My cyst flattened out, dried up but Tailbone hurts really bad

Dog Lover 21

New Member
Country flag
I was supposed to have surgery and a few days before the scheduled procedure I had the doctor take a look b/c the condition of the cyst had changed.

It went from something that looked like a big pimple to completely flat and almost looks like it may go away.

However I still have the tiny hole in the middle of my butt crack (pilonidal sinus) ... the pain is not so much there but the very bottom end of my tailbone.

I told the doctor about the tailbone pain, he said well that’s your tailbone and surgery is not going to help that, he said all surgery will do is create a new wound.

That was about 3 months ago and the tailbone pain seems to be getting worse and worse.

Of course if I webmd this it says scary stuff like possible cancer etc... but I’m just wondering if anyone else has experienced something similar and if there is anything you recommend to help with the pain? I’ve tried advil but that just ends up upsetting my stomach
 

Dog Lover 21

New Member
Country flag
Well I saw a doctor/surgeon about it 2 months ago... pain then was similar just not as severe. He recommended advil, said he advised against surgery... and that there was nothing visible. I just wonder if I need an x-ray.
 

KatieMarie

Very Helpful
Country flag
Hi DogLover. I am so sorry for what you are going through.

My tailbone was very sore when I had my pilonidal cyst as well. Even when it wasn’t flaring up and looked okay from the outside, my tailbone would still be extremely sore. Then eventually, the cyst would flare up again, fill with fluid, and drain. Unfortunately, pilonidal disease has a very high recurrence rate without surgical intervention, especially if you have visible holes/pits.

I had my cleft-lift procedure in Wisconsin with Dr. Immerman 2.5 years ago (after a terrible failed surgery in Michigan) and I’ve been 100% healed ever since. The location of pilonidal cysts (which can go quite deep) and sinus tracts is very close to the tailbone. So it makes sense that if you have inflammation under there or any kind of open pocket, that your tailbone would be sore. Mine has not been sore since my successful surgery. An X-ray would not be helpful in your case since it’s very likely your pilonidal cyst that is causing the pain and it would not be easily visible on an X-ray.

If you do decide to get surgery, just make sure it’s with an expert. It was worth the money and travel to have it done by Dr. Immerman and I wish I would’ve done it sooner. The cleft-lift has been studied and shown to offer the best long-term recovery but it needs to be done by someone who has perfected it!

I hope you can find healing and move on from this horrible disease!
 

Katie.wilks

New Member
Country flag
I was supposed to have surgery and a few days before the scheduled procedure I had the doctor take a look b/c the condition of the cyst had changed.

It went from something that looked like a big pimple to completely flat and almost looks like it may go away.

However I still have the tiny hole in the middle of my butt crack (pilonidal sinus) ... the pain is not so much there but the very bottom end of my tailbone.

I told the doctor about the tailbone pain, he said well that’s your tailbone and surgery is not going to help that, he said all surgery will do is create a new wound.

That was about 3 months ago and the tailbone pain seems to be getting worse and worse.

Of course if I webmd this it says scary stuff like possible cancer etc... but I’m just wondering if anyone else has experienced something similar and if there is anything you recommend to help with the pain? I’ve tried advil but that just ends up upsetting my stomach
DogLover_I had pain for weeks before I actually saw a cyst on the surface last year. I went through something similar where I was told it was nothing. I would recommend getting another opinion before you end up with a flare up. Dr Immerman, Dr. Bascom and Dr. Shrager seem to be the highest recommended on this forum. I had surgery in March and very unhappy that I am still in pain and have an open wound. I have an appointment this Wednesday at the Pilonidal Center of NJ to see their specialist. I wish I had found this forum before I let my surgeon operate on me again.
 

CoryB

Helpful
Country flag
I would most definitely visit a doctor whom is educated in pilonidal disease and, more importantly, the cleft lift procedure. If you haven't had surgery, chances are high that the disease is still present. It sounds like it did drain, but it will most likely come back as the tracts are still present (not visible). I wish you all the very best!
 
I agree that you need to see a specialist. If the disease is not treated right you will have problems. I had 2 sons with the same problem and they had to go through many wrong surgeries till they got a cleft lift with Dr Wadie in Raleigh 3 years ago. No issues since then. Find a specialist close to you. Depending on where you are located the best in the country are Dr Immerman in WI, Dr Bascom in OR, Dr Wadie in Raleigh and Dr Sternberg in CA
 
Top