Severity of pain

Severity of pain


  • Total voters
    206

mikeymike

New Member
Excruciating

I voted excruciating

I got my first flare up over two years ago. My tailbone was swollen to the size of a baseball. I took pain meds and felt like they did nothing, had it lanced the next day.

Here I am two years later and 6 days out of open-wound surgery. I had several flair ups between no and then.

I've had a broken finger, spiral-fractured a bone in my hand, had kidney stones twice, and I must say: This is the worst. Kidney stones are about equal in pain, but PC has more discomfirt with it due to it being inside and outside the body in a way.

To you women who have said its worse than childbirth - I believe you!
 

kitteh

New Member
I really don't have any other pains to compare this with. :eek: My flare ups were pretty bad, just constant pain, but it was tolerable I suppose.
 

Melody

New Member
Pain

I just had my first surgery (hope it will be my last) but the pain is bearable with drugs. I am just tired of sleeping on my side[:^]
 

kami6887

New Member
The pain involved with packing and rinsing my wound twice daily was by far the worst pain I have ever felt!!! It was painful beyond compare. [:^]

Thankfully, right after the ten-day bump, the pain subsided considerably, and I could eventually go through a packing without crying, lol. [^^]
 

american pi

New Member
I'm fairly new to the disease, but with my flair ups, pain is about 2-3/10: more uncomfortable than painful. When I had the infection, it was a 12/10: I was ready to have someone take me out, I was SO done with it. I had 4 kidney stones I was trying to pass at one time, and I thought THAT was painful. The darvocet was on the verge of not touching this thing!

It's funny that a good lot of people say that kidney stones and pd are worse pain than giving birth, or at least right up there. I dont have any kids, but it definately give me hope that if I can go through these things, I can do that ok! :p
 

Kasey06

New Member
I voted severe. My major flare up that required being opened/drained was very painful and at the time the most painful thing I had endured. Last july I had my tonsils removed at the age of 25 and I would rather have multiple flare ups than to go through the pain I experienced from my tonsils. The pain really doesn't compare to my tonsils. But that doesn't mean it doesn't hurt, thats for sure.
 

Samanthayes

New Member
I have a question for anyone in this thread! Mine is just starting (unfortunately, but I'm definitely grateful I discovered it early on!) and I was wondering if anyone went to the doctor before the ever had a flareup? I just noticed a lump inside my buttcrack, near the tailbone, but there's nothing coming out (it's not infected). I was wondering if anybody knew if my pain would be less (for surgery, draining, flare ups, etc.) since I detected it early on. I am going to see a doctor tomorrow and am praying that I won't have any flare ups or need for painful surgeries/drainings. :( I hope no one ever gets this terrible disease again.
 

Sarah1978

New Member
Mine is the worse pain I ever felt in my life, and I have on two times had Blood clots in my lungs (which was very bad pain) but this cyst is worse, I can barely walk, and can't sit and blood just gushes out.
 

jess1988

New Member
The days leading to me having emergency surgery were painful, the 2 days beforehand were EXCRUCIATING. Ive broken bones etc and that didnt even come close to the pain my cyst caused me. I have no idea how people can manage to live with them for a year before seeing the doctor. I couldnt walk,stand, sit, i could only lie on my side which still hurt and everytime i rolled over (by lifting myself up as i couldnt put pressure on it obviously) i could feel two massive hard lumps under my skin.
Not that im glad anyone else has gone through this, it is nice to not feel alone and have someone to relate to
 

chelsea herndon

New Member
I have had children and this last flare up was by far the worst pain of my life im realy glad i found this site i couldnt understand why it hert so bad and was starting to thing it was in my head but evey time id sit or stand id want to throw up i, glad to have found others who understand this
 

Weebrie

New Member
I've had 4 kids, all natural, and this is by far the worst pain I've experienced. Mine did not even get to the point of lancing - I think it was growing on the inside - and I was sent directly into surgery after three days of misery. If anyone tries to belittle your pain, kick them in the teeth. This shit is no joke.
 

Dandy

New Member
I have given birth and preferred that experience over the issues with my pilonidal. I was not drugged during the birth either! I think it was more manageable because of how long the birthing process is. My body naturally numbed itself after some time.

They could not numb the area the two times I have had mine lanced and drained. They tried and the area was so infected it just wouldn't take hold. I cried in pain the whole time and could feel everything. Had my second one done today and though I feel relief, the soreness and post pain is almost too much to bear.
 

Dandy

New Member
OMG...I used to get small flare up ..but when I got the one that I needed treatment..I was painting a floor and went to stand up and almost threw up I was in so much pain. I ended up walking around like a little old lady. I agree..with many of you that it was incomparable to any other kind of pain I've experienced. I wonder..for those of you that had one on your tailbon...do you get them under your arms too?


Personally, I have not. However, the skin on my armpits often feels sunburnt! I fear of getting one there as I get older.
 

Dandy

New Member
my flareup was painful, but not excruciating...however, the lancing was the most painful thing i have ever gone through. Ive been a serious athlete and have experienced broken bones, cortizone shots in my feet, a torn arch, foot and mouth surgeries, and a car accidents... but even with demarhol and locals, the lancing was by far the worst.

i'm having open surgery in a month, so lord knows how i'll do with that.

I cried like a baby during the lancing process and had my second one today. I agree with you that it is the worst! My cyst assessed and I was in unbearable pain before going to urgent care. But man, that lancing took the breath out of me.

Good luck on your surgery !
 

judith112506

New Member
I would say my appendacitis was more painful. it hurt to the point my body was making me throw up. now this hurt a shit ton. but it's more annoying than any other issues I've had
 
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