Have you had the Cleft Lift?

blue.sunshine

New Member
Good evening all.... I'm new to this site, found it a few weeks back when I was researching my pain (we all know 'that pain') & I came across the terminology/ condition, and then this website. My PS has chilled down, I consider myself extremely lucky! I have not had any surgeries or lancings, mine just drained naturally & it was not even that extreme to begin with. I believe this is my first obvious flare up. I know I am very fortunate, as I was not forced into immediate surgery. To me (and I'm sure to most of of us on here), living a pain free life is the most important thing. I do not necessarily want to have surgery (for obvious reasons such as recovery time/ medications/ down-time/ complications, etc)......but who knows what the future might bring w/ my PS. I'm taking the time now that I can, to get a few consultations w/ different Drs. & research as much as I can, which includes getting feedback from others who've had a Pilo & ways in which they either manage, or have treated it.

So far, the cleft lift is looking like the surgery with the quickest recovery, lowest recurrence, & all around best results. This website is tricky...some posts are a few years old with members long gone. I don't blame anyone though as this condition is not one I'd want to revisit once recovered lol. :D I guess my question is, has anyone reading this had the cleft lift, and what was your experience & results?? Even if you had it 20yrs or 20 days ago, I'm open to all & any feedback (good & bad). My main questions evolve around healing/recovery, & any side effects from it such as continued pain at the scar, recurrence, or mobility. Or anything else from your personal experience you'd like to share. FYI, I'm not concerned with scarring in an appearance sense, but more curious if the surgery would inhibit mobility or cause any long-term pain. I'm not jumping into any surgeries yet, but more or less want to be prepared if I have to.....

Or, if you posted your story on here & can link me up to it....there's so much to this site I am still uncovering.

Thanks in advance. I know all of our situations, bodies & experiences are unique so I'm grateful for all replies !
I hope everyone is well~
 
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Wais1

New Member
Hi ... what therapy’s have you tried to make the wound heal without cleft ... for example right now I’m looking in light therapy device and laser therapy device which help the wound heal ... like the ones they use for shoulder injuries and back injuries as well ... a device called b cure laser has had clinical trials on it ... maybe that’s a good idea ?
 

blue.sunshine

New Member
Hi Wais1 - As of now my wound is not closed up fully. I believed it was a sinus but that was confirmed by a Dr. I have only been doing my regular daily showers (I did this anyway even before the cyst), but now I add to that some extras like witch hazel (Tucks) pads/wipes, sitz baths every day or other day, & also wipe the area with Stridex acne wipes. It seems to keep the area clean, dry & uninfected. This is just my particular case though.

I have only just begun researching surgical options, as this is totally new to me. I was told the cleft lift is the best one for me, should I get one. As of now I'm still monitoring my cyst/sinus & how it responds. I heard about the laser therapy, but just confirmed w/ my Pilo surgeon that he does not see much benefit from it & is not satisfied with the results. From what he told me, it's a newer technique but has potential for recurrence b/c it does not remove all the damaged tissue. I never heard of the light therapy, that's interesting though. Can you send me a link on that?

I truly do believe though, after all my research so far, the cyst will never go away. I think it either just stays dormant & some people manage to live with it that way.....or it becomes too much pain wise, etc & must be removed.

I wish they had less invasive options to treat it. I was hopeful laser surgery could be used on mine (it seems logical), but was told the opposite ;/
Again feel free to share your links on the laser & light therapies you came across...it would be interesting to see.

If you're curious about the ways I've been managing it, you can check out my blog here: https://www.pilonidal.org/xfforums/...eatments-in-pennsylvania-or-in-general.15189/
 
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