Post-Closed excision Canada

#1
Hi there all, new here. 29 year old female from Alberta, Canada. Have dealt with pilonidal cyst for over a decade. Lance & drain offset from midline in 2008ish before they knew what it was. This led to bad scar tissue which also continued to get infected along with the pilonidal cyst time after time year after year. Cellulitis, antibiotics off and on. Finally one of the sinuses came to surface in the midline and a week later a second one followed. They drained on their own from time to time but the pain was still too much. I saw a surgeon and shortly was booked in for a complete excision - closed wound healing. did not realise what a bad choice this was until hours of reading on here. I had the surgery yesterday...

I'm stressed and scared and very worried now. I am having huge anxiety and can't stop thinking about all the horror stories. He made the excision right along the midline which is the worst thing he can do I know. I'm not sure if it's because I had so much destroyed scar tissue on the one side already? He did what he called an "ellipse" cut and sewed tofether internal stitches which will dissolve and then about 8 external stitches which I need to have removed in 2 weeks time. He sent me home with a wound drain in and it is coming out randomly out of the right side of my butt cheek through a separate hole. The excision and drain hole are all covered by dressings and I am not supposed to touch them for 4 days at which time I go see him and have the drain removed. From there I still have 3 more weeks off work to heal at home.

I'm looking for any tips on healing or thoughts or positive stories perhaps?

I'm SO SCARED. I am thinking it isn't going to heal and it's going to get infected and open a million times which leads me to this; if that does happen I'm going to fork over the cash and head to the states to have the cleft lift done. What is WRONG with our doctors here that they are still not practicing this technique? It's blowing my mind. Why?!?!
 
#2
Anyone? I'm also wondering if this thing doesn't end up healing, if it's still an unhealed open wound can I have to cleft lift performed in the US? I have decided that if this doesn't heal, rather than doing wound clinics here in Canada I would rather take out the loan and fly to the US and have the cleft lift performed at that time if possible...
 
#3
You need to stay calm and stay away from the bad stories on this thread. It can really give you horrible anxiety. You need to remember that many people heal just fine but they are not coming on here and writing about you. Think about it, you'd be more likely to ask for help when you have problems. Just because these horror stories exist doesn't mean it happens to all of us. I had the modified karydakis procedure 11 days ago. I have 9 stitches that are supposed to be taken out tomorrow. the bottom 3 stitches are in my cleft and healing very slowly but my stitches are in tact and i am just grateful everyday that i am healing. you need to stay positive and eat well. don't sit on for the first two weeks which is what i'm doing. it will be awkward but you will get through it.

Just in case this doesn't work out, there is a surgeon in vancouver who does the cleft lift. Look at the hall of fame thread or google you might be able to find her as i can't remember her name.

Good luck and please best thing you can do for yourself right now is stay off this site for the next couple weeks.
 
#4
You need to stay calm and stay away from the bad stories on this thread. It can really give you horrible anxiety. You need to remember that many people heal just fine but they are not coming on here and writing about you. Think about it, you'd be more likely to ask for help when you have problems. Just because these horror stories exist doesn't mean it happens to all of us. I had the modified karydakis procedure 11 days ago. I have 9 stitches that are supposed to be taken out tomorrow. the bottom 3 stitches are in my cleft and healing very slowly but my stitches are in tact and i am just grateful everyday that i am healing. you need to stay positive and eat well. don't sit on for the first two weeks which is what i'm doing. it will be awkward but you will get through it.

Just in case this doesn't work out, there is a surgeon in vancouver who does the cleft lift. Look at the hall of fame thread or google you might be able to find her as i can't remember her name.

Good luck and please best thing you can do for yourself right now is stay off this site for the next couple weeks.

You're totally right, I know it's less likely to find success stories on here for sure lol. I am really bad for that though, I try my best not to Google etc. But I can't stop sometimes! I'm just very confused why "top notch" doctors here in Canada can't even see from all the medical journals and published work that says any primary closure should be off the midline. It's like they hope it'll be fine and that's good enough for them lol...

As for the doc in Vancouver, Alberta healthcare does not cover elective out of province surgery at all. So I would be footing the bill anyway for about the same price CAD. I believe the flight to Oregon to see Dr. Bascom would be shorter and cheaper than a flight across Canada, which is sad. And the medical bills will work out to be quite similar.

I hope you are healing well! I have an appt on Oct 5 with my small town family doctor to have the stitches removed from my entire cleft which in itself freaks me out. Like I live in a town of 1400 people lol.

Thank you for your support! :)
 
#5
Remember how many closed excisions heal just fine!! There is a good chance you will be one of them! Try not to read anymore, rest, vitamins and protein! And when that little voice starts freaking you out, at least you are ahead of the game and know where to look IF you have a problem. Good luck to you!
 
#6
This forum is just for the ones that go wrong, but many of them go perfectly fine
Dont stress out until you need to! If things do go a bit wrong just know that youll have a support forum to get advice on. Stress and healing dont work well together so try to stay positive!
 
#7
I just wanted to update in case anyone in the future reads this. It's been nearly 5 weeks, and thankfully my benefits at work had no problem covering me for this as a short term disability leave so I've been able to heal at home with partial pay, and not have to worry about rushing back to work. I am set to return in 5 days from now.

So far I have healed for the most part without incident (knock on wood). My JP drain came out at 5 days, and i had quite a bit of pain inside on the right buttock where the drain was inside. The surgeon instructed me to have my family doctor remove the stitches at 14 days, which seemed long to me. Quite a few were overgrown but the nurse was gentle.

It's possible that I was excessively over cautious with not sitting for close to 3 weeks, not kidding I laid there day in and day out. Keeping the site clean and dry (I used a hair dryer on the cool setting after showering, especially before I had the stiches removed). I tied my hair back in the shower and then washed it separate in the sink after for fear of hair getting trapped in the insicion.

So far it hasn't opened up. However I am still very sore especially close to the bottom. It honestly feels like either he didn't get it all, or something inside is not right. My scar and the area around it is completely numb to the touch, but inside is where I can feel pains. The surgeon refused to see me again, and said my family doctor can handle the rest. So I'm at a loss there.

Hoping this is just taking it's time to heal inside and all will be well eventually. I never want to do this again. I will update in a few more weeks :)
 
#8
You have done everything right in your healing process. And that is wonderful that your job has been so understanding. It takes time for tissue to heal completely so the pain does not necessarily indicate that there is a problem. Just that you are still healing. Many people do heal from excision surgeries and as others have mentioned the people on the forum are often those who have not had those experiences. But you have gained the knowledge from this site that if you are one of those who does not heal from a closed excision, you know what to do. That is empowering. My son was one who did not heal from open or closed excision. He had a cleft lift, after 4 failed excision surgeries, and is healed completely now. So, please don't worry. You took a huge step in the process of your healing with the closed excision and you have done all of your part to heal. This may be it! If it is not, you know what to do and where to go. Dr. Jeffrey Sternberg, my son's surgeon, and Dr. Tom Bascom, whose father invented the cleft lift, have tremendous experience (over 20 years each) with cleft lift and you could probably call or write their offices (Sternberg in San Francisco and Bascom in Oregon) if you have any questions about your healing process now. These surgeons are very caring and committed to healing people suffering with pilonidal disease. For now, celebrate all the work that you have done in healing.
 
#9
You have done everything right in your healing process. And that is wonderful that your job has been so understanding. It takes time for tissue to heal completely so the pain does not necessarily indicate that there is a problem. Just that you are still healing. Many people do heal from excision surgeries and as others have mentioned the people on the forum are often those who have not had those experiences. But you have gained the knowledge from this site that if you are one of those who does not heal from a closed excision, you know what to do. That is empowering. My son was one who did not heal from open or closed excision. He had a cleft lift, after 4 failed excision surgeries, and is healed completely now. So, please don't worry. You took a huge step in the process of your healing with the closed excision and you have done all of your part to heal. This may be it! If it is not, you know what to do and where to go. Dr. Jeffrey Sternberg, my son's surgeon, and Dr. Tom Bascom, whose father invented the cleft lift, have tremendous experience (over 20 years each) with cleft lift and you could probably call or write their offices (Sternberg in San Francisco and Bascom in Oregon) if you have any questions about your healing process now. These surgeons are very caring and committed to healing people suffering with pilonidal disease. For now, celebrate all the work that you have done in healing.
Thank you for such a positive uplifting reply! I definitely have done my best in assisting my body, now it's time to let it do it's work and see how it goes :) I have been doing a lot of proactive "just in case" research regarding flight and accodomation prices to San Francisco and Oregon from Canada, and have chatted briefly with Dr. Immerman on the forum who has helped a lot of Canadian patients. I will definitely update in a few weeks! We shall see how returning to work goes. I sit at a desk all day
 
#10
I am so glad that you feel encouraged. Yes, your body is able to heal itself. If there is a hindrance to your body's complete healing, a good cleft surgeon can take care of it. I wish you all the best in returning to work. Many people use a special cushion to sit on and find it really helps.
 
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