Open wound, weird pain in the rectum

nomore

New Member
Hello everyone,

I had my 3rd pilonidal sinus surgery 5 weeks ago. This time, the surgeon decided to make a rather big cut which goes all the way down to my anus. The wound is about 7cm long and now is 2 cm deep. The healing went quite well for the first 4 weeks. It an open healing, and the dressing is changed every second day. The wound was being packed with silver lined dressings for the first few weeks, last week they switched to regular dressing, but then the complications came.

It started on Saturday night with around 1 hour period of pain that woke me up in the middle of the night, that felt like it was in my rectum (or very close to it). On Monday, I went for a dressing change and had a sharp pain when the dressing was inserted in the lower side of the wound close to rectum. Since then there was occasional "twitching" in that area, it's like it starts in the wound (inside and at the very bottom) and the pain "shoots" into rectum. I mentioned this to surgeon on Wednesday morning, and he said that the wound is very close to my rectum (0.5-1cm). He decided to use silver nitrate to remove overgranulated tissue. It wasn't painful when applied except a sharp pain when the silver nitrate pen touched that one spot close to my rectum inside my wound. Surgeon and the nurse said they don't see signs of infection, and want to use the silver nitrate at 2 more times (Friday this week and then Monday).

Has anyone experienced this kind of pain from pilonidal sinus wound? Did it go away on it's own or did you have to do anything for it to go away?

A bit about me:
  • I am a male in my thirties
  • First surgery was in 2009, primary closure
  • Second surgery in 2017, open healing, took around 6 months to heal
  • Currently recovering from 3rd surgery
  • Showering the wound every 2nd day, patting it dry
I feel quite stressed about this since I can't find anyone with similar pain experience as mine. I try to stay positive, but my heartbeat is around 90-100 most of the time (normally would be 70).
 

nomore

New Member
So no one I spoke to yet (mostly experienced nurses) saw this kind of symptoms with pilonidal sinus. The pain changed a bit and now the "twitching" goes from a point inside the wound, through rectum, and into testicles. It comes randomly, in standing, sitting, and unfortunately also when in bed (maybe a bit less often). I went to work on Friday and it was embarrassing at times since when I get this pain, my whole body jerks (you can imagine how that looks like at a meeting...). I spoke to my boss and he's been helpful, suggested I book a room and work from it when in the office, and only come to meetings when I feel like it.

I couldn't sleep last night, thinking about what's going on, and what I'll do if it gets worse. That's not exactly the way I should think, but I can't help it - even when I'm positive, a few twitches come and there I go. My hope is that this will go away as the wound heels itself.

I avoid pain killers as I don't want to get constipated, but I'll probably take nurofen today before going to bed. I really hope to get some sleet this night. I owe so much to my wife, she's tried to encourage me a lot, and stays positive all the time. We have 2 small kids, so far I'm able to help getting them ready to bed etc. and I really hope it stays that way.

I wanted to mention that the pain I had last Saturday night resembled infrequent pains I use to get after orgasm (either sex or 'alone'). Those last about 5-10 minutes and then go away. I only remember 1 occasion when that pain came not after orgasm (at a shopping mall earlier this year). So the Saturday pain was very similar to those previous episodes (pain inside rectum), but a bit worse (I was shaking and praying), and lasted about 1 hour as I wrote before.

If only I could find someone with similar "experience". Everyone around me seems clueless about it. The closest description is https://en.m.wikipedia.org/wiki/Proctalgia_fugax which combined with PS close to rectum results in this :(

I pray to stay strong for my wonderful family, and take it day by day.
 

JonH21

Very Helpful
Your situation sounds very tricky and unfortunate. Even at your worst moment, don’t give up hope. You will get through this! I feel for you and hope that you find out what’s going on. Have you reached out to anyone outside of your doctor for help? I’d suggest maybe consulting with someone who has an interest in pilonidal who is very familiar with the disease. Not that your doctor doesn’t? Never hurts to get multiple opinions.
 

nomore

New Member
Your situation sounds very tricky and unfortunate. Even at your worst moment, don’t give up hope. You will get through this! I feel for you and hope that you find out what’s going on. Have you reached out to anyone outside of your doctor for help? I’d suggest maybe consulting with someone who has an interest in pilonidal who is very familiar with the disease. Not that your doctor doesn’t? Never hurts to get multiple opinions.

Thank you for your words of encouragement, yes hope is very important, I will remind myself of it. Since the surgery, I only consulted with the main surgeon's assistant doctor, this week I will ask for the main surgeon's opinion. I feel that the surgeon's assistant really wants to help and is empathetic too, but I would desperately want to hear from someone who saw this kind of symptoms with pilonidal sinuses - might reach out to others as you suggest.
 

nomore

New Member
Today I was at a dressing clinic and the wound is almost closed, so that's great. The doctor said that there's still liquid coming out of it and that it shouldn't be happening at this point. He and nurse also mentioned that the part of the wound closest to the back passage is "very friable" and they decided to apply a foam dressing that is pushed into the wound and needs to be changed daily (ideally after every bowel movement). The nurse also shaved the area and gave it a good clean. Regarding the pain, the sharp pain shooting into rectum did not occur since Friday, which was a great relief. The pain in the testicles however is still there, and got a bit worse - it's not constant, but a random sharp pain in the left testicle several times a day. The doctor said they will likely refer me to urologist, but didn't do so just now. I might go to GP and get him to recommend me a urologist if this doesn't go away.

I'm going to work this week and am generally feeling okay. I know that if the episodic pain comes again (like the one last Saturday), I can expect trouble in the following 5-6 days, but then it should resolve. Hopefully the events from last week won't reoccur as I'd love to put a dot behind this all. Since I'm naturally a person that tends to worry a bit more than healthy, sometimes I think what I'd do if there would be more complications with the sinus that got so close to the rectum. I'd probably think twice about surgery, unless I'd have recurring pain of some sort.

Everyone with recent pilonidal sinus surgery - you will get better even if you are experiencing complications at the moment, your body is strong and can put up with a lot. Never loose hope!
 

nomore

New Member
Wednesday I was at the hospital and got discharged as according to the doctor and the nurse I'm "almost healed". There is this tiny slit at the absolute bottom of the wound (in my case few millimeters from bum hole), which still releases blood every day that I can see on the gauze. I'm now packing the wound myself with the help of my wife. The dressing changes haven't been painful for about 2 weeks now.

For about a week at the beginning of December, I felt really well as the stabbing pain in rectum didn't occur and there was some rapid healing of the wound. I started to feel some kind of twitching and tickling inside the wound again, especially in the very bottom of it. Sometimes I get twitching in the area between my bum and my testicles, it's not painful as before but still, I have no idea where it comes from. I feel like a nerve somewhere close to my rectum might be teased by something?

I know people have all kinds of weird feeling in and around their wounds with this thing. Just wanted to share with others who have weird twitching and possibly pain, that they're not alone with such issues. Wishing everyone reading this a swift recovery!
 
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