15 year old daughter has PD - Need advice

[stake1996]

Hey all,

My 15 year old daughter just had her second issue with PD. The first was a few years ago and it wasn't bad and didn't last long. This one recently became infected. She was literally unable to walk from the pain for a few days but the doctor prescribed antibiotics and it drained on it's own in a few days. Her relief was instant...right back on the soccer field the next day.

We saw the surgeon, that our pediatrician referred us too, this past week and he is recommending a cystectomy with keeping the wound open to heal. He's saying that it will take 6-8 weeks to heal and that she can play soccer during this time.

As a dad i've gone down the rabbit hole of learning as much about this as possible. I've read a lot and have found this forum. I was hoping you all could give some advice.

1) She doesn't want to do any type of surgery with her HS soccer season starting. The surgeon says she should do it now but can she wait until October?
2) Should we even do the surgery yet? Should we wait to see if it keeps coming back??
3) I don't see any cleft lift surgeons in our area (Middle TN)...is it worth flying to somebody and get that done after the season?


I'm sure there are other questions I should be asking. Any thoughts/ideas/advice is welcomed.

Thanks!

 

[Yorkville]

Hey all,

My 15 year old daughter just had her second issue with PD. The first was a few years ago and it wasn't bad and didn't last long. This one recently became infected. She was literally unable to walk from the pain for a few days but the doctor prescribed antibiotics and it drained on it's own in a few days. Her relief was instant...right back on the soccer field the next day.

We saw the surgeon, that our pediatrician referred us too, this past week and he is recommending a cystectomy with keeping the wound open to heal. He's saying that it will take 6-8 weeks to heal and that she can play soccer during this time.

As a dad i've gone down the rabbit hole of learning as much about this as possible. I've read a lot and have found this forum. I was hoping you all could give some advice.

1) She doesn't want to do any type of surgery with her HS soccer season starting. The surgeon says she should do it now but can she wait until October?
2) Should we even do the surgery yet? Should we wait to see if it keeps coming back??
3) I don't see any cleft lift surgeons in our area (Middle TN)...is it worth flying to somebody and get that done after the season?


I'm sure there are other questions I should be asking. Any thoughts/ideas/advice is welcomed.

Thanks!

Hey stake1996,

I was in a similar situation when I was younger, but with baseball. I decided to do the open wound surgery and missed my season...along with the next season for a 2nd surgery. Ended up having 5 surgeries over 8 years. The cleft lift surgery is what saved my life. An open wound surgery is definitely not the way to go and will likely not work. Many people have said the recovery from this surgery is worse then child birth. Changing the bandage everyday for months is the worst part. Extremely painful and all for nothing. Get the cleft lift surgery first, recovery is quick, painless, and the surgery works! It is 100% worth flying somewhere to get completed. I recommend Dr.Immerman in Wisconsin. He is world class. Best wishes to you and your daughter. Hope it all works out!

 

[kbreau16]

Hi
My son just had cleft lift… I agree with the comments above. You should have this procedure as minimal recovery time and rate of reoccurring is less than 2%
Totally understand she does not wanna take time off the soccer field and with soccer being a 12 month sport now perhaps you could do it in the month of December with her coach being on board as well