Greetings, all. I've been contacted by a representative from Nationwide Children's Hospital in Columbus, Ohio about a study they are working for treating Pilonidal with laser hair removal. They are in the funding stage and will be recruiting participants from the local area soon. The PSA has become a stakeholder to assist in their study. Information about the study is here: https://clinicaltrials.gov/ct2/show/NCT02778152 I offered to post their questionnaire here on the forums to gather opinions from people suffering to help their research be as extensive as possible. The questions are below. If you feel so inclined, please copy/paste the questions and add your answers. I'll forward on to the research team. ********************************* 1. Pilonidal disease is a very difficult problem and treatment often takes a long time. Is there anything that you wish you knew at the beginning when you were first diagnosed with pilonidal disease that you know now? 2. In our study, our main outcome we are studying is the rate of returning pilonidal disease at one year of laser hair removal as it compares to chemical hair removal/shaving. Other outcomes include days of school or work missed, satisfaction with your healthcare related to your pilonidal disease, your quality of life related to your healthcare, how well you are complying with treatment, and the burden that treatment of your pilonidal disease you must endure. What outcomes do you care about most and do you think we should study? 3. In our study, we are allowing all-comers with pilonidal disease to enroll. Do you think this is acceptable or do you think we should limit this study to patients who have only had one episode of their disease? 4. In our study, we have patients that enroll be randomized, or chosen by chance, to either get laser treatments or come to clinic for chemical hair removal/shaving. In the group that gets only chemical hair removal/shaving, we will allow them to undergo laser treatments free of charge after one year. If you were faced with this potential delay depending on which group you were randomized to, would you still enroll in the study? (For healthcare providers, do you think patients will…) 5. Do you think pilonidal disease is an important area to study? Why? 6. What was the worst part of your experience with pilonidal disease? (pain, smell, number of visits, physical limitations, fear, social limitations/withdrawal) 7. Did you need to have a caregiver/parent help with your pilonidal disease? If yes, did you feel any of the following: embarrassment, shame, loss of personal dignity. 8. Is there anything else you want to share with us about your experience with pilonidal disease or how we should design/conduct this study?