Cleft Lift Surgeons - USA

MTpilo

New Member
Good Afternoon,

The first two doctors checked in Great Falls MT have reported that they preform the cleft lift procedure. I find this unlikely since the only one listed on the surgical sheet is in Billings. However I have an office visit scheduled with one next week and plan on using some of the other provided "Cleft Closure" or "Bascom Procedure" language. Is there anyway to know for sure that they indeed do the correct procedure? Has anyone else had this difficulty?

I have previously had drains and a pit pick done FYI.

Thank you!
 

Thomas123

New Member
I had cleft lift surgery on September 26th with Dr. Melinda Hawkins in Seattle, WA. She is a colleague of Dr. Bastawrous, who is already on the list, and she is a Board-Certified Colon and Rectal Surgeon. She was the only doctor to correctly diagnose and operate on me, and I saw 4-5 other doctors before that. Though I'm not quite out of the woods yet, I think she's done a really good job so far, and she's the only doctor I trust to handle this issue. She's very knowledgeable, nice, compassionate, and confident, but she also has a no-BS style. She doesn't sugar-coat things from what I've seen. She has the same contact info and is based out of the same office at Swedish as Dr. Bastawrous on the list.
Hi there,

How have you recovered since your sx? I’m wanting to schedule a consultation with Dr. Hawkins myself. My case seems to sound “complicated”, as I have 2 open/draining pits with one being near my anus...
 

Ann Haas

New Member
The colorectal surgeon Dr Elisa Birnbaum (Colorado) is on the list for doctors performing Cleft Lift. I don't see any post by anyone using her and having successful Cleft Lift surgery? Please post if you have been treated by Dr Birnbaum and what procedure was done.
 

Ann Haas

New Member
Due to the increasing number of people looking for information on surgeons who are performing the Cleft Lift (or have at least heard of it), we are providing the list in PDF format. The list will be updated as new names are added. Please note that the names in RED are those surgeons that we KNOW to be practicing Cleft Lifts successfully. The others are known to only have requested info on the procedure.

http://www.pilonidal.org/treatments/find-a-surgeon/


Help us keep the list up to date! If you call someone on the list and find them retired or moved, let us know! Likewise, if you find a surgeon who is doing Cleft Lift and isn't on our list, let us know.
Hi Sasha, I was wondering if there is a reason that Dr Audet (Colorado) is no longer on the list of surgeons doing pit picking and/or cleft lift. My condition has been in remission for a few years, but has now returned. I see that Dr Elisa Birnbaum has been added, but I can't find any patient responses for treatment with her.
 

DanAub

New Member
I tried contacting Dr. Audet and they say she is just a trauma surgeon and you cannot make an appointment to see her. I don't know anything about Dr. Elisa Birnbaum. I wish there were some testimonies by people who have seen her.
 

Ann Haas

New Member
I tried contacting Dr. Audet and they say she is just a trauma surgeon and you cannot make an appointment to see her. I don't know anything about Dr. Elisa Birnbaum. I wish there were some testimonies by people who have seen her.
Hi DanAub,
Have you had any success finding any Colorado surgeons who do cleft lift? I'm considering going to Immerman in Wisconsin or Bascom in Oregon
 

DanAub

New Member
Hi DanAub,
Have you had any success finding any Colorado surgeons who do cleft lift? I'm considering going to Immerman in Wisconsin or Bascom in Oregon
No I haven't. I believed he does a closed procedure which is better than letting the patient have an open wound.
 

Mandrea

New Member
Dr Paul Harper in Londonderry, NH is no longer in practice..I believe since 2017.
Called his office line to make sure, and it’s not a working number. Please remove. It will give people false hope. If your child is under the age of 18, and they haven’t had surgery for a Pilonidal Disease and live in New Hampshire, they should visit Dr Elizabeth Soukup at Elliot Hospital in Pediatric Surgery. She did Pit Picking on my son. She also performs Cleft Lift for advanced cases.
 

vict0ar

New Member
Has anyone had a successful experience with any doctors in Cleveland that they would like to share? Also a Mom looking for a good outcome for her son.
hi! did you ever find someone good in Cleveland? thank you!

Looking for the same.

Saw Amitabh Goel at UH Geneva since he was on this list of surgeons on this forum. In general I try to avoid bashing people and I was going to stay silent on this but given how my situation unfolded I think its appropriate to share.

I saw Goel in 2012 when it appeared I was starting to get a sinus. He said to just keep it clean and dry. Wash it twice and day and apply baby powder. Also gave me a month of antibiotics.

So I was not the best patient. I shower daily and applied baby powder most days but I wasnt extremely vigilant. Still I shower every day unless theres a special reason such as camping or whatever.

Fast forward to Feb of this year and this thing is giving me trouble with 2 sinuses and nasty abscesses. I see Goel again figuring its time for some sort of surgery. He acts like surgery is ludicrous and tells me to keep it clean and dry and it will go away. More antibiotics too. He halfway blames me for not being clean enough.

I should have sought a second opinion right then. I didnt because of his demeanor of confidence and dismissiveness about the potential for surgical necessity.

Just had another nasty flare up that prompted me to go to the ER and a general surgeon cut 2 abscesses so they could drain and put me on antibiotics. Said I needed surgery very soon and it was the only option. Said the condition was advanced and that my only option is some sort of barbaric surgery where I have an open wound for 8 weeks that needs packing.

I am hoping that such a medieval technique is not the necessary case and some of the less invasive techniques will work. I am trying to find a Dr that will take care of it soon but its hard in NE OH area and with Covid going on.

My issue with Goel is that I think he was very wrong about me needing surgery and his attitude dissuaded me from exploring that option more thoroughly. In general, I do not get upset about bedside manner and I would prefer honesty and directness over politeness, especially if it is coupled with competence.

Now I am concerned that I am not eligible for some of the less invasive options given that I have sinuses on each side. Certainly if I would have pursued surgery in 2012 I would not be in this position but perhaps even in Feb I could have avoided this.

I was set to see Dr Rosengart in Pittsburgh but he canceled appointments due to Covid. They rescheduled me with Dr Jason Sperry at the same facility. I am not sure if he deals with Pilonidals as I cant find information on that.

So as a conclusion, and a reiteration, Amitabh Goel is listed as a viable surgeon on this website but from my experience he is reluctant to recommend a surgical route.

And to be clear, I certainly own a lot of the blame. I could have sought another doctor immediately, and that is why I am writing this post, to recommend you all do so. And I could have been more vigilant with cleaning, although I dont think washing and applying baby powder multiple times a day for the rest of my life is a reasonable way to live.

So finally, if anyone has doctor in OH PA or IN that would be awesome.
 
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