Anyone know specialist in Lancashire for cleft liff?

Unknown2

Very Helpful
I’m not sure how deep but the bottom of the wound is about 2 to 3 cm long It not closed since last op wich was in December the top bit has healed but there’s 1 area at the top of buttocks wich opens and closes It use to leak fluid also but now it’s not bad I just opened back up couple days age not that big but still a problem the bottom bit is where I am worried about no progress what so ever I was meant to have a phone call appointment with the surgon who did the 3 operation on me but did not ring I rang the hospital and they said he wrote on his notes he spoke to me haha they re booked me in for 2 weeks
 

Spokm34

Very Helpful
These surgeon's are idiot's they have no clue, surgeon I saw was only interested in the money, he wanted to put me asleep put tape on my buttocks to pull it open to have a look he said all the pico dressings in the world won't heal it well he was wrong there as it did heal it from 2cm down to 0.1cm.

I gave him a bad review and 1 star.

In you're case I think the journey is worth it she will fully close it for you but try to push for st Mark's hospital if it is 100% Portsmouth just a 2 night stay over night close by incase you have any issue's you can go back to the hospital.

After the two night stay take it nice and easy on the long journey home it be worth it in the long run.
 

Unknown2

Very Helpful
These surgeon's are idiot's they have no clue, surgeon I saw was only interested in the money, he wanted to put me asleep put tape on my buttocks to pull it open to have a look he said all the pico dressings in the world won't heal it well he was wrong there as it did heal it from 2cm down to 0.1cm.

I gave him a bad review and 1 star.

In you're case I think the journey is worth it she will fully close it for you but try to push for st Mark's hospital if it is 100% Portsmouth just a 2 night stay over night close by incase you have any issue's you can go back to the hospital.

After the two night stay take it nice and easy on the long journey home it be worth it in the long run.
I know worse case will get it done in Portsmouth stay 2 night then probably travel to Leicester got family there stay there a few more days then make the final journey home there’s no way I will b able to do 5 hours journey after surgery the thing is these surgeons don’t specialise in these ops they just do it for money that’s why they take them on need to see a specialist for pilonidol to get it fixed like miss senepati
 

Spokm34

Very Helpful
My biggest mistake ever was agreeing to open surgery i wish I found senapati last year I would probably be 100% over it by now and not constantly going for dressings it's really depressing going to see the nurse's yes they are nice but it's gets to a point is this what my life is about sitting at gp surgery waiting for a dressing while everyone else in life is able sit down no pain.

I see people at the pub sat down laughing having great time and there is me on my way to get a dressing done, makes me so depressed I just want be normal run around swim

I've had my share of moody nurse's as well not all nurse's are nice,

This is a massive lesson to everyone out there who has this disease get cleft lift done it turn you're life around for the better.
 

Unknown2

Very Helpful
My biggest mistake ever was agreeing to open surgery i wish I found senapati last year I would probably be 100% over it by now and not constantly going for dressings it's really depressing going to see the nurse's yes they are nice but it's gets to a point is this what my life is about sitting at gp surgery waiting for a dressing while everyone else in life is able sit down no pain.

I see people at the pub sat down laughing having great time and there is me on my way to get a dressing done, makes me so depressed I just want be normal run around swim

I've had my share of moody nurse's as well not all nurse's are nice,

This is a massive lesson to everyone out there who has this disease get cleft lift done it turn you're life around for the better.
Yeh I know how you Feel it is quite depressing I’m going threw the same not to be able to sit down properly etc after finding this forum it has given me some hope without it I would of never known what I do now and never found out about miss senepati would probably gone with another failed attempt of surgery
 

Spokm34

Very Helpful
You will probably get to see her before me as you're wound is a larger and deeper wound then mine so when you do get to see her I'd love to know how it went and what she is like in person.

And how the operation went.
 

Unknown2

Very Helpful
You will probably get to see her before me as you're wound is a large deeper then mine so when you do get to see her I'd love to know how it went and what she is like in person.
I will keep you up to date hopefully I will get to see her soon I mean this pandemic is not helping at all
 

Spokm34

Very Helpful
I know they are seeing patients now at spire Portsmouth only waiting list for london.

Sadly private is £300 for a talk for 10 mins then make way home.
 
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Unknown2

Very Helpful
Turn back the clock and seen her in 2019 be fully healed right now, if you go private you can see her instantly at Portsmouth only. But it's 300 quid for a talk.
Yh I rather wait for nhs at st Mark’s £300 is a lot plus fuel probly cost me 4-500 altogether rather wait for nhs Appointment
 

Unknown2

Very Helpful
Just a update got a phone call this morning from pat senepati secretary she said I only deal with private said need to tell gp to send referral direct to hospital for nhs referral so I rang my gp to get appointment at st Mark’s but when they checked the system Portsmouth was only coming up so I told her to just book me in said there’s no available appointment at the moment and I am on there system now the wating time is approximately 98 days and will send me a letter with with who ever deals with appointment at Portsmouth getting somewhere I know it’s far but will be worth it pat did say she does see patients at st Mark’s but it’s once’s every 2 weeks hopefully when I see her I can persuade her to get op there
 

Unknown2

Very Helpful
I have been looking at motor homes lol might just help getting home after op £60 a day got bed in back so can lie down on way back it’s gona cost same if I get hotel might aswell get one of them
 

Spokm34

Very Helpful
I've spoke to pat too she wants me to fill out some paperwork but because I'm going private for the consultantation only my insurance company will pay her fee so if I do get to see her before you're 98 day's I will let you know how the appointment went i would only go private at the spire in Portsmouth if my insurance company pays for it if they refuse then it will be nhs I won't pay 2000 even if you can pay it back slowly over time still a debt that take ages.
 

Spokm34

Very Helpful
Also I returned to work today since 2 months off and it's a struggle to walk around warehouse with a dressing on but I'm getting there 5 more hours of pain to get through it's hell with this wound even if it is only small size of a pea wound
 

Unknown2

Very Helpful
I've spoke to pat too she wants me to fill out some paperwork but because I'm going private for the consultantation only my insurance company will pay her fee so if I do get to see her before you're 98 day's I will let you know how the appointment went i would only go private at the spire in Portsmouth if my insurance company pays for it if they refuse then it will be nhs I won't pay 2000 even if you can pay it back slowly over time still a debt that take ages.
Yeh you will get seen faster than me beacuse it’s private you’re insurance company should pay for it tho if they paying for consultation let me know how the appointment went
 

Unknown2

Very Helpful
Also I returned to work today since 2 months off and it's a struggle to walk around warehouse with a dressing on but I'm getting there 5 more hours of pain to get through it's hell with this wound even if it is only small size of a pea wound
Yeh walking is quite difficult even with me try speaking to your boss so he can get you to do something that requires less walking
 

Spokm34

Very Helpful
Trouble is axa are a shit insurance company for these type of wounds they didn't pay for some of my pico dressings that are 150 per dressing.

It's difficult to get companies like this to fork out if they pay for cleft lift it be a lotto win otherwise I will do it on the nhs.

I'm going to try push senapati to do the cleft lift at st Mark's hospital and explain that Portsmouth is just too far if something goes wrong if a slight knock on way home and my wound is bleeding i will be in trouble.

Or do what that other guy did couple of night's at travelodge close to the hospital so if you're wound is bleeding you can go there in an emergency but 4 to 5 hours going home is risky first day.

Very risky on first day for that long distance travel.

Even st Mark's ain't close to you so maybe a cheap travelodge there
 

Unknown2

Very Helpful
Yeh I know the distance is the issue but to be honest it’s got to be done no option no point going to a un experienced surgon Rather travel to see her and try get it at st Mark’s wich is a bit closer I checked on google maps and st Mark’s is 4 hours and Portsmouth is 4 and a half hours far but will be worth it in long run Why don’t you get it threw nhs then save u all the hassle get the consultation private then get nhs referral
 

Spokm34

Very Helpful
I think a lot of questions we will put forward to senapati.
1.we need to know how much pain after the operation will we struggle to walk 2 steps be in agony and not able to walk at all first few day's.

2. What is the drainage in place when does it come out.

3.is is possible to stay 1 night in the hospital for recovery incase of any leakage and blood. Might not be able to lift self up from the bed on day one. And how long will it bleed for will gp take the drain out.

4.revovery time how quickly can return to work.


I think all them questions senapati should be able to answer after cleft lift we will be able to sit in the cinema no pain on buttocks be able to sit in pub no pain on buttocks.

Able to go to theme parks
 
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Spokm34

Very Helpful
I hope cleft lift puts an end to all the painful walking around at work and general walks out and about cause this wound is causing me so much agony walking everywhere I really hope cleft lift fixes that and I'm able to walk pain free.
 

Unknown2

Very Helpful
I hope cleft lift puts an end to all the painful walking around at work and general walks out and about cause this wound is causing me so much agony walking everywhere I really hope cleft lift fixes that and I'm able to walk pain free.
Yeh this is the ultimate cure hopefully puts a end to this
 
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