Anyone know specialist in Lancashire for cleft liff?

Spokm34

Very Helpful
You might have to travel to London for cleft lift surgery and stay 2 weeks in hospital until well enough to go home.

Or try to find expert's who can do pico dressing s and can fit it on for you, my nurse's fitted my pico on instantly at the top of my buttocks

Skin is nice and pink healing up really well, no infections painless able to lie down on my back with no pain on buttocks no soreness of skin tissue is healing up nicely.

Might be you're best options
 

Unknown2

Helpful
I didn’t know u have to stay in hospital for 2 weeks I thought they send you home the same day or next day also will try ask for PICO but dought I’ll find expert round here also problem is getting referred to London can’t afford private how much is it to get cleft lift private thanks
 

Spokm34

Very Helpful
Sorry when I said stay 2 weeks in hospital I meant because of the long distance journey recovery time for cleft lift is apparently 2 weeks before you can slowly gain strength the pico dressings I'm getting done private at spire hospital but even though it's healing me up well and the pain is less and I'm recovering well now no guarantee that in 4 week's my wound won't stayed closed it might reopen up again.

Seems when pico treatment stops the wound breaks down.

If that happens than I won't bother with pico anymore and go for the cleft lift I've never had it done but reading up on the recovery time's states 2 weeks to return to work but everyone is different.

Now some people sell pico dressings on ebay for £20 after using them, all you need to do is get a tissue viability nurse to authorise it on NHS if you're wound is 2cm deep it heal it up within 2-3 week's

But chances is that the wound tissue could reopen and be back to square one again.

So pico dressings based on my experience is only temporary solution.


Making cleft lift higher treatment plan.
 

Unknown2

Helpful
Yes I was thinking the same it is quite far for me staying in might be the best option Because of distance and it will be difficult to travel after operation I mean I still have difficulty sitting now I always lay on my side even when I’m in car I lay in the back seat I have emailed miss Senapati on the website requesting some information if I can get threw nhs somehow or if not how much will I have to pay I mean I think you can pay monthly aswell I read on the website Hope I can get it on nhs I think it will be difficult beacuse of distance
 

Unknown2

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I just spoke to her secretary I discussed my situation she said she does accept nhs referral but will need to speak to my gp and she explained there is a 4 to 5 month waiting list I also asked if I where to pay for treatment how much it will cost she explained it will be £250 for consultation the cleft closure is £2200 and any follow ups will be £170
 

Spokm34

Very Helpful
Do you have the number for her secretary just i can't seem to get in touch with her via St Mark's hospital that's the closest to me by train to Portsmouth it's 2hrs 30 mins.

Axa my insurance company would only cover for appointment to see her but not sure about hospital fee's it's only worth me doing it it my pico fails and it don't heal 2000 is a lot of money if it still fails after a cleft lift and wasted all that money.
 

Spokm34

Very Helpful
Better to wait on the 4 to 5 month waiting list depending on you're pain levels 2000 is a lot of money and I've had so many failed ops I be furious is cleft lift failed me paying 2k for it get it done for free.

Pico dressings are temporary cure and will heal it for 6 month's i went 6 month's before my wound reopened so that 4 to 5 month's wait for cleft lift won't be so bad with the pico 6 month's heal time.
 

Unknown2

Helpful
Better to wait on the 4 to 5 month waiting list depending on you're pain levels 2000 is a lot of money and I've had so many failed ops I be furious is cleft lift failed me paying 2k for it get it done for free.

Pico dressings are temporary cure and will heal it for 6 month's i went 6 month's before my wound reopened so that 4 to 5 month's wait for cleft lift won't be so bad with the pico 6 month's heal time.
Yes I know I rather get threw nhs don’t mind wating 4 to 5 months I rang my gp toady but he’s on holiday gona have to wait for him to get back to work to speak to him hope I will get refered don’t want to pay especially for this op nothing’s guaranteed but is the best option to get cleft closure I’ve got her secretary number she’s called Pat 01428 651232 U can discuss with her but you will have to go to your gp to get referral to see her
 

Unknown2

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Also have you had laser hair removal done I’m being referred by plastic surgon to get hair removal don’t mind getting that done After will probably not see him as he talking about open excision with a vac
 

Spokm34

Very Helpful
I was going ask a question on here if anyone has healed from open excision has anyone actually healed from it.

I did have lazer done but I gave it up because it was costing too much money for sessions and I felt I was being ripped off.

You can buy a lazer hair removal on amazon same thing as what they use at the salon try lazer the area you're self i did successfully do it but I stopped because of pico dressings.

Open excision will take you 1 year to heal than go backwards and get no end of infections again.
 
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Spokm34

Very Helpful
maybe if the pico heals me I will do lazer and remove all hair eat healthy drink water and not sit down on it for hour's and hope that will make it stay closed for life.
 

Spokm34

Very Helpful
I got a reply from senapati secretary she said she will pass it onto senapati for NHS at St Mark's hospital so hopefully I can see her for free.

I don't want to travel nearly 3hrs to Portsmouth just to discuss treatment plan's.

And no way I will pay 2000 pounds for cleft lift because if it fails I be fuming mad. I be willing to wait the 4 to 5 month's to have cleft lift done for free on the NHS but there's a small chance these picos might heal it up small chance if it does heal it i hope it won't need cleft lift. My issue is just keeps reopening but I've never ever got sinus lump ever back all sinus track's we're removed but why does the wound keep reopening that's what I need answers on.
 

Unknown2

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I think I’m having same problem where it just keeps and opening I think it’s beacuse of the area not sure most of mine has healed just near the bottom dosent want to heal it about 2cm long now Lucky you she told me I have to see my gp to get refered how did you get her to get refered direct where do you live?
 

Spokm34

Very Helpful
I just gave my gp the information to see her at st Mark's they done the letter but the hospital hasn't received it yet so emailed her secretary to pass it on.

St Mark's is close to me so was no issues in referral.

Cleft lift is probably only way but we need senapati fight for her on NHS no pay
 
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