On The Verge of the Cleft Lift....

#1
I could probably write a book about my past 6 years with this thing on my butt, but I'll try to keep this short.

6 years ago I noticed itching and a smell coming from my backside. Turns out it was a pilonidal cyst (betcha didn't see that coming). I had a closed incision surgery. Like most, this didn't end up working and I had to go back for a 2nd surgery. I made a big mistake of getting the same exact operation done, but this time by a different doctor. Still no luck. I was left with a hole in my butt. I ended up getting a wound vac (terrible experience) and had that for about 2 months. When that was finally taken out the wound was less than a cm big and I thought I had finally put this behind me (no pun intended).

Fast forward years later, I never wanted to think about this wound. I didn't want to look at it or anything. I just would rinse it when I would shower and that's it. I figured it would heal up on its own. The amount of mental turmoil this caused me was unbearable and I didn't want to have anything to do with it. This was NOT a good idea. The wound ended up opening up even more and another portion opened up higher up in my cleft.

I've been cleaning and dealing with this open wound now on my backside for 6 years and I'm fed up. I don't want to get surgery because of the depression I fell in the last time but I know the dangers of leaving an open wound for this long can't be good. I want to get the almighty cleft lift to finally get rid of this thing but I'm terrified.

Does anyone have any advice and words of encouragement for finally facing the cleft lift?
 

JonH21

Very Helpful
#2
I could probably write a book about my past 6 years with this thing on my butt, but I'll try to keep this short.

6 years ago I noticed itching and a smell coming from my backside. Turns out it was a pilonidal cyst (betcha didn't see that coming). I had a closed incision surgery. Like most, this didn't end up working and I had to go back for a 2nd surgery. I made a big mistake of getting the same exact operation done, but this time by a different doctor. Still no luck. I was left with a hole in my butt. I ended up getting a wound vac (terrible experience) and had that for about 2 months. When that was finally taken out the wound was less than a cm big and I thought I had finally put this behind me (no pun intended).

Fast forward years later, I never wanted to think about this wound. I didn't want to look at it or anything. I just would rinse it when I would shower and that's it. I figured it would heal up on its own. The amount of mental turmoil this caused me was unbearable and I didn't want to have anything to do with it. This was NOT a good idea. The wound ended up opening up even more and another portion opened up higher up in my cleft.

I've been cleaning and dealing with this open wound now on my backside for 6 years and I'm fed up. I don't want to get surgery because of the depression I fell in the last time but I know the dangers of leaving an open wound for this long can't be good. I want to get the almighty cleft lift to finally get rid of this thing but I'm terrified.

Does anyone have any advice and words of encouragement for finally facing the cleft lift?
If you find an experienced doctor who knows what they are doing, it will be a life changer. Dr. Immerman did mine and he is one of the best in the country. I had a bad case too with multiple failed ones before. The initial first few days are not fun, but it gets better each day. You can see my recovery log here if you want an example of recovery.

https://www.pilonidal.org/xfforums/index.php?threads/cleft-lift-5-15-18-recovery-log.14319/
 
#3
Hi there! I've been dealing with it since I was 17, I'm 22 now. After years of it coming and me getting it lanced 6-8 times putting off any surgery because I was just too afraid. Went through every miserable lancing in the ER and a surgeons office. The surgeons in this small town I live in wanted to do the open wound, I absolutely refused to get that. (I don't think I could ever handle that mentally or physically) About two months ago it came back again, I got it lanced and the lancing was deep (I had a week of packing the wound from the lancing, never had to pack it like that after a lancing before) then after a week after getting it lanced it came back again, I went to the ER after being in miserable pain from it being an active cyst, they said it wasn't ready to be lanced because it was hard and not squishy, gave me strong antibiotics (as always) but this time the antibiotics made it pop on its own (thats never ever happened in all these years)
I went through all the hoops my health plan made me go through to see Dr. Bascom, I knew I had to get a surgery for it and the cleft lift is the only one I was even willing to try and years of research and dealing with every single day thinking about it and thinking about how I'm sitting. Years of killing my hip from sitting and laying on my side to try and avoid it coming back yet always coming back at some point anyways. I had my appointment with him, two hours away from where I live. I'm beyond lucky he is in the same state as me, can't even express how lucky I probably am for that. Had a consultation with him, I thought the consultation was on the same day as the surgery, stressed myself out the entire time waiting for the appointment, went expecting to have the surgery because I remembered one of the ladies at the office saying that since so many people come out of state to see him the surgery is usually planned as the same day as consolation, maybe I misunderstood but it wasn't. It was a maybe 10-15 minute appointment, he checked out the area could still feel a little bump, and said he wanted to do the cleft lift but a smaller version of it or something, but the cleft lift for sure. He said there would be a rubberband to keep the wound from closing to fast that I'll have to have my mom remove 24 hours after the surgery. I asked about the scarring because I'm so afraid of a big awful scar as well. I already have enough issues with my body, I couldn't imagine having something else to focus on about my body to hate. He said the scar isn't that bad and lightens up after awhile, and he also said that it's meant to be hidden under underwear and that you shouldn't be able to really see it. Got the surgery planned for the 21st, so here in a few days.
I'm still incredibly anxious and afraid of everything that has to do with it, but I just keep telling myself it's what needs to be done and it'll hopefully never come back again. I suffer from really bad anxiety and a hint of depression I'm sure, so I totally understand how scary it can be. I'm sorry you're dealing with all of this as well, and I hope you get things figured out about what you think is best for your situation. Feel free to send me a message if you want or need to talk about anything or just to have someone to talk to. Sorry for how long this is, just want you to know you're not alone but I'm sure you know that already. I wish you the best. :)
 
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