Don’t know what to do, please help!

CJ2024

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Any help will be greatly appreciated!! I had my first pilonidal sinus removal Aug’22 then had another surgery Jan’23 as the sinus had come back, wound wasn’t healing and kept getting infected. I had an emergency surgery 2 weeks later due to infection. The wound had been stitched every time. I was seeing nurses regularly for monitoring, dressings and cleaning the wound. I still got infections. Jun’23 I had another emergency surgery for it. This time they left the wound open (L-15cm, D-5cm) was given a VAC machine then moved to a Pico7 next was packing till the wound had finally closed (process was 7-8 months). 2 weeks after, the scar broke down and got infected so I’m back to an open, packed, infected wound (L-3cm, D-1cm). I’ve tried everything, I’ve had all the specialist care possible (I’m so thankful for it!!) but I’m stuck! I don’t know what I can do to keep it healed and to stop the infections. The wound is always clean, I have a high protein diet and use antibacterial soap. Does anyone have any advice please?
 
First, I’m so sorry you’re going through this!!! I had a fairly mild case, all things considered, but I know how horribly this disease can suck all your attention and drain your joy if you let it! I wouldn’t wish it on anyone.

Second, I do hate to be that person, but the cleft lift (when done by someone who knows what they’re doing) is FANTASTIC. I had a closed excision with a local doctor which closed up for a couple weeks & then reopened. Rather than have another excision (which have very poor success rates), I went right to Wisconsin. For cost, insurance covered the surgery and flights/hotels/food ended up being around $3k. I had much fewer activity restrictions than the excision, and was mostly healed within a month (fully healed by 6 weeks!). I truly recommend you at least consult Dr. Immerman before doing any other surgeries—he knows his stuff!! If you can’t afford to fly out, I would be surprised if he didn’t at least have a few other colleagues he could recommend.

As a heads up, I recently got a letter from the Sacred Heart Hospital saying the hospital was closing by April this year. I don’t know what Dr. Immerman is planning on doing, but you may want to reach out before then! I also loved the Sacred Heart Hospital—they were FANTASTIC and it was a very comforting and homey feeling place. Reach out if you have any questions!

EDIT: I just realized I am on the UK forum, so I apologize for any ignorance in my post. I would think you could at least still consult Dr. Immerman though if you’re able to, and he may know some UK doctors!
 
First, I’m so sorry you’re going through this!!! I had a fairly mild case, all things considered, but I know how horribly this disease can suck all your attention and drain your joy if you let it! I wouldn’t wish it on anyone.

Second, I do hate to be that person, but the cleft lift (when done by someone who knows what they’re doing) is FANTASTIC. I had a closed excision with a local doctor which closed up for a couple weeks & then reopened. Rather than have another excision (which have very poor success rates), I went right to Wisconsin. For cost, insurance covered the surgery and flights/hotels/food ended up being around $3k. I had much fewer activity restrictions than the excision, and was mostly healed within a month (fully healed by 6 weeks!). I truly recommend you at least consult Dr. Immerman before doing any other surgeries—he knows his stuff!! If you can’t afford to fly out, I would be surprised if he didn’t at least have a few other colleagues he could recommend.

As a heads up, I recently got a letter from the Sacred Heart Hospital saying the hospital was closing by April this year. I don’t know what Dr. Immerman is planning on doing, but you may want to reach out before then! I also loved the Sacred Heart Hospital—they were FANTASTIC and it was a very comforting and homey feeling place. Reach out if you have any questions!

EDIT: I just realized I am on the UK forum, so I apologize for any ignorance in my post. I would think you could at least still consult Dr. Immerman though if you’re able to, and he may know some UK doctors!
Hello, where did you stay and how long did you stay in Wisconsin pre and post op? How was traveling after surgery? Did you fly u to Minneapolis and drive? Please share your travel and cleft lift experience with Dr.
 
Any help will be greatly appreciated!! I had my first pilonidal sinus removal Aug’22 then had another surgery Jan’23 as the sinus had come back, wound wasn’t healing and kept getting infected. I had an emergency surgery 2 weeks later due to infection. The wound had been stitched every time. I was seeing nurses regularly for monitoring, dressings and cleaning the wound. I still got infections. Jun’23 I had another emergency surgery for it. This time they left the wound open (L-15cm, D-5cm) was given a VAC machine then moved to a Pico7 next was packing till the wound had finally closed (process was 7-8 months). 2 weeks after, the scar broke down and got infected so I’m back to an open, packed, infected wound (L-3cm, D-1cm). I’ve tried everything, I’ve had all the specialist care possible (I’m so thankful for it!!) but I’m stuck! I don’t know what I can do to keep it healed and to stop the infections. The wound is always clean, I have a high protein diet and use antibacterial soap. Does anyone have any advice please?
Can you see one of the UK specialists that often get recommended? Mr Carapeti (private) or Miss Senepati ( NHS and private).
 
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