Anyone know specialist in Lancashire for cleft liff?

Spokm34

Very Helpful
Senapati is the queen of operations but don't pay 2k NHS only.

But try close it naturally try remove all hair don't sit on it at computer desk or cinema try keep pressure off drink water i guess gotta try everything before jumping into one final surgery
 
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Unknown2

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Yh I heard she is the best to be honest I’ve not sat down since last op witch was in December I alway lay to one side keeps pressure of it and I trim when it starts growing only problem is can’t get rid of all hair because of area I’m gona try push to get refered to her hopefully I’m down in Lancashire 4 hours away but defo worth going down after 3 failed surgeries I don’t mind travelling
 

Spokm34

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Spoke to the receptionist secretary they are accepting patients in august again but london gotta wait a while i will see her in London when they open the doors again covid19 hasn't helped
 

Spokm34

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I gotta wait until senapati is free in London right now not accepting patients in the london area.

So I will continue with my pico dressings have to say I'm starting to feel great again I'm able to lie down on my bed no pain I'm able to walk around quickly so it's doing it's job I think pico 7 might benefit you in healing it up until you are able to get an appointment
 

Spokm34

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Any luck with cleft lift yet? Have you got the appointment let me know how it went. And recovery time.

I've constantly got a little white flashing green small pump pico dressing on does get annoying after a while.
 

Unknown2

Very Helpful
W
I gotta wait until senapati is free in London right now not accepting patients in the london area.

So I will continue with my pico dressings have to say I'm starting to feel great again I'm able to lie down on my bed no pain I'm able to walk around quickly so it's doing it's job I think pico 7 might benefit you in healing it up until you are able to get an appointment
what do you mean she not accepting patients in London area what about anywhere else
 

Unknown2

Very Helpful
N
Any luck with cleft lift yet? Have you got the appointment let me know how it went. And recovery time.

I've constantly got a little white flashing green small pump pico dressing on does get annoying after a while.
no not yet still waiting for gp to come back from holiday so hopefully he will make me letter to get refered
 

Spokm34

Very Helpful
W
what do you mean she not accepting patients in London area what about anywhere else
The trustplus at st Mark's hospital is currently closed that's where she does her private patient's work, for cleft lift so at the moment I'm on a waiting list until it reopens.

Portsmouth is accepting patients again next month but I ain't prepared to travel to Portsmouth just for consultation
 

Spokm34

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But even when it reopens it will be just for her to look at my wound and request cleft lift but I be requesting on the NHS as stated 2000 is too much could fail some patients rare even failed with senapati.

But I'm hopeful that I heal fully without having to do it all.
 

Unknown2

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Just a quick update rang gp office gave details to receptionist for referral said will pass on to my gp for referral hopefully everything works out even if I’m on wating list I don’t mind it’s just one step closer
 

Spokm34

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Further to the update just had my pico 7 dressing changed today at half 1pm my wound is now a size of a pea. It's shrunk from 2cm deep to size of a pea I'm happy but scared it reopen in future I've heard it all before wound size of a pea then reopens and goes back to 2cm.

So i got senapati as back up incase it reopens again.
 
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Spokm34

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If you can get you're wound depth down to size of a pea like me it help you a lot until you can see senapati.
 

Unknown2

Very Helpful
Further to the update just had my pico 7 dressing changed today at half 1pm my wound is now a size of a pea. It's shrunk from 2cm deep to size of a pea I'm happy but scared it reopen in future I've heard it all before wound size of a pea then reopens and goes back to 2cm.

So i got senapati as back up incase it reopens again.
The problem is the scar tissue is weak from opening and closing that’s why it just keeps opening back up I’m the same have you received a appointment for senapati also do you live in London I’m from Lancashire hopefully I get refered just can’t afford to get it done private I mean you can pay monthly but still is the same rather get it threw nhs
 

Spokm34

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Is there anyway to fix this? This message is awaiting moderator approval, and is invisible to normal visitors. Every message that i reply i gotta wait for approval.
 

Spokm34

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If you can get your wound to size of a pea like me it would really help you out until you can see senapati I'm waiting for the appointment with her in London i live near Harrow but the cleft lift is only done at spire Portsmouth my only concern is the long distance travel from Portsmouth to London it's 2hrs to travel after an operation with a drain in place maybe I rent a hotel in Portsmouth close to the hospital it's the first operation that you don't have to stay in overnight my insurance company axa might pay for the private treatment but this all depends if my size of a pea wound lol no longer reopens if I heal my size of a pea wound I'm going do everything in my power to make sure it don't go back to 2cm deep.

Nonetheless I will still be seeing senapati when she is available in London just to check me over and make sure I'm safe.
 

Unknown2

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I thought she was doing the cleft lift at London Portsmouth is like 4to 5 hours away from me imagine if I get it there I mean London is far but Portsmouth is really far
 

Spokm34

Very Helpful
I have bad news for you st Mark's hospital is only for consultantation but the surgery is at spire in Portsmouth which is a bit stupid as London is more ideal that's the email that was sent to me this morning that the operation has to be done at spire in Portsmouth can try fight against it and try get it done at st Mark's in london harrow.

Or stay in hotel cheap hotel two night's close to Portsmouth hospital until you are well enough to go home.
 
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Spokm34

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Or only other thing is to try stay in accommodation near the hospital so if anything goes wrong you are there, I'm thinking of hotel near by until I'm well to travel home. But I'm also hoping it doesn't come to this if I can keep this small pea size wound closed permanently I won't need to make the long distance travel.
 

Unknown2

Very Helpful
I have bad news for you st Mark's hospital is only for consultantation but the surgery is at spire in Portsmouth which is a bit stupid as London is more ideal that's the email that was sent to me this morning that the operation has to be done at spire in Portsmouth can try defend it and try get it done at at Mark's
Have you got her email just received a phone call from gp they need her email for referral I mean if I can get to see her at st marks for a consultation first Hopefully I can persuade her to get done there I rang secretary but no answer I mean anything will do sick of dealing with this like u said hotel might have to for couple of days until able to lie down in car for journey home still cheaper then paying almost 3k
 

Spokm34

Very Helpful
Her email is pat@senapati.co.uk she normally replies quickly she replied to me quickly.

How deep is you're wound right now? If you heal it up might not need all this traveling ect, if you can close it and keep it closed permanently.

But I understand that if you can't then it is worth going through it all.

I'm only going go through it all my self if my pea size wound reopens if It remains closed no point me going through it all.
But I see her at st Mark's hospital even if I'm healed incase it reopens again.

pat@senapati.co.uk
 
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