for about 3 weeks again with no sign of healing up. In fact, it probably is getting slightly bigger now.

I'll let you know if I find a solution!
 

Luke Wade

Very Helpful
Cleft lift everyone. Can't advise it enough. Especially if you have a surgery wound that just won't ever heal. I dealt with a failed surgery for many years before I went ahead with a CL.
 

Guitarnerd97

New Member
Second what Luke says. Living with an open wound post surgery is not fun and getting a cleft lift done by someone who knows what they’re doing will solve the problem. Took me 4.5 years of suffering with the same issue as you guys to get it done and it’s changed my life. Def look into it
 

Luke Wade

Very Helpful
I really believe this is one where you have to take the bull by the horns as it were. You literally have to tell your doctor what you want - many GP's have no idea what a cleft lift even is as this condition isn't too common. First step is to request a consultation with a CL specialist via your doctor.
 

Chatforum

New Member
Mine was open for 10 months, they tried absolutely everything to close the wound but we didn’t have no luck what so ever. I had a operation on Thursday with Miss Senapati with a drain inserted. Drain is getting removed tomorrow with stitching put it. She’s fantastic. Will update if I have any problems
 
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