Is this a Pilonidal cyst?

#1
About 6 months ago, i noticed a small round lump at the top of my butt crack (lower back), and it disappeared in 2 weeks from my noticing it. No doctor visit.

Now 6 months later, its back, and its horrendously painful in itself, as well as an imaginary line from it round my left buttock to my hip which is painful to the touch. Sitting is the most comfortable position, standing is bearable, but moving between teh two and lying down either on my back or sides is painful. No drainage of anything as far as i know, but it smells pretty bad. I am going to the doc today so will find out soon. Have tried all sorts of things to get rid, like germolene (with the local anasthetic, which DIDNT work at all), Sudocrem (Antibacterial), salt water, etc, but nothing seems to shift it.

Since I have college starting back on the 10th of june, what do you think the Doctor will suggest? Antibiotics? Lancing? Removal?

If surgical intervention is required how common is Spinal Anasthesia in the NHS?

I'd rather not be put under, since after having an op under general 8 years ago, I have a slight phobia of being unconcious.

Cheers!
 
#2
What did your doc say? Is it pilonidal, in his opinion?
 
#3
She said it could just be an abcess rather than a pilonidal cyst, so she put me on high dose antibiotics (Amoicillin + Flucoxacillin) for a week to see if it resolves, otherwise its a referral to the hospital to get it surgically removed.
 
#4
Hi,

I think it would be worth you getting a second opinion here - I was diagnosed as just having a cyst and was given antibiotics - since then I've had seven!!! I'm due to have surgery on July 1st.... If you feel it could be more it's worth getting referred so you can be treated asap and not have to wait 6 months like me!

Cheers
 

Dawn1

New Member
#5
UkDude

I agree with Larajb!

One of the problems with PS is that even though it is apparently a common problem, not a lot of doctors actually know a lot about Pilonidals :rolleyes:

I had 3 seperate GPs tell me that mine probably wasnt Pilonidal - i had my surgery 5 weeks ago - and mine was indeed Pilonidal!!

When i spoke with my surgeon before the op, i told him my docs had said they didnt think it was , and he said that in reality whether it is or isnt is irrelevant as it still needs to be treated in the same way, the only way to tell is by testing it once it has been removed

On a brighter note - as there are a lot of horror stories on here regarding operations and healing - i had excision with open healing just over 5 weeks ago and i am fully healed which is amazing. Hopefully i wont have to but if i did id opt for the surgery over the pain of a flare up a million times over (fingers and toes crossed that i wont though!!) :)

When you go back to your GP, i would definitely ask for a referrral - and if you can ask for one to a colon & Rectal Specialist as these are the guys who know what they are talking about!!

Regarding the Spinal rather than general - you would have to check in with your surgeon about that and possibly your GP may know!!

Hope this helps a little
 
#6
Dawn1;57930 said:
UkDude

I agree with Larajb!

One of the problems with PS is that even though it is apparently a common problem, not a lot of doctors actually know a lot about Pilonidals :rolleyes:

I had 3 seperate GPs tell me that mine probably wasnt Pilonidal - i had my surgery 5 weeks ago - and mine was indeed Pilonidal!!

When i spoke with my surgeon before the op, i told him my docs had said they didnt think it was , and he said that in reality whether it is or isnt is irrelevant as it still needs to be treated in the same way, the only way to tell is by testing it once it has been removed

On a brighter note - as there are a lot of horror stories on here regarding operations and healing - i had excision with open healing just over 5 weeks ago and i am fully healed which is amazing. Hopefully i wont have to but if i did id opt for the surgery over the pain of a flare up a million times over (fingers and toes crossed that i wont though!!) :)

When you go back to your GP, i would definitely ask for a referrral - and if you can ask for one to a colon & Rectal Specialist as these are the guys who know what they are talking about!!

Regarding the Spinal rather than general - you would have to check in with your surgeon about that and possibly your GP may know!!

Hope this helps a little

I don't know how long AB's take to start working -- but the pain is certainly getting reduced by them, although the inflammation is spreading up my lower back under the trouserline (so wearing jeans is a big nono).

I'll be going back to my GP surgery tomorrow and see a different doctor to get a second opinion, cheers all!
 
#7
UkDude;57953 said:
I don't know how long AB's take to start working -- but the pain is certainly getting reduced by them, although the inflammation is spreading up my lower back under the trouserline (so wearing jeans is a big nono).

I'll be going back to my GP surgery tomorrow and see a different doctor to get a second opinion, cheers all!
Update:

Last night i was in agony. First it got incredibly itchy, for about 3 hours, then went through burning/stabbing pain for the rest of the night. I got up at 5am to see if it was going to burst and was met by not 1 but 2 heads on the side of my abscess in my natal cleft. Went back to bed, and woke up at 1pm feeling soggy -- pus was EVERYWHERE, and the smell I cant explain in words. It's been draining on and off ever since, mostly pus but sometimes pus + blood.

I hope now that as the abscess is smaller, flatter, and MUCH less painful, the antibiotics will take care of it. *hope*
 

Dawn1

New Member
#8
Hi UkDude

Did you go back in and see a doctor today? The antibiotics are really only ever used to control the infection they cant / wont help to heal the actual cyst. Now that it has burst (the smell is disgusting isnt it?!) getting rid of all the bad stuff , the abscess should disappear and you should have no pain. The problem being that it is still actually there, lurking under the skin.

I would definitely seek medical advice as the only way to get rid of this for good is via surgery - which is a scary thought, but believe me is well worth it!!

Glad you are feeling better :)
 
#9
Dawn1;57961 said:
Hi UkDude

Did you go back in and see a doctor today? The antibiotics are really only ever used to control the infection they cant / wont help to heal the actual cyst. Now that it has burst (the smell is disgusting isnt it?!) getting rid of all the bad stuff , the abscess should disappear and you should have no pain. The problem being that it is still actually there, lurking under the skin.

I would definitely seek medical advice as the only way to get rid of this for good is via surgery - which is a scary thought, but believe me is well worth it!!

Glad you are feeling better :)
I didn't manage to see a doc unfortunately, no appointments left. But since this is the first flare up i may wait until it does it a second time for surgery unless they say differently when i go back at the end of my antibiotics course.

I've also got a bit more involved with the draining -- applying a bit of pressure really does get a lot more out (filled 4 personal size clinical waste bags with pus soaked bog roll), and it being almost empty I can sit stand and lie down properly (on my back!).

Glad it's cleared :p
[x0x][x0x][x0x]
 
#10
Just a hint for next time - if you can't get an appt with a doctor you can ask for an emergency appt or ask to see a nurse. Nurse appt's are much easier to get on the day, and they'll grab one of the GP's if they feel it needs to be seen by a doctor. It's a sneaky way round the system but I've found it helps when I need to see a doctor and there are no appt's left!! :)
 
#11
natabz;57968 said:
Just a hint for next time - if you can't get an appt with a doctor you can ask for an emergency appt or ask to see a nurse. Nurse appt's are much easier to get on the day, and they'll grab one of the GP's if they feel it needs to be seen by a doctor. It's a sneaky way round the system but I've found it helps when I need to see a doctor and there are no appt's left!! :)
I never knew about nurse appointments, thought you got referred to them via a gp.

Regarding emergency appointments, i'd rather leave them for people with an emergency ;)
 
#12
Lol fair enough, I totally understand about the emergency appt thing too, I always feel like a fraud but my gp has insisted I get an emergency as soon as it flares up, or phone her and she'll call me back to discuss it. Yep nurse appt's are much easier - they don't tell you tho, do they?? It's such a learning curve using the NHS!! ;)
 
#13
Ukdude,

I've had 7 of these now and am being operated on in 3 weeks...

I agree with natz the nurses appointment are great cos they can dress the wound and check everything is OK and a doctor is rarely needed.

I think the first time mine burst there was a lot of blood and pus but the next ones there were hardly any so if you get another one don't worry too much about the stuff...

Also might be worth getting some dressings and saline solution at home so you can clean the wound properly... I'd use gauze rather than loo roll as loo roll can break into tiny peices and leave stuff in the open wound...if you get my drift!

Anyway good luck, I hope you don't get another one!

Lara
 
#14
Yep totally agree with Lara - although you can ask for gauze and saline from the nurses at ur appointment, they'll give it to you free!! :)
 
#16
Larajb;57979 said:
Ukdude,

I've had 7 of these now and am being operated on in 3 weeks...

I agree with natz the nurses appointment are great cos they can dress the wound and check everything is OK and a doctor is rarely needed.

I think the first time mine burst there was a lot of blood and pus but the next ones there were hardly any so if you get another one don't worry too much about the stuff...

Also might be worth getting some dressings and saline solution at home so you can clean the wound properly... I'd use gauze rather than loo roll as loo roll can break into tiny peices and leave stuff in the open wound...if you get my drift!

Anyway good luck, I hope you don't get another one!

Lara
Loo roll isnt thebest thing to use, but since the wound isnt open i'm not really bothered with it.

Clean it every so often with Dettol (1 cap to 1 pint warm water)
 

Sasha

Administrator
Staff member
#18
natabz;57982 said:
Haha, I think us UK members should write a 'Guide to dealing with a Pilonidal using the NHS' . . .

I think it's a great idea. Start a thread and I'll sticky it :)
 
#20
Well, antibiotics are finished, and the skin on top of where the abscess was has dried up and peeled away (really nice...)

However, its completely pain free, and apart from the new skin growing and the small hard mass you wouldn't have known it was there.

Going to the docs tomorrow to get it checked to see whether I need the crap excising from it... :(
 
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