Severity of pain

[Shannyn747]

Compared to the worst pain you've ever experienced, how would you rate your pain associated with this disease?

 

[Shannyn747]

In my experience, this pain in my butt has been the worst pain I've ever had to deal with... over and over. Too many times I have had others comment "It doesnt look like it hurts THAT bad". I am curious how others compare it. To me... there is no comparison!

 

[nenbear]

You know, they always say "It's not as painful as childbirth". For those of us not familiar with the pain level of bearing young, that means nothing. I've had broken bones, other cysts in various places, more sprains than I care to recall, but this is by far the worst pain I've felt. Most likely because it DOESN'T GO AWAY.

 

[Kali]

Severe. Enough to hurt a lot to lie on my back (had to change the position of my legs) and have sitting forbidden and have my walking slowed down. Ibeprophen(sp) did little for me[(]. nothing like that hurt me, mainly because this pain lasts for days!

 

[AnditStarts]

When asked by my surgeon how bad did I think the pain was in comparison to all I'd had thus far in my 27 years of living.... I told him I'd rather have a rottweiler try and take my thumb off again then go through this. Then he followed it with.. you don't have children do you? Most women he has helped through this says they'd rather go through child birth again... so I have heard that comparison from him and one of my nurses who has been through both. She said give her a baby any day... but never a PC!!

 

[Inkara1]

Oddly enough, mine's the exact opposite. I've never felt real pain there at all. I've felt pressure in the cyst when the fluid builds up, but never anything that qualifies as pain. I've got both the cyst and the sinus.

 

[Anonymous]

OMG...I used to get small flare up ..but when I got the one that I needed treatment..I was painting a floor and went to stand up and almost threw up I was in so much pain. I ended up walking around like a little old lady. I agree..with many of you that it was incomparable to any other kind of pain I've experienced. I wonder..for those of you that had one on your tailbon...do you get them under your arms too?

 

[Jam]

For those who compare it to childbirth let me tell you there is nothing like having a baby AND having the worst flare up of your life at the same time! I mean: in labor and flare up at the same time people! Good Lordy! [8)] Childbirth was worse, BUT, it went away (thank you epidural!) and I can reasonably tell when it will happen again. [|] With the PC you never know. I am terrified of having another baby because of the prospect of having another horrible flare up while in labor.[:xX]

 

[PostalService]

Julie (JAM),

OMG, i am soo sorry you had to edure that! You certainly win the prize for most pain endured.

 

[PostalService]

For me the pain is just horrific, I have now had 5 surgeries with each one being more painful than the last. My last surgery they moved my butt muscles around and when I woke up, HOLY SHIT, I can not even describe the pain I was in, my entire body was shaking uncontrolably and I swear I was in shock. I was in recovery for over 4 hours just trying to get me stable. I then spent a week in the hospital, but suffice to say it was the most painful experience of my life. Which is why this surgery better friggin work!

 

[msblack7of9]

now i gotta tell yall that i was in labor for 40 hours giving birth to my son but i have to honestly say that having a pd was worse and especially if you have to have it lanced. although the pain goes away after it's lanced or surgery, the KIND of pain is what killed me and this is pain that no one should have to go through. if your going to have a lancing beg your doctor for some morphine way BEFORE the lancing is done. that's the only thing that helped me.

7[=(]

 

[clairecita]

I thought the worst was over when I went in for surgery to excise my abcess... little did I know the worst was yet to come... My "nurse" couldn't give me any painkillers 14 hours after surgery as they had taken my chart to the pharmacy. But she insisted it was time for my first dressing change, I had 5 metres of packing gauze stuck to the inside of my wound, and she just kept pulling it out! I was screaming so loud one of the other patients went to find help for me... luckily for me I went through the experience twice more since then with no pain but I still get emotional every time I remember that experience! No way can childbirth be worse, or at least you get something really lovely at the end of it! LOL

 

[lynne22]

I have never given birth.. more than likely never will... not because I dont want to, the boyfriend has had his uhhh... well, its taken care of.... but...
this was the most pain I was ever in, even after having a brick thrown at my face and breaking my nose. I went to work, did as normal, and my boss had to plead with me to leave, and go to the doc. I know that I would not wish this on anyone, except my future mother in law[:xx]. To the women who have given birth, bless you.

 

[Luc]

I voted moderate. I can in no way compare to childbirth (I'd be a scientific marvel) but my flare-up was pretty bad until it drained itself. It is now the 2nd worst pain I've ever felt, a distant second to my back injury plus nasty sciatica flare-up that lasted 4 months that vicodin couldn't even touch. (PC pain was bearable with simple OTC Advil).

I feel sooo bad for all whose flare-ups were more painful than mine.

 

[okpondlady]

This is my first post here. When my husband asks me why it hurts I tell him it is like having a baby but that GOES AWAY soon. Seems like you forget it. You can't forget this pain. It is with me everytime I sit, stand, lay down in the bed, go to the bathroom. The pain from the first two surgeries were minor compared to this last one. I had my first surgery June 18th this year (for an "anal fissure"), #2 August 25th for the first perianal abscess, #3 October 18 for the same recurring abscess. Now I think I have it again. I am going to the dr tomorrow to see. The surgery in October and this current problem is the only ones I have been to a colo-rectal specalist and he is board certified. He is a very good doctor and seems quite competent. I did very well after the second one, until I had to do the washing (OMG!!!) Since I am so heavy I can't get into the bath to do a sitz bath. I use my shower wand that comes off the wall to spray myself for 10 minutes, 4 times per day and after each bm. OMG it hurt soooo much. I would rather have a child, at least you get it over with and it isn't repeated torture several times per day. Even the Percocet didn't dent it.
I did learn REAL FAST though, do NOT skimp on the laxitaves. Constipation was a real BI*** and it has hurt much more after that insidence.

SO yes, I vote EXCRUCITING and I want my MOMMY!!!! But I would rather just have major drugs to be knocked out with. My mommy is an RN who thinks you should just Tough It Out. She says I am a wiener.
I told her, let them cut you a new asshole and see how tough you feel. [:^]

Karen

 

[Mystic_Veridian]

It's absolutely terrible, at first the pain was pretty severe, but since yesterday, it has become crippling. I've never had one before.

 

[Anonymous]

I'd say excruciating the first time I got an abscess. I couldn't walk or sit down.

 

[ZenZen]

At it's angry-est my cyst was the worst pain EVER. I wouldn't wish this on anyone. I half passed out twice because the pain was too severe and nearly vomited a couple times. Believe it or not.. I did wind up crying in my mothers lap. I'll take drugs any day to keep me from feeling this way again. I've been kicked by horses and stepped on and rolled over and nothing compares to PC pain. All the other stuff is like sneezing too hard.

 

[pain-in-the-butt]

quote:Originally posted by nenbear

You know, they always say "It's not as painful as childbirth".

Yeah, I can vouche for that one and say it's partially wrong!!
I gave birth just over a month before I had my surgery and the two flare-ups I had during pregnancy...well, it would've hurt less to give birth both of those times than to have had the pain I had concentrated at the top of my crack...It was so red and swollen that I could barely walk. The only thing that didn't count was that I was pushing for 3 hours with my broken tailbone hurtin like a mo-fo (and that was with an epidural!!), and as soon as the pressure of the cyst is relieved, that feels better...

 

[opus87]

I vote moderate. I did have the lancing, which was horrible -- my doctor didn't even drug me first -- but have yet to have the surgery. But on average it is moderate. In comparison to scoliosis surgery and back pain, I would rather live with this.