Today is my PC’s 26th birthday, haha!

smrhem

New Member
Hi! No worries at all - I’m so glad you found something helpful in this thread and I’m happy to answer further questions.
Have you tried the heating pad as well? What you’re doing now is right on track, I would add a heating pad (20mins or so, a few times a day). And if you haven’t already, make sure any tea tree oil you put on the area has been diluted (tea tree oil can burn the skin when applied directly). The heat from the pad also really helps reduce the itchiness!

Another suggestion that I have (if you don’t already do this) is to jot down the date of a flare up on calendar and note any potential triggers than you can think of. For example, stress level, food and drink, activity, clothing - and see if there are any common denominators with your flare ups. This might shed some light on what brings your cyst into a flare up and we can troubleshoot those aspects.

I hope this is helpful - Let me know if you have any more questions - I’m here for you! :) good luck
Thank you very much. I do dilute the tea tree oil, 2 drops in 1 ounce of water. I haven't been jotting it down but I had a 3 hour drive with one break and noticed it was tender during and after, I forgot my pillow :'(. I do remember the date so I will write it down. I also remember sitting really hard and missing my pillow on the floor last month (I work with babies) which immediately caused one that I needed antibiotics for and missed one day of work. I went from none in 16 months to 2 in the last 2 months. I do have a heating pad but loaned it to my pregnant best friend that's having back trouble. I have been doing a warm compress in replacement of that right before bed, I just keep reheating the rag about every 5 minutes. My bf just had a look and says he sees lots of places puss is possibly coming out. Idk if it's a good or bad thing, but it isn't hurting so I'll continue what I've been doing.
 

HappyPhantom

Very Helpful
I’ve noticed the same thing - that if I accidentally bump the cyst area on anything, it causes a flareup! Arg. So frustrating bc it can happen and then you just *know* there’s going to be an issue.

sounds like you’re doing a fantastic job with this. This kind of prep and keeping track really does pay off when it comes to dealing with it.

I could be way wrong on this (because I know that whatever is draining is only a fraction of what is still inside the actual cyst) but it seems to me that when there’s no pain (hence, no abscess) taking good care with nutrition, rest, cleaning it and heating it really helps the body resolve the flareup. Only a small percentage of my flare-ups required lancing and draining - sounds like you’re in the same boat.
I wish you continued good luck!!
 

enciel

New Member
Hi, I initially had pain when I sit for more than 6 months now. I haven't been diagnosed with pilodinal cyst but I think it is based from the pictures. Started with a small bump which was very itchy. I kept applying hot compress and baths and I think it drained on its own and the bump was gone and no more itchiness. I'm not against surgery but if it can be avoided of course I would avoid it. And the state of pandemic right now I think it's not very safe.

There's no bump anymore but there's a small hole near my butt crack which I think is the sinus. I still feel pain if I sit for too long and mostly just angle sitting if I do feel pain. But the pain is still there. It's very manageable and I think I'm used to it and can sit comfortably longer but I can't sit too long. For several months now I haven't had any bump or redness which I think is good.

Anyway just wanted to ask do you still feel pain? Since you've been with it for quite a while just wanted to know. I think I've been living with mine for a almost a year now. I'm still doing hot compress every night on it.
 

HappyPhantom

Very Helpful
Hi, I’m sorry to hear that you’re dealing with this too, and that’s a great question. As for the pain, for me there are two kinds of pain - 1, discomfort from the cyst and surrounding area and 2. Burning, searing hot pain of infection/abscess.

For me, my baseline is minor discomfort but no pain unless I’m having a flare up, which only becomes medium discomfort. If it ever becomes abscessed (which it has, a few times over the years) I seek medical care right away for the infection and drainage.

I’m not sure why or how, but the last few years have been KNOCK ON WOOD better, the heating pad technique made a huge difference in my opinion. It seems to drain and resolve then go back to dormancy after just a few 20 minute sessions with the heating pad (along with the other regular cleaning procedures).

I sometimes worry that It could be worseningon the inside (making more channels? I don’t know...?) and it’s something I really want to get looked at when the pandemic starts to lift a bit. I really like the laser option but it is not widely available yet.

I hope you found this helpful and I wish you luck! At least you’re not alone in this!
 

enciel

New Member
Hi, I’m sorry to hear that you’re dealing with this too, and that’s a great question. As for the pain, for me there are two kinds of pain - 1, discomfort from the cyst and surrounding area and 2. Burning, searing hot pain of infection/abscess.

For me, my baseline is minor discomfort but no pain unless I’m having a flare up, which only becomes medium discomfort. If it ever becomes abscessed (which it has, a few times over the years) I seek medical care right away for the infection and drainage.

I’m not sure why or how, but the last few years have been KNOCK ON WOOD better, the heating pad technique made a huge difference in my opinion. It seems to drain and resolve then go back to dormancy after just a few 20 minute sessions with the heating pad (along with the other regular cleaning procedures).

I sometimes worry that It could be worseningon the inside (making more channels? I don’t know...?) and it’s something I really want to get looked at when the pandemic starts to lift a bit. I really like the laser option but it is not widely available yet.

I hope you found this helpful and I wish you luck! At least you’re not alone in this!
Thank you replying! I read somewhere that why there's still pain even if it's drained is it because there's still an empty deflated bag inside us where the cyst was. So until it is removed we'll still experience minor pain and discomfort. I haven't had any infections for a long time after it was drained on its own but just wanted to find someone with similar experience!

I'm a female and frustrating to experience this. I mostly experience pain on my left side and just sit on angled positions. I've heard of tea tree oil but I don't know which one to buy. There's tea tree for acne, scalp and etc. I don't know which one to get. I've been using heat pads every night before I go to sleep as well and it's been what I do for the past 6 months.
 

HappyPhantom

Very Helpful
Yes, I can almost feel the structure of the cyst walls under my skin - it’s like a sleeping dragon. I do everything I can not to make it mad or wake it up.

I’m glad you’re using the heating pad but I’m sorry to hear it’s a nightly thing for six months. I understand your frustration completely - especially bc this isn’t exactly the type of thing you can explain to friends and coworkers, etc. like ‘hi, I just have this monster on my butt, it’s cool.’ (That’s what I love about this community - we all just KNOW the feeling.)

regarding tea tree oil - that’s a great question. There are lots of varieties of essential oil formulations out there, but sticking to a basic, plain tea tree oil essential oil from a trustworthy brand (I like Now Organics, auraCacia, and WholeFoods) is fine.

The #1 thing to remember about tea tree and any other essential oil is to make sure it’s diluted in water or plain ‘carrier’ oil (like sweet almond oil) because it is very irritating and can even cause a burn on the skin. 2 or 3 drops of tea tree oil diluted in a small dish of carrier oil (swirl or stir to mix) is sufficient.

I’ve kept a log of my flare up dates (or, really, just any time it acts up and makes me reach for my supplies) and the dates coincide with the week before my menstrual cycle. It’s wild.

I’m glad to hear that you haven’t had any more infections since it’s been drained - that’s excellent. The process/discomfort on a daily basis can feel really tiresome - have you tried some of the other suggestions like occasional iron supplements and/or lowering sugar intake?
 

enciel

New Member
Yes, I can almost feel the structure of the cyst walls under my skin - it’s like a sleeping dragon. I do everything I can not to make it mad or wake it up.

I’m glad you’re using the heating pad but I’m sorry to hear it’s a nightly thing for six months. I understand your frustration completely - especially bc this isn’t exactly the type of thing you can explain to friends and coworkers, etc. like ‘hi, I just have this monster on my butt, it’s cool.’ (That’s what I love about this community - we all just KNOW the feeling.)

regarding tea tree oil - that’s a great question. There are lots of varieties of essential oil formulations out there, but sticking to a basic, plain tea tree oil essential oil from a trustworthy brand (I like Now Organics, auraCacia, and WholeFoods) is fine.

The #1 thing to remember about tea tree and any other essential oil is to make sure it’s diluted in water or plain ‘carrier’ oil (like sweet almond oil) because it is very irritating and can even cause a burn on the skin. 2 or 3 drops of tea tree oil diluted in a small dish of carrier oil (swirl or stir to mix) is sufficient.

I’ve kept a log of my flare up dates (or, really, just any time it acts up and makes me reach for my supplies) and the dates coincide with the week before my menstrual cycle. It’s wild.

I’m glad to hear that you haven’t had any more infections since it’s been drained - that’s excellent. The process/discomfort on a daily basis can feel really tiresome - have you tried some of the other suggestions like occasional iron supplements and/or lowering sugar intake?
Can I ask about the flare ups? Do flare ups means that you get a small bump again? In my case I never actually witnessed it being drained. I just woke up one morning and the lower back part of my shirt was soaked with liquid which I found odd since it was sort of near my butt area. I initially thought it was just my sweat (which I later realized might have been my PC draining while I was asleep) and also when I checked the bump was gone so I think it was drained that time?

Also for the tea tree oil? When to apply it? When you feel pain or just in general?

Can I ask about the iron supplements as well? I haven't taken it yet but does having PC cause you to lose iron?
 

HappyPhantom

Very Helpful
These are all great questions and I’m happy to help!


For me, flare-ups mean that the cyst is actively swollen/actively irritated and filling up with fluid under the skin, which creates the bump. Sometimes mine do not form a bump, just discomfort and then draining.

It can spontaneously drain (exactly like you described) which is great. If it doesn’t, it can turn into a nasty abscess that then has to be lanced to relieve the excruciating pain. Normal occasional flare ups of just irritation, discomfort and eventual draining I just manage as they come with the heating pad and cleaning.

For the diluted tea tree oil, I personally like to use it twice a day - morning and night - as part of my regular hygiene routine whether I’m flaring up or not. Just soak a cotton pad or baby wipe with the mixture and then wipe on. It doesn’t help with the pain, but it’s a powerful antibacterial/antifungal/antiseptic that helps to clear out any germs and bacteria.

the iron supplements were an “a-ha” moment for me years back when I was trying to figure out what else I could possibly do to support my immune system and strengthen my blood, to hopefully help decrease the frequency of the flare ups. It helps - and I have no idea why exactly! But it does for me. (Both my mom and one of my doctors said well hey, if it works, I guess it doesn’t really matter why, just keep doing it).

My own personal theory is that it supports the red blood cell/white blood cell production, blood oxygenation and circulation - assisting the body’s ability to resolve the flare up. But I could be wrong.

It’s certainly worth a try as long as you’re not contraindicated for iron supplements (ie other meds and whatnot)

for the iron, I take a small dose (65 mg) of iron supplement daily for a few days, I do this every month. if I feel a flare up coming on, I definitely take it that day and for the following 2 or 3 days.

I also completely cut as much sugar as I can, using things like Stevia powder instead. Sugar often feeds inflammation and infections -so I cut that out whenever I’m about to flare up or having a flare up.

I hope some of this is helpful and please let me know if you have any more questions - I love that some of this info I’ve collected is of value! :)
 

Brenden Rothwel

New Member
Okay so this is really late in terms as to when the fourm was created so I really hope you are still active!

To start I am a 23 Year old male who has been riding jetskiis, dirtbikes and have taken multiple falls some extreme skiing several landing directly on my tailbone. Last winter I took a fall off a jump a rather big fall landing directly on my butt causing pain like you could not believe (could hardly walk for a week)

long story short during quarantine back in march I noticed a rather minor pain in my tail bone area with a small lump under the skin. Did some research and found out what it was and kind of brushed it off as it felt so minor. During the course of the summer it only aggravated me once during a 4 hour road trip in a rather uncomfortable dump truck. Then.....
In the beginning of october the beast was awaken after and it became very swollen and red the pain was brutal i went directly to the ER to have it lanced.

so now im a month out from it being lanced, the pain has not even come close to the pain I experienced during the major flare up but i noticed a small bump (the size of a pea) right where the incision was made. Only being a month out after experiencing my first real flare up I just started to experiment with some techniques in order to control this baby. I really do not like surgery. Ive had several rather random stupid surgerys in my life so i know what to expect but something about this operation gives me the heeber jeebers. I have some questions related to your techniques.

also i have been showering/bathing the past 3 weeks at least 3 times a day sometimes 2. I am an extreme hypochondriac when it comes to my bodily health.

p.S... sometimes the small lump will get irritated and a little red around the area. I noticed when i wear tight compression shorts this can happen.
I am also an extreme sweater so this doesnt help :(

How long do you let it soak in tea tree oil?

Do iron supplements actually help?
 

HappyPhantom

Very Helpful
Hi Brenden!

I’m so glad you got the first major flareup handled quickly and now searching for ways to manage the inevitable flare ups that will happen from time to time.

You are so right to notice that compression shorts irritate the area and can lead to the beginnings of a new flareup. As a general rule, you’ll want to make sure your undergarments and short/pants/whatever allow for some air - so cotton and looser layers are great for day-to-day. If you have to wear compression gear for activities, just make sure you don’t keep ‘em on too long. I’ve seen a thread on this forum discussing the effects of belts, too, and that those need to be considered as a possible irritant.

to answer your question about the iron, I’ll answer it like this. Yes, I think the iron supplements do help me - to the point where I always make sure I have some on hand and I always take 2 65mg tablets when I get that “oh no” feeling and notice a lump. My doc said hey, if it works, keep doing it. And it does, so I do. Provided you have no medical issues (other medications, etc) that could create an issue with taking iron supplements, I’d say give it a try. I’m not brave enough to see what happens if I don’t take them, if that tells you anything. I’ve been doing that for at least 5 years and I’ve seen a major difference

The diluted tea tree oil is a great antibacterial/antifungal that I place on a cotton pad and let it sit all tucked in to butt crack, against the side that ha Lol, sorry, really no other way to say that, HAHA!! I let it sit there for maybe 30 mins to an hour. Can’t stress enough: always dilute tea tree oil in water or in a plain oil like almond oil. Otherwise it can seriously burn the skin and you’ll have a whole different problem to deal with.

it sounds like your bathing routine is really solid, so bacteria-wise, the tea tree just helps that extra bit. The whole trick to managing the cyst is to keep the area clean, dry, and give it a little oxygen when you can.

if you don’t already have a heating pad, I suggest getting one (they’re like twenty bucks at the drug store and my MVP for sure). You can place it on your lower back area for 20 minutes or so, (i put it on “high”) that can help both reduce the lump you have now and it might even make it drain. I notice that whenever I use the heating pad on my flareup, it’s draining within a day, if not sooner.

another thing I suggest for you is to start looking for patterns with your cyst - much like you noticed the compression shorts, you might also find triggers in your stress level, your diet, and your activities. For me, sugar is problematic, so I immediately cut all sugar when I have a flareup. Things like that.

you’re at the beginning of this process - I’m so glad you have access to this forum from the start.

I hope this somehow answered your questions, and I’m always here if you have any more!!

best regards,
Abby
 

Brenden Rothwel

New Member
Hi Brenden!

I’m so glad you got the first major flareup handled quickly and now searching for ways to manage the inevitable flare ups that will happen from time to time.

You are so right to notice that compression shorts irritate the area and can lead to the beginnings of a new flareup. As a general rule, you’ll want to make sure your undergarments and short/pants/whatever allow for some air - so cotton and looser layers are great for day-to-day. If you have to wear compression gear for activities, just make sure you don’t keep ‘em on too long. I’ve seen a thread on this forum discussing the effects of belts, too, and that those need to be considered as a possible irritant.

to answer your question about the iron, I’ll answer it like this. Yes, I think the iron supplements do help me - to the point where I always make sure I have some on hand and I always take 2 65mg tablets when I get that “oh no” feeling and notice a lump. My doc said hey, if it works, keep doing it. And it does, so I do. Provided you have no medical issues (other medications, etc) that could create an issue with taking iron supplements, I’d say give it a try. I’m not brave enough to see what happens if I don’t take them, if that tells you anything. I’ve been doing that for at least 5 years and I’ve seen a major difference

The diluted tea tree oil is a great antibacterial/antifungal that I place on a cotton pad and let it sit all tucked in to butt crack, against the side that ha Lol, sorry, really no other way to say that, HAHA!! I let it sit there for maybe 30 mins to an hour. Can’t stress enough: always dilute tea tree oil in water or in a plain oil like almond oil. Otherwise it can seriously burn the skin and you’ll have a whole different problem to deal with.

it sounds like your bathing routine is really solid, so bacteria-wise, the tea tree just helps that extra bit. The whole trick to managing the cyst is to keep the area clean, dry, and give it a little oxygen when you can.

if you don’t already have a heating pad, I suggest getting one (they’re like twenty bucks at the drug store and my MVP for sure). You can place it on your lower back area for 20 minutes or so, (i put it on “high”) that can help both reduce the lump you have now and it might even make it drain. I notice that whenever I use the heating pad on my flareup, it’s draining within a day, if not sooner.

another thing I suggest for you is to start looking for patterns with your cyst - much like you noticed the compression shorts, you might also find triggers in your stress level, your diet, and your activities. For me, sugar is problematic, so I immediately cut all sugar when I have a flareup. Things like that.

you’re at the beginning of this process - I’m so glad you have access to this forum from the start.

I hope this somehow answered your questions, and I’m always here if you have any more!!

best regards,
Abby
Thank you so so much I cant express how kuch I appreciate it. These suck and I wish they didnt exist lol. I can tend to be a hypochondriac which is of no help in terms of this issue. Since it just started I havent gotten over the fact that I will have to deal with this forever unless I opt to have it removed.

I notice when I stress out about it I make it worse. The past 2 days I havent touched it at all and have barely looked at it and Ive noticed significantly that it has calmed down. i had picked up some tea tree oil and epsom salt today and I will gove it a shot!

also, after the first time I had it drained about two weeks after I went out with some friends and threw some jeans with a belt on... oh yeah the belt for sure did irritate it so I am staying away from tight fit pants/wearing a belt until it is completely healed.

I’ve read a lot of peoples stories on these and oh man they are brutal. In my opinion mine doesnt seem so bad as it really hast formed a lump and drained very very little.

i will take your advice into consideration in hopes of taming this beast in the butt. Thank you so so much.
 

HappyPhantom

Very Helpful
Thank you so so much I cant express how kuch I appreciate it. These suck and I wish they didnt exist lol. I can tend to be a hypochondriac which is of no help in terms of this issue. Since it just started I havent gotten over the fact that I will have to deal with this forever unless I opt to have it removed.

I notice when I stress out about it I make it worse. The past 2 days I havent touched it at all and have barely looked at it and Ive noticed significantly that it has calmed down. i had picked up some tea tree oil and epsom salt today and I will gove it a shot!

also, after the first time I had it drained about two weeks after I went out with some friends and threw some jeans with a belt on... oh yeah the belt for sure did irritate it so I am staying away from tight fit pants/wearing a belt until it is completely healed.

I’ve read a lot of peoples stories on these and oh man they are brutal. In my opinion mine doesnt seem so bad as it really hast formed a lump and drained very very little.

i will take your advice into consideration in hopes of taming this beast in the butt. Thank you so so much.
You are so welcome!! I'm here to help anytime.

You're right, it sucks. Majorly. I tend to be hypochondriac too and I'm right there with you on that. Collectively a lot of us on this forum have learned so much from each other, that it's definitely a big comfort knowing that we're not out there trying to figure all this out ourselves.

I personally believe there is so much we can do to support our bodies' ability to let these cysts sit dormant for long long periods of time - so all of my little methods and systems came from my need to find a way to live with this. Most of the time I honestly don't even have any issues and when I do feel a flare-up coming (like just three days ago, as a matter of fact) I knew just what to do (and now it's back to normal again). What triggered it this week was the fact that I bumped my back when I was moving a piece of furniture and I just knew I was going to flare up from that. I did, but it's already better and that was just two days ago.

Keep in mind: there's a chance that with each flareup, the cyst can track downward and essentially get worse from the inside. For that reason, it's wise to follow up with a doctor about it when you have your checkups in general - and consider surgery options in the future if it becomes really problematic. I really like the laser option, but it's not available yet in my area. When it is, I am definitely considering it - I like that it's not a full-on surgical deal. In general, though I do believe that we can live with this if it's relatively minor.

Let me know if you ever have any other questions - You will be okay. Keep up the good work!!!
 

Matty184

New Member
I am SO amazed/surprised/glad that this website and forum exist. Who knew so many people deal with this literal pain in the butt?
I am a 28 year old very active male (mountain biker, wrestler, snowboarder, duck hunter...all activities that I’m sure don’t help my situation.) I discovered 2 sinuses in my tailbone about 3.5 years ago by total accident when I “mooned” my brother and he noticed my “extra butt holes.”
I monitored these holes fairly closely for a while and actually forgot about them until I got married and my wife noticed them. Periodically she will pull a couple hairs out of one of them and I do my best to keep them clean. I was hopeful I was going to be the person that has sinuses but never any cysts or flair ups. But...about a month ago i started having pain when sitting and discovered a pea-sized lump to the right of my sinuses. I decided to go to the doctor to have him look at it and was fairly disappointed with his lack of knowledge o treatment. “Well...you could get antibiotics but those won’t do much. You could get surgery but that’s not always effective. Just keep an eye on it.”
So I am SO thankful for this thread that has given me real life answers for how to manage without surgery. My mom had the surgery about 30 years ago and her stories of it scare me like crazy.
I do have just a couple of treatment questions: Do you apply the heat pad to the affected area itself or above it on your lower back? Do you often get a cyst that never turns into anything more? Ei: the bump just kind of disappears? (I’m hoping that’s possible.) Thanks so much for sharing!
-Mat
 

HappyPhantom

Very Helpful
Hi Mat, great post and questions! It sure is a pain in the butt, huh?

Wow, that doctor - what the heck! Isn’t it unbelievable how little some doctors know about this issue? I’ve had a few myself over the years - one in particular took a moment to Google it as I was explaining it to her. I wasn’t quite sure how to react, lol!

To answer to your questions:
- I apply the heat pad right on the bump area itself. The way I worded it in my original post was kinda clumsy, sorry about that.

-yes, I get the bump every once in awhile, and it doesn’t turn into anything more. Now granted, these things have a mind of their own, so this is really a KNOCK ON WOOD scenario - because I’ve also had it randomly go to abscess and require lancing. However, in the years that I’ve been doing my routine, I have not had that happen. Again, knock on wood.

I’ll also note here that the cyst is essentially always there - it’s a sac under the skin which structurally just kind of sits there. The flare ups come from irritation, infection and/or injury and that is what causes the bump, redness, etc.

So this bump will come and go. For me as a woman, mine tend to follow my menstrual cycle (which I chart, and the flare ups nearly always occur the week prior) so there must also be some type of hormonal connection. Who knows.

Mine is weird in that if I bump it (which I do from time to time, bc I do yoga and sometimes I catch it funny on my mat) it will definitely lead to a flareup. Also if I wear garments that are way too constricting.


What works for me is cutting out sugar, heating pad, super clean, 2 iron pills and it’s draining within the day. the bump disappears, and the cyst goes back to dormant status. I hope that makes sense / that’s my experience with this, anyway. It is super annoying sometimes, but I’m just glad I’ve been able to manage it okay.

I’ve learned so much from this community and it has all helped in some concrete way. So that’s a big WIN in my book.

I hope this helps - let me know if you have any more questions!
Best regards, Abby
 
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