Pilonidal Cyst

Pilonidal Cyst


  • Total voters
    28

Yamka

New Member
Will it ever end?

I had surgery 11 years ago and since then my cyst has returned quite a few times. My problem is that my scars are so tight that when it does return my skin just splits on its own. So, I'm off to the doctor for meds and just pack the area with gauze. My backside can't take another surgery. As it is there's nothing between my skin and my tail bone now. I don't think there's anything left to cut out.
 

quantum_nachos

New Member
So far, 2 recurrences. First surgery was June 29, was back before end of August. Second surgery was in October, was back by December. Going for third now (no date set yet, still waiting go so see Dr Monaghan about that)
 

bernard89

New Member
I had 5 :| My surgeon is a complete joke because we went and saw him every month or so for about 2 years and he kept on saying it was fine, then one day he got someone else to look at it. They took me into surgery and found 5.

So my initial surgery, 2 yrs later a second surgery to 'scrape' the wound (thinking the flesh just wouldn't nit together) then a third one a fortnight later to remove FIVE sinus'.

That's the public health service in Australia for you...
 

Barelystrong

New Member
I had 5 :| My surgeon is a complete joke because we went and saw him every month or so for about 2 years and he kept on saying it was fine, then one day he got someone else to look at it. They took me into surgery and found 5.

So my initial surgery, 2 yrs later a second surgery to 'scrape' the wound (thinking the flesh just wouldn't nit together) then a third one a fortnight later to remove FIVE sinus'.

That's the public health service in Australia for you...
Wow!
 

MountainMom

New Member
My daughter, 14yo, had a cyst and did not tell me for a month but dealt with it by herself. Teenagers! When she finally told me I took her to the er. PC had burst on its own. ER doctor said it was caused by cells that did not close the spine up in utero. I found a really good pediatric surgeon and we had it removed as soon as school was out. That was 6/ 6. Now 9/5 and its not completely healed. I read that there was only a 7% chance of coming back after surgery and that was a decisive factor for us. We were told it would be the 'leave open' surgery but in fact it was a 'closed up' surgery. She also has PCOS which I think is related and possibly non classic AH which may also be related. All discovered due to the PC and my research. These conditions have causes but the doctors wont say what the causes are. It can be a result of insulin issues, tumors on ovaries or in the gland that makes hormones in the brain or other things. Also of note, male siblings (of girls with PCOS) are 57% higher risk for all kinds of bad stuff if sister diagnosed with PCOS, Including pancreatic b cell conditions, heart disease diabetes etc. When I asked pediatrician if her brother could have a related condition she laughed and said no he does not have ovaries. Don't give up do your own research and keep talking because communication is really important. Been a terrible summer for my baby girl. They started her on BC to balance hormones and she has had heavy period for a month now on top of all this. I think there is a link with hormone imbalance and PC. I'm digging into it. Wont stop till I get an absolute answer and will post here for you guys. IMO this PC has nothing to do with hygiene weight any of that I think it has to do with high levels of DHEA and testosterone, in both men and women. Just my mom opinion. Carbs mess with hormones. Glyphosates mess with hormones. Fluoride messes with hormones. We have my daughter on the paleo diet last week and she is feeling generally better. She has lost 4 pounds since the surgery, first time she has weighed less in years. She has been on paleo now for a month was weighed the other day at the endocrinologist office. Doing more tests in a few weeks and starting my son on tests too. I promise to find out what is happening with my kids and report back. Incidentally my daughter has what is called a café aulait mark on her leg. This is a sign of a gene mutation which is yet another thing that could cause PCOS and hormone problems. And while I am spilling my guts another marker for PCOS is getting pubic hair before other signs of puberty and at an early age. My daughter was at an early age but not super early. Within 'norms' 8yo. Anyway this is bits from several specialists and doctors. If my daughters pediatrician had noticed the marker for PCOS, which she should have at 8yo we could have addressed some issues and not allowed hair follicles to form that are problems now. But I'll let you go and stop my rant. Anything I find out I'll share.
 
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