Personal Stories of Pilonidal Disease
*NOTE* This page is for your story of dealing with Pilonidal. If you have questions and need community support please go to the Discussion Board Forums.
People usually use the Internet for medical information when they are having negative experiences. Think about it — when you feel healthy, you really don’t fixate on your health as much. Consequently, when reading through the personal stories and discussion boards on this site, you may find yourself reading a disproportionate amount of people’s complications or problems with their Pilonidals.Please, keep in mind that nearly 75,000 people in the United States have Pilonidal Disease, and of the thousands of these operations performed every year, less than 10% develop complications – the rest of the surgical operations and subsequent healing go quite smoothly.
Share Your Story
The sharing of stories is a significant part of a community. Through our shared experiences, we grow knowledge and help each other feel less alone when going through a medical problem.
The Stories
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Hello My name is Faiq. I first detected my pilonidal sinus in 2021. initially took antibiotics to fix it, but it didn’t. Then ultimately decide on surgery as the only solution. Unfortunately, I had two failed surgeries: one in July 2022, which was open wound surgery, and the second was laser surgery in November 2023. I felt hopeless as surgery is very mentally exhausting stuff for the whole family, especially keeping in mind the complications post-surgery. All traditional surgeries failed. The only surgery that was left for me was flap surgery. Flap surgery also has many types, such as the…
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Hello everyone! I had my first interaction with Pilonidal Sinus in Mumbai in 2021. It first began with me feeling a lot of pinching pain in my gluteal cleft and a few days past by and I met a doctor who said it looks like a case of Pilonidal Sinus. He referred me to a surgeon who told me to take a MRI and afterwards said that I will 100% need excision of the Pilonidal Sinus surgery. (I’m typing this from my phone so I apologize for any weird formatting or grammatical mistakes, hard to keep track on a phone)…
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This is my third go around with a cyst with two surgery performed, I. At a loss no obese active enough, this time it’s very small with no drainage or severe discomfort, I don’t want surgery anymore but want a solution I really wish everyone many blessings this Christmas. Is there any hope for me please reach out if you can any encouragement via email would be o so appreciated, God bless!
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I don’t think I’m the only one when I say, that was a pain in the ass! I’m still dealing with dressings everyday and I’m over it. It takes a massive toll on you. I feel embarrassed every time I have to pull down my pants. I feel like I have no hope left, everyone’s telling me be prepared for it to come back? it’s now my worst fear. I’m usually really good with pain, never complained much. I thought it was a bulging disc until I was admitted to hospital and got told I had this. I work in…
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I fiirst got one at 25 and the pain of them pacing it omg I had to have that done 3 times and it did nothing it just got worse and worse and oh the amount of pain i have been through so i finally have a huge surgery because it had grown so much and traveled throughout my whole butt. I remember waking from the surgery and the doctor says to me that he could say whether it was fixed or not or if he got it all and that it could come bacik again one day. It tooik…
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So i read some of these and people are saying that they felt it coming on for a while and just ignored it but for me it was in the span of a week where i started feeling the discomfort sitting to not being able to fully straighten my back when getting out of bed i tried to deal with if for like a couple days thinking it was maybe a bruised tailbone but i couldn’t bear it and went to urgent care and they told me it was a pilonidal cyst and this all started maybe a little over…
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I first noticed a flare up in 2008, I was in 10th grade at the time. My mom and aunt looked at it and said I had a cyst on my tailbone. My aunt found some pigsweed and chewed it and put it on the spot. It helped temporarily, but it kept flaring back up. So I went to a doctor who said they’d have to lance it because it was infected. She said there’d be no point in numbing it, because by the time it was numb, it could be lanced already. My mother and I weren’t aware of…
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It all started 6 years ago. I remember feeling so much pain! It was a good 10/10 of pain! My friend had a look at my tailbone and it was a massive bruise! I started crying. I went to my GP and he immediately told me to go to the emergency.. just before going to the emergency I went to the bathroom and blood started pouring out like a fountain! It was my first surgery ever, I was crying so much from the pain and from having anxiety! I woke up from my first surgery, I had no idea what…
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I have always had occasional soreness on my tailbone which I had assumed was attributed to a bruised tailbone from the pressure of sitting down for long periods of time. Looking back on my past experiences, I wish I could have prepared my future self for what I would endure due to what was indeed, not a bruised tailbone, but a recurring pilonidal cyst. A little over two weeks ago, I started experiencing discomfort and pain in my tailbone area but ignored it and brushed it off. I was traveling a lot due to the Thanksgiving holiday and spent a…
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I’m 45 years old, and I was cured of this approximately 17 years ago. I don’t know what made me think of this today, but I was reliving some awful memories, I suppose, and ended up here. I started with the pain when I was about 23 or 24. It was paralyzing when I hit it just right, I remember the pain being shocking. I had a hard time sitting down, of course. So, I went to the doc, and told him I thought I had a hemorrhoid. After all, I couldn’t sit down, and the people on the hemorrhoid…