My pilonidal Cyst

Kizzy

Very Helpful
#2
Well it looks better than mine if that's any consolation! Excisions vary hugely so it's hard to say but in some ways the more they excise, the more successful it is likely to be. Packing the wound isn't fun but you soon get used to it.

Good luck and keep us posted.
 
#3
Getting my surgery(excision with general anesthesia) done Monday morning...hpe it goes well and my surgeon says no packing necessary, clean it with water twice a day
 
#5
Surgery done, could walk without pain, 36 hours and no pain as yet, Doc said no complications

Hurt a little while changing the packing, bigger hole than I expected , doc seem to have removed the pits and the sinus
 
#7
Went to the wound care specialist, she said the excision is 2.5L x 1.5B x 2.75D inches and is healing well. She gave me the silvercel non-adherant gauze to pack, adviced me to pack once a day and do sitz bath. Also she adviced me not to sit and if I have to, seat one bum on a pillow
 
#11
I took pics about every week.

http://mytumor.wordpress.com/

You can scroll through them, seems yours was much smaller than mine, My packaging was soaked everyday also. I used aquacell and it seemed to work well. I used very little pain management.

For sitting and lying on my back, I used a swimming pool ring float that seemed real comfortable at the time. Never forget when I received it a week after surgery. It was like heaven....
 
#15
Hi Noridge,
Just wondering who did your initial surgery and who you are working with now? Have you have a recent surgery and how is it going. We just scheduled a surgery (cleft lift) for my son with Dr. Isho. Did you end up using him? If so, how did it go and how are you doing now?
 
#16
Hi Noridge,
Just wondering who did your initial surgery and who you are working with now? Have you have a recent surgery and how is it going. We just scheduled a surgery (cleft lift) for my son with Dr. Isho. Did you end up using him? If so, how did it go and how are you doing now?
My first surgery was an open excision and it was performed by Dr Arthur Sanford in Scripps LaJolla in 2011. I had a textbook recovery until it relapsed in 2017. I did go to Dr Isho several times to pop the abscess and for followups and I think he was more knowledgeable about the disease than most other surgeons. He even lists performing Bascom procedures for pilo as one of his specialities. He is a confident Dr and I kinda liked him, but I am currently looking for ones that do GIPS and since he is not the easiest to talk to I was not confident whether is does GIPS. So I have not gone back to him yet. Also, I am 34 male

Some Q for you.
1. Why are you looking for cleft lift when GIPS maybe a solution?
2. How many cleft lifts (and GIPS?) does Dr Isho perform a year?
3. Try getting in touch with Dr Stephen Yoo https://healthy.kaiserpermanente.org/southern-california/physicians/stephen-yoo-7368760. HE seems to have replied in pilo.org and he does pit picking. HE is in Kaiser now and I do not have Kaiser, but it is still possible to get a MRN # from Kaiser and directly paying cash. He is in SoCal
4. Get in touch with Dr Aaron Lipskar in NY pediatric surgeon, he does only GIPS, if possible travel to NY, or get info on SD pediatric surgeons info from him. HE answers Q over email.
5. Can you travel to ORegon to Bascom's office. HE also interacts over email and phone

If you need more info from me, you can also PM me

cheers
Harish
 
#17
My first surgery was an open excision and it was performed by Dr Arthur Sanford in Scripps LaJolla in 2011. I had a textbook recovery until it relapsed in 2017. I did go to Dr Isho several times to pop the abscess and for followups and I think he was more knowledgeable about the disease than most other surgeons. He even lists performing Bascom procedures for pilo as one of his specialities. He is a confident Dr and I kinda liked him, but I am currently looking for ones that do GIPS and since he is not the easiest to talk to I was not confident whether is does GIPS. So I have not gone back to him yet. Also, I am 34 male

Some Q for you.
1. Why are you looking for cleft lift when GIPS maybe a solution?
2. How many cleft lifts (and GIPS?) does Dr Isho perform a year?
3. Try getting in touch with Dr Stephen Yoo https://healthy.kaiserpermanente.org/southern-california/physicians/stephen-yoo-7368760. HE seems to have replied in pilo.org and he does pit picking. HE is in Kaiser now and I do not have Kaiser, but it is still possible to get a MRN # from Kaiser and directly paying cash. He is in SoCal
4. Get in touch with Dr Aaron Lipskar in NY pediatric surgeon, he does only GIPS, if possible travel to NY, or get info on SD pediatric surgeons info from him. HE answers Q over email.
5. Can you travel to ORegon to Bascom's office. HE also interacts over email and phone

If you need more info from me, you can also PM me

cheers
Harish
I'm so sorry I haven't answered your reply! We had a death in the family and then I was having trouble finding your reply. Thank you for all of your information. My son has his surgery scheduled for next week with Dr. Isho. After interviewing him extensively we felt like the best procedure for our son's situation was the Cleft Lift. I hope that turns out to be the case. There is also another Dr. in SF who does the Cleft Lift and also the pit piking and is supposed to be very good. But he doesn't take our insurance. His name is Dr. Sternberg. People travel all over to go to him as well. We are in a bit of a bind because my son is currently on our insurance but turns 26 in the beginning of July and just finished classes a few days ago so we had a very short window of opportunity to get him in for surgery. I've been doing the research on doctors because my son's in school and working full time and has been traveling too. Dr. Isho talked about the different procedures and after all the info. we decided this procedure would be more thorough and hopefully more successful at getting rid of the problem once and for all. I may be naive, after reading things on this site.

How have you been feeling and are you still thinking you may not have the surgery?

Sincerely,
Cynthia
 
#18
My first surgery was an open excision and it was performed by Dr Arthur Sanford in Scripps LaJolla in 2011. I had a textbook recovery until it relapsed in 2017. I did go to Dr Isho several times to pop the abscess and for followups and I think he was more knowledgeable about the disease than most other surgeons. He even lists performing Bascom procedures for pilo as one of his specialities. He is a confident Dr and I kinda liked him, but I am currently looking for ones that do GIPS and since he is not the easiest to talk to I was not confident whether is does GIPS. So I have not gone back to him yet. Also, I am 34 male

Some Q for you.
1. Why are you looking for cleft lift when GIPS maybe a solution?
2. How many cleft lifts (and GIPS?) does Dr Isho perform a year?
3. Try getting in touch with Dr Stephen Yoo https://healthy.kaiserpermanente.org/southern-california/physicians/stephen-yoo-7368760. HE seems to have replied in pilo.org and he does pit picking. HE is in Kaiser now and I do not have Kaiser, but it is still possible to get a MRN # from Kaiser and directly paying cash. He is in SoCal
4. Get in touch with Dr Aaron Lipskar in NY pediatric surgeon, he does only GIPS, if possible travel to NY, or get info on SD pediatric surgeons info from him. HE answers Q over email.
5. Can you travel to ORegon to Bascom's office. HE also interacts over email and phone

If you need more info from me, you can also PM me

cheers
Harish
Hi Harish,

Dr. Isho did kind of a combo of Bascoms/GIPS and Cleft Lift. My son's PC wasn't terrible at the time of the surgery, thankfully, and Dr. Isho ended up not leaving in a drain and he closed the surgery with dissolving sutures inside and surgical glue on the outside. Not even any bandages or packing to change! It was NOT what we were expecting after everything I had researched. My son is 4 days out and doing pretty well so far. Not a ton of pain. Just some pain on movement and his back is sore from sleeping weird because of the incision. He had the surgery on Thursday and was the most sore on Saturday. All the injected meds had worn off and that's just how surgery tends to be. I haven't talked to him today but yesterday he was doing pretty darn well! I hope it stays like that. Dr. Isho seems to know his stuff. Not the most polite guy. He acted like we were idiots when we'd ask a question but he does seem to have a good handle on this pilonidal problem. He liked my son but was kinda rude to my husband and me. I'm not one to let a dr. intimidate me after caring for my father for so many years so I just kept asking my questions and ignored his attitude. But like I said, he was good. At least so far, the surgery seems to be pretty amazing. I was really expecting a lot more of a nightmare wound and recovery.
 
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