Anxious about Cleft Lift Surgery - Are there any negatives?

GulfCoastCyst

New Member
I'm an active 31 year old male - or at least I was until I had my first excision last August. Two failed excision surgeries later I'm now going to see a new surgeon in Tallahassee (Dr. Rosenberg) for the cleft lift. But I'm nervous still. Today I still struggle to walk long distances, sitting is painful, I drain every day although my last surgery was in January.

Is there any downsides to the cleft lift surgery that people don't talk about? It sounds like it's the ultimate cure but after two failed surgeries I'm not as hopeful as I used to be. Will I still be able to ride a bike? Run? Swim? etc? Those of you that have had it, is there any con to this surgery at all?

Do you still drain afterwards or should that all clear up?

Thanks for your input!
 

JonH21

Very Helpful
Your situation is eerily similar to me. I’m your age, have also had 2 failed surgeries, and I was also very active. Was is the key word. I also drain every single day. I’m preparing for a cleft lift too. I’m going in today to get it drained out and prepped before my cleft lift. My last surgery was in February of this year, and I’ve had problems ever since as my wound never healed correctly.

Of course there is no 100 percent guaranteed surgery. The cleft lift is the best option as it’s a lot different than open or closed procedures. I didn’t do enough homework before my other 2 surgeries. It wasn’t until I found this site that I was well prepared and knew what I had to do. I have yet to have this procedure but I have gone in depth with my surgeon so I can try to answer most of your questions. I’m sure others who’ve had this done will chime in.

The cleft lift takes the wound off the midline for optimum healing. Only skin is removed during this time causing the healing process to go quicker as well. There are times where a drain is used to help clear out any excess leakage. This is typically left in for about 1 week or so. With other types of surgeries, the wound oftentimes has no chance to heal and the drainage has no where to go. Which can cause all sorts of problems. You will be able to do normal Activities again once healed. It should be about 1 month for total healing, depending on how bad your case is. With how the cleft lift procedure is contructed, it gets to the main problem and it’s not just a bandaid the problem type thing. Like I said, no surgery is guaranteed. However with the right surgeon, success rates can be as high as 90-95 percent. So it’s better than 50/50 (at best) for other types of medevil surgeries.

Stay strong my friend, you are not alone. All of us are in this fight together. I wish you all the best! Please keep us updated on your progress.
 

cystburgh

Very Helpful
Still too early for me to really give you negatives and maybe my cleft lift is going optimally, but thus far I have experienced 0 negatives. I had multiple failed surgeries over a 17yr time span(open/close excisiog & lancings). My cleft lift was performed April 13th by Dr. Howard Caplan out of Philadelphia.

I will 100% say the recovery was WAY EASIER. Thus far nothing has opened, there has been no leaking/drainage, and I can do everything normal besides excercise/play sports till my next checkup May 15th. I feel like I could run and exercise if I wanted, but as Jon said typical clearance to do whatever you feel like seems to be 4-6 weeks. Recovery is much easier on whomever is helping you. My wife no longer needs to dressing changes. My butt/wound no longer smells.

Again my experience thus far my be going perfectly and maybe I will have some setbacks but if you are opting for surgery cleft lift seems like the solution to me. As Jon stated my wound is not in the middle of my crack...again not even a wound as it was stitched closed and it has not opened and I do not expect it to.

There are many recovery logs for each type of surgery and there are a few very good websites including this one to read up on everything.

http://pilonidal.net/ and http://www.pilonidalsurgery.com/ are very good resources and this site has so many resources and reviews on various dr's
 

GulfCoastCyst

New Member
Thank you both for sharing your stories! I actually found Dr. Rosenberg from this website so I have high hopes. The info and community here have been fantastic. At this very moment they have me taking Lavofloxacin and Metronidazole in preparation of surgery Friday morning. Hopefully this will be the last time I have to deal with this for a while.

Good luck on both of your recoveries!
 

JonH21

Very Helpful
Thank you both for sharing your stories! I actually found Dr. Rosenberg from this website so I have high hopes. The info and community here have been fantastic. At this very moment they have me taking Lavofloxacin and Metronidazole in preparation of surgery Friday morning. Hopefully this will be the last time I have to deal with this for a while.

Good luck on both of your recoveries!
Please tell us how your surgery goes. Good luck!
 

sbulls98

New Member
Thank you both for sharing your stories! I actually found Dr. Rosenberg from this website so I have high hopes. The info and community here have been fantastic. At this very moment they have me taking Lavofloxacin and Metronidazole in preparation of surgery Friday morning. Hopefully this will be the last time I have to deal with this for a while.

Good luck on both of your recoveries!
How did your surgery go? I am in the process of finding a surgeon around Alabama and Tallahassee seems to be the closest that has surgeons who do the cleft lift. I would love to hear how your recovery has been.
 

Kmcnichol555

New Member
How did your surgery go? I am in the process of finding a surgeon around Alabama and Tallahassee seems to be the closest that has surgeons who do the cleft lift. I would love to hear how your recovery has been.
@sbulls98 I'm in Alabama and looking into this procedure as well, any luck finding a surgeon in Alabama?
 

sbulls98

New Member
Please let me know how it goes, currently looking into this. Have you had a procedure done before?
I plan on putting something on here to follow up on how recovery goes after surgery if I end up going with him. I wasn't able to find much on him to help my decision so hoping to ease someone else's mind at least. I have not had surgery before. This will be my first. I was just informed not too long ago about this cleft lift method and am praying to just have one surgery and be done.
 

CLOUDSTRIFE

New Member
Still too early for me to really give you negatives and maybe my cleft lift is going optimally, but thus far I have experienced 0 negatives. I had multiple failed surgeries over a 17yr time span(open/close excisiog & lancings). My cleft lift was performed April 13th by Dr. Howard Caplan out of Philadelphia.

I will 100% say the recovery was WAY EASIER. Thus far nothing has opened, there has been no leaking/drainage, and I can do everything normal besides excercise/play sports till my next checkup May 15th. I feel like I could run and exercise if I wanted, but as Jon said typical clearance to do whatever you feel like seems to be 4-6 weeks. Recovery is much easier on whomever is helping you. My wife no longer needs to dressing changes. My butt/wound no longer smells.

Again my experience thus far my be going perfectly and maybe I will have some setbacks but if you are opting for surgery cleft lift seems like the solution to me. As Jon stated my wound is not in the middle of my crack...again not even a wound as it was stitched closed and it has not opened and I do not expect it to.

There are many recovery logs for each type of surgery and there are a few very good websites including this one to read up on everything.

http://pilonidal.net/ and http://www.pilonidalsurgery.com/ are very good resources and this site has so many resources and reviews on various dr's

Hey, I've been trying to get an appt with Dr CAPLAN too but he's out of my network. Waiting to hear back from my insurance company about an exception since he's the only person in Philadelphia who does this and I cannot afford to take off from work for several months and repeated surgeries. I'll lose my job and can't pay rent.
 

sbulls98

New Member
I'm 28 days post-op now from getting the cleft lift from Dr. Rosenberg in Tallahassee. Recovery has gone pretty well. I had my drain takin out on day 6 post-op. Sitting was painful for me so I spent most of my time either laying on my side or stomach for the first 2.5 weeks. I can sit now but still have some discomfort. I also bought a coccyx cushion to help, which has been a lifesaver. Highly recommend getting one.

As for Dr. Rosenberg, I went with him bc he was the closest to me that 1) did the cleft lift 2) my insurance would give me a referral to and 3) the quickest option for my situation (I'm on a 150 day time clock to have surgery and fully recover in order to be able to continue my flight school training in the Army) so finding another surgeon and going through the referral process was not worth the time in my situation. Dr. Rosenberg is very knowledgeable about the disease and cleft lift procedure. I'm very happy with the way it turned out. I still have some discomfort but it's also only been a month so I kind of didn't expect to be 100%. The only thing I wished was that he would have been more specific in what I can and cannot do and for how long. They give you a discharge packet after surgery which is very helpful for the 1st 2 weeks post-op but pretty vague to limitations after that. Other than communication he did an exceptional job. He also uses dissolvable sutures so you don't need to go back for follow-up appts. Some of them are still in now but others have fallen out or encouraged out.

I hope this helps others who are looking into Dr. Rosenberg. Again an exceptional surgeon who did a great job just not the best at communicating everything so write down a list of questions and maybe preload him that you have a lot of questions.
 

Nana Tadros

New Member
For those of you who can go to Raleigh North Carolina I highly recommend Dr George Wadie. He did surgery on my 2 sons who had several failed surgeries. He has a very streamlined process for patients coming out of Raleigh. You send his office pictures and based on the findings they can schedule you an appointment with surgery the day after. It works great. We left town the same day. My 2 sons had an amazing quick recovery and have no issues for almost 2 years. For people from outside NC, I think he would be a great option
 

willpol8

New Member
I'm 28 days post-op now from getting the cleft lift from Dr. Rosenberg in Tallahassee. Recovery has gone pretty well. I had my drain takin out on day 6 post-op. Sitting was painful for me so I spent most of my time either laying on my side or stomach for the first 2.5 weeks. I can sit now but still have some discomfort. I also bought a coccyx cushion to help, which has been a lifesaver. Highly recommend getting one.

As for Dr. Rosenberg, I went with him bc he was the closest to me that 1) did the cleft lift 2) my insurance would give me a referral to and 3) the quickest option for my situation (I'm on a 150 day time clock to have surgery and fully recover in order to be able to continue my flight school training in the Army) so finding another surgeon and going through the referral process was not worth the time in my situation. Dr. Rosenberg is very knowledgeable about the disease and cleft lift procedure. I'm very happy with the way it turned out. I still have some discomfort but it's also only been a month so I kind of didn't expect to be 100%. The only thing I wished was that he would have been more specific in what I can and cannot do and for how long. They give you a discharge packet after surgery which is very helpful for the 1st 2 weeks post-op but pretty vague to limitations after that. Other than communication he did an exceptional job. He also uses dissolvable sutures so you don't need to go back for follow-up appts. Some of them are still in now but others have fallen out or encouraged out.

I hope this helps others who are looking into Dr. Rosenberg. Again an exceptional surgeon who did a great job just not the best at communicating everything so write down a list of questions and maybe preload him that you have a lot of questions.
Hey there... I have a consultation with Dr. Rosenberg coming up. I am wondering how you healed up? What the recovery process was like? If you would recommend him, etc.?
 

sbulls98

New Member
Hey there... I have a consultation with Dr. Rosenberg coming up. I am wondering how you healed up? What the recovery process was like? If you would recommend him, etc.?
Honestly I am very well pleased with the outcome of the surgery. In the beginning of recovery I had 2nd thoughts just bc it doesn’t look like it’s going to heal well. But now, if it wasn’t for the scare you wouldn’t be able to tell I had surgery. I saw other pics online of how it would flatten out your bum but I would say mine still looks pretty natural. And my incision was about 9 in. Long. It Wasn’t for a good 3 to 4 weeks til I could Sit, but that was always on my coccyx cushion. I’m also pretty physically active being in the military and it wasn’t til about week 6 to 8 when I was back in the gym back to normal and I would say I don’t have any limited mobility in exercising. It’s still a little numb but I can tell the nerves are still growing back. Definitely recommend massaging The scar to break up scar tissue once healed. Someone once told me that when you have, “ It will never be the same but it’ll be the new norm.” And I would definitely agree with that. I don’t remember what it used to feel or be like before surgery so it really doesn’t bother me. I Am very pleased with my results though and would definitely recommend him. Hope this helps. I hope like me You’ll be glad you Had the surgery after it’s all said and done.
 
Top