Too Soon for Further Treatment??

slegab

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I’ve had five pilonidal cysts since December. The first three went away on their own. Fourth one reached pain levels of 10, I could not walk, I could not even last until my appointment with my surgeon and instead went to the ER at 1am. A couple days ago #5 popped up so I went in to nip it in the bud before it got that extreme. I just got my fifth one lanced today at the surgeons office by a nurse practitioner.

I have a follow up appointment in a couple weeks. I asked about procedures to stop this reoccurrence and she said it’s still too early to consider doing anything....

So am I expected to continue getting one pilonidal cyst a month???? Going through this tremendous amount of pain, missing school and work and commitments, until I’ve suffered for what is considered to be “long enough” to take action?

Is she right? If so, at what point should I start thinking about further procedures?
 

HappyPhantom

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Is this the same cyst/location recurring over again 5 times in a row or 5 distinctly separate areas/cysts?

I really feel for you - mine recurred 3 times since October and I was at the end of my rope - so hopefully you can get your situation resolved soon!!

In my opinion, it is not too soon to consider surgical options. Evidently, these get worse/deeper with each recurrence and like most things in life, easier to tackle while they are at their newest/smallest.

I do not think 5 since December is a trend you need to live with in any way! Those of us that know the pain know that's no way to live.

do you have a general doctor that you see? Do you have a way to get a referral for a colorectal specialist to take a look at your situation? At this point, to me that sounds like the most efficient and solution-based option.

Another option/question - are you a female and these are in conjunction with your cycle? I've read connections between hormone levels and recurrence - if so, I can reply with more detail. If not, my apologies
 

slegab

New Member
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Is this the same cyst/location recurring over again 5 times in a row or 5 distinctly separate areas/cysts?

I really feel for you - mine recurred 3 times since October and I was at the end of my rope - so hopefully you can get your situation resolved soon!!

In my opinion, it is not too soon to consider surgical options. Evidently, these get worse/deeper with each recurrence and like most things in life, easier to tackle while they are at their newest/smallest.

I do not think 5 since December is a trend you need to live with in any way! Those of us that know the pain know that's no way to live.

do you have a general doctor that you see? Do you have a way to get a referral for a colorectal specialist to take a look at your situation? At this point, to me that sounds like the most efficient and solution-based option.

Another option/question - are you a female and these are in conjunction with your cycle? I've read connections between hormone levels and recurrence - if so, I can reply with more detail. If not, my apologies

Please respond with more detail!! I am a female and all of them have flared up several days before/during my period.

As for if they’re separate cysts or the same one, I’m not too sure. The locations are pretty much the same- so it seems like the same one coming back.
 

HappyPhantom

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Ok yeah, then it's Probably the same cyst that just keeps flaring up over and over again (which is what they do -- aren't we lucky??)

Evidently, there could be a connection between hormonal levels and recurrence of the cyst's infection. They're not sure if it has to do with the ovulation component or the accompanying hormone fluctuation, but I've read that there could be a connection there. An idea (desperately looking for things to help contain the monster!!!) is to consider birth control pills if that's appropriate or an option for you - theory being that it controls the fluctuation of hormones. It's just an idea to consider - because with 5 flareups just since December, that's literally the first thing I thought of for you was that it must be somehow connected to your cycle.
 

slegab

New Member
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Ok yeah, then it's Probably the same cyst that just keeps flaring up over and over again (which is what they do -- aren't we lucky??)

Evidently, there could be a connection between hormonal levels and recurrence of the cyst's infection. They're not sure if it has to do with the ovulation component or the accompanying hormone fluctuation, but I've read that there could be a connection there. An idea (desperately looking for things to help contain the monster!!!) is to consider birth control pills if that's appropriate or an option for you - theory being that it controls the fluctuation of hormones. It's just an idea to consider - because with 5 flareups just since December, that's literally the first thing I thought of for you was that it must be somehow connected to your cycle.

Thank you SO much for all of your help and responses to my postings! You have truly been a comfort in such a stressful time. I'm definitely going to schedule a visit with my gyno and talk about the possibility of going on birth control pills. Hopefully, that at least HELPS.
 

HappyPhantom

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Oh my gosh, you are so welcome! That makes me so happy to hear - bc I feel like for all the pain and suffering I've been through with my own cyst experience(s), if I can help someone else even in the smallest way then that makes me really happy.

If you think about it - we're all in this together. Every single person on this board understands the agony and stress.

Good luck and check back in! I'll keep my fingers crossed for you!!
 
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