open wound won't heal after 6 months

ap3029

New Member
So I (female, 24) had my open wound surgery in late September 2019 (in Germany) and since then, the wound has healed to a tiny little spot. I hesitate to even call it a hole anymore, there's no way to pack it with anything and it's not even visible unless I pull my cheeks apart because it's quite deep in the cleft. I first used Aquacel, then switched to collagen, then back and forth again a few times once the healing stalled, then used Urgo Start for controlling over-granulation, and now I've been using Multidex Gel for about 3 weeks, which was making amazing progress and so close to being healed (there was no more exudate/drainage at all for over a week!) until I went on vacation and the wound took 3 steps back, now it's draining again and is stubborn as hell. What's interesting though is that it literally never hurts at all. Even now, when nothing is helping it again, it still doesn't hurt a single bit. I'm just absolutely out of my mind!!! My wound care clinic has closed due to COVID-19 and getting another surgery is NOT an option. This has destroyed my mental health and I feel like a shell of the person that I used to be, so I'm absolutely desperate to heal this ASAP so that I can get back to my life. I can't focus on anything, I cry constantly out of nowhere, and I just need to get some control back. Please tell me any weird techniques or supplies that you've tried that healed your wound, I need new things to try now that my clinic is closed for who knows how long! And any stories of people that were able to heal after the 6 month mark would really help too. I just don't understand what I'm doing wrong; I eat healthy, take vitamins, drink 3 liters of water per day, I never sit, I don't exercise anymore, I only lay on my stomach or side. I never had a pilonidal cyst before this, just a sudden abscess after driving for 11 hours in a shitty car. This is controlling my entire life and it's killing me.
 

Js10881

New Member
Hey I am currently 20 and male but had my surgery when I was only 18. It was the first (and only so far) experience I have had with these. My recovery lasted around 10 months. I don’t say that to scare you or to make you think your recovery will take as long as mine did but it’s just so you know I have been there before too. For tricks silver nitrate often worked well for me but I would consult with your doctor before trying it. Also make sure you are cleaning the wound regularly and also get some exercise that isn’t strenuous such as walking so blood starts to pump around your body and help it heal. The only other thing I can offer you is advice on the mental aspect. It is very hard. The recovery process is probably the toughest thing I have gone through so far in life. I remember I felt the same sentiment of feeling like a shell. I went from a very active person who always wanted to go out to lying on my side alone for what seemed like forever. Not to mention I had started college (or university I’m from America sorry) and was embarrassed about it. While it is difficult remember that this can’t last forever and it will end someday. Maybe not tomorrow or the next but someday it will and until it does I would recommend trying to live your life as best you can. You are only 24 and have the rest of your life ahead of you and I know it sucks but you have to look at the bright side. As soon as you stop letting the wound control you compared to you managing the wound time will start to slip by and it will heal. I am sorry if this did not help much but I know how difficult it is to talk about this to “regular people” so coming to this forum is a good start because it also got me through some rough times.
ich hoffe du fühlst dich besser!
 

ap3029

New Member
Hey I am currently 20 and male but had my surgery when I was only 18. It was the first (and only so far) experience I have had with these. My recovery lasted around 10 months. I don’t say that to scare you or to make you think your recovery will take as long as mine did but it’s just so you know I have been there before too. For tricks silver nitrate often worked well for me but I would consult with your doctor before trying it. Also make sure you are cleaning the wound regularly and also get some exercise that isn’t strenuous such as walking so blood starts to pump around your body and help it heal. The only other thing I can offer you is advice on the mental aspect. It is very hard. The recovery process is probably the toughest thing I have gone through so far in life. I remember I felt the same sentiment of feeling like a shell. I went from a very active person who always wanted to go out to lying on my side alone for what seemed like forever. Not to mention I had started college (or university I’m from America sorry) and was embarrassed about it. While it is difficult remember that this can’t last forever and it will end someday. Maybe not tomorrow or the next but someday it will and until it does I would recommend trying to live your life as best you can. You are only 24 and have the rest of your life ahead of you and I know it sucks but you have to look at the bright side. As soon as you stop letting the wound control you compared to you managing the wound time will start to slip by and it will heal. I am sorry if this did not help much but I know how difficult it is to talk about this to “regular people” so coming to this forum is a good start because it also got me through some rough times.
ich hoffe du fühlst dich besser!
thank you, that actually is very encouraging. I'm so glad to hear that you healed after 10 months and haven't had a recurrence either!! I just need to know that there still is hope of healing! Hope keeps me going, but when nothing seems to work it's really easy to lose sight of it. Luckily I found a new wound care nurse who will be coming to my apartment during the pandemic and has promised to try some new therapies, so I feel much brighter now!
 

secondBH

New Member
Hey, I’ve been having a similar experience (surgery in August 2019, opened up in October, wound has now gotten down to a tiny hole but refuses to totally heal), if you find anything that works please share!

Also, I second the comment about being active. I discovered that when I walk more than 10,000 steps each day I seem to make better progress, and feel better too (theres the fresh air, and then usually I call friends/family while I’m walking).
 

ap3029

New Member
Really?
Hey, I’ve been having a similar experience (surgery in August 2019, opened up in October, wound has now gotten down to a tiny hole but refuses to totally heal), if you find anything that works please share!

Also, I second the comment about being active. I discovered that when I walk more than 10,000 steps each day I seem to make better progress, and feel better too (theres the fresh air, and then usually I call friends/family while I’m walking).
You're able to walk 10,000 steps per day? That's my dream!!! I used to walk 10,000 steps minimum every day until this happened and I've been dying to get back to that! Maybe I'll try increasing my walking then, I've just been hesitant because every time I've walked that much (on two vacations), my wound has taken a few steps back and gotten worse.
 

secondBH

New Member
Maybe start with just tracking daily steps and slightly varying them to see if there’s any correlation? I discovered this accidentally on a vacation to Florida with my family, where all we did was lounge on the beach and go on nature walks.

I’ve tried getting back into working out twice (doing low weight, high rep standing exercises) and both times recovery seemed to stall. It was hard to say if that was definitely the cause, but the reason I bring it up is there’s probably a sweet spot for exercise/activity, and it’s different for everyone.
 

ap3029

New Member
Hey, I’ve been having a similar experience (surgery in August 2019, opened up in October, wound has now gotten down to a tiny hole but refuses to totally heal), if you find anything that works please share!

Also, I second the comment about being active. I discovered that when I walk more than 10,000 steps each day I seem to make better progress, and feel better too (theres the fresh air, and then usually I call friends/family while I’m walking).
I just wanted to give an update because my wound has completely changed in the past week! It is now mostly scarred over and the tissue color is more of a normal scar-pink instead of that red inside-of-an-open-wound color. It all changed when I went to my doctor and forgot to bring my packing material (melgisorb AG) so we just put a Mepilex Border bandage over the wound and called it a day. Two days later my partner changed the bandage and discovered that it was healing rapidly so we continued to leave it alone and just place a Mepilex Border bandage over it with a tiny bit of intrasite gel over the wound area. Now today it looks even better, no more drainage and great looking scar tissue with no opening whatsoever. I think it just wanted to be left alone! Plus I started taking protein pills a week ago so that may have helped. I don't want to count my chickens before they hatch though, so I want to say that this could all change and pedal backwards again but hopefully it won't.
 

ap3029

New Member
Just to update: My wound care nurse came and said it seemed infected so she started packing it again, and after a few days of packing it has gotten significantly worse. Like rewinding months of progress, and getting much deeper. I'm going crazy and depressed and I don't know why the fuck nothing seems to be working. It just never ends.
 

secondBH

New Member
Yeah I feel the same way sometimes. I’ve wanted to just yell at my surgeon for messing my life up. Our bodies will eventually heal though. When I have setbacks I try to use it as motivation to really lock into every aspect of recovery I can control (improving my diet, making sure I get plenty of sleep). Also, think about all the positives in your life! Friends and family, movies/tv shows you’ve enjoyed, maybe your job (or at least that you have one), etc. Sounds kinda cheesy, but it does help.

One thing I’ve noticed with my setbacks is that usually there’s the initial setback, and then another setback(s) a few days later. My surgeon thinks what happens is the wound opens under the skin, and then the skin doesn’t break down until a few days later. It’s just a theory, but that makes sense to me.Hope things turn around soon!
 

ap3029

New Member
Just as an update for anyone else struggling, I have great news! In my frustration, I found a clinic in my city that specialises in pilonidal and offers electrical stimulation treatment for chronic wounds that have been open between 6-12 months. I didn't want to have to go back and forth to the edge of the city for this and I've used e-stim before for an injury many years ago, so I just bought an e-stim device on amazon (called the Auvon TENS) and have been using it at home for 1 hour per day. 4 days later, I've got a nice light pink scar and my doctor discharged me with no more bandaging!!! She rubbed it hard with a gauze pad and the scar was solid, so no more wound care!! I'm so happy to not have to have any more nurses poking around back there!!!!
 

Attila Daniel

New Member
Nice to read all the efforts, comments! I’m from Hungary, had my operation in October 2019, after 4 years of struggle with it.
Now, I have a tiny open wound close to the anus, below the end of the tailbone. The skin of the wound seems to close entirely and than, after around 14-16 days it opens up again, with some stinky, bloody excretion.
What made it worse for me for sure
- thesis deadline stress - i was standing at the office desk for about 12-14 hours - in order to a avoid the pressure caused by sitting + constant frustration about the thesis deadline + a few hours of carring stuff, up and down on stairs (we moved out from our apartment) = the “result” was the wound opened up, it was 6-7mm deep, 1cm long again - it was the worst state of the wound in the last few months
What helps me for sure
Beside the daily cleaning, weekly shaving i use Bioptron lamp twice a day. I spread my butt and I let the sunshine in. :D

Guessing...
I’m here now. I wanna try now a complete depilate around the wound (meanwhile it’s closed for a while), maybe using also hairdryer in order make it bone-dry after shower.

My doctor plans the second operation to cut out this little part wich gets inflammated always - I want to avoid it.

I believe that movement helps but the quality of the exercise is important. Walking, taichi, Qigong - anything which helps the circulation around the area gently and constantly. I’m trying now these exercises more times a day, in order to maintain the constant “momentum” in the area...

I’m with you guys, let’s heal, share experiences together!
 

Riceboi

New Member
Just as an update for anyone else struggling, I have great news! In my frustration, I found a clinic in my city that specialises in pilonidal and offers electrical stimulation treatment for chronic wounds that have been open between 6-12 months. I didn't want to have to go back and forth to the edge of the city for this and I've used e-stim before for an injury many years ago, so I just bought an e-stim device on amazon (called the Auvon TENS) and have been using it at home for 1 hour per day. 4 days later, I've got a nice light pink scar and my doctor discharged me with no more bandaging!!! She rubbed it hard with a gauze pad and the scar was solid, so no more wound care!! I'm so happy to not have to have any more nurses poking around back there!!!!
Did you apply the stim patch right over the wound, basically in your butt crack lol?
 

ap3029

New Member
Did you apply the stim patch right over the wound, basically in your butt crack lol?
No definitely not!! I think that's what they might do at the clinic, but I am not a professional and that sounds like it would be way more painful. I placed the pads about 1 inch away from the wound edges on either side so that they weren't touching the wound directly but were positioned parallel to each other.
 

Riceboi

New Member
No definitely not!! I think that's what they might do at the clinic, but I am not a professional and that sounds like it would be way more painful. I placed the pads about 1 inch away from the wound edges on either side so that they weren't touching the wound directly but were positioned parallel to each other.
Oh good to know. Thanks for the reply. I may try that device if my wound keep opening. I go through a period of open close open close open.
 
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