AVOID General Surgeons

Hurt3

New Member
I had a second closed midline removal in February of this year (2013) at the tune of $15K from the University of Louisville Surgeons. My first procedure was in 2003, at the same facility, and the pilonidal was back (if it was ever gone) within 6 months. After 10 years of 2-3 courses of anitbiotics a year to deal with the infections I decided to have another surgery. I met with a general surgeon (again) and she assured me a simple removal in the midline with closed sutures would work. After the scar has healed I'm in worse shape than before and now have drainage both above and below the initial cyst (and the cyst looks to be in same place, so I'm not sure what the scar was actually from in the first place). I just visited a very knowledgable doctor in Chicago who has performed 150 cleft lift procedures; he explained the procedure and the details of my particular case in great detail. No rushing, no avoiding the different treatment options and no pressure. I feel like these general surgeons are not doing anyone any good when we all have to undergo repeated surgeries for a failed treatment option that we receive ONLY because the surgeon doesn't know the best treatment options.

I highly caution proceeding with any surgery with a general surgeon who refuses to explain your particular case. Had I not been so ready to get the surgery over with I would have asked 1) How many patients the surgeon had treated for pilonidal, 2) what his/her experience is for success with the different treatment options and 3) How many of this particular surgery has the surgeon done? If your surgeon can't answer or refuses to answer then BEWARE, there are thousands of doctors out there, you can find an experienced one who isn't just looking to increase his/her bottom line.

We all know lawsuits don't work for bad judgment calls, so we just have to avoid and spread the word that these people aren't doing us any favors.

I have a cleft lift scheduled in August and will provide an update. I'm hope the third time's a charm.
 

Hurt3

New Member
I'm not healthcare specialist, but I haven't found any true "general surgeons" who know much about cleft lifts, do they not typically specialize?
 

LILLY

Very Helpful
The problem is there is no such thing as a pilonidal specialty. Many people are misled to think that a colorectal surgeon is a pilonidal specialist simply because of the area of the body they work with. When we on this forum speak of an expert in pilonidal we are typically referring to someone who is trained in the Bascom techniques. This is a differentiation we have made not the medical community. My son's cleft lift was done by an amazing general surgeon who has done hundreds of successful cleft lifts. That is why I feel it is misleading to tell people to avoid general surgeons. It's not the specialty of the surgeon it's the surgery they perform that counts.
 

PolarBear

New Member
My son is having cleft lift surgery in 3 days. We found a surgeon on the list provided on this website. He is a general surgeon who is experienced performing cleft lift procedures and we have discussed the options at length with him. We both feel good about his capabilities. There is a colo-rectal surgeon nearby, but she has received numerous negative reviews. I'll post back after his surgery and I hope it is a good outcome for my son!
 

PolarBear

New Member
Hi JoJo,
My son had his surgery 3 weeks ago and he is doing great. Better than we expected! He had cleft lift surgery with a general surgeon who was experienced performing this specific surgery. I know some of you feel that general surgeons should be avoided, but I believe you need to find someone experienced with the procedure. We asked about his experience, he showed us exactly how he performed the surgery and what to expect, and we discussed the risks. He said that he generally advises a more conservative approach, pit picking or similar, but given the many reoccurences of my son's abscess/cyst he understood our desire to have the cleft lift. Before and right after surgery he explained everything to us and it went well. It turned out there were six "pits" and he was able to remove the necessary tissue and make the cleft lift repair. This was on a Tuesday and my son was up walking within a few hours after coming home. He returned to school 15 days later, and he says that sitting is fine. If anyone has any questions/concerns, feel free to contact me on this forum.
 

LILLY

Very Helpful
PolarBear that's great news!

Jojo55, I just wanted to be clear, if you want a cleft lift it's best to confirm even before a consultation that the surgeon performs the surgery. The odds of randomly running into a cleft lift surgeon are very slim.
 

cmsagirl

New Member
I'm not healthcare specialist, but I haven't found any true "general surgeons" who know much about cleft lifts, do they not typically specialize?

I'm close to the louisville area, when i had my surgery it was from a general surgeon. NOT good experience. my second surgeon was also a general surgeon but he didn't do any work on me. Hurt3, how are you doing now? any updates?
 

liliya

New Member
Hi JoJo,
My son had his surgery 3 weeks ago and he is doing great. Better than we expected! He had cleft lift surgery with a general surgeon who was experienced performing this specific surgery. I know some of you feel that general surgeons should be avoided, but I believe you need to find someone experienced with the procedure. We asked about his experience, he showed us exactly how he performed the surgery and what to expect, and we discussed the risks. He said that he generally advises a more conservative approach, pit picking or similar, but given the many reoccurences of my son's abscess/cyst he understood our desire to have the cleft lift. Before and right after surgery he explained everything to us and it went well. It turned out there were six "pits" and he was able to remove the necessary tissue and make the cleft lift repair. This was on a Tuesday and my son was up walking within a few hours after coming home. He returned to school 15 days later, and he says that sitting is fine. If anyone has any questions/concerns, feel free to contact me on this forum.
Hi PolarBear,I'm sorry for bothering,which surgeon perform in Salt Lake City?Thanks in advance
 

auntduke

New Member
Hi JoJo,
My son had his surgery 3 weeks ago and he is doing great. Better than we expected! He had cleft lift surgery with a general surgeon who was experienced performing this specific surgery. I know some of you feel that general surgeons should be avoided, but I believe you need to find someone experienced with the procedure. We asked about his experience, he showed us exactly how he performed the surgery and what to expect, and we discussed the risks. He said that he generally advises a more conservative approach, pit picking or similar, but given the many reoccurences of my son's abscess/cyst he understood our desire to have the cleft lift. Before and right after surgery he explained everything to us and it went well. It turned out there were six "pits" and he was able to remove the necessary tissue and make the cleft lift repair. This was on a Tuesday and my son was up walking within a few hours after coming home. He returned to school 15 days later, and he says that sitting is fine. If anyone has any questions/concerns, feel free to contact me on this forum.
 

auntduke

New Member
I am in so much pain. I live in Arkansas and so far I don't have much luck with Drs here. I have a malformed tailbone I was told as a teenager. I was told mine is straight not cured. It did not cause pain until I took a job as a surgery scheduler and there was only two of us for the entire surgerical department. One person off and you sat from 8 am till 5 or 6 pm. No breaks period . That is when this started I had never heard of a pilional cyst. I had hemorrhoid removal inside and out and rectocele repair. It was the most painful surgery ever. I had no idea their is so many nerve endings in the butt area. I have fibromyalgia so I though I was used to pain. Not even hardly. When you break into a sweat thinking about going to the bathroom and pain runs down your legs to your toes when you number 2 it is he'll on earth.
Now I have this cyst that showed up on CT. I have been using a coccyx pillow the last two years I was at the job I can't work now because of this and memory loss from a stroke.

Can someone that has used a great Dr in arkansas and or Memphis please give me some names. Or I will have to fly to Texas to houston.

Sorry so long help!!!!
 

Jojo55

Helpful
I am in so much pain. I live in Arkansas and so far I don't have much luck with Drs here. I have a malformed tailbone I was told as a teenager. I was told mine is straight not cured. It did not cause pain until I took a job as a surgery scheduler and there was only two of us for the entire surgerical department. One person off and you sat from 8 am till 5 or 6 pm. No breaks period . That is when this started I had never heard of a pilional cyst. I had hemorrhoid removal inside and out and rectocele repair. It was the most painful surgery ever. I had no idea their is so many nerve endings in the butt area. I have fibromyalgia so I though I was used to pain. Not even hardly. When you break into a sweat thinking about going to the bathroom and pain runs down your legs to your toes when you number 2 it is he'll on earth.
Now I have this cyst that showed up on CT. I have been using a coccyx pillow the last two years I was at the job I can't work now because of this and memory loss from a stroke.

Can someone that has used a great Dr in arkansas and or Memphis please give me some names. Or I will have to fly to Texas to houston.

Sorry so long help!!!!
Dr Hienke in Nashville
 

Jojo55

Helpful
Polar Bear so glad your son is doing great ! Cleft lift is the way to go with the first surgery and hopefully it will be the last . My son is 2 years out now and the scar is barely visible . Good doctors are hard to find in Alabama much less a surgeon to do a cleft lift they just like to cut out cyst and leave a whole !
 
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